Role of Parents In The Development OF

PwIDDs

Jhnasi Lakshmi B
Sai Prema Parent Association
Vijayawada

What is an Intellectual Disability?

What Causes an Intellectual Disability?

Genetic conditions.
Problems during pregnancy.
Problems at birth.
Health problems.

How Common are Intellectual

Disabilities?

What are the Signs of Intellectual

Disability?
1. There are many signs of an intellectual disability. For
example, children with an intellectual disability may:
2. sit up, crawl, or walk later than other children;
3. learn to talk later, or have trouble speaking,
4. find it hard to remember things,
5. not understand how to pay for things,
6. have trouble understanding social rules,
7. have trouble seeing the consequences of their
actions,
8. have trouble solving problems, and/or
9. have trouble thinking logically.

How are Intellectual Disabilities

Diagnosed?
Intellectual disabilities are diagnosed by
looking at two main things.
1. Intellectual functioning
2. Adaptive behavior

Parent need to ..
1.
2.
3.
4.
5.
6.
7.

Learn about intellectual disability.

Be patient, be hopeful.
Encourage independence
Give your child chores.
Give your child frequent feedback.
Find out what skills your child is learning at school.
Find opportunities in your community for social
activities,
8. Talk to other parents
9. Meet with the school and develop an IEP to address
your childs needs.
10. Take pleasure in your beautiful one.

parents can have a significant impact on their

children's values and expectations in terms of
independence and social integration
Benz & Halpern (1987)

Babies and Toddlers

Early intervention

Parent as selector and coach

School-Aged Children
Parent As a Negotiator and Supporter

Individualized Education Program

Educational Considerations
General education
Supplementary aids and services
Adaptive skills
Transition planning

Transition from school to work

Parent as a Mentor and Transformers

Disabled child is able to make concerning
academic, social and vocational skills.
Yet very few programs directly address the
needs of the parents of disabled youth.

vocational evaluation
developing employment skills
independent living skills
social skills training
community work experiences
inclusion with non-disabled adults

Networking
1. Parivaar members, professionals, and other
parents continue to lobby hard for National
legislation for children with disabilities. Result:
2. 1995 PwD Act
3. 1999 National Trust Act
4. Now Rights of Persons with Disabilities Bill2014

conclusion
Parents play an integral part in the lives of their disabled
children. Transitional success is less likely without their
participation.
Parents continue to have an influence on their disabled
children even after the child's transition to adulthood.
Parents have a significant role to play in assuring that
the rights mandated by law are provided to their children.

.... Next.?
How can families support the relationship
of siblings in the future?
Is it future planning important to adult
siblings of people with disabilities?
How can families include siblings in future
planning?
Preparing for the future caregivers

Thank You