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Concept Note

Youth Town Hall: Youth Take the Lead to #EndTB


15 July 2019, JS Luwansa Hotel

Hosts
World Health Organization Global TB Programme
The Ministry of Health of Republic of Indonesia

National Collaborating partner


Center for Indonesia’s Strategic Development Initiatives (CISDI)

Time and Place


Monday, 15 July 2019
13.00 – 17.00 (GMT+7) Time in Jakarta
JS Luwansa Hotel

Background
Despite progress over the past decades, tuberculosis (TB) remains the world’s leading
infectious killer, claiming nearly 4500 lives a day. The latest World Health Organization Global
TB Report shows that no country in the world is free from TB. In 2017, 10 million people fell
ill with TB, with the highest burden in developing countries. The impact of the TB epidemic
goes beyond health with socio-economic consequences such as loss of income, decreased job
productivity, stigma and discrimination that as a whole cause suffering to the patient, family,
community as well as the economy. Global economic loss due to deaths caused by TB in 2015-
2030 is expected to cost almost US$ 1 trillion. The estimated main driver of such a
disadvantage would be lost productivity of its working force due to premature deaths. To
accelerate action to end TB, Heads of State came together at the first-ever UN high-level
meeting on TB in September 2018. The meeting resulted in an action-oriented political
declaration that included bold targets to close gaps in care and increase resources for the
fight against TB. The World Health Organization is working with countries and partners to
translate the commitments of the declaration into action.

Young people are often the largest population group in developing countries who have the
opportunity to leverage the demographic bonus. Given the enormous capital, their role and
contributions become an important indicator of a nation’s progress and their participation in
decision-making must be considered at all levels, including in health and combatting diseases
like TB. In addition, young people are disproportionately affected by TB, with the age groups
of 15-34 years carrying the heaviest burden of this disease. Young people are also the main
beneficiaries of the 2030 Sustainable Development Goals including its allied target of ending
TB, as they stand to inherit a better, safer and healthier world.

Recognizing the strategic role of young people and its strength as the power house of health
development and efforts to end TB, the World Health Organization launched a youth
mobilization initiative to End TB on World TB Day in March 2019. The initiative aims to
advance the engagement of young people and amplify their voices to end TB. Youth can have
a multiplier effect in the fight to end TB, to accelerate progress towards reaching the
ambitious 2022 targets of the UN high-level meeting on TB, as well as the larger goal of ending
TB by 2030, as included in the WHO End TB Strategy and the SDGs.

As a key step to catalyze the meaningful engagement of young people as partners to end TB,
the World Health Organization and the Ministry of Health (MoH) of Republic of Indonesia in
collaboration with a national NGO, Center for Indonesia’s Strategic Development Initiatives
(CISDI) will organize the first-ever Youth Town Hall on Ending TB. The Youth Town Hall on
Ending TB will be the first forum emphasizing the important role of youth and enabling them
to work towards ending the TB epidemic. In line with the Roadmap on Public-Private Mix for
TB Prevention and Care, which will be the focus of a global meeting the following day, there
is a dire need to expand engagement and collaboration of all actors and stakeholders,
including young people for more effective measures as well as better governance and
accountability. Young people’s role and participation are often overlooked in the efforts to
end TB. The meeting would be a platform to delve into their needs and explore possibilities
to engage youth collectively to achieve the global End TB targets. An expected outcome of
the Townhall will be a Youth Declaration outlining the role/engagement of youth towards
achieving the commitments of the UN High Level Meeting on TB.

The townhall builds on other youth engagement efforts led by WHO and MoH Indonesia,
notably the South-East Asia Region Youth Town Hall and the first National Youth Town Hall in
March 2019. The Youth Town Hall, both regional and national was aimed at building a
platform for participatory consultation between relevant stakeholders and youth groups to
exchange inputs and recommendations. The town hall is organized as a means to enhance
youth collaboration and involvement in the area of youth health and well-being. This
approach has successfully involved over 2000 young leaders in the two regional Youth Town
Halls previously conducted in Cairo and Jakarta.

Objectives
- To facilitate a platform where stakeholders and youth discuss, exchange and share
experience as well as best practices
- To gather inputs from youth about means to get young people take part in efforts to end
TB
- To increase youth awareness and participation in efforts to end TB
- To strengthen the WHO youth movement to end TB

Expected outcomes
- Youth Declaration on the Fight to End TB
- Inputs gathered to optimize youth participation in the global efforts to end TB

Participants
10 international youth, 190 national youth between 18-35 years old (young professionals,
activists, patients, support groups, students, etc)

Pre-forum
Prior to the Global Youth Town Hall to End TB (EndTB-YTH) and the 14th Global Meeting on
Public Private Mix; the committee will organize two meetings to discuss and develop the draft
of the youth declaration to End TB. This involve youth representatives from outside of
Indonesia (method: via conference call) to ensure their inputs gathered during the TB-YTH.

Agenda of the meetings is as follows:

Date 10 and 12 July 2019


Time 14.00-17.00 WIB
Place WHO Country Office, Indonesia
Participants 20-30 selected youth
Facilitator CISDI and WHO (HQ and Country Office)
Method CISDI will develop the first draft to be discussed
for inputs at the two meetings.
At the meeting, participants will be split into
several groups to discuss more in-depth about
the draft.
Participants 20 youth representatives from Indonesia
10 youth representatives from WHO global

TB Youth Town Hall


Monday, 15 July 2019

Time Activity
12.00-13.00 Registration
13.00-13.05 Music and video opening
13.05-13.15 Welcome address
Diah Saminarsih - Senior Adviser on Gender and Youth to the Director
General of WHO
13.15-13.25 Opening remarks
Dr. Tereza Kasaeva - Director of WHO Global TB Programme
13.25-13.35 Keynote speech
Prof. Nila Moeloek - Minister of Health Indonesia
13.35-13.40 Using music to rally youth to end TB: Experience from Kenya
(5’) Steve Otieno - Youth TB Advocate
13.40-14.20 High-level discussion panel:
(40’) Ending TB by 2030 through multisectoral and multi-stakeholder
engagement and action

Moderator: Diah Saminarsih, Senior Adviser on Gender and Youth to the


Director General of WHO
Panelists:
1. Prof. Nila Moeloek, Minister of Health Indonesia
Harnessing the power of youth to tackle the TB problem in Indonesia:
Using the townhall as a platform to galvanize action
2. Dr Tereza Kasaeva, Director of WHO Global TB Programme
Transforming commitments to action: Mobilizing youth as agents of
change for a TB-free world
3. Madhusudan Kaphle
Youth Advocate, TB Free World
Operationalizing the international youth movement to end TB:
Experiences from Nepal
4. Jeff Acaba
WHO Civil Society Taskforce, APCASO
Civil society perspective on engaging young people from key populations
including those living with HIV in the TB response: Opportunities and
challenges

Key discussions:
- What hindered youth from participating in efforts to end TB?
- How does TB impact young people’s health and future?
- What and how can youth take a different approach to accelerate efforts
to end TB?
- What infrastructure and resources are required to amplify youth
involvement to end TB?

14.20-14.35 Stocktaking session


(15’) Led by MC
14.35-15.20 Youth involvement and contribution on TB
(45’) TED-talk, Pigeonhole (@15 mins)

Moderator:
Aisyah Rachmawati, Boston Consulting Group

Speakers:
1. Rhea Lobo,
“Using media as a tool to facilitate youth engagement”
2. David Mungai,
“Engaging young TB survivors and health professionals as powerful
advocates to end TB”
3. Wang Yi, WHO Global TB Programme,
“Stepping out of the comfort zone to end TB stigma”
4. Panji Fortuna Hadisoemarto,
Tuberculosis Working Group, Faculty of Medicine, Padjadjaran
University
“Research as a creative area for youth to End TB”
5. Saurabh Rane, Advocate and XDR TB survivor “Fighting XDR-TB:
Changing the game against drug resistant TB with new tools”
15.20-15.35 Coffee break
15.35-16.20 Group work
Method: Discussion
Participants split into 6 groups (@30 people)
Facilitators:
 Dr .Tereza Kasaeva (Rotating moderators)
 Diah Saminarsih (Rotating moderators)
 Shalala Ahmadova
 Hannah Monica Dias
 Babis Sismanidis
 Shagun Khare
 Setiawan Laksono
 Madhu Pai

Key focus: Mobilizing youth as agents of change for a TB-free world

Key actions to accelerate the End TB response and reach global targets:
 Stand against stigma and discrimination that block people with TB from
seeking and accessing care early.
 Promote the “right to know” about TB and its impact, by building
awareness, increasing peer education and community participation,
as well as through digital technologies and social media
 Cultivate a diverse base of youth volunteers, to support and empower
those ill with TB and their families in accessing prevention and care,
and in completing treatment.
 Advocate strongly for increased resources at national, regional and
global level to close funding gaps to end TB
 Call for an acceleration in research and development for new
diagnostics, drugs and vaccines to make TB care safer and more
effective. This includes supporting and building the capacity of young
scientists.

Participate in national, regional and global fora to promote multisectoral


accountability and action to end TB

Key questions:
- How do you see youth/yourself contribute in efforts to end TB?
- How to improve participation of youth in efforts to end TB?
- How to make youth engagement in end TB efforts more significant?
- What support is needed to ensure meaningful youth engagement?

16.20-16.50 Presentation of elevator pitches by 10 groups


(@3 mins)
Facilitator: Hannah Monica Dias, WHO
16.50-17.00 Conclusion and closing
Diah Saminarsih, WHO Senior adviser to DG on Gender and Youth

17.00-17.15 Youth Declaration on the Fight to end TB


Facilitator: CISDI
Press Conference
Monday, 15 July 2019
Rapha Room, JS Luwansa Hotel 2nd Floor

Time Activity
14.30 – 14.35 Opening by Moderator
WHO Senior adviser to DG on Gender and Youth
Ms. Diah Saminarsih
14.35 – 14.50 Remarks:
 Dr. Wiendra Waworuntu (P2ML Director, Ministry of Health Indonesia)
 Tereza Kasaeva (Director of WHO Global TB Programme)
 Madhusudan Kaphle, Youth TB Advocate

14.50 – 15.25 Discussion with media


15.25 – 15.30 Conclusion & closing

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