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Director-General
Guidelines for working with people
with challenging behaviours in residential
aged care facilities – using appropriate
interventions and minimising restraint
NSW DEPARTMENT OF HEALTH
73 Miller Street
NORTH SYDNEY NSW 2060
Tel. (02) 9391 9000
Fax. (02) 9391 9101
TTY. (02) 9391 9900
www.health.nsw.gov.au
August 2006
Contents
3.2 Understanding behaviours and interventions Appendix 5 How the Public Guardian determines
in the residential aged care setting......................... consent to the use of restraint on an
elderly person in a RACFs.........................22
3.2.1 Understanding behaviours and
interventions in the residential aged Appendix 6 Behaviour monitoring log.........................23
care setting ..............................................8 Appendix 7 Dementia problem identification chart .....24
Glossary.............................................................28
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE i
Foreword
The rapid ageing of the Australian community will These guidelines are one of a number of initiatives being
result in an increased demand for health and aged care undertaken by NSW Health to improve long term care
services. In this context, it is critical to enhance the options for older people with severe behavioural and
capacity of a range of services to provide appropriate psychological symptoms associated with dementia
care and support for older people with complex care and/or mental illness. Other key initiatives include:
needs. There are, in particular, specific issues and a report on best practice models to facilitate appropriate
challenges in caring for older Australians in residential assessment, management and long term care for older
aged care facilities experiencing behavioural disturbances people with severe behavioural disturbance, entitled
associated with dementia and/or mental illness. The management and accommodation of older people
with severely and persistently challenging behaviour,
The Guidelines for working with people with challenging
and a review of NSW Health’s CADE Units to inform
behaviours in residential aged care facilities have
policy and planning regarding the role of these units
been developed for clinical staff working in these
in the continuum of care for older people with severe
facilities in NSW to guide them in caring for residents
behavioural disturbance. These initiatives are intended to
with challenging behaviours while ensuring the
support and complement the development of Specialist
residents live their lives with dignity and within
Mental Health Services for Older People (SMHSOP) across
a secure place of residence.
NSW, guided by a ten year Service Plan for SMHSOP.
The Guidelines propose clear procedures for the
The Guidelines for working with people with challenging
assessment and the development of care plans and for
behaviours in residential aged care facilities have been
ensuring the rights of the resident are upheld by
developed by key specialists in the field of aged care
residential aged care facilities. The document will assist
and I would like to take this opportunity to thank
residential aged care facilities to review their practices,
them for their dedication in working towards improved
policies and protocols regarding the issues of restraint,
clinical management of Australia’s ageing population.
medication use and management of challenging
The Guidelines will build on the last decade of reform
behaviour to ensure they reflect the evidence base and
in aged care in NSW to improve the quality of care
the views and experiences of the community as a whole.
for older people with complex care needs living in
The Guidelines will also assist in improving staff skills in
residential aged care facilities.
caring for older people within these environments.
Robyn Kruk
Director General, NSW Health
PAGE ii NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Acknowledgements
The project was funded by the Centre for Mental Health, Amelia Renu
NSW Health and was ably conducted by Sharon Wall Clinical Nurse Consultant, Psychogeriatrics,
from Ageing by Caring Pty Ltd. Riverglen Unit
North Sydney/Central Coast Area Health Service
NSW Health would like to thank all members of the
following expert reference group for their guidance, Professor John Snowdon
advice and provision of specialist knowledge. Director, Psychogeriatric Services
Rozelle Hospital
Dr Mike Bird
Sydney South West Area Health Service
Coordinator of Aged Mental Health
Greater Southern Area Health Service Catherine Wallace
Senior Manager, Residential Services
Professor Henry Brodaty
the Benevolent Society
Director of the Aged Care Psychiatry Service
Prince of Wales Hospital The project was ably supported by Robyn Murray
South Eastern Sydney/Illawarra Area Health Service and Emanuela D’Urso with the assistance of
Dr Kate Jackson from the NSW Department of Health.
Dr David Kitching
Psychogeriatrician, Concord Hospital Acknowledgement is also given to the NSW Health
Sydney South West Area Health Service Legal Branch and the many individuals and organisations
that provided feedback throughout the process.
Dr Rod McKay
Special thanks must go to the Guardianship Tribunal
Director, Aged Care Psychiatry Unit
and the Office of the Public Guardian for additional
Braeside Hospital
guidance and assistance.
Sydney South West Area Health Service
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE iii
SECTION ?
Header
SECTION 1
Introduction
The Guidelines for working with people with challenging that the carer’s role is respected and that ongoing
behaviours in residential aged care facilities constitute involvement and partnership is actively encouraged
a substantially revised version of earlier guidelines and supported.
originally released by NSW Health in October 2000,
The Guidelines for working with people with challenging
entitled The best practice model for the use of
behaviours in residential aged care facilities aim to:
psychotropic medication and guidelines on the
management of challenging behaviour in residential I improve the quality of care for residents living
aged care facilities in NSW. The purpose of this earlier within residential care settings
document, including a training manual, was to inform I improve orientation and training of staff working
the safe practice of physical and chemical restraint in residential care facilities
in the management of challenging behaviour in
I inform responsive development of policy and
residential aged care facilities in NSW.
protocols
In 2003, the Older People’s Mental Health Planning I increase the capacity of the residential aged care
Group, convened by NSW Health, recommended the sector to provide appropriate assessment and care
review of the document to update the current relevancy for older people with challenging behaviour.
of the material to reflect changes in practices and
policies that have taken place since the document In this document, ‘people with challenging behaviour’
was first written and to present the information refers to people whose behaviour causes stress or
in a more user-friendly, consumer driven format. distress to the person with the behaviour or any
number of other people interacting with them
The Guidelines for working with people with challenging including other residents, care staff, family and friends.
behaviours in residential aged care facilities recognise Challenging behaviours are associated with a decline
the rights of older Australians, living in residential aged in their cognitive capacity, generally due to dementia
care facilities (RACFs), to quality health services and a and/or psychiatric conditions such as schizophrenia,
dignified, independent and secure life. To ensure this bipolar affective disorder, anxiety disorders and agitated
right is met, residential aged care facilities need to be depressive states.
resourced and managed appropriately to ensure that
the dignity of all residents is maintained to the greatest While the document discusses the issues surrounding
degree possible. older people living in the residential care environment,
it is acknowledged that this is not an exclusive group
The Guidelines aim to help all staff in residential aged and that younger people are also residents in these
care facilities meet their responsibilities while caring environments. The differences between these groups
for residents with challenging behaviours to ensure should be considered when applying the information
the residents live their lives with dignity and within a contained within this document.
secure place of residence. This includes the maintenance
of a resident’s skills where possible, ensuring access to The information provided in this document can assist
community life and activities, encouraging and fostering residential aged care providers to provide optimal care
relationships with family and friends, the protection for older residents who have challenging behaviours.
of the person’s privacy and maximising the person’s It will inform the development of local policies,
level of independence on a day to day basis. protocols and practices regarding issues of restraint,
medication use and management of challenging
These principles must also be applied to carers, families behaviour and improve staff skills in caring for older
and friends. Following entry to a residential care facility, people within these environments. It will contribute
the carer’s role may change in some way but it is vital to safer environments, which optimally reflect the views
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 1
and best interests of the residents, their ‘persons
responsible’ and the community at large.
PAGE 2 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
SECTION 2
2.1 Challenging behaviours in RACFs The first step in the management of behavioural and
psychological symptoms involves the careful assessment
As noted in the NSW Health report on the Management and appropriate response to any physical, biological,
and accommodation of older people with severely and psychosocial, cultural or environmental triggers, or
persistently challenging behaviours (refer to page 26 other perpetuating factors including pain.
Guidelines – supporting policy documents) challenging
behaviour is considered one of the most difficult issues A range of interventions may be used to prevent
facing residential care providers in NSW. Residents may challenging behaviours as well as respond to them
exhibit challenging behaviour in the residential care (refer to Section 3). Prior to a discussion of these
setting for a number of reasons. This behaviour is common interventions, it is important to outline the
in dementia but may also be related to a range of other responsibilities of RACFs in the management of
medical and psychiatric conditions such as schizophrenia, challenging behaviours, explore the factors influencing
bipolar affective disorder, anxiety disorders and agitated challenging behaviours in residential aged care facilities
depressive states. People with dementia may also and discuss how to undertake an assessment process
have pre-existing mental disorders which may further that aims to identify causal factors.
complicate their management. When challenging
behaviour occurs, it can be distressing not only to the
person affected but also to carers, family and friends,
2.2 Responsibilities of RACFs
residential care staff and other residents. RACFs must provide services according to the
requirements of the law. It is important that residents
There are a number of complex and interactive presentations
are not exposed to unlawful acts (such as ‘assault’
which may occur, which may have a combination of
and ‘battery’) and are safe within the place of residence.
behavioural and psychological components and may include
Residences need to be equipped, operated and
psychotic features such as hallucinations. Other issues which
maintained in accordance with current occupational
may impact on or influence challenging behaviour in the
health and safety practices to minimise the risk of
residential care setting include delirium, depression and
accident or injury to residents and carers and to allow
dementia. With complex presentations, at times, it may be
them access to staff as required.
necessary for RACFs to seek the expertise and assistance
from specialist mental health services for older people RACFs should be able to provide the services that each
(SMHSOP), specialist aged care and/or dementia services. resident needs. Occasionally, these needs will exceed the
capacity of the environment to safely and appropriately
Caring for people with challenging behaviour requires
care for the person concerned. If a residential aged care
a holistic and individualised approach. Many challenging
facility cannot provide the services needed by a person,
behaviours can be prevented by providing effective
it should not accept that person as a resident. If needs
person-centred care which accommodates individual
increase significantly following entry to the residence,
differences and requires a thorough understanding
the most appropriate supports, interventions, resources
of the resident including their cultural, linguistic and
and options should be sought.
religious background, their sense of identity and life
experiences. This understanding is imperative to inform Staff of RACFs must regularly review the circumstances
the effective assessment, treatment and delivery of of each resident to ensure any relevant adjustments are
appropriate interventions that are tailored to a person’s made to their individual care plan and regularly review
specific needs. Such care is respectful of individuality their practices, policies and protocols to ensure they
and aims to promote dignity and quality of life through reflect the views and expectations of the community
maximizing independence and providing opportunities and society as a whole.
for pleasure and enjoyment.
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 3
Factors influencing challenging
2.3 I Depression may also present in combination with
behaviour in RACFs delirium and/or dementia.
I Good practice in the residential aged care setting
Delirium, depression and dementia may additionally affect
should include asking questions about people’s mood
the presentation of challenging behaviour. They may
eg “do you feel sad or depressed? If so, how often?”
occur in isolation, in a combination of two or all three or
with concomitant physical or psychological illnesses. I There are a number of easy to use tools to assess
residents with suspected depression in the residential
An understanding of delirium, depression and dementia care sector (refer to Assessment tools page 25).
is therefore necessary to accurately assess, diagnose, treat
I These tools do not diagnose depression and do
and understand the subsequent impact on the behaviours
not replace a comprehensive clinical assessment.
of older residents in residential aged care facilities.
However, they are useful for screening purposes
The following points outline the key characteristics and may thus assist with identifying older people
of these conditions. who require a more detailed assessment.
PAGE 4 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
2.4 Differentiating between delirium, depression and dementia
Differentiating between delirium, depression and dementia (the three D’s) requires skilled assessment.
The differences and similarities are outlined in the following table.
Sleep Often a disturbed 24 hour clock I Confusion disturbs sleep – may Early morning waking or intermittent
mechanism (later in the disease have a reverse sleep-wake cycle sleep patterns (in atypical cases the
process) I Nocturnal confusion person may sleep too much)
Onset I Usually gradual, over several years Acute or sub acute I Usually over days or weeks
I Insidious in nature (hours/days) I May coincide with life changes
Memory and I Impaired recent memory I Immediate memory is impaired I Recent memory sometimes
cognition I As disease progresses, long term I Attention and concentration is impaired
memory also affected impaired I Long term memory generally intact
I Other cognitive deficits such as I Patchy memory loss
in word finding, judgement and I Poor attention
abstract thinking
Duration Months/years and progressive Usually brief – hours to days At least two weeks – but can be
degeneration several months to years
Course May be variable depending I Fluctuates – usually worse Commonly worse in the morning
throughout on type of dementia at night in the dark with improvement as the day
a day I May have lucid periods continues
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 5
Responding to
2.5 be most productive when undertaken in environments
challenging behaviours that acknowledge the influence of the organisational
culture, the resident’s cultural, linguistic and religious
When a resident exhibits challenging behaviours, backgrounds, past life experiences, family supports,
responding appropriately and skilfully to these behaviours staff skills and provision of safe environment and care
is imperative. The management and appropriate practices on these responses.
interventions of these behaviours will initially require
an assessment process to identify triggers that may There are a number of resources that have been
contribute to these behaviours. The following table produced to assist staff when assessing and working
summarises the necessary steps to undertake when with challenging behaviours. These are contained
responding to challenging behaviours. These steps will on page 25, Education and training packages.
ure
cult St
l
na af
fs
io
at Remain calm.
ki
is
Respond to the
lls
an
resident’s feelings.
rg
Identify and
eo
Evaluate behaviour.
responses to Investigate and
behaviour. document the history
Resolve of the person
or (including cultural,
Start process religious factors)
again. The individual
and behaviour
Incorporating
in detail.
psycho-socio/cultural/
emotional/medical
factors and past Ensure appropriate
Implement experiences. physical examination
changes to and investigation by GP.
reduce triggers. Assess for delirium,
Document extensively. depression, pain.
Treat any obvious
Determine triggers causes.
impacting on behaviour Appropriately
es
Sa
ac
pr
vir
nm experiences, environmental,
re
o
PAGE 6 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
SECTION 3
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 7
3.2.1 Understanding behaviours and interventions in the residential aged care setting
The information contained within this table is provided as a guide and is not meant to act as a substitute
for personalised assessment and personalised clinical judgement.
This table does not include all specified side effects or relevant information regarding medications.
Prescribers must ensure that they are acquainted with all up to date information in relation to side effects,
interactions and recommended use of medications before they are administered to residents.
It is important to note that research trends and knowledge on side effects are still developing.
Where dementia with Lewy bodies is suspected, typical antipsychotics should never be used,
nor should they be used for residents with Parkinson’s disease1.
AGGRESSION
I Infection I Staff training in managing and I May have increased risks of raised blood sugar
approaching residents levels, postural hypotension, sedation,
I Fear
I Peaceful environment I May have significant weight gain
I Confusion
I Music I Clinicians take note of current debate linking atypical
I Psychosis
antipsychotics and increased risks of cerebrovascular
I Excessive stimuli I Exercise
adverse events in patients with dementia
I Change of environment I Avoidance of identified triggers
Anti-dementia drugs
I Poor communication techniques I Appropriate levels of light
I Need to be aware of authority conditions for use
I Loss of control I Reassurance with familiar objects
I Seek advice on use and eligibility in dementia
I Drug reaction I Family support
associated with Parkinson’s disease or
I Noise and crowd reduction
Lewy body dementia
I Assessment of family, social,
Typical antipsychotics
psychological and occupational
history I Often associated with side effects at anything
but low doses
I Socialisation
Benzodiazepines
I Short term or PRN* use
I Can worsen disinhibition
I Can increase risk of falls
I Can increase risk of severe agitation with rapid
withdrawal after long term use
Analgesics
I Should be considered if possibility of pain
Antidepressants
I Evidence suggests they may be effective
in the presence of dementia where there is an
absence of identifiable depression
Mood stabilisers
I Require monitoring for potential toxicity
I To be used only when first line treatment
has proven unsatisfactory
1 Behavioural and psychological symptoms of dementia (BPSD), International association (IAP) educational package www.ipa-online.org
PAGE 8 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Presenting problem Psycho-social intervention Medication group
AGITATION
Is a multidimensional Potential strategies include: Benzodiazepines
and complex phenomenon I Modification of the environment I PRN *or short term use
May be related to: I Provision of lounge chairs I Regular use can lead to tolerance, addiction,
I Anxiety and sofas for companionship depression and cognitive impairment
I Pain
I Reassurance Atypical antipsychotics
I Discomfort
I Stimulation I Diminished risk of developing tardive dyskinesia and
I Constipation/Incontinence
I Regular exercise extrapyramidal symptoms compared to typicals
I Grief
I Signposting – cues I May have increased risks of raised blood sugar
I Asking the person if there is levels, postural hypotension, sedation,
I Change of environment
anything wrong I May have significant weight gain
I Inappropriate medication
regimes
I Distraction I Clinicians take note of current debate linking atypical
I Contact and closeness, antipsychotics and increased risks of cerebrovascular
I Restraint
where appropriate adverse events in patients with dementia.
ANXIETY
I Excess stimuli worrying him/her I Regular use can lead to tolerance, addiction,
I Reassurance – familiar objects depression and cognitive impairment
I Counselling/cognitive behaviour
therapy
I Reducing excessive stimuli
I Increased involvement and
collaboration with family and friends
DEPRESSION
Depressive syndromes Potential strategies include: Antidepressants
may be related to: I Counselling I Monitor for increased agitation and confusion
I Grief/bereavement I Emotional support I Monitor for hyponatraemia (low blood sodium level)
I Change in environment I Adequate dose, for adequate time
I Companionship eg visitors schemes
I Coping skills
I Engagement in activities I Tricyclics may be associated with range of side
I Loss of familiar environment effects such as hypotension, sedation, urinary
I Cognitive behavioural therapy
I Loss of role retention, constipation, dry mouth, visual problems.
I Observation
I Change in self image Antipsychotics
I Increased involvement and
I Family history collaboration with family and friends I If psychosis is also present
I Poor coping I Socialisation
I Recent losses I Exercise
I Disease processes I Pleasant events schedule
I Past history of depression
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 9
Presenting problem Psycho-social intervention Medication group
PSYCHOTIC SYMPTOMS
SLEEP DISTURBANCES
Include sleep – wake cycle Potential strategies include: Antidepressants
problems
I Investigate the night-time I Consider if sleep disturbance is attributed to
May be related to: environment, including practices of depression
night-staff disrupting residents’
I Pain/joint stiffness Antipsychotics
sleep
I Poor mattress comfort I If psychotic in nature
I Creation of a sleeping environment
I Nocturia
I Night lights Benzodiazepines
I Noise
I Warm milk I PRN*or short term only
WANDERING
May be related to : Potential strategies include: Medications should only be used to treat the cause
I Pacing associated with agitation I Asking the person what they are of the wandering (if known).
I Restlessness associated with looking for or where they want to go Extreme caution in prescribing practice is warranted
pain, anxiety frustration I Identification to minimise the impact of medication on the mobility
of the resident.
I Effect of medication I Use of alarms and monitors
I Stress I Creating safe wandering
I Boredom opportunities
I Isolation I Exercise
PAGE 10 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
SECTION 4
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 11
4.3 Situations and processes for the use of restraint in RACFs in NSW
Situations warranting
consideration of restraint Explanatory notes Guidelines for service providers
Urgent situation
Restraint may be used in To discharge the duty of In this situation, staff can restrain without consent to prevent
circumstances where the person’s care in these instances an immediate crisis. However, this would not necessarily justify
behaviour presents a risk of harm it may be necessary to the ongoing use of restraint once a crisis has resolved.
to themselves or others or a risk protect the person from
In this situation, forms of “least restrictive” restraint that do not
of serious damage to property. harming themselves or
cause the person harm, agitation or distress and do not reduce
from harming others.
the person’s dignity or increase their risk of falling, may be
justified for this short term emergency use. To discharge the
duty of care owed to a resident in these instances such
physical restraint must be developed and recorded using
the good practice principles identified in this document.
Appropriate management
under duty of care
Restraint may be needed in some To discharge the duty A guardian does not need to be appointed to consent
instances to ensure appropriate of care in these instances to this type of restraint.
management of residents to it may be necessary to
To discharge the duty of care owed to residents in these
prevent them from harming protect the person from
instances, such physical restraint must be developed
themselves or presenting an harming themselves or
and recorded using the good practice principles identified
unreasonable risk to others from harming others.
in this document.
on an ongoing basis.
For example, the need to Staff must review the person regularly. This includes the
physically restrain someone need to ensure the person restrained is toileted regularly
who is cognitively impaired and skin integrity is maintained and that all needs are met.
and has on open wound, to (See Guideline for the documentation of restraint Appendix 3)
prevent them from dripping
blood around a facility.
PAGE 12 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Situations warranting
consideration of restraint Expl anatory notes Guidelines for service providers
Physical restraint as a
management strategy
Physical restraint that A guardian needs to be appointed by the Guardianship Tribunal
is neither an adjunct to with authority to make decisions about restraint.
medical or dental treatment
A behaviour management plan must be developed as part
nor acceptable within the
of the person’s individual care plan and submitted to the
above mentioned urgent
Guardianship Tribunal prior to the hearing to determine the
situations requires the
need for a guardian to authorise the use of restraint.
approval of a guardian
empowered by the If appointed, a private guardian or the Public Guardian may
Guardianship Tribunal require further information from service providers before
to give such approval. consenting to the use of physical restraint (see Appendix 4).
Psychotropic medication
used as restraint
Medication to control a Medication to control a person’s behaviour is regulated
person’s behaviour is by Part 5 of the Guardianship Act 1987.
considered to be restraint if
In these circumstances, an application for consent must be
the medication is not being
made to the Guardianship Tribunal.
used for someone who has
a psychotic condition or
other conditions for which
treatment with psychotropic
medication is indicated; or
the dosage levels, or
combinations, or numbers or
duration of the medication is
outside the accepted mode
of treatment.
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 13
SECTION 5
Good practice in the assessment and care of people I Exploration and acknowledgement of the causalities
with challenging behaviours incorporates: of the behaviour.
I Emphasis on the uniqueness and individuality I Appropriate design and use of a ‘dementia-friendly’
of the resident. physical and social environment. (Refer to reference
I A philosophy that supports person centred care. Adapting the ward for people with dementia).
I Employment of staff with mental health experience. I The use of approaches which aim to prevent
recurrence and focus on quality improvement.
I Flexibility and creativity in approach.
I Acknowledgement and documentation of the
I A workplace culture that is underpinned by
‘person responsible’ as the person who will be
education and training.
a decision-maker for the resident deemed not
I Consistency in approach. capable to make medical decisions.
I Identifying why and to whom the behaviour I Use of interpreters for people with low English
is a problem. language proficiency.
PAGE 14 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
5.3Good practice principles Medication advisory
5.4
for the use of medications committee (MAC)
in general in RACFs The Australian Pharmaceutical Advisory Council (APAC)
recommends in the document Guidelines for medication
The following points outline good practice for the management in residential aged care facilities (2002), that
use of medication in RACFs. residential aged care facilities should establish or have
I A medical practitioner who has assessed the direct access to and utilise the services of a Medication
resident must prescribe medications. Advisory Committee (MAC) to facilitate the quality use
I Medication administration must be adhered of medicines, including psychotropic medication.
to and reflected in the development of local It is suggested that each residential aged care facility
medication management policy. should establish or have access to a MAC. Membership
I A resident can only be treated if a valid consent should include at least a medical practitioner, an
has been obtained. If the person is unable to accredited pharmacist, a nursing representative and
provide this consent, then substitute consent a resident or their relative/carer.
must be sought from the person responsible.
The setting up of committees in this way is commended
I Information on the rights of residents in residential and ensures that good practice guidelines are
aged care facilities regarding medication must maintained for the use of psychotropics and other
be provided to them and their families and/or medications in the residential aged care setting.
the person responsible for the resident by
brochures or any other suitable means.
I When using pharmacological interventions, the The use of psychotropic
5.5
aim is to settle distress, without affecting clarity medication
of consciousness or compromising quality of life. Psychotropic medication refers to a group of drugs
I It is important to be aware that the inappropriate that have an effect upon an individual’s mental state.
administration of medication can harm a resident These include antipsychotics, ‘anti-dementia’ medication,
and polypharmacy may increase the risk of antidepressants and sedatives, hypnotics, anti anxiety
medication side effects for older people. drugs and anti mania medication. Other medications
I Start low and go slow with increased vigilance not designed as psychotropics, including anticonvulsants,
for any side effect. narcotics, anti-histamines and beta-blockers, may at
times be used for their psychotropic properties.
I Dosages of medication will generally be lower in
elderly patients with dementia than those used The older person is, in general, more susceptible to
in younger patients and in older non-demented side effects from psychotropic medication and may
people. The elderly are a heterogeneous group manifest adverse and at times atypical or not previously
requiring an individualised approach to dosage. described effects.
I All medication should initially be considered as
a trial for a specified period to see if it helps
to clearly identify problems. It should then be
reviewed by the medical practitioner to determine
the duration and efficacy of the use of medication.
If the medication is found not to be effective,
it should then be altered or ceased.
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 15
5.6Good practice principles for the administration
of psychotropic medication in RACFs
The following points underpin good practice in the I Factors to be considered by a GP in a review
administration of psychotropic medication in RACFs: should include:
I If psychotropic medications are required, then – the natural history of the underlying disorder
the lowest dose of medication necessary to – previous history of response to and effects of
achieve therapeutic effect should be used. reduction in medication
I Note when using antidepressants, medications – any long term side effects of the medication
must be used in doses that are agreed to be
– assessment of staff reporting on resident’s
therapeutic and dosage may need to be increased
behaviour whilst on medication
if improvement has not occurred.
– intercurrent health problems
I The behaviour of the resident whilst on medication
must be documented to assist GP review. – environmental circumstances
I Standard practice must include regular reviews – effects of any behavioural interventions.
by the resident’s General Practitioner. (The term I Accurate documentation and ongoing record
‘GP review’ means examining the therapy, keeping need to be provided for the medical
confirming that it is still appropriate and optimal). practitioner for review.
I Frequent review early in the course of therapy I The frequency and severity of behaviour must
may be required. Timing of subsequent reviews be well documented prior to commencing
should be determined by the clinical circumstances. pharmacotherapy. Behaviour should be described
In most cases, this will be no longer than six weeks. rather than labelled.
I Care plans for residents manifesting complex,
severely and persistently challenging behaviours
should be developed with involvement of mental
health professionals, preferably from a local old age
psychiatry service.
PAGE 16 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
5.7 Guidelines for the use of restraint in RACFs
Understand the guidelines for consent were unable to because of diminished competency
and capacity. Information about who would be the
A resident in a RACFs cannot be treated without their
decision maker in this event should be documented in
consent. Practitioners are required to respect the
the resident’s file on admission. (Refer to Appendix 1
person’s decisions provided the resident is capable
to identify who is a resident’s ‘person responsible’.)
of making that decision. If a person is unable to give
informed consent then substitute consent applies Further information regarding consent and capacity
(The Guardianship Act 1987). The Act states that a is contained within the following texts:
person cannot give valid consent if they:
I Consent to medical treatment – patient information
I Cannot understand the general nature of the (NSW Health policy) www.health.nsw.gov.au/
treatment; or policies/PD/2005/pdf/PD2005_406.pdf)
I Cannot communicate whether or not they consent I Who can consent www.gt.nsw.gov.au
to the treatment.
I Who can decide? The six step capacity assessment
Staff, therefore, must have a clear understanding process Dr Peteris Darzins; Dr William Molloy;
of the capacity of their clients and an additional Dr David Strang.
understanding of who would consent if the resident
Assess appropriateness of restraint I Are there any objections to the restraint from
the person or any interested person?
Key questions to be asked are:
I Is its use considered to be non-contentious?
I Is the restraint considered necessary and beneficial
to the person? I Does the use of this restraint withstand ethical
scrutiny? (Refer to Glossary ‘Duty of care’.)
I Does the level of risk and the reasons for the prevention
of injury outweigh the effects of the restraint?
I Skilled and comprehensive resident assessment, I Incorporating changes to create a safe, familiar,
including discussion with the resident’s family and accepting and secure environment.
friends to better understand the meaning of the I Providing activities of choice.
behaviour and the life experience of the resident.
I Reassuring anxious residents.
I Skilling of staff in the recognition of medical,
I Using pharmacological approaches only if they
physical or psychiatric problems.
complement other approaches and to promote
I Up skilling of staff in alternatives to restraints. health and well-being.
Remember any restraint used must: I Include arrangements for toileting, feeding
and hydrating the person while restrained.
I Be the least restrictive form of restraint available
for the shortest duration necessary. I Be removed for 15 minutes every hour.
I Be removed when the resident’s condition improves I Be regularly planned and reviewed by the medical
or it becomes feasible to use a less restrictive practitioner (at least monthly).
alternative or form of restraint for the resident. I Be monitored by nursing staff hourly with the
I Be adequately recorded in the resident’s file. observations recorded in a format that is clearly
understood by all staff. (Refer to suggested
proforma, Appendix 3 and 4.)
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 17
APPENDIX 1
A 'person responsible' is not necessarily the patient's If a person identified as being a 'person responsible'
next of kin. A 'person responsible' is either: declines in writing to exercise the function of 'person
I a guardian (including an enduring guardian) responsible' or a medical practitioner or other qualified
who has the function of consenting to medical, person certifies in writing that the person identified
dental and health care treatments as 'person responsible' is not capable of carrying out
those functions, then the person next in the hierarchy
or, if there is no guardian:
is the 'person responsible'.
I the most recent spouse or de facto spouse
with whom the person has a close, The 'person responsible' for someone who cannot
continuing relationship. 'De facto spouse' consent for themselves has a right and a responsibility
includes same sex partners to know and understand:
I an unpaid carer who is now providing support I the risks and alternatives
to the person or provided this support before I that they can say 'yes' or 'no' to the proposed
the person entered residential care treatment
or, if there is no carer: I that they can seek a second opinion.
I a relative or friend who has a close personal The practitioner has a responsibility to give them this
relationship with the person. information and seek their consent to the treatment
before treating the person.
PAGE 18 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
APPENDIX 2
I the safety and comfort of the person under The above information has been provided by the Office
guardianship of the Public Guardian www.lawlink.nsw.gov.au/opg.
I the specific needs of the person and her/his
circumstances
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 19
APPENDIX 3
Inclusion Details
Type of restraint Describe the restraint being used and where placed on body
Condition of restrained resident General comment on emotional and physical well being of resident
Review dates
Condition of skin – In restrained part as well as other key pressure points of body
– Any signs of redness or broken skin?
This proforma has been formulated as part of the development of this document.
PAGE 20 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
APPENDIX 4
Inclusion Details
Time on
Time off
Type of restraint
Review dates
Specific comment of
restrained part of body
Condition of skin
Name, Signature
and Designation
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 21
APPENDIX 5
The Public Guardian views the use of restraint as an The Public Guardian considers that the benefit of the
infringement on the personal liberty of a person and restraint must clearly outweigh the possible negative
should only be used as a measure of last resort for the effect on the person and the risk involved if restraint is
purpose of promoting and maintaining the person’s not used. The Public Guardian will only consider consent
health and well-being. The Public Guardian endorses, to the use of a restraint where there is clear evidence
and will strongly promote, the concept of restraint free that the level of risk and potential harm outweighs the
environments and will work with relevant agencies person’s right to remain unrestrained.
and authorities to achieve this.
In considering an application for consent to the use
The Public Guardian supports the use of positive, of a restraint the Public Guardian will seek the views
non-restrictive procedures to assist a person with a of the person, where possible, as well as the views
disability. This may include: of family members and significant others.
I Altering the person’s physical environment. Any plan for the restriction of a person’s movement
I Changing the mix of residents in a bedroom. and liberty must be based on a specific assessment
I Avoiding activities or situations which provoke by a specialist clinician in aged care. The assessment
anxiety in the person. should examine the underlying cause of the behaviour
and rule out any possible medical or external causes
I Providing meaningful activities for the person.
for the behaviour that can be addressed through
I Providing appropriate support to enable other means. This assessment should lead to the
‘safe wandering’. development and implementation of a care plan that
minimises the need for the use of the restraint and
The Public Guardian has an expectation that service
is regularly reviewed by key people involved in the
providers caring for elderly people will act in accordance
person’s care and treatment.
with the general principles of the NSW Guardianship Act
1987. Prior to an application for consent to the use of a The Public Guardian will not consent to the use of
restraint, service providers will have ruled out all less a restraint when it is proposed because the service
restrictive alternatives and will have carefully considered context involves a lack of appropriate resources and
all possible causes of the behaviour and made changes untrained staff. In these circumstances, the purpose of
accordingly. If this behaviour occurs regularly, a written the proposed restraint would be seen to be attempting
planned response is required and will only be considered to address a service deficiency rather than meeting
if it is designed to protect the person or others from the individual needs of the resident.
physical harm, the actions are appropriately recorded
and the proposal is time – limited and will be reviewed. The above information has been provided by the Office
of the Public Guardian www.lawlink.nsw.gov.au/opg
PAGE 22 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
APPENDIX 6
This proforma has been developed by the Illawarra Dementia Support Team, SESIAHS Port Kembla Hospital
(a NSW project for the Australian Government Psychogeriatric Care Unit Program)
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 23
APPENDIX 7
This proforma has been developed by the Illawarra Dementia Support Team, SESIAHS Port Kembla Hospital
(a NSW Project for the Australian Government Psychogeriatric Care Unit Program)
___________________________________________________ ___________________________________________________
___________________________________________________
Who was involved during the incident
(please specify names or numbers) How did the person behave after
___________________________________________________ ___________________________________________________
___________________________________________________ ___________________________________________________
PAGE 24 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Resources for the development
of policy and practice
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 25
Poole’s algorithm Determining whether to consent to the use of restraint
A kit which provides an algorithm for nursing management on an elderly person in a care facility
of disturbed behaviour in older people in acute care. Position Statements of the NSW Public Guardian Office
Julia Poole, Department of Aged Care and Rehabilitation www.lawlink.nsw.gov.au/opg.nsf/pages/policies5
Medicine, Royal North Shore Hospital Tel. (02) 9926 8705
Australian Society for Geriatric Medicine, Position
Cultural diversity and dementia statement on physical restraint use in the elderly
Wall, S. Shanley, C. Russell, K. A planned approach to Australian Journal on Ageing, Vol 15, No. 1, 1996
residential care for people with dementia who come
Commonwealth Department of Health and Aged Care
from a non English speaking background, The Centre
Standards for aged care facilities, Government Printing
for Education and Research www.cera.usyd.edu.au
Service, Canberra 1997
International Psychogeriatric Association (IPA)
Restraint, use in acute and residential care facilities
website modules 1–7 www.ipa-online.org
Joanna Briggs Institute, 2002 Physical Best Practice,
The Dementia Educator Vol 6 Issue 3, Blackwell Publishing, Asia Australia
A quarterly publication – free to professional members
The Guardianship Tribunal
of Alzheimer’s Australia (NSW) or people can subscribe
Consent, Substitute Consent and Person Responsible
to it separately. For information contact Alzheimer’s
www.gt.nsw.gov.au
Australia – NSW Tel. (02) 9805 0100
Decision-making tool: Responding to issues of
Challenge depression – a manual to help staff identify
restraint in aged care
and reduce depression in aged care facilities
Australian Government Department of Health and
Richard Fleming, The Hammond Care Group, Judd
Ageing, 2004
Avenue, Hammondville NSW 2170 Tel. (02) 9825 5090
Who can decide? The six step capacity process
Mental health first aid manual
Darzins, P., Molloy, W., and Strang, D.,
Kitchener, B.A.; Jorm, A.F.: (2002) Centre for Mental
Memory Australia Press, Adelaide 2000
Health Research, The Australian National University,
Tel. (02) 6125 2741 www.mhfa.com.au – for information Adapting the ward for people with dementia (2003)
on Mental Health First Aid materials and courses. NSW Health, Copies available from Better Health Centre
Tel. (02) 9816 0452 www.health.nsw.gov.au
The Australian Pharmaceutical Advisory Council (APAC) To be published by NSW Health www.health.nsw.gov.au
Guidelines for medication management in residential The management and accommodation of older people
aged care facilities, November 2002 3rd Edition with severely and persistently challenging behaviour
Commonwealth of Australia ISBN 0 6428 2113 5 in NSW: Summary report
NSW Health www.health.nsw.gov.au
Quality Dementia Care Position paper 2 Alzheimer’s
Australia 2003
www.alzheimers.org.au
PAGE 26 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Supportive research Fisher, R., Dalgleish,V. The Use of Psychotropic
Medication in Hostels, Spring Hill, St Andrews Aged
Dementia-Psychosocial approaches to challenging Care Clinical Services, 1996.
behaviour in dementia: a controlled trial
January 2002 Commonwealth Department of Health Towards a restraint free environment, Braun, J.V.,
and Ageing, Michael Bird, Robert Llewellyn – Jones, Lipson, S., Health Professionals Press Inc, 1993
Heather Smithers and Ailsa Korten, ISBN 0 6425 0388 5.
Horsfall, J., 2002. Mental Health Nursing: Shaping
www.health.gov.au/internet/wcms/Publishing.nsf/
Practice, Sydney South West Area Mental Health Service,
Content/ageing-publicat-psychsoc.htm
Nursing Division, 109–130. Further copies are available
Academic Department for Old Age Psychiatry from Sydney South West Area Mental Health Service,
A research and clinical unit located at the Prince of Nursing Administration, PO Box 1, Rozelle, NSW 2039
Wales Hospital in Randwick, NSW and affiliated with
Practical Psychiatry in the Long-Term Care Facility
the Department of Medicine at the University of NSW.
A Handbook for Staff, by Conn, D.K., Hermann, N.,
http://www.med.unsw.edu.au/adfoap/
Kaye, A., Rewilak, D., Schogt, B., (Editors) Hogrefe &
Huber Pub; 2nd edition (January 15 2001)
Supportive reading Therapeutic Guidelines: Psychotropic, Version 5, 2003
Marchello, V., ’Chemical restraints: what factors reduce Therapeutic Guidelines Limited, Ground Floor, 23–47
need?’ in Nursing Homes, Vol 43, No. 6, p.22 Villiers Street, North Melbourne, Victoria 3051, Australia
July–August 1994
The Expert Consensus Guideline Series: Agitation
Williams, C.C. ’Long-term care and the Human Spirit’ in Older Persons with Dementia. Alexopoulos GS,
in Generations, Vol 14, No. 4, p.25 Silver J.M., Kahn D.A., Frances A., Carpenter D., eds.
A Postgraduate Medicine Special Report. April 1998.
Young, K.F. and Vucic, R.A. ‘Turning a dream into reality; The McGraw-Hill Companies, Inc.
developing a restraint-free environment’ in Nursing
Homes and Senior Citizen Care, Vol 39, No. 3–4, p.29,
Sept–Oct 1990.
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 27
Glossary
PAGE 28 NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities
Residential Aged Care Facilities (RACFs) The Office of the Public Guardian
Refers to the accommodation provided for older The Office of the Public Guardian promotes the rights
people in Commonwealth-funded low care and interests of people with disabilities through the
(previously hostel) or high care (previously nursing practice of guardianship, advocacy and education.
home) environments. These facilities offer a care The Guardianship Tribunal appoints the NSW Public
component and are funded and accredited by the Guardian as guardian of last resort to make health and
Department of Health and Ageing. lifestyle decisions on behalf of a person under guardianship.
Additionally, they provide information and support to
The NSW Guardianship Tribunal private and enduring guardians and information on the
The Guardianship Tribunal is a legal tribunal, located role and function of guardians to the general community.
in Sydney. The Tribunal conducts hearings throughout
Contact:
NSW. Its purpose is to keep paramount the interests
Community Information Officer
and welfare of people with disabilities through
Tel. (02) 9265 1443 or 1800 451 510
facilitating decision making on their behalf.
www.lawlink.nsw.gov.au/opg
The Guardianship Tribunal makes decisions in relation
The Protective Commissioner
to the appointment of guardians and financial managers,
or in relation to medical and dental consent, for people The Protective Commissioner is an independent public
with disabilities who do not have the capacity to make official legally appointed to protect and supervise the
their own decisions. The Tribunal may make a range of financial affairs and property of people unable to make
other orders as well. financial decisions for themselves.
Contact: Contact:
Toll free 1800 463928 Tel. (02) 9265 3131
Main switch (02) 9555 8500 Outside Sydney 1300 360 466
Telephone typewriter (02) 9552 8534 Fax. (02) 9265 3686
www.gt.nsw.gov.au Telephone Typewriter 1800 882 889
www.pt.nsw.gov.au
NSW HEALTH Guidelines for working with people with challenging behaviours in residential aged care facilities PAGE 29
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