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Scott Clink
LIS 5143
Class Final
Gov. Publications
Adriana Edwards- Johnson

Pop-culture reference: (Book) The Curious Incident of the Dog in the Night-time.

Topic: Government publication and sources for those dealing with Autism Spectrum

Disorder (ASD).

Haddon, Mark, The Curios Incident of the Dog in the Night-time (New York: Vintage Books,

2003)

Centers for Disease Control and Prevention, National Center on Birth Defects and

Developmental Disabilities. “Autism Spectrum Disorders Fact Sheet” Dept. of

Health and Human Services.

http://www.cdc.gov/ncbddd/autism/actearly/autism.html (accessed December 6,

2007)

A website put out by the CDC to bring awareness to Autism Spectrum Disorder (ASD).

The website explains what ASD is and it lists some of the symptoms. It also provides

developmental milestones that most children develop by specific ages. This site also

provides facts regarding Developmental Screening, Autism Spectrum Disorder, Cerebral

Palsy, Vision loss, Intellectual disability, Hearing Loss and ADHD. The site also

provides a list of resources, professional healthcare information, childcare resources and

a list of partners.
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Centers for Disease Control and Prevention. “Autism information center,” Dept. of

Health and Human Services.

http://www.cdc.gov/ncbddd/autism/states/ (accessed December 6, 2007)

This website provides information to two networks that are recognized by the CDC in

sixteen states. Autism and Developmental Disabilities Monitoring Network (ADDM)

goal is to “provide comparable, population-based estimates of the prevalence rates of

autism and related disorders in different sites over time.” While the second network

Centers for Autism and Developmental Disabilities Research and Epidemiology

(CADDRE) is currently working on a national study: “Child Development and Autism –

a five-year, multi-site collaborative study to help identify factors that may put children at

risk for autism spectrum disorders (ASDs)”. This website also provide news and

highlights regarding autism.

Centers for Disease Control and Prevention. Media Relations Link “CDC Releases New

Data on Autism Spectrum Disorders (ASDs) from multiple communities in the

United States,” Dept. of Health and Human Services.

http://www.cdc.gov/od/oc/media/pressrel/2007/r070208.htm (accessed December 6,

2007)

This website discusses the information regarding studies to determine the actual number

of children who suffer from autism. The research is designed to show reliable numbers

of those who suffer from this behavioral syndrome. “The studies also looked at when
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parents and others first noted signs of developmental concerns in their children.” Hope is

that this research will lead to better early detection for those who have ASD.

Centers for Disease Control and Prevention. Science Ambassador. “Science

Ambassador Lesson Plans,” Dept. of Health and Human Services.

http://www.cdc.gov/ncbddd/folicacid/ambassador_pgm/lessonplans_autism.htm

(accessed December 6, 2007)

This website provides middle school and high school lesson plans for educators who

teach Biology and/or Life Science. These lesson plans are designed to help evaluate,

identify signs, expose them to current scientific research and literature.

Centers of Disease Control and Prevention. Vaccine Safety. “Measles, Mumps, and

Rubella (MMR) Vaccine and Autism Fact Sheet,” Dept. of Health and Human

Services.

http://www.cdc.gov/od/science/iso/concerns/mmr_autism_factsheet.htm (accessed

December 6, 2007)

This website provide information concerning the controversy the MMR and the onset of

autism in children. This site provides information in regards to how the study came about

and highlights information in which “10 out of 13 authors in the 1998 study retracted the

studies interpretations.” This website also provide more information addressing autism

and other organizations which address concerns facing autism.

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Centers for Disease Control and Prevention. “ New Jersey Autism and Developmental

Disabilities Monitoring (ADDM) Project.”

http://www.cdc.gov/ncbddd/autism/states/NJ-ADDM.pdf (accessed December 7,

2007)

This website identifies what Autism and Developmental Disabilities Monitoring

(ADDM) does and more specifically discusses the New Jersey Monitoring location and

what its specific guidelines are towards research, programs, studies being conducted, and

laws and statutes concerning those with Autism Spectrum Disorder (ASD).

Centers for Disease Control and Prevention. Autism Information Center. “Congressional

Activities”

http://www.cdc.gov/ncbddd/autism/federal/congressionalactivities.htm (accessed

December 7, 2007)

This website provides nine congressional activities regarding autism. It also provide

quick links to other sources in the area of research and monitoring, and provides news

and highlights that parents might find beneficial for themselves and their children who

are dealing with autism.

Dunlap, Glen. Teaching Students with Autism, Reston, VA: ERIC Clearinghouse on

Disabilities and Gifted Education (1999)

This government document discusses teaching methods when dealing with children who

have Autism Spectrum Disorder (ASD). This digest goes over seven steps in which an

instructor can use to help encourage and motivate learning. Since children with ASD
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have communication and motivational issues how to encourage and manage those issues

are discussed along with instructional formats, positive behavioral support and age span

considerations.

Dunlap, Glen and Mary-Kay Bunton-Pierce. Autism and Autism Spectrum Disorder

(ASD), Reston, VA: ERIC Clearinghouse on Disabilities and Gifted Education

(1999)

This government document recognizes autism, not as an illness or a disease, but as a

behavioral syndrome. Many different forms of Autism are noted providing definition to

those specific behavioral syndromes. Behavioral descriptions regarding autism are

discussed: “verbal and nonverbal communication, social relatedness, and leisure and play

activities.” Diagnosis and evaluation, prevalence, approaches to intervention and

educational support are highlighted in this article.

NIHCHD. Rett syndrome. Rockville, MD: U.S. Dept. of Health and Human Services,

Public Health Service, National Institutes of Health, National Institute of Child

Health and Human Development (2001)

This booklet describes the symptoms of Rett syndrome, which falls into the category of

Autistic Spectrum Disorder. Rett syndrome affects infant girls starting from 6 to18

months. This booklet explains what happens to girls, as they grow older, the cause of Rett

syndrome and answers the question is there any cure.

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NIHCHD. Practical Oral Care for People With Autism. Bethesda, MD: U.S. Dept. of

Health and Human Services, National Institutes of Health, National Institute of

Dental and Craniofacial Research (2006)

This booklet is designed to provide information to help caregivers and parents manage

dental care for individuals with Autism Spectrum Disorder. It provides steps, which will

help the caregivers and parents, in introducing an autistic individual to proper oral care.

A few of the steps: bring the autistic patient to the office so they can become comfortable

in the new environment, introduce the patient to the doctor, show the patient the chair in

which they will be sitting and the tools that will be used on them.

NIHCHD. “Autism Facts” National Institute of Health.

http://webharvest.gov/peth04/20041113101022/http://www.nichd.nih.gov/publicati

ons/pubs/autism/facts/index.htm (accessed December 6, 2007)

A federal record now managed by the National Archives and Records Administration.

This website was produced by the National Institute of Health. This site provides facts

regarding autism, discusses what autism is, who is affected and how many people have

this behavioral syndrome. It discusses the current knowledge regarding vaccinations,

provides symptoms and conditions for this disorder. What signals and conditions to look

in a child’s behavior and when should a doctor evaluate the child for diagnosis.

United States Congress. House Committee on Government Reforms. Autism : present

challenges, future needs--why the increased rates? : hearing before the Committee

on Government Reform, House of Representatives, One hundred and sixth

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Congress, second session, April 6, 2000. Washington, DC: Government Printing

Office (2001)

A congressional hearing discusses the increased rate of autism in the United States and

the lack of medical assistance being provided to those whose children are affected by this

behavioral syndrome. The Center of Disease Control (CDC) and the National Institute of

Health (NIH) both testified before congress regarding the “ongoing research and future

needs.” The theory that vaccinations maybe one of the possible causes for autism is

discussed but studies suggest there is no correlation between autism and childhood

immunizations.

United States Congress. House Committee on Government Reforms. The status of

research into vaccine safety and autism: hearing before the Committee on

Government Reform, House of Representatives, One Hundred Seventh Congress,

second session, June 19, 2002. Washington, DC: Government Printing Office

(2002)

This document discusses the lack of funding by the National Institutes of Health (NIH)

and the Center for Disease Control and Prevention (CDC). This document discusses

better funding, 120 million to the NIH and 8 million to the CDC, for research into

vaccine safety. Autism Spectrum Disorder is discussed, as an epidemic stating 1 in 250

children will be diagnosed with some form of ASD.

United States Congress. 107th Congress Hearing Second Session. The Autism

Epidemic--Is The NIH And CDC Response Adequate? Hearing before the
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committee on Government Reform House of Representatives, Washington, DC:

Government Printing Office (2002)

A congressional hearing where Autism is considered as an epidemic. The definition for

this epidemic “a condition is considered epidemic when it occurs suddenly in numbers

that are clearly higher than normal” is noted in the hearing. This hearing discusses the

increased numbers regarding autism, the fact that more boy than girls are affected by this

behavioral syndrome, its first diagnosis 60 years ago, a steady increase in autism being

diagnosed across the globe, the discussion of funding for research and testimonies from

families who have to deal with an autistic child.

United States Congress. House Committee on Government Reform. Subcommittee on

Human Rights and Wellness. Truth revealed: new scientific discoveries regarding

mercury in medicine and autism: hearing before the Subcommittee on Human

Rights and Wellness of the Committee on Government Reform, House of

Representatives, One Hundred Eighth Congress, second session, September 8,

2004. Washington, DC: Government Printing Office (2004)

This report discusses the use of mercury in children’s vaccines. “The mercury

derivative thimerosal” is used in the production of many child vaccines. Pharmaceutical

companies have the ability to produce over the counter items as well as vaccines that do

not contain thimerosal. The diphtheria, tetanus, pertussis vaccines, the flu vaccine and

hepatitis B vaccines still contain the mercury derivative. The report further discusses

testing done on mice regarding the use of thimerosal and the risks associated with

neurodevelopment disorders.
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United States Congress. House Committee on Government Reform. Subcommittee on

Human Rights and Wellness. The future challenges of autism: a survey of the

ongoing initiatives in the federal government to address the epidemic: hearing

before the Subcommittee on Human Rights and Wellness of the Committee on

Government Reform, House of Representatives, One Hundred Eighth Congress,

first session, November 20, 2003. Washington, DC: Government Printing Office

(2004)

This government document discusses the explosive increase of Autism in California and

across the country. Education is considered tantamount in improving the quality of life

for children who suffer from Autism Spectrum Disorder (ASD). The cost of funding

research, training and education is approximately 10 billion dollars and approximately

400 billion by 2013. Funding initiatives for non-governmental agency and treatment

centers as ways to help improve therapies for those suffering with Autism Spectrum

Disorder (ASD).

United States Congress. House Committee on Government Reform. Subcommittee on

Human Rights and Wellness. Autism Spectrum Disorders: An Update of Federal

Government Initiatives and Revolutionary New Treatment of Neurodevelopmental

Diseases. Washington, DC: Government Printing Office (2004)

A congressional hearing discusses the removal of mercury from children’s vaccinations

and that children with autism have high doses of mercury in their system. Doctors testify

towards new therapies that have proven beneficial in helping those who suffer with
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autism. Chelation therapy and Hyperbaric therapy are mentioned as ways to remove the

heavy metal, mercury, from the human body. Educational needs and costs are discussed

along with educational training for educators specializing with children suffering from

Autism Spectrum Disorders (ASD).

United States Congress. Government Accountability Office. Special education children

with autism: report to the Chairman and Ranking Minority Member, Subcommittee

on Human Rights and Wellness, Committee on Government Reform, House of

Representatives. Washington, DC: Government Accountability Office (2005)

This report and power point presentation to the GAO establishes the number of children

who are diagnosed with autism, how many are being served by “Individuals with

Disabilities Education Act (IDEA).” The data was collected by the Department of

Education and analyzed by the “Special Education Expenditure Project (SEEP).”

Collected data from 2001 up to 2004 was done in “accordance with government

accounting standards.”

United States Congress. 109th Congress. An Act to Amend the Public Health Service Act

to Combat Autism through Research, Screening, Intervention, and Education.

Washington, DC: Government Printing Office (2006)

Public law 109 – 416 was an act “to amend the Public Health Service Act to combat

autism through research, screening, intervention and education.” This law is designed to

provide research and surveillance for those who have Autism Spectrum Disorder (ASD).
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It also establishes assistance with early detection, intervention and provides autism

education. This law establishes an autism coordinating committee in which the Secretary

of Health assigns other correlating government agencies the responsibility to develop,

monitor, recommend and to report annually strategic plans and budgetary requirements to

congress.