MOVING TOWARD A WORLD FREE OF MS

Winter/2008 Volume 5 Issue 1 Michigan Chapter

Annual Meeting 2007

Outstanding Volunteers Honored
28 years. According to Ms. Sullivan, The National MS Society is not only gaining momentum, we are creating a whole new MS movement. Benjamin Segal, M.D. was the featured research speaker. The Michigan Chapter was happy to introduce Dr. Segal, a new MS expert to the local MS community. He recently joined the staff at University of Michigan and is a Walk MS Holtomcelebrates 20 years! Garrett Professor of Neurology and Chief of the U of M Multiple Sclerosis Center and Neuroimmunology Program. He is a past recipient of the Harry See pg. 19 for details Weaver Neuroscience Scholar Award, considered one of the most prestigious honors given by the National MS Society. Our celebrity speaker, David Lander is

The 2007 Annual Meeting awardees with Chapter Chairman Peter Burton (far right), former Chapter President Pat McDonald and Chapter President Elana Sullivan (centered standing).

he 2007 Annual Meeting for the Michigan Chapter of the National MS Society reflected a sense of new energy and excitement about the future for people living with MS in Michigan. The chapters Annual Meeting & Volunteer Recognition Luncheon was held at the Hilton Detroit Troy on Saturday, November 10, 2007. Approximately 300 attendees were introduced to Elana Sullivan the chapters first new president in INSIDE THIS ISSUE: Discovered MS risk Listen Up! Page 11 genes Page 6

2007 da Vinci Awards Page 16

2007 Team MS Recognition Reception Page 17

2007 Annual Meeting

A publication of the National Multiple Sclerosis Society, Michigan Chapter 21311 Civic Center Dr. Southfield, MI 48076-3911 Ph: 800-344-4867 Fax: 248-350-0029 E-mail: info@mig.nmss.org Chapter Chair Peter Burton Chapter President Elana Sullivan Newsletter Editor Chris Collins The Michigan Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis. Our comments are based on professional advice, published experience and expert opinion, but do not represent therapeutic recommendations or prescriptions. For specific information and advice, consult a qualified physician. The Michigan Chapter of the National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear (in this publication) solely because they are considered valuable information. The chapter assumes no liability whatsoever for the contents or use of any product or service mentioned. The mission of the National MS Society is to end the devastating effects of multiple sclerosis. Copyright 2008 National MS Society, Michigan Chapter 2
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best known to all of us for his portrayal of Squiggy, from the 1970s hit television series, Laverne & Shirley. Since then, David has appeared in countless feature films and television shows, and you have also heard his voice doing many voiceovers for radio, TV and in animation. In 1999, David announced to the David Lander public that for 15 years he had been hiding the fact that he has MS, and began serving as an ambassador and spokesperson for the National MS Society. Thanks to Biogen Idec, attendees received free copies of Davids audio book, Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didnt Tell Nobody. Mr. Lander was so generous with his time that he autographed the book for each participant who wanted one. This yearly celebration recognized the contributions of several outstanding volunteers along with one corporation and a public official. The newly created Legacy Award was presented to former chapter president, Patricia A. McDonald. This award is designed to recognize an individual whose achievements over a LIFETIME have significantly impacted and improved the lives and well being of people with MS. Pat resigned last winter after 28 years of service to the Michigan Chapter. Comerica Bank received the 2007 Corporation of the Year Award. For several years hundreds of employees, family and friends have walked as part of the Comerica Bank Team. During the past five years, they have raised more than $100,000.

2007 Annual Meeting (Continued)

In 2007, Comerica Bank more than doubled the size of their walk team, recruiting 176 walkers who raised $28,794 placing the company first in fundraising among all 710 MS Walk teams in Michigan. Sue Hart of Flushing took home the MS Achievement Award. She is a member of the chapters Government Relations Committee and has been described as a fearless, tireless voice for persons with disabilities. She worked with advocates to bring about the enactment of the first state inclusive home design legislation in the country as she served as Chair of the Housing Work Group of the Disability Network of Michigan. The 2007 HOPE AWARD recipient is Susan Rokosz. Susan is a Ford Motor Engineer, and major player in development of the da Vinci Awards fundraiser benefiting the National MS Society. The da Vinci Awards salute an approach to the design of products, services and environments to be usable by as many people as possible regardless of age, ability or circumstance. Representative Gary McDowell of Rudyard was named the Public Servant of the Year Award recipient. Rep. McDowell is a champion for MI Choice, the Medicaid Home and Community Based Services Waiver. Under his leadership as Chair of the Community Health appropriations subcommittee, MI Choice received the first funding increase since 2001. GEORGE A.L. GANT REGIONAL VOLUNTEER AWARD winners: Southeastern Region Josie DeYonker of Clinton Township Eastern Region - Brenda Johnson of Durand

CHAPTER NEWS

Pat McDonald receiving the Legacy Award with Chapter President, Elana Sullivan and Chapter Chairman, Peter Burton.

Western Region - Jack Heuvelhorst of Grandville Upper Peninsula Region - Jeanne Baumann of Marquette YOUTH VOLUNTEER AWARD recipient is Cassidy Zainea of Grand Rapids. THE RICHARD ENNIS AWARD went to Gail Smith of Lake Linden. The luncheon was followed by a special reception to recognize the chapters top fundraisers. The entire day was all about celebrating the efforts of people who want to do something about MS NOW. According to Elana, This is not the same National MS Society as when I left back in 2001. Dont get me wrong we have the same great programs, the same dedication of staff and volunteers, the same desire to help every single person who is affected with MS but the difference, top down, is in a renewed energy and enthusiasm of all involved to truly do whatever it takes to wipe MS off of the face of the earth. This event was partially funded by the following sponsors: Biogen Idec, EMD Serono, Teva Neuroscience and Bayer HealthCare.
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CHAPTER NEWS

A Letter from your Chapter President

Dear friends, With the New Year upon us, I want to take this opportunity to thank each and every one of you for your membership and participation with the Michigan Chapter of the National MS Society. Whether you are a person with MS, a donor, an event participant, a caregiver, or someone who has joined our movement for another reason, we are so grateful for your continued belief in our mission of creating a world free of MS. In the past six months, I have been blessed to meet many of you, and I continue to be motivated and energized by your stories. At our Chapters Annual Meeting and Volunteer Recognition Luncheon in November, it was particularly inspiring for me to learn about and celebrate some of the Chapters most dedicated volunteers, clients and event participants. It is apparent that there truly are many, many people across the state of Michigan who want to do something about MS now. We have aggressive plans for growth in 2008 and are excited to share them with you as the year progresses. Chapters Board of Trustees and staff join me in inviting you to participate in the MS movement again in the coming year, in whatever way you choose. My email address is elana.sullivan@mig.nmss.org, and I can also be reached by phone at 248 351-2190. I welcome your calls and emails to let me know what is on your mind in the new year. Warmest regards and best wishes for a truly exceptional 2008,

Elana Sullivan Chapter President

Longtime Chapter Volunteer Honored at National Conference

uring the 2007 National Conference held in Dallas, Texas last November, Deborah Silkwood-Sherer was inducted into the National Volunteer Hall of Fame for Programs & Services. Since 1985, she has served the chapter in numerous capacities. Although she initially got involved to assist people with MS in her local community, Debbie has helped many others statewide. She helped develop and expand direct services, programs for the newly diagnosed, professional education seminars, the MS Achievement Center and more. Debbie has served on the Michigan Chapters Board for 17 years. 4
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Save the Date!

CHAPTER NEWS

MS Awareness Week: March 10 17, 2008

oin the Movement and help spread awareness during this years MS Awareness Week March 10 17. Every one and anyone can make a difference, and just think how big a difference we can all make together. To be successful in raising MS awareness, we need you and the talents and resources you can bring to this cause. We cant do it alone. Every hour someone is diagnosed with MS. What can you do in an hour to connect with someone with MS and to help those living with MS move their lives forward? The following are some impactful ideas to consider doing during MS Awareness Week to build an MS movement that gives voice to everyone living with MS. Support our advocacy efforts. The Society advocates for legislation that will ensure fair treatment of people with disabilities and protect the rights to equal access, employment, and proper health care for people with MS. By visiting the National MS Societys Web site (www.nationalMSsociety.org) and signing up for MS Action Network, you help us to create a strong voice needed to impact our leaders and lawmakers at the national and state levels. You will be notified when your voice is needed, and the Society will arm you with the information and tools you need to fully understand the issues, our policy positions, and the best

ways to act on them. You will also receive an MS Action Alert when an important issue or piece of legislation calls for your immediate action. Support our 2008 event season. Register to form a team in our Walk MS, Bike MS, or the MS Longest Day of Golf events, or simply help to recruit team members to participate on your behalf if you cant personally take part. Help us grow these events by encouraging everyone you know to Join the Movement in support of these fundraisers. Volunteer to take Walk MS, Bike MS, or The MS Longest Day of Golf brochures to places you patronize. Brochures can be obtained by late January. Put a face on MS by submitting your story to www.faceofms.org. Share your connection to MS. Talk about why you think its important to lead others in the movement to a world free of MS. You dont have to have MS to share your story on this Web site. All that matters is that you are committed to the MS community. Organize a third-party event to benefit the Society. Approach groups or clubs you are already active with to see if they will help with a special MS Awareness fundraiser. For example, your church group may organize a bake sale to not only create awareness about MS, but also to raise funds to help people with MS. Together, we will make a difference and work towards creating a world free of MS.
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RESEARCH

Society-funded researchers discover two new MS risk genes

S is not a single-gene disorder. Researchers have already concluded that the disease involves many genes interacting with some environmental trigger or triggers. Locating the specific genes that are associated with a higher risk for MS can tell scientists more about how the disease worksand may lead to new therapies. For more than a decade, the National MS Society has taken the lead, aggressively funding MS genetics research. It helped launch the International Multiple Sclerosis Genetics Consortium (IMSGC), a collaborative group of researchers with expertise in genetics, database design, and immunology who pool the large amounts of data needed for genetics studies.

proteins that regulate immune cells. Interleukin-2 and -7 have been associated with T cells that have the power to turn off an immune attack. Research has shown that interleukin-2 is involved in other autoimmune diseases, including type 1 diabetes. The IMSGC published these findings in an early online edition of The New England Journal of Medicine (July 29, 2007). The study was jointly funded by the Society and Harvard University. All of the data from the gene scan is being made publicly available to aid future research.

Two studies confirm findings

Two papers published online in Nature Genetics on July 29 reported similar findings associating interleukin-7 with MS. In the first, an international group of collaborators funded in part by the Society explored three genes that had earlier been associated with MS. The group was able to confirm an association with the gene for interleukin-7. The second paperby collaborators in Sweden, Denmark, Finland, and Norway followed up an earlier study and also identified interleukin-7.

New findings

This year, the IMSGC completed the largest genome scan for MS to date. Using a DNA chip that maps 500,000 individual genetic locations they found two genetic variations strongly associated with MS. The variations were found in the genes for interleukin-2 receptor-alpha and interleukin-7 receptor-alpha, both of which control cytokinesthe messenger 6
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The road ahead

The findings of all three studies suggest possible new targets for better MS therapies. One therapy is already being tested. The monoclonal antibody daclizumab (PDL BioPharma and Biogen Idec) targets interleukin-2 receptor-alpha.

What is CIS?

NEWLY DIAGNOSED

person diagnosed with CIS, or Clinically Isolated Syndrome, typically has experienced a single neurological symptom, such as partial vision loss, vertigo, double vision, or weakness. The symptom lasts at least 24 hours and may even continue for weeks, but then goes away, often without treatment. [CIS] typically occurs out of the blue in an otherwise healthy person, said J. Theodore Phillips, MD, PhD, director of the MS Center at Texas Neurology in Dallas. It appears to be occurring in an isolated fashion. To be diagnosed with CIS, all other explanations for the symptom have to be ruled out.

modifying drugs are expensive, inconvenient, and do not cure MS, he pointed out.

MRI evidence makes the case

Long-term studies show that what a persons MRI looked like at the time of a CIS largely indicated whether they went on to develop MS. If the MRI is completely normal with the exception of abnormality associated with the CIS, then that person has a relatively low risk of MS even 15 years out, said Dr. Phillips. But if there are multiple lesions consistent with MS, that person has a pretty high risk. When thats the case, many neurologists recommend early intervention with a disease-modifying drug. Insurance coverage for Avonex or Betaseron shouldnt be a problem, since the FDA now includes CIS as an indication for both drugs.

Is CIS an early sign of MS?

The big question with CIS is whether it indicates early development of MS. The second question is whether early intervention can help slow down that development. In three large clinical trials, early treatment appeared to delay a second episode. The results were so positive, the FDA extended the labeling of Avonex and Betaseron to include people who have had just one clinical episode if they have multiple MRIdetected lesions consistent with MS.

Is early intervention necessary?

If started early in the appropriate person, these medications can be important in slowing down the progression into classic MS, Dr. Phillips said. But who is the appropriate person? Do I know that this single event will evolve into MS? Disease-

Knowledge Is Power is a six-week free, at-home educational pro ram for people who are newly diagnosed. Mail or e-mail formats. To register, call 1-800-344-4867, or visit nationalMSsociety.org/knowledge.

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ADVOCACY

Legal Briefs
By Ina Cohen
There are many legal issues that have particular impact on the lives of those diagnosed with MS. While the local chapter cannot provide legal services, it does try to provide general information and referrals to resources. Ina C. Cohen is an attorney and member of the Board of Trustees, National Multiple Sclerosis Society, Michigan Chapter, Inc. Ive been writing columns for MS Connection since the summer of 1998. Ive covered most of the topics of concern to individuals with disabilities over the years. For the next few issues, I am going to repeat prior articles. In the near future, it is my goal to have all of the previous columns available online at our Web site. c. General Durable Power of Attorney This is a general authorization that continues to be valid even if the individual who granted the power of attorney becomes legally incapacitated (i.e. becomes mentally impaired, is unconscious, etc.). d. Durable Power of Attorney for Health Care This is a Limited Power of Attorney (to deal with medical issues only) that is durable (i.e. continues to be valid even if the signer of the power of attorney loses his or her capacity). A power of attorney can be limited by its terms (i.e. to be valid for a specific period of time). By using a power of attorney, it is often possible to avoid a guardianship or conservatorship for an individual who is unable to fully take care of his/her own business due to physical disability. A power of attorney should only be used issued to someone who is completely trustworthy. While a power of attorney can be revoked at any time, it can be difficult to actually do it. For example, if the relationship between the two people involved is disrupted or they have different interests or concerns, the person with the power of attorney many not be willing to return it. Without knowing where that individual plans to use it, the person who signed the power of attorney cannot notify others that the power of attorney is no longer valid. Therefore, any power of attorney should only be executed after consideration of your particular situation and needs. Serious discussion with an attorney by the individual authorizing the power of attorney is recommended.

Powers of Attorney

A power of attorney is a document that authorizes someone to act on behalf of another individual. There are different kinds of powers of attorney: a. General Power of Attorney This is a general authorization allowing the individual to whom it is granted to do any act on behalf of the person who signs the power of attorney. b. Limited Power of Attorney This is a restricted authorization allowing the individual to whom it is granted to do a specific act identified in the document (i.e. sell an automobile or complete a particular transaction).

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MS Caucus gains power

This summer the Society announced the new Congressional Multiple Sclerosis Caucus in the U.S. House of Representatives. This Caucus is the first of its kind, and provides the MS movement with champions in Congress to support MS issues. Congressmen Russ Carnahan (D, Missouri) and Michael Burgess (R, Texas) are co-chairing. As of mid November Michigan Congressmen Thaddeus McCotter (R-Livonia) and Fred Upton (R-St. Joseph) have joined the Caucus.

ADVOCACY

Congressman Thaddeus McCotter

Keep the momentum building

The MS Caucus gives the movement to end MS an effective presence on Capitol Hill. If your U.S. Representative has not yet signed on, encourage him or her to do so. Go to nationalmssociety.org/advocacy, click on Announcing New Congressional MS Caucus, and enter your ZIP Code.

Congressman Fred Upton

The push for new MS research funding

or the past year, the Society and thousands of MS activists have been aggressively pursuing a new avenue of federal funding for MS research: Legislation that would designate $15 million for MS research through the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense. Unfortunately, the bill that passed in the House on August 5, 2007, did not include funding for MS research. But MS activists did not give up. In late September, Congressman John Murtha (D, Pennsylvania) finally agreed to fight for at least $10 million for MS research during the conference committee, which came after the Senate voted on the bill. When the Senate Defense Appropriations Subcommittee approved their FY 2008 spending in mid-September, the bill included language to support MS research. Even though it was not in the program we requested, it will provide a new avenue for funding. We will continue pursuing CDMRP.

About the funds The CDMRP provides funding for research through the Department of Defense as directed by members of Congress. Activists believe that MS research would be an appropriate target of these funds: A study published in 2004 identified more than 5,000 cases of MS among veterans that were deemed service-connected. In late 2006, the Society began a nationwide petition drive urging Congress to support funding for MS research through the CDMRP. The petition garnered more than 100,000 signatures. In March 2007, MS activists who attended the annual MS Public Policy Conference in Washington, DC, brought the issue to Capitol Hill in person. Whats next For the latest, go to msactivist.blogspot.com, and to learn how to help, join the movement at nationalmssociety.org/advocacy.
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LIVING WITH MS

Everyday heroes

ast year Jeanne Clem of Kentucky wrote the national office: What I want for Christmas is to hear from everyday heroes who deserve to be heard. You hear celebrities stories on the news. But you dont hear, Two years ago today, Jeanne Clem was diagnosed with multiple sclerosis and her employment along with bits of her life were terminated but here she is now, celebrating small victories! To accommodate this universal need, the Society created theFaceofMS.org in March 2006. People have been posting stories there ever since. Here are two of them.

Michele Mogck, Montana

I was diagnosed six years ago, shortly after the birth of my beautiful daughter. People look at me strangely when I tell them that I feel MS is probably one of the best things that has ever happened to me. I have always been very drivenfocusednever letting anything stand in my way. I was so focused, I was never, really, in the present. Ive learned not to take things for granted and to be thankful for everything that I do have. I shudder to think that had it not been for my MS, how quickly life would have passed without me taking the time to cherish, love, and just enjoy. Visit FaceofMS.org for many many more storiesand to add (or update) your own!

Tom Young, Ohio

About 10 years or so ago, I was diagnosed with probable MS. Later the diagnosis became more definite. My family MD said, expect interesting symptoms. He was certainly right about that. Some of the interesting symptoms included a sensation of flashing lights when I was in total darkness. Of course the less interesting symptoms bother me the most. The real bummer is that I have almost no sense of balance. I can only remain upright if I can see a horizon. The progression of the disease has been very slow because Ive been taking a very expensive drug. Im still working. I did, however, give up flying airplanes. If my sense of balance ever comes back the first thing Im going to try to get is the required medical certificate and fly an airplane again. 10 JOIN THE MOVEMENT: nationalMSsociety.org

TAMING WORK STRESS

Take a short break right at your desk. Mute the phone and the computer. Take off your glasses if you wear them. To help slow down your mind, inhale while thinking the word peace, then exhale to the word tension. Even five minutes of quiet breathing can bring some relief. For more ideas, visit our brochure Taming Stress at nationalmssociety. org/TamingStress. Or call us for a printed copy.

Listen up!

LIVING WITH MS

he National MS Societys Web site features a number of sound files, including podcasts and archived webcasts, offering easy listening at your convenience. And beginning December 2007, an audio version of the national magazine, Momentum (formerly InsideMS), will also be available.

browsers (e.g., Internet Explorer, Safari, etc.) will have the appropriate player already installed. If yours does not, you will be prompted to download it at no cost. You can also download the audio file to your computer by placing your cursor on the link and clicking the right-hand side of your mouse (right click). (Mac users, hold down the Apple key, then click.) Choose Save Target As and then choose where on your computer you want to save the file. You should be able to choose Desktop, for example. Depending on whether you have a modem (telephone line) or broadband Internet connection, this will take a few seconds or a minute or so. Once the file is downloaded, you can select open and the file will begin to play right on your computer. If you would like to listen on your portable MP3 player, such as an iPod, simply move the file to the subdirectory where you keep your song files, then import the file into your MP3 management software, such as iTunes or Zune.

Ive never used a sound file before!

Actually, you probably have. A sound file is simply any electronic file that contains digital information to reproduce sound. CDs use very large sound files, using something called PCM coding. Because of their large size they arent used much on the Internet. Instead, files on the Web are usually in the MP3 format.

What does that mean to me?

The MP3 is compressed, eliminating portions of the audio file that are essentially unnecessary. That means you can download them relatively quickly. The Societys podcasts, archived webcasts, and the new audio version of Momentum are saved as MP3 files.

For more help

Apple Computers www.apple.com/itunes Yahoo Podcasts podcasts.yahoo.com Zune www.zune.net About.com mp3.about.com

How do I listen to an MP3 file?

Lets try one of the Societys podcasts as an example. First, go to nationalmssociety. org/podcasts and find a podcast that interests you. To listen to it immediately, just click on the link as you normally would and the file will play automatically in your browser. Most

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REGIONAL NEWS

Michigan Chapter Program Calendar

February 18 & 21, Hold that Thought! Cognition and MS, the 2007 North American Education Program (NAEP). In the video program created by the National MS Society, experts in the field of cognition and MS will discuss ways MS affects cognition and how you can manage cognitive symptoms. A question and answer session with a local neurologist will follow the video. Participants will also receive a 50-page program booklet that provides information about cognitive problems in MS, cognitive rehabilitation, and current research. The program will be held at the following self-help group meetings: Tuesday, February 19th in Caro (Davenport University), time to be determined. For more information call Betty Priest at 989761-7479. Thursday, February 21st in Bruce (Grace Lutheran Fellowship Church) at 6:30 p.m. For more information call Jacqueline Wunsche at 586-801-9045. Watch the spring calendar for additional NAEP sites throughout the State. February, Gentle Yoga in Metro Grand Rapids For all skill and ability levels. This six-week session is in the final planning stages. For more information, contact Amy at 616942-5505. February 27, Attention Family Caregivers in Northern Michigan The group has reserved the date of February 27, 2008 to have a luncheon meeting at The Wild Onion in Alden, MI. All Family Caregivers are invited to enjoy lunch and fellowship at 12:30 p.m. This is a great group 12 JOIN THE MOVEMENT: nationalMSsociety.org of people with a wealth of experience as Family Caregivers, who want to share, and get to know others in similar circumstances. Lunch is on your own, but the friendship is free and will be shared by all. If you have questions, please call Barb at 231-3487992. If you cannot join them, but would like to know about future outings, please call and have your e-mail address and phone number added to their list. Dont miss this opportunity to join with people who truly understand what it means to be a Family Caregiver. March 8, Wellness Program Baker College in Flint Join us as we explore wellness topics that affect you. Dr. Albert Aniskiewicz, Professor of Psychiatry and Neurology at Michigan State University will be presenting on Depression. The day will continue with breakout sessions focused on caring for yourself and your environment presented by the Occupational Therapy Department at Baker College. In conclusion, Rob Kowalk, volunteer and former Flint Police Officer, will facilitate a self-defense session. The cost of this program is $5.00 and complimentary admission is available. Preregistration is required. For more information, contact Christy at 989-249-1184. March 14, Family Night in Southfield This event will be held at the National MS Societys Education Center (21311 Civic Center Dr. in Southfield) from 6:00 - 9:00 p.m. Get rid of the winter blahs by joining us for an informal night of fun, food, and friends. For information and to register, please call 800-344-4867. Space is limited, so call now!

April, Aquatics - Spring Session Traverse City All are welcome to join in the exercise. For more information, call Barb at 213-3487992. April, Perspectives on Living with MS Grand Rapids Please join us for a day-long retreat/ conference with information and sharing focused on creating and achieving goals that will allow you to live with MS. Check your mailbox and our Web site for more information on this positive, supportive, and fun day. April 5, MS and Movement Utica United Methodist Church Join us as Diana Hohn, Research Advocate, presents research updates, followed by a Physiatrist discussing movement and MS. This is a program you will not want to miss. Check the Web site for further updates! April 26, Spring Conference, Marquette Please mark your calendar and save this date. Check your mailboxes in mid-February for details! April 26, Insurance Symposium Join us for a keynote speaker and seminars to explore how to find and keep health insurance, appealing insurance coverage denials, cautions and limitation in disability insurance and long term care insurance. Watch the Chapters Web site for complete program details. Holiday Inn Hotel, Farmington Hills from 9:00 a.m. 2:30 p.m. For information contact: Ruth.Linnemann@mig.nmss.org May 17, Life Planning and Independence are the topics that will be addressed in this day of learning and sharing. Mark your

calendar and plan to join us. For more information, call Barb at 213-348-7992. May, Yoga in Houghton The Instructor, Sue Stephens will be organizing a spring session. For more information, call Barb at 213-348-7992 May, Tai Chi in Escanaba We will be offering an introductory workshop and regularly scheduled classes. Check your mailbox for details. May, Yoga for Health Chair Yoga Yoga classes are being offered in Ypsilanti at the St. Joseph Mercy Health System Michigan Heart & Vascular Institute. This program is appropriate for anyone who wishes to gain the benefits of yoga, but does not want to get on the floor. Poses can be performed from a chair or wheelchair. Those who are more mobile may perform some poses standing, using a chair for assistance. Sixweek sessions are offered on Thursdays from 5:30 to 6:30 p.m. and are $60*. For more information, please contact Diane, RYT, at 734-712-3546. Gentle Moves or Persevere Exercise classes are being offered in Pontiac at the Village of Oakland Woods with ACE and ACSM certified personal trainer, Julie Richmond. This program is geared toward the needs of people with MS and is designed to improve stamina, endurance, balance, coordination and flexibility. Classes are offered on Tuesdays and Thursdays from 11:00 to 11:45 a.m. and are $20*/month. For more information, please contact Julie at 248-334-4379. *Partial scholarships are available through the Michigan Chapter by contacting Sue Arnot at 800-344-4867, option 2, ext. 232.
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REGIONAL NEWS

REGIONAL NEWS

Opportunities
Self-Help Group Co-Leader is needed for Bay City to start a group. This volunteer position requires a minimum of a one-year commitment to help organize, plan, and facilitate a monthly self-help group for people with MS in the Bay City area. The time commitment is approximately threefour hours per month and training will be provided. Please call Christy Bomba at 989249-1184 if you are interested. A Family Caregiver Self Help Group is forming in Grand Rapids. If you are interested in attending as a member or exploring leadership opportunities, please call Amy Piscopink Taylor at 616-942-5505. Plans are in process for gatherings for People with MS in their 20s and 30s in Grand Rapids, Lansing, and Southfield. If youre interested in helping with logistics, or just coming for the fun, call Amy Piscopink Taylor at 616-942-5505 or e-mail her at amy.piscopink.taylor@mig.nmss.org

New Book in MS Society Library

Living with Progressive Multiple Sclerosis: Overcoming the Challenges- Second Edition by Patricia K. Coyle & June Halper, Demos Medical Publishing, 162 pages, 2008 (two copies). If you or a loved one has been diagnosed with progressive multiple sclerosis, this completely updated book is an essential resource for managing the challenges that lie ahead. This concise and practical overview educates you about diagnosis, diseasemodifying therapies, new drug treatments, management of difficult symptoms and coping strategies. The authors, both leading experts in MS, emphasize a wellness approach that includes weighing your options, planning for the future, and maintaining humor and composure in the face of adversity.

Coping With Advanced Multiple Sclerosis

Join us for this FREE two-part teleconference targeting those with progressive MS.

Part I

February 6, 2008, 7:00 - 8:00 p.m. Carol Freeman, RN, MSN, MSCN, CNRN Her talk will focus on coping with the medical complications of advanced MS.

Part II

February 13, 2008, 7:00 - 8:00 p.m. Shelley Peterman Schwarz This presentation will offer practical, everyday tips and solutions for living with advanced MS.

Register NOW for this FREE program while space is available.

To register call 800-344-4867 or visit online www.nationalMSsociety.org/mig. DEADLINE for registration is Friday, February 1, 2008.
This program is funded by a grant from EMD Serono & is offered by the National MS Society, Michigan Chapter

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Simple Truisms
Sue Chapman, MA, MSW

LIVING WITH MS

ne of my most treasured experiences at the National MS Society was the opportunity to meet lots of really fine people; folks with MS, their families and caregivers, friends and professionals. I learned many things worth passing along. The following is a small compilation of observations along with suggestions gleaned from conversations with many of you. They concern how you cope with MS, deal with others and wish others would deal with you. A previous article dealt with concrete ways to improve your life using ADLs (Activities of Daily Living.) Today, lets look at some life skills involving interpersonal relationships; how best to preserve, protect and enhance them. It includes arenas such as attitude, manners, behaviors and thoughts! Yes, they all overlap one on the other (like an onion) but each requires mindfulness on the part of anyone who deals with MS be it the person or the relevant others. Weve all heard, Attitude is everything. And Fake it til you make it! How true these words are. Negativity is contagious; they gripe, you gripe, we all gripe! This wont work, nor that, why bother? Remind you of anyone? Think about it, what would you do if someone jumped into that boat of misery and griped along with you? Fodder for a great film noir but as a steady diet YIKES! Manners are crucial to healthy relationships. Instead of demanding, try saying please or thank you. It sounds so easy, virtually remedial, but simply being polite can make a huge difference in all

of your interactions. Simple courtesies can be overlooked albeit unintentionally. When visiting a friend with MS, be aware of the time. Sometimes an extended visit can be exhausting. Spread your visits out; three small (30 minutes) as opposed to one entire uncomfortable afternoon. While were on the subject, let me point out how treasured those visits are. We forget that even the slightest kindness is special to someone whose life exposure may have become limited. Another tip: helping is great and admirable when the target of your help wants it. Ask first, so your help will be welcomed rather than offensive. To paraphrase noted author, Stephen Covey, Ph.D., treat others as they would like to be treated. Thoughts can be extremely toxic if you arent careful. Is there no one who understands the miserable plight of my life? Nobody wants me around. A steady diet of negative thoughts will poison your outlook on everything, yourself and others. The selffulfilling prophecy can easily come true if you arent mindful of your thoughts. Being someone others enjoy being around goes miles in reducing isolation. No one wants to be around a Negative, Demanding Griper MS or not. Now thats a sad personality profile, the terrible NDG! In closing, let me reiterate; these observations apply to everyone dealing with MS, the individual as well as caregivers and friends. If you would like to speak with a counselor who can help you further explore these issues, call Sarah Allan, MA, MSW, at the National MS Society for referrals, 1-800-FIGHT MS, ext. 230.
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The 2007 da Vinci Awards

Handybar is a strong, lightweight aluminum portable handle that fits securely into the vehicle door striker plate, enabling easy entrance and exit from a vehicle. INDEPENDENCE iBOT 4000 Mobility System is unlike any wheelchair on the market today as it allows users to power across uneven terrain, easily climb curbs and steps, rise to an eye-level position and hold a conversation, even while on the move.

The 2007 awardees with Michael Rokosz (second from right), Founder of the da Vinci Awards and Elana Sullivan (fourth from right), President of the National MS Society, Michigan Chapter.

he da Vinci Awards recognizes the most innovative developments and research in adaptive and assistive technology that embrace the Universal Design Principle - an approach to the design of products, services and environments to be usable by as many people as possible regardless of age, ability or circumstance. The 2007 da Vinci Awards gala, presented by General Motors, was held on September 28 at The Ritz-Carlton in Dearborn, Mich. Honorees traveled from all over the country and as far as New Zealand to accept their awards to an audience of more than 430 people.

PROPRIO FOOT provides a wide and automated range of ankle flexion with Flex-Foot dynamics allowing function as close as you can get today to the human foot. WalkAide System is designed to assist users with foot drop through technology which restores the functionality of an impaired extremity.

Four special awards were also awarded to:

Roger McCarville received the da Vinci Founders Award from founder Michael J. Rokosz. McCarville is the host and coproducer of Disabilities Today, the nations first and only weekly television program dedicated to helping those with disabilities. Grayson Rosenberger was awarded the da Vinci Apprentice Award for his Bubble Wrap Prosthetic Leg. Fifteen-year old Grayson has developed a low-cost Bubble Wrap covering for artificial legs providing amputees in developing countries with a way to make artificial limbs more life-like.

The da Vinci Awards went to:

EagleEyes allows people to control the computer by moving only their eyes. The FuelCall System enables drivers with disabilities to know which service stations provide assistance and easily summon this assistance. 16 JOIN THE MOVEMENT: nationalMSsociety.org

Dr. Rory Cooper was honored with the da Vinci Lifetime Achievement Award for his lifetime of significant contributions to advancing accessibility. Dr. Coopers energy and devotion to the field of rehabilitation engineering and assistive technology are unmatched. Dana Bowman was awarded the Spirit of da Vinci Award for his courage, perseverance and creative use of assistive technology. Bowman employs various assistive technologies in the prosthetic legs
Dana Bowman receiving his award from da Vinci Leadership Chair and OnStar President Chet Huber.

he wears to parachute, combining different types of braces, sockets and joints in order to manage the unique stresses a skydiver encounters in the course of a jump. For more details on the 2007 da Vinci Award recipients, visit www.davinciawards.org.

FUNDRAISING

2007 TeamMS Recognition Reception

Chapter Chairman, Peter Burton with the winners of the Traveling Trophy awards (from left to right): Dow/TCC for Bike MS; Ford for The MS Longest Day of Golf and Comerica Bank for Walk MS.

he Michigan Chapter, held its 2007 TeamMS Recognition Reception on Saturday, November 10th, 2007 in conjunction with the Chapters 2007 Annual Meeting. This event honored more than 90 top individual fundraisers, 12 top thirdparty event fundraisers, and 55 top teams in attendance. Each year the National MS Society, Michigan Chapter presents a special award, the Shining Star Award, to recognize the support of a company to include team fundraising, sponsorship, and in-kind giving within the Chapters TeamMS programs. The Shining Star Corporate Award was presented to The Dow Chemical Company in recognition of reaching the highest level of support within the Michigan Chapter.

Accepting this prestigious award was Dows External Communications Manager, Jennifer Heronema. Another company that went above and beyond in 2007 is Ford Motor Company, who was presented with the Mission Possible Triple Crown Award. Ford Motor Company raised over $16,000 in each of the three TeamMS events, earning them a Mission Possible Award, representing $1 for every one of the 16,000 people living with MS in Michigan, in all three events. In 2007, the number of individuals living with MS in Michigan surpassed 18,000. As a result, the Mission Possible Award level will increase to $18,000 in 2008.

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EVENT SEASON IS COMING... So Join the Movement in 2008!

The National MS Society is looking forward to the 2008 event season. Our events will have a new look, including brand new event names and logos. The new logos incorporate the new National MS Society brand platform, one that unites us, energizes us, and enables us to move forward together, faster than ever before. the challenge and join us for an unforgettable ride and an unbeatable destination - a world free of MS!

The Michigan Chapter is celebrating the 20th anniversary of our walk, and has made some new and exciting changes! We are taking action to create a new, even more powerful movement, and want you to join us. For more details, see Walk MS 2008 article, page 19.

Walk MS: Great Lakes Walk 2008

The MS Longest Day of Golf 2008 is a month-long, statewide event to raise awareness and funds to fight MS. Back for its 18th year in 2008, this unique golfing experience gives you the opportunity to play as many holes as you wish in one day on one of our many great host courses without paying greens fees! Organize your team and select one day in May when you will putt with a purpose! The 2008 registration for Walk MS, Bike MS and The MS Longest Day of Golf is now available on our website at www.nationalmssociety.org/mig. Form a team and register today!

The MS Longest Day of Golf 2008

Because there are thousands of you in Michigan who want to join the movement to do something about MS NOW, we will be offering a greater variety of route lengths in 2008. Its our hope people of all cycling experience levels, from the beginner to the expert, may participate. The West Michigan ride (May 31st and June 1st) will offer a one or two day 30-mile option. At the Mid Michigan ride (July 12th and July 13th) we have plans to add a 50-mile option as part of our two-day event Saturday and a 30-mile road bike route on Sunday only. To wrap up the season we will offer a Mountain Bike Ride (September 13, 2008), location and route length TBD. Accept 18 JOIN THE MOVEMENT: nationalMSsociety.org

Bike MS: Great Lakes Breakaway Ride 2008

Be a Sponsor in 2008

Corporations and local businesses can support the fight against MS through event sponsorship, product donations, point-ofpurchase donation programs or by supporting teams of employees participating in our fundraising events. If you or your company would like to sponsor a National MS Society event, contact us at 248-351-2190. The National MS Society is a collective group of passionate individuals, moving together to create a world free of MS. When you join the National MS Society and get involved in a Walk MS, Bike MS or The MS Longest Day of Golf event, you become a part of the powerful movement that will end MS forever.

Important and exciting changes for the 20th Annual Walk MS Presented By Christopher & Banks!
he Michigan Chapter is celebrating the 20th anniversary of our walk in 2008, and we have made some changes to better reflect our desire to do something about MS NOW. We are confident that because you also want to do something about MS NOW, we can count on your continued support! Here are the highlights: Our event will now be known as Walk MS to better represent the action we are taking as we walk to create a world free of MS. A powerful new event logo, as shown above, will help to convey this call to action. We have consolidated several walk sites to create larger, more engaging events that will attract more participants, sponsors, and media support. These changes symbolize our commitment to stimulate the growth needed to continue providing top-notch support to the more than 18,000 people living with MS in Michigan, as well as the efforts to find the cause and cure for MS. We are depending on you to help us demonstrate that commitment. Time is of the essence, and the time is NOW! We have to intensify our efforts, and present a strong, united front that clearly represents our desire to create a world free of MS, and compels others to join the movement. We want to be bigger and

FUNDRAISING

better than ever before! It will also produce better opportunities for marketing and media support, increase the value of our sponsorships, and strengthen our identity and awareness within the community. Ultimately, these changes will help us to raise more money for programs and services in Michigan and nationwide MS research. We sincerely hope that you will become part of our newly energized and powerful movement, and help make our 20th anniversary a year to remember! Please visit our Web site at www.nationalmssociety.org/mig to view our 2008 Walk MS calendar, and register today. If you have any questions, please call 248-351-2190.

Walk MS: Great Lakes Walk 2008 Locations

April 26, 2008: Midland May 3, 2008: Movin in the D (Detroit),
Frankenmuth, West Michigan (Grand Rapids) May 4, 2008: Lansing, Metro Detroit Northeast (Troy), Downriver/Monroe County
(Wyandotte)

May 10, 2008: Ann Arbor June 28, 2008: Traverse City

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Amigo Scooter. Bought in 2001. Blue with black seat and basket. Retractable cord. Asking for $750. Call Paula at (248) 499-7099. Theracycle. Looks like an exercise bike. Three and half years old. Low to the ground. Can set speed and time. Off-white color. Beautiful piece of equipment. Bought in 2001. Used very little. If new, would cost $3,500. Asking for $2,300. Call Sharon at (586) 292-9666. Pride Victory Mobility Scooter. Brand new. Used once. Paid $1,800 for it. Asking for $850-900. Call Andrea at (586) 731-9295.

Amigo Scooter. Ten years old. Asking for $500. Wheelchair. Good condition. Asking for $50. Two Walkers. Asking $15 each. Walking Cane. Four pronged that folds for more stability. Asking for $15. Call Robert at (313) 563-8709.

EQUIPMENT CLASSIFIEDS

21311 Civic Center Drive Southfield, MI 48076-3911

Mailing Label Changes

Please check the appropriate box below, correct the label then return to National MS Society, MI Chapter q Name change or misspelled q Address change q Remove from mailing list q Received more than one copy q Please send me my MS Connection via e-mail. My e-mail address is: ____________________________