Professional Documents
Culture Documents
t SUMMER 2011
er-free movemen
into Alberta’s canc
SALARY
INTERRUPTED
Loans, mortgages and the cost of cancer
CANADIAN PUBLICATIONS MAIL PRODUCT AGREEMENT #40020055 Non-deliverable mail should be directed to: 10259 105 Street, Edmonton, AB T5J 1E3
“For those facing cancer today,
in honour of those lost to cancer,
and for generations to come,
we promise progress.“
SUMMER SPOTLIGHT
CANCER: Young Adults Overcome
22
26
45 WHEEL LIFE
On your bike! Practical advice for two-wheeled
commuters
48 WHY I DONATE
ION Print Solutions sets up a research fund
42 that matches donations up to $50K
From Stories
Comes Wisdom
“Facts bring us to knowledge, but stories lead us to wisdom.” Dr. Rachel
Naomi Remen, an American specialist in the mind/body health field
inspired Mike Lang with these words. And as you can see by Mike’s story
(page 26), once inspired, no challenge is too much for him.
While Mike introduced us to these words, they might just have easily
inspired Leap magazine. Leap is designed to take you past the numbers to
TRUSTEES the lives behind the cancer statistics.
This issue focuses on the lives of young adults, like Mike, who unex-
Leslie Beard, pectedly face cancer. Cancer occurs less often in young adults, but because
Edmonton they’re not expected to have cancer, a diagnosis is often missed at the
early stages. Once they are diagnosed, young adults may be balancing
Angela Boehm, cancer treatment at the same time they are
Calgary launching careers and marriages and struggling
Every story of facing cancer with student loans and new mortgages.
Greg Cameron, gets to the heart of what it is Their responses to these challenges are inspir-
Edmonton to be human. It threatens what ing. Alyson Woloshyn lives with brain cancer and
is most precious to us. is challenging herself to raise $35,000 for
Heather Culbert, the Alberta Cancer Foundation by her 35th birth-
Calgary day. She is also one of our finest ambassadors,
telling donors more compellingly than we ever could how much their
Steven Dyck, dollars mean.
Lethbridge And for the first time in Leap, two Alberta Cancer Foundation staffers,
Christy Soholt (page 17) and Darren Neuberger (page 22) share their sto-
Tony Fields, ries of facing cancer. Their experiences inspired them to put their talents
Edmonton to work full-time to drive progress towards a cancer-free future and we are
privileged to have them on board. Every story of facing cancer gets to the
Dianne Kipnes, heart of what it is to be human. It threatens what is most precious to us.
Edmonton As we head into our busy summer fundraising season we will keep
these stories and so many others in our hearts. This summer will see hun-
John J. McDonald, dreds of Albertans launch their own fundraising events for the Alberta
Edmonton Cancer Foundation. And thousands will walk or run in the Underwear
Affairs in Edmonton or Calgary, walk 30 or 60 kilometres in the Shoppers
Brent Saik, Drug Mart Weekend to End Women’s Cancers, or ride 200 kilometres
Sherwood Park along the Rockies in the Enbridge Ride to Conquer Cancer.
Thousands of Albertans will participate in Alberta’s cancer-free move-
Prem Singhmar, ment and stand with those who have no choice but to stand up to cancer.
Sherwood Park I hope you will join us.
Heather Watt,
Edmonton
John Osler, Chair
Vern Yu, Alberta Cancer Foundation
Calgary
ERRATA: In “An Uncommon Man,” a story in the spring 2011 issue of Leap, we listed an
out-of-date title for Edie Pituskin, who is currently a PhD Candidate in the Faculty of
Rehabilitation Medicine at the University of Alberta. In the same story we used the term
“invasive duct lymphoma,” where we should have written “invasive duct carcinoma.” We
regret the errors.
Giving Back
On March 8, 2006 then-10-year-old Davis Weisner
was diagnosed with neuroblastoma, tumour of the nerve
tissues, that had spread to his bone marrow. Five years
later, including 17 months of remission, he died of the dis-
ease. He made the time in between really matter.
“Davis was a quiet kid,” says his mom, Janine
Weisner. “He didn’t have a lot of words.” Yet he rose to
many challenges in his life. He spoke in front of groups
at school and in the community. He joined the teen
leadership group of the Kids Cancer Care Foundation PERFECT PAIR: Davis, left, knew his
of Alberta. And once, he notably overcame his shyness, sister Jessie, right, would carry the flame.
says Janine “and stood up in front of all of Canada to
drop the puck in an Oilers-Flames game.”
For the KCCFA, he raised more than $2,000 by himself
Come Fly
(plus much more as part of his membership in the group)
towards a trip to Mexico. The teen leadership group was to
travel with the Rotary Club to help build houses there for
With Me
low-income families. Davis was thrilled to be a part of it.
Then, late last year, his health took a turn. By spring it was
clear he would be unable to travel with his group.
“His biggest worry was that there would be two less
hands to help out,” says Janine. Very sick, he still went
in person to the last trip meeting to turn his money in – Picture the fluid grace of a perfectly cast fly, and the gently plunk of it
it was that important to him. With a week left before landing in the water. It’s more about putting yourself on that sunny stream
the trip, Davis and his mom arrived at a great way to bed in quiet companionship than it is about catching fish. Isn’t it time you
salvage the situation: Davis’ little sister Jessie would go had a weekend away?
in his place. “She went as his representative, not his Let’s face it, book club retreats aren’t for everyone. Since 1997, Casting for
replacement,” says Janine. Davis Skyped every night Life has been providing women recovering from breast cancer with the
with his 13-year-old sister and the rest of the group, opportunity to learn fly fishing and fly tying on a three-day retreat. It’s a sweet
who made a photo album of the trip for him. “They did weekend away from it all, not to mention the potential for rehab benefits –
everything they could to include him,” says Janine. with breast cancer treatment, some women lose mobility and experience
Davis Weisner died not long after his sister returned arm pain and swelling that can be improved with gentle exercise.
from Mexico. Next year, Jessie plans to apply to make If you are a breast cancer survivor whose treatment has been completed for six
the trip again, this time in his memory. or more months, and you haven’t previously attended Casting for Life, consider
joining the group at Ghost River Conference Centre, an hour west of Calgary,
Time for
from July 22 to 24 this summer. For more information, visit castingforlife.com.
Sunshine
Check out “Dear 16-year-old me”
on YouTube. It’s a moving, short
video comprising testimonials
from young people touched by
melanoma. Forward it to the sun-
loving teenager in your life.
TRIAL & ERROR: Clinical trials sometimes don’t “I was treated for breast cancer ning towns can charge what they
include adolescents and few young adults join. in 2006,” says Wild Pink Yonder want, enjoy the party and direct the
organizer Jane Hurl. “In 2005 my funds where they want.”
ISOLATION: Young people with cancer can be step-daughter died of breast can- Visit wildpinkyonder.com or
isolated in ways that older adults are not. Their cer, so you could say we have a call 780-363-0003 to find out
peers may not have the frame of reference and double mad-on for it.” this year’s route, where you can
life experience to help them support a sick friend It gave her a mad idea, anyway. see the riders (all of whom are
or ask for support if they are the patients WPY is a 22-day trail ride to raise pinkified, along with some of the
themselves. money for the Alberta Cancer horses) and make a pledge.
Foundation in support of breast can-
DIFFERENT ANIMAL: Cancer may behave differ- cer research. The route is different
ently, and respond differently to standard treat- every year, and she and her son Rusty
ment in a young adult than in a child or older adult. (“our only paid employee”) challenge
Further study is needed. towns along the route to
“pinkify.” The process of
RESOURCE DEARTH: Other challenges for pinkification involves deco-
young people are a lack of money and the health- rating the town as imagina-
care benefits plans that older adults might enjoy. tively as possible in any
colour, so long as it’s pink,
FERTILITY FINDINGS: Cancer treatment can and to raise money for the
mean a loss of fertility. cause.
“Last year the winner
KILLER: Cancer causes more deaths than other was Trochu,” Hurl says.
diseases for people between 20 and 39. “They raised more than $27,000,
with a population of 11,000.” The
LATE EFFECTS: Treatment can save a young per- winner of the Pinkest Town in the
son’s life, but can cause damage to the heart and West, Trochu earned bragging
other organs, causing illness later. rights, a beautiful highway road
sign declaring their pinkness to all
FIGURE 8: Eight times as many people between 15 who pass by, and a free concert.
and 40 get cancer as do people under age 15. “We provide the band and the win-
What was Michael like? that I shouldn’t. Last year I held two concerts and
He was smart, funny and kind, and very musical. He raised nearly $1,500 for the Alberta Cancer
was into electronic music and was really creative with Foundation. My sister is also a musician, she plays
incorporating different and unexpected sounds and piano and sings, and she participated. We both
clips into his music. He looked at things differently – made CDs and sold them at the concerts with the
he was really cool. proceeds going to the Alberta Cancer Foundation.
Was he older than you? Your employer at the time chipped in.
Yes, I’m 20 and Michael was 25 when he died earlier Yeah, I worked at Chapters and that’s where the
this year. After he came home from Seattle he was concerts were held, at the west end and south side
treated and went into remission for two years. Then, Edmonton locations. The staff there also hosted
when his cancer came back, our sister Danielle bake sales at the same time and those proceeds
donated bone marrow for a transplant. went to the Alberta Cancer Foundation, too.
You decided to raise money through music. LISTEN: Andrew stopped by the Alberta Cancer
Yes, I’m a singer/songwriter. I figured I had something Foundation office to play a tune. Check it:
to give that people appreciate and there was no reason youtube.com/watch?v=ZvfH74yMnHM
les
Fred Co
progress towards a cancer-free future,
please contact Derek Michael,
780 643 440 0, 1 866 412 4222
or email derek.michael@alberta
cancerfoundation.ca
albertacancer.ca
Ratatouille
1 Tbsp canola oil 1 zucchini
2 garlic cloves, minced 2 yellow crook-neck squash, sliced finely
1½ cup sodium-reduced tomato puree 1 red or orange bell pepper, sliced finely into rings
¼ tsp fennel seeds 1 small red onion, slivered
¼ tsp oregano 1 Tbsp canola oil
pinch hot pepper flakes ¼ tsp each: thyme, black pepper, coriander seeds
1 Japanese eggplant, sliced finely 1/3 cup shredded fresh basil
salt & pepper to taste
Directions
Preheat oven to 375 °F. Mix the first six ingredients together and pour into the bottom of a
shallow baking dish or rectangular casserole dish. The veggies should be sliced finely and
evenly. Arrange them in the dish, overlapping, alternating the slices, so they lie like tipped
dominoes. Work in the slivered onion amongst the slices. Mix the second tablespoon of oil
with the remaining dried and fresh herbs. Drizzle this mix over the veggies. Cover dish with
tin foil punctured in several places. Bake for approximately 30 minutes, remove the foil and
bake for about 15 more minutes. The vegetables be cooked but still holding their shape and
shouldn’t be soggy. Serve with a nice, grainy bread. Serves 6.
In Partnership With
bodymind / MAKING POSITIVE CONNECTIONS
A Deeper Blue
BY LINDA E. CARLSON
Home Plate
BY KAROL SEKULIC
Alberta’s vegetables are as delicious in their variety in planters or rent a community gar-
as they are in taste. Even the pickiest eaters will find some den plot.
veggie to love. And fruit? Well, fruit is nature’s treat. And
unlike other treats, Alberta fruit is as rich as veggies in What local vegetables and fruit
nutrients and antioxidants and can reduce the risk of should you eat to reduce the
certain cancers. High in water and fibre and generally lower risk of cancer?
in calories, produce can also help us manage our weight. The report Food, Nutrition and
Being at a healthy weight can help reduce cancer risk too. the Prevention of Cancer: A Global Green at heart
Make it easier and more fun to love your produce this Perspective specifies that non-starchy Power up your
summer by opting for the best Alberta’s farms and fields vegetables and fruit probably protect meals with these
have to offer. Read on for some ways to get some local against some cancers such as mouth, easy additions.
cancer-busting vegetables and fruit into your day – and pharyngeal, laryngeal, esophageal,
into you. stomach and colorectal. Examples GIVE A TOSS: Add a cup of green
of non-starchy vegetables that are beans to your meal, steamed first
Choose local produce commonly grown in Alberta include and tossed in a drizzle of sesame oil.
The local food movement isn’t new. Championed in the green leafy vegetables, tomatoes, FIELD FRESH: Choose a leafy green
book The 100-Mile Diet by Vancouver writers Alisa Smith beans, peas and bok choy. Potato, yam salad as a side dish.
and J.B. MacKinnon, local eating is easier now than it was and sweet potato are examples of
FAST FOOD: Take some crunchy
a decade ago. The Canadian Food Inspection Agency starchy vegetables. Keep in mind that vegetables, such as broccoli and
defines local food as grown or produced within 50 all vegetables, starchy or not, local or carrots, to work or to the movies for
kilometres of where it is sold. Fresh and tasty, it’s usually not, are still nutrient-rich. a snack.
easier on the environment, as it wasn’t shipped from For dessert, try some fresh blueber- CABBAGE PATCH: Bring coleslaw
another country – or continent. ries, raspberries or strawberries. At the to your next potluck or picnic.
Find local food by visiting a farmers’ market or asking peak of summer sweetness, berries
the produce manager of your favourite grocery store to freeze well. Buy frozen or freeze them BERRY GOOD: Toss some berries
on your cereal or ice cream for a
stock more local foods and clearly identify them as such. yourself in batches on a cookie sheet, nutritious, delicious punch.
Make a day of it this summer by visiting a U-pick farm with transferring to sealable bags. They are
your friends or family to pick fresh. And think about start- ready in your freezer for baking or ONLY VAMPIRES AVOID GARLIC:
Mince a little garlic and put it into
ing your own veggie patch or pot at home. Beginners smoothie making. salad dressings or sauté your vegeta-
should try carrots, beans, snap peas, lettuce and onions. bles with it.
If you don’t have a garden space, try growing tomatoes How much is enough?
MORE IS BETTER: Increase the
Aim to have seven to 10 servings per
variety of your meals by including
day. It sounds like a lot, but when you one new or locally-sourced food
think that half a cup (125 mL) of fresh each week.
or frozen vegetables is a serving, it
adds up quickly. Increase your intake by
having a bowl of fruit in easy reach. Keep
Find local
Photograph courtesy of Travel Alberta
P
More insight yourick up
todacopy
More community y!
All by
Myself
Young adults are blindsided by
I
n 2004, Ashley Rose was immersed in her Bachelor
of Science degree at the University of Alberta and burn-
cancer. It changes relationships ing the candle at both ends, taking a summer course and
working full-time. One day, feeling the weight of fatigue,
and can be especially isolating Rose was walking across a parking lot after a class. She looked
at a cement block and thought it looked comfortable enough
to be a pillow. The 21-year-old had never been so tired. A cou-
BY TAMARA STECYK ple of weeks later, she was sitting in a large lecture hall. Every
time she extended her neck to look up from her notes to
the professor, her breath would catch. It was time to see the
doctor.
A few days after her appointment, Rose arrived home from
her second day as an occupational therapist practicum
student, to discover two missed calls from her doctor and office was near the university at the Cross Cancer Institute.
three messages from a surgeon. Nervously, she dialled the But Rose wasn’t finding the peer support that she needed.
doctor’s office. They were closing but told her if she could She did discover who her friends were. She drifted apart
make it in 15 minutes, they would stay open for her. from some who seemed unable to handle the fact that she
The rain was pounding as she raced 80-kilometres- had cancer. One of them was a close friend who was in
an-hour to hear the results. medical school but couldn’t cope with Rose’s illness.
It was thyroid cancer. “I was crushed,” Rose says. Others seemed to rally around her. Three friends in par-
“They figured that I’d had it for five to 10 years. It had ticular stuck by her; one of them made her a stained glass
spread into my breast tissue.” The diagnosis would angel so Rose could always have an angel beside her. During
change her. one hospital visit, Rose was recovering from an operation
and was nauseated from the anaesthetic. “When
When she was diagnosed, Margo friends come to the hospital to hold your puke
bucket – it solidified friendships to this day.”
Schulte Long was afraid. “Then, seeing
Later, Rose’s mother told her that she had seen
how everyone else was reacting around the same unflappable friends in the hallway, pale
me, I started worrying how other and grim, even crying, out of Rose’s sight so as to
people were doing.” not upset her.
Rose still needed to talk to others her age who
Young adults who get this kind of news are often could comprehend what she was going through. She
blindsided. They’re at the prime of their lives. It can turned to Young Adult Cancer Canada, a national organi-
change not just their health but how they relate to friends zation to support young adults with cancer. She also signed
and family. It’s especially difficult for young people to up for a nine-day kayaking trip on the Owyhee River in
handle these changes in their relationships. Rose may Oregon with Survive and Thrive, an annual expedition for
have had family and friends surrounding her while she young cancer survivors, last summer. The expedition pro-
was being treated but she still grappled with feelings of vides young adults a chance to reflect on their journey with
isolation and rejection. cancer and an opportunity to reclaim their lives.
And she wasn’t the only one in the family who was “I thought I was doing great but there’s something to be
sick. Her father was being treated at the time for non- said about being with other people who’ve gone through
Hodgkin’s lymphoma; Rose was admitted to the hospi- the same thing,” she says. “It’s not that cancer defines who
tal just two days after he was discharged. “I was worried we are. It’s part of who we are.”
about my family,” Rose says. She didn’t want her diagno- Réjeanne Dupuis, a psychologist at the Tom Baker
sis to add more stress. Cancer Centre in Calgary, says isolation stems from
Once she recovered from her surgery, Rose returned friends and family who don’t know how to interact with a
to her life as a student while grappling with cancer. “I cancer patient. “There’s a stigma about being sick,” Dupuis
found the hardest part was perspective. My friends were says. “People know it is a life threatening issue. People
all going out travelling and partying,” she says. “I was don’t know what to say to a cancer patient.”
bound to the outcome of my medical tests.” And cancer patients, especially young adults, don’t want
In between classes, she would visit her doctor, whose to burden their friends and family.
“Often, they don’t know what they need,” Dupuis says. children’s lives, especially the twin babies.
“They don’t feel like they are contributing anymore.” “It was really hard to know I wasn’t raising the babies.
Margo Schulte Long felt she wasn’t putting as much into The babies didn’t know me. I didn’t have anyone to talk to
her role as a mother to her identical twin babies and three- about it. Just like you die alone, you go through sickness
year-old daughter as she wanted to after her diagnosis with alone. It’s such a singular, solo journey,” she says.
follicular non-Hodgkin’s lymphoma in 2002. Her form of cancer usually targets older people and
Her pregnancy was problem-free. That summer, by the Schulte Long couldn’t relate to other cancer patients.
time Georgia and Mikal were two months old, Schulte “When I got this, there was no one to talk to. I couldn’t be
Long had them on a regular breastfeeding schedule and part of the breast cancer movement. I had no group,” she
she was feeling great by getting back in shape through jog- says. “I have the disease that’s only for 65-year-olds.”
ging. One morning she was checking herself out in the mir- Schulte Long is now in remission. She coped with her
ror, thinking how well she was doing about reclaiming her cancer by starting the SnowBall, an annual fundraiser for
body from a pregnant state. Schulte Long turned sideways the Alberta Cancer Foundation, in 2003. The last SnowBall
and noticed that she still looked like a woman who was in was held in 2009 and the combined events raised between
the third month of pregnancy. She ran her hand over the $60,000 and $70,000 for the foundation.
area and felt a large ridge around her belly that couldn’t be Both Rose and Schulte Long still feel there is much room
extra fat or excess skin. It was a lump that wasn’t going for growth to support young adults with cancer in Alberta.
down. Her doctor suggested it was fibroids and booked an Rose says she is living a dream life right now as she just
ultrasound. Schulte Long eventually found that she had a landed her perfect job with the Edmonton Catholic Schools
slow-growing and currently incurable cancer. Her largest and has bought her first house. Schutle Long has remarried
tumour was 17 centimetres in diameter. and is busy maintaining a household that sometimes holds
Schulte Long, 31 at the time, says she couldn’t release her five children.
feelings about her diagnosis. This past April, Rose attended an Edmonton movie
“At first, I was in pretty extreme terror and then, seeing screening for Wrong Way to Hope, a film about a group of
how everyone else was reacting around me, I changed to young Canadians with cancer who went on the expedition
damage control,” she says. “I started worrying how other on the Owyhee River, led by 25-year-old Mike Lang.
people were doing.” Following the screening, Rose asked the 60-member audi-
During her chemotherapy and a new immunotherapy ence if she could collect names and contact information for
treatment, she would end up in a lot of pain and vomiting, an Edmonton support group for young adults with cancer.
resulting in several trips to the emergency room. By January, Eight young people gave her their information. Rose has
it was decided that the clinical drug trial wasn’t working and been researching how to start a group and how to reach out
she was put on a different treatment. to young people. She knows that many young cancer
“I was a mess. I spent a lot of time either with home care patients go through what’s called “reintrajectorization,”
or being in the hospital. I just had to make it through each the process of reconnecting with their old lives while grap-
minute,” says Schulte Long. pling with the disease.
In the meantime, her first husband and parents stepped “Long after diagnosis, you realize what impact it has on
up to help with the three girls. Schulte Long had a difficult your life, personality and future,” Rose says. “Don’t be afraid
time trying not to resent that she was missing parts of her to live your life. There is hope for life after cancer.”
No Pity Party
Who would blame Alyson Woloshyn if she opted to focus
exclusively on herself? Instead, she gives back
BY MIFI PURVIS
of hours later I asked Jared to get me a bucket and I oncologist and other medical staff. She recently returned to a new position at the
started throwing up. He said, ‘That’s it.’ We got into the University of Calgary. The future, while shorter than she had hoped – “I hope to live
car and he took me to the emergency room at Foothills another five or 10 years” – still looks bright to her.
Hospital.” Long went to park the car and by the time he Clearly, her diagnosis was life-altering. And who would blame her if she opted to
got back, Woloshyn had been triaged and had seen a focus exclusively on her own health? But for Woloshyn, the change was a watershed
doctor, who arranged for a CT scan. that spurred her on to do better and be more.
The scan revealed a seven-centimetre growth in her “I’ve always believed that you need to put more in than you take out,” she says.
brain. Odds were good that it wasn’t cancer. Woloshyn “When I looked for ways I could help, it didn’t take long to find the Alberta Cancer
sailed through brain surgery and was discharged a few Foundation.” She speaks at events to help the organization raise money for research
days later. “This is how naive I was: I’d called my boss and treatment, and plans to donate to the organization part of the income from a self-
and said that I needed a few days off work,” she says. published book about her journey. “I hope that through my example, others will also
“When they called me for my follow-up appointment look to donate their time and money and put a little back.” She has received the maxi-
three days later, I figured they would tell me it wasn’t mum treatment available for brain cancer – there is nothing else. She hopes future
cancer – that I’d be out in 20 minutes.” patients in her position will have more options.
That appointment lasted three hours. Woloshyn was She says she has the skill set that could allow her to make an impact: event planning,
diagnosed with glioblastoma, a rare brain cancer. organization and motivational speaking. All she needed was the impetus to bring it all
“There are four grades and mine is a Grade 4, the most together. Unfortunately, that came in the form of glioblastoma. She started a blog at
severe,” she explains, her voice unwavering. “It has fin- alysonwoloshyn.com, at first to update friends on her condition, and then to inspire
gered into my brain and it’s difficult for surgeons to tell people to give back. Her enthusiasm is remarkable. She writes: “I may not have chosen
what’s brain and what’s tumour.” this path, but I choose to use the journey to make a significant difference.”
Woloshyn, Long and her parents attended the
appointment. “I can’t say enough about the care we
received,” Woloshyn says. “They had all the resources
there for us, and a full layout of a treatment plan.” She THE CAUSE
received radiation five times a week for six weeks con-
Alyson Woloshyn supports the Alberta Cancer Foundation – Brain
currently with low-dose chemotherapy. For the next Specific Research Trials and Grants. Find out more:
year, she used a new drug, Temodol, in a treatment regi- donate.albertacancer.ca/netcommunity/woloshynwarrior
men that was pioneered in part at the Tom Baker Cancer Every dollar raised will be put into research that focuses on finding a
Centre, funded in part by the Alberta Cancer cure for brain cancer. To support this journey, Alyson launched
Foundation. Woloshyn’s Warriors Event Tour, series of events to raise funds for the
Today, Alyson Woloshyn’s health is good. She does Alberta Cancer Foundation.
everything she can to maintain an anti-cancer lifestyle, To buy her book, go to www.alysonwolyshon.com
including working with a naturopath, as well as her
“I’d been working with at-risk youth, doing something good with my life and it was acceptance, perhaps young children at home and isola-
taken away from me. I felt my life was worthwhile,” he says. “It was so difficult for me tion within a health system geared to older patients.
and I was mad at God for putting me through it. I was mad at the injustice.” “All the young adult cancer survivors I’ve met say
It’s never fair and nobody expects cancer. But the odds of Lang having cancer were isolation is one of the biggest things,” says Lang. He
low. He was the picture of health and youthful vitality. Ironically, that’s one of the barri- recalls sitting in the waiting room at the Tom Baker
ers to earlier detection among young people. Lang’s age, Cancer Centre in Calgary
health and overall strength were factors that meant
neither he nor his doctors considered him particularly
“A delayed diagnosis is one of the awaiting chemotherapy
treatment. His sense of
vulnerable to the disease. biggest issues for young adults isolation grew when he
“A delayed diagnosis is one of the biggest issues for with cancer. It’s not supposed to looked at the faces sur-
young adults with cancer,” says Lang. “It’s not supposed rounding him. “I was the
to happen to people my age.” happen to people my age.” only young person in
Bonnie Lang, Mike’s wife and a professional personal that waiting room; every-
trainer, agrees. “Cancer is more expected when you’re older. Doctors check it out faster, one else was at least 30 years older than me. You feel like
and survivors have the thought of it at the back of their brains,” she says. “When you’re you’re the only person your age to ever get cancer.”
younger, it’s just not what you expect to hear.” Despite this, very little support, resources or research
However, according to Young Adult Cancer Canada, nearly 7,000 people between 15 funds are invested in this specific demographic. In fact,
and 39 are diagnosed with cancer every year. While survivorship rates for paediatric less than 0.1% of all research spending in Canada in 2006
patients and adults over 40 years old are steadily improving, rates for young adults with was targeted at young adults with cancer.
cancer have not changed since the mid-1970s. The first few months after diagnosis were dark and
Anyone living with cancer faces difficulties both physical and mental, but there are painful times for Lang. “I was in an angry place.” Aside
certain concerns that are unique to younger people. “Financial issues are big. At this age from the emotional trauma, the physical pain was
you are unstable. There are student loans. Car loans. Maybe a mortgage. We were lucky extremely difficult to bear. “Chemo drugs are really hard.
the chemo was covered, but the nausea meds were $30 per pill,” Lang says. “It’s not ideal One drug in particular was like fire in your veins. It took
to be married for five months and move back in with the parents. But I didn’t qualify for almost two hours each time to drip into my veins.
EI, so without them, we would have been homeless.” He says there are the issues of peer Toe-clenching pain.”
five-month-old daughter grow up. She says her river trip together. However, those couples whose relationships do make it through can have
served as a metaphor for her life and her cancer journey. deeper bonds than ever. “Our mariage has been 100 per cent strengthened,” says the
“It taught me that, in my path through life, I may not effervescent blonde woman. “We’ve grown so much, as individuals and as a couple. We
always be able to see what dangers may lurk around the communicate even better than before. We have a new perspective.”
corner,” she says. “But I am strong, capable, and sur- Mike Lang’s hair is back and so is his athletic form. Looking at the pair of them,
rounded by good friends who will pull me to shore when you’d almost think nothing bad had ever happened to them. They could have
the river of life threatens to overwhelm me.” simply curled up together and got on with their lives now that Lang is in remission.
Alston Adams, from Montreal, was diagnosed with Instead, the disease has changed the course of their lives. “To me, this film is about
esophageal cancer at age 32 just after landing his dream redemption. It has brought abundant good out of a painful journey that almost
job. In the film, he jumps off a cliff into a river after repeat- destroyed me,” Lang says.
ed hesitation. He faces a fear of heights, but we know he’s “Now, everywhere I turn, I
already overcome worse than most of us can imagine.
Sadly, Adams died last year from cancer. The film
can’t help but see meaning
and purpose.” The experi- WATCH IT
immortalizes his friendly spirit, optimistic attitude and ence has turned Lang into Edmonton Filmmaker Joe Viszmeg
courage. Viewers are hit with the glaring reality that one not just a young adult who famously likened his own journey with
in seven young adults who are diagnosed with cancer will made it through cancer, but cancer to “a monster truck rally, with
die from the disease. also documentary filmmak- a six-pack of beer beside me.” For the
Mike and Bonnie are currently driving across Canada er, fundraiser, public-speak- perspective of a young Edmonton father
in an RV, showing the film to oncologists, psycho-social er, promoter and inspira- facing his own mortality, check out the late
and other allied health-care practitioners, cancer patients tion. On his website and in Viszmeg’s award-winning docs about his
(and former ones) and their support networks. Many his presentation, Lang likes experience with cancer.
others are simply film-lovers keen to watch a great story to quote Dr. Rachel Naomi In My Own Time: Diary of a Cancer Patient,
of strength and adventure. Remen, an American spe- recounts his diagnosis with adrenal cancer
But Lang says that when friends and family members cialist in the mind/body in 1991 and the impact it has on his life with
see the movie they often ask the cancer patient or former health field: “Facts bring us his young family. His account of living for
patient in their lives: “Did you go through all that emo- to knowledge, but stories years with this disease, My Healing Journey:
tional stuff?” And the survivors answer, “Yes, but I didn’t lead to wisdom.” Seven Years with Cancer, was released
know how to tell you.” The film changes both the patients’ “Stuff happens to you, shortly before his death in 1999.
and their friends’ and families’ experiences of cancer. you know, that you can’t To watch or buy these remarkable films,
The Langs have met countless cancer survivors and control,” he says in visit The National Film Board of Canada’s
their partners, and they have seen the devastating effects the film. “But you can website (www.nfb.ca) and search “Viszmeg.”
the disease can have on young relationships. Bonnie says choose where you go
that many couples going through cancer don’t stay from there.
A lberta summers are short and sweet, so make the most of your free
time this year. One of the best ways to safeguard your physical and
mental health is to get out and get active – enjoy life. There is something for
everyone and every ability, and certainly no shortage of fun stuff to do
around the province. Check out a 10-pack of our favourites. Some are
well-known summer jaunts and others are a little more obscure, but
you’ll find something here for you.
BE UKRAINIAN:
Hit the Ukrainian Cultural Heritage Village, 50 TOP TIP: The village
kilometres east of Edmonton. The award-winning is close to the
historic site honours the many Ukrainian settlers in entrance Elk Island
Alberta. Step back in time, to the late 1800s and National Park. Start
meet some actors portraying real-life Ukrainian early and make a day
pioneers. The village includes Ukrainian churches, of it.
a grain elevator, blacksmith shop and a traditional
sod hut. Don’t miss the great food.
COST: $9, free for children under seven
FIND OUT MORE: culture.alberta.ca,
780-662-3640
SUMMER LOVIN’
Visit us online at myleapmagazine.ca to share some of your favourite
ideas for summer fun!
summer 2011 35
Research Rockstar
To
Teach
HisOWN
BY ANNALISE KLINGBEIL / PHOTOS BY 3TEN PHOTOGRAPHY
ABREAST OF CHANGE
Some women dread breast examinations, but not
Sandy Moser. The retired nurse works as a stan-
dardized patient in Dr. Scott North’s oncology
class, helping to teach second-year medical stu-
dents how to give a patient a breast examination.
“You have to be an old broad who doesn’t get
embarrassed anymore to go ahead and let the
students learn how to do a proper breast exam on
you,” says Moser.
Moser has worked as a standardized patient in
University of Alberta classes for more than a
decade. A standardized patient is a person who
has been trained to realistically reproduce the his-
tory, physical findings and personality of an actual
patient for the benefit of students.
In Dr. North’s oncology class she also acts as a
thrilled to hear North had won the 3M Fellowship. “Dr. North almost can’t be equalled,” patient who has cancer and is about to receive
says Moser. “You get to my age and you’ve seen a lot of instructors. He’s got to be the top of very bad news from her doctors. Moser is typically
the heap. He’s got this magical ability to be kind to everyone, which is difficult. He’s put in a room alongside an examiner, students
exceedingly kind to the students, very kind to us actors and incredibly kind to the examiners. then come into the room one at a time to give the
He has one mode and that is kindness.” bad news and Moser must show shock, grief, dis-
Former student Loewen says North’s memorable course inspired him to pursue oncology. may and whatever other emotions feel natural.
“You could just tell he really loved what he was doing,” says Loewen, who is finishing his final “Amazingly, I find I can burst into tears 20 times in
year of residency in radiation oncology at the Cross Cancer Institute. “He’s a great teacher and a row,” says Moser.
he’s really a visionary.” Loewen says working with patients who have a terminal diagnosis can While Moser says the exercise is difficult for all
be a daunting concept for medical students to embrace, and one that North was able to make involved, she sees it as essential in preparing stu-
less intimidating by including actors and guest speakers in his classes. dents to tell patients similar news, in a kind and
North says there’s a huge sense of satisfaction when he sees students understand caring matter, once they leave the classroom.
something they previously struggled with. “If you do a good job teaching somebody, Helping students learn, by acting as a standard-
they’re going to go out and teach the next person. You’re helping to keep the ball rolling ized patient, is important to Moser. “When I grad-
and to keep everybody globally educated.” uated (from nursing) in 1963, we had no such
And while students such as Loewen have chosen to pursue oncology, hundreds of others thing. We had a plastic dummy that we could
who have not specialized in the field of cancer have learned to be comfortable working with practice on,” says Moser. “I would have loved to
cancer patients. “I want (students) to look at oncology as a specialty that maybe they would had standardized patients to try out my skills on,
consider,” says North. “But, even if they don’t want to consider it, at least I want them to before I actually got into the general population. I
walk away from the course feeling a little bit more confident, that they can deal with people think it’s one of the most ingenious ideas yet.”
who’ve got cancer.”
“I’d been on many sides of people living and dying with with breast cancer in group and individual therapy. Now
cancer, and I felt that if I turned my career in that direction, an associate professor in the Department of Oncology,
I wouldn’t just be a researcher – I’d be someone who Division of Psychosocial Oncology, at the University of
intimately knew the family standpoint and what might Calgary, Giese-Davis found growing evidence that
matter to regular people,” she says. She became depression might negatively impact survival with cancer.
a researcher and clinician at Stanford University’s She wanted to find out more.
Psychiatry Department and worked with many women A cancer diagnosis can trigger a depressive episode. It’s
the start of an emotional journey that closely parallels the
stages of grief. It begins with shock and disbelief, and grad-
What Giese-Davis found in her ually moves towards reconciliation with mortality and a
greater sense of oneself. But how each person responds to
research was interesting – and the diagnosis can vary.
relevant to patients: Could “Many people go on to live happier lives than they did
before,” says Giese-Davis. Others, however, find them-
treating depression help a person selves mired in depression, especially without the sup-
with cancer live longer?
those who’ve completed chemotherapy and radiation ment in a group of breast cancer patients. Participants commit to work out in the facility
treatment and are declared cancer-free are followed for three times per week while undergoing treatment. Researchers like Belanger set up indi-
three years to determine the effects of exercise on dis- vidual programs and monitor the effects of the physical activity. Early results of the
ease-free survivorship. Physical activity has been linked research indicate that exercise is helping participants cope better with chemotherapy
to cancer prevention and researchers believe that those and they are experiencing fewer delays and setbacks in their treatment.
who develop active lifestyles will remain free of disease “I was feeling so ill last week after my chemo treatment and I tried everything I could
longer. To ensure the accuracy of the results, almost 1,000 think of to overcome the symptoms – from hot baths to ginger-ale,” says Janis Clegg, a
people will be participating in a coordi- young mother of two who is partici-
nated program through more than 17 “The side-effects of chemotherapy pating in the program. “I had com-
cancer centres in Canada and Australia. mitted to go to the gym three times
After three years of close monitoring and
treatment are very hard to handle at per week, so I dragged myself in here.
mentorship in the gym, researchers will times,” says patient Janis Clegg, “but I was surprised when I discovered
follow participants for 10 years. exercise is helping me tolerate it better.” that after I got on the treadmill I start-
Being a participant means coming to ed feeling better. The side-effects of
the gym at least once a week and working chemotherapy treatment are very
with Belanger as a fitness coach. It’s a big commitment, hard to handle at times, but exercise is helping me tolerate it better.”
but Amero sees it as a great opportunity. “When I was When Belanger is not in the gym coaching participants, writing exercise plans, and
going through chemo, I didn’t want to do anything,” analysing data, she spends her time working on her graduate project – a study on the
Amero says. “I thought this would be a good way to get effects of exercise on the quality of life of young adult cancer survivors. As part of her
back my muscle tone, but it’s done so much more. I have a thesis project, she is creating an exercise guidebook for young adult cancer survivors and
lot more energy since I started exercising. It’s great to will be following up by analyzing the effects of this guidebook in motivating young adults
have access to this kind of support. By the end of the three to stay active.
years, I’m going to be very fit.” “I love my job,” she says. “This research is so important, because it deals with ways to
The second project taking place in the facility is analyz- improve quality of life for people who have had cancer. It’s not enough just to survive the
ing the effects of exercise during chemotherapy treat- disease – I want to make people’s lives better.”
Meet Alberta’s
cancer-free
movement
Stay current with Alberta’s
movement for cancer-free lives.
Follow us on Twitter, like us on Facebook,
or visit us online at albertacancer.ca
• Inspiring stories
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• More than 200,000 powerful donors
albertacancer.ca
PRINT
PERFECT
The folks at ION Print Solutions knew
they could make donations to the Alberta
Cancer Foundation go farther – twice as
far, actually
BY MIFI PURVIS
This spring saw Peter and Gwen Fargey of ION Print Solutions finally finished treatment in October 2010 and set about
on an extended golf holiday in Arizona, and there was no bet- gaining his strength back.
ter time to be away, weather-wise. Thankfully, the plan they That’s why this spring’s golf trip to Arizona was especially
had hatched and set in motion with the Alberta Cancer welcome for the couple.
Foundation was ticking along quite nicely without them, dou- “Peter received wonderful care and attention at the Cross
bling the impact of every donation sent to the foundation. Cancer Institute in Edmonton,” says his wife, Gwen. “But
Now in its second year, the plan every patient is different and his
had its genesis year before last, cancer was rare. If you don’t do the
with Peter’s persistent gut ache. It ION launched a matching donation research you don’t know how to
seemed to come and go, but it
wasn’t really tied to anything he
campaign in conjunction with the treat these things.” It seemed natu-
ral that the pair would want to sup-
was eating or doing. “I took Alberta Cancer Foundation. It was port the work of Peter’s oncologist,
Tylenol for it,” says Peter, “but it one of the most successful summer Dr. Michael Sawyer, and other
always came back.” He went to the researchers in the field.
doctor and eventually, Peter, then
campaigns to date. While Peter was being treated,
67, was booked for a gastroscopy, his business partner Craig McEwen
a test in which doctors threaded a tiny camera down his throat hit upon the idea of supporting cancer research with a
to get a look at what was going on inside. The test revealed a matching donation program. The company planned an open
rare duodenal cancer. house to showcase some new equipment in the shop – ION
The only treatment available was a surgery called a is a leading printer in the province. Customers, business
Whipple, which – in Peter’s case – involved removal of the people and many friends were invited. McEwen and Gwen
bile duct, the duodenum and half of his pancreas. A serious piggybacked the fundraiser on the open house and invited
infection developed and he had to undergo two more surger- Peter’s oncologist to give a talk about his research. There
ies with the eventual removal of the remaining part of his was a silent auction in which ION’s customers and suppliers
pancreas and his spleen. When he had recovered sufficiently, donated auction items, and proceeds from the event went to
he started 12 months of chemotherapy treatments. the Alberta Cancer Foundation. “At least that’s what I heard
Complications, including a serious blood clot, meant that happened,” Peter says with a laugh. He was busy with the
doctors had to change his drug regimen a couple of times. He task of dealing with cancer treatment. ION also launched a
Highway of Hope
A 16-year-old Alberta boy recently took some steps to raise funds for the Alberta Roll-Ups. They’d usually finish up at about 3 p.m.,
Cancer Foundation – more than a million steps. checking into a hotel and having dinner before
Dyllan Duperron, a Grade 10 student from Valleyview, ran nearly 1,000 kilome- Dyllan caught up on his schoolwork or, if he was
tres this spring in a journey that took him by foot from Alberta’s southernmost lucky, soaked his sore muscles in a hot tub.
community cancer centre in Lethbridge to its northernmost one in Grande Prairie. Other family members and friends were also sup-
Cancer is a cause that has touched Dyllan’s life on more than one occasion. portive of his ambitious project. “They think it’s pret-
Family members on both sides have experienced cancer, including both paternal ty cool,” he says. According to Boni, it’s given the pair
grandparents and an aunt, all of whom recovered. Dyllan’s uncle Romeo died of some insight into the emotional roller-coaster ride
brain cancer a few years ago. “Dyllan wasn’t able to make it to his funeral and he experienced by many people with cancer. “I know it’s
always felt bad about that, so this was his way of showing that he cared,” explains not really the same, but with all the obstacles we’ve
Dyllan’s mother, Boni Duperron. had to endure trying to get this run going and keep it
Dyllan started running in mid-March and, with a two-week break halfway through, going,” she says, “we feel a small taste of the ups and
made it to his goal at the beginning of May. He hit the road at 9 a.m. each day to run downs that cancer patients must go through.” To
approximately 35 km; Boni drove alongside him, pulling over at times so Dyllan donate: visit albertacancer.ca
could have a quick lie-down on the back seat or refuel on chocolate milk and Fruit – Robin Schroffel
Make this a weekend you’ll never forget. A Weekend to remember those we have lost,
and celebrate the lives we are saving each day. A Weekend creating hope for the future
as we journey together towards the ultimate goal: a cure for all women’s cancers.
This is the Shoppers Drug Mart Weekend to End Women’s Cancers™ benefiting the
®