You are on page 1of 87

Running head: HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 1

Development of Client-Centered Occupational Therapy Home Exercise Programs for Children

with Cerebral Palsy: A Program Proposal

Lindsey Ward

University of Utah
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 2

Development of Client-Centered Occupational Therapy Home Exercise Programs for Children

with Cerebral Palsy: A Program Proposal

The purpose of this program proposal is to conduct a needs analysis of a rural and/or

underserved population in order to develop a program that is based on services that occupational

therapists can assist with. The following needs assessment and program was conducted for the

Moulay Ali Institute for Rehabilitation (MAIR) clinic in Marrakech, Morocco. A clinic that

provides services to those experiencing neurological conditions as a result of congenital or

acquired incidences. The needs assessment involved one-on-one interviews, group interviews, as

well as, graduate student observations of all those involved in the clinic. After the needs

assessment was completed, a literature review was conducted, and an occupational therapy

program was proposed in order to meet the needs and gaps of the MAIR clinic.

Needs Analysis

Description of Setting

Location. Morocco is located in Northern Africa, surrounded by the Atlantic Ocean, the

Mediterranean Sea, and Algeria (Journey Beyond Travel, n.d.; Regional Health Systems

Observatory World Health Organization, 2006; Semlali, 2010). In 2017, approximately 33

million people resided in Morocco (Central Intelligence Agency [CIA], 2018). As of October

2017, five university hospital centers and six military hospitals exist throughout Morocco.

Within the public sector of Morocco’s healthcare, 137 hospitals are available, whereas more than

360 clinics exist in the private sector (Export, 2017). The MAIR clinic is located in Marrakech,

Morocco. Marrakech, also known as the Red City, is the second largest city of Morocco located

at the foot of the Atlas Mountains, with a population of approximately 976,000 individuals as of

2017 (CIA, 2018; Marokko Info, n.d.; The Moulay Ali Institute for Rehabilitation [MAIR], n.d.;
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 3

The Telegraph, 2018). Marrakech among other large cities, such as Rabat, Casablanca, Fez, and

Meknes, house the majority of Morocco’s healthcare system (Export, 2017). Further information

regarding the geographic and cultural aspects of Morocco can be found further on in this paper.

History. The MAIR clinic was founded in 2015 by Dr. Mohammed Sbia. Dr. Sbia

obtained his education related to neuroscience through the University of Paris. Once Dr. Sbia

completed his training, he worked at New Jersey Medical School. During this time, Dr. Sbia’s

brother, who was located in Morocco, sustained a traumatic brain injury as a result of a motor

vehicle accident. At the time there were no services to assist Dr. Sbai’s brother in Morocco.

Later, Dr. Sbai traveled with his brother across the world, receiving services first in Paris and

then in New Jersey. In 2007, Dr. Sbai’s brother unfortunately passed away due to medical

complications. Prior to his passing, Dr. Sbai made a promise to his brother to improve access to

healthcare in Morocco. Due to the inspiration of his brother, the project to establish a clinic in

Morocco began in 2009. By 2015 the clinic became a reality, one of the first neurological

rehabilitation centers within the country (M. Sbai, personal communication, May 24, 2018; Your

Mark on the World Center, 2018).

Services. The mission of the MAIR clinic is as follows: “To trigger a neuroplastic change

is the foundation of our therapy, to accomplish maximal recovery is our most important goal”

(MAIR, n.d.). The MAIR clinic provides medical care focused on the area of neuro-

rehabilitation; therefore, the clinic provides services to “children and adults with cerebral palsy

and its complications, traumatic brain injury, spinal cord injury, stroke, multiple sclerosis, spine

and chronic pain” (MAIR, n.d.). In order to receive services, a physician referral is required (M.

Sbai, personal communication, October 8, 2018).


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 4

The clinic is 3,000 square feet in size, composed of three rooms with an open concept.

The MAIR clinic is open Monday through Friday, from 8:30 AM to 5:30 PM, and Saturday,

from 8:30 AM to 12 PM. At this point in time, the MAIR clinic is providing services to a total of

60 clients (I. Bentahar, personal communication, October 12, 2018). The clinic typically sees

between 15-25 patients per day, providing a variety of programs; including feeding, cognitive

therapy, range of motion, gait training, balance training, vision therapy, and physical agent

modalities. Each session varies from 45-90 minutes based on the client’s needs. Each client

begins with one session per week for a month and may progress to five sessions per week over

time. The overall length of treatment varies depending on diagnosis, as some individuals that

began attending MAIR clinic in 2015 are still receiving services today (M. Sbai, personal

communication, September 10, 2018).

Target population. In Morocco there are between 36-37 million individuals experiencing

medical conditions. Receiving medical care is a current struggle in Morocco due to a variety of

factors, such as limited health insurance, difficulty accessing healthcare due to remote locations

and poverty. Of those individuals, 2-5 million have a disability of some kind. In particular, there

are 25,000 new cases of cerebral palsy in Morocco each year. Another 20,000-22,000 individuals

are diagnosed with a traumatic brain injury due to traffic accidents. Overall, there are 100,000

new cases of neurological diagnoses per year (Your Mark on the World Center, 2016). Sixty-five

percent of the population served by the MAIR clinic are children, a majority of which have a

diagnosis of cerebral palsy (M. Sbai, personal communication, May 24, 2018).

Funding sources. The MAIR clinic is a not-for-profit organization. In 2009, Dr. Sbai

created the Zahra Charity, a not-for-profit organization in the U.S. to assist in the development of

the MAIR clinic (M. Sbai, personal communication, September 10, 2018). Dr. Sbai has received
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 5

multiple grants through Zahra Charity, Neuroworks, the Salt Lake Rotary Club, as well as many

other private foundations over the years (Your Mark on the World Center, 2018). Unfortunately,

in 2017, Neuroworks decided that they no longer wished to contribute to the MAIR clinic. The

Salt Lake Rotary club continues to fund medical training for staff, receiving training both in

Morocco and the United States (M. Sbai, personal communication, September 10, 2018).

The MAIR clinic is currently attempting to transition from a not-for-profit organization to

a for-profit organization. In 2015, when the MAIR clinic opened, 100% of their services were

provided for free. In September 2018, 70% of the patients are receiving services without

payment. Very few patients are paying cash or using their insurance. A therapy session at the

MAIR clinic costs $20 U.S. dollars; however, most paying clients are unable to afford this. An

average wage for an individual working in Morocco is 12.24 dirhams per hour, an equivalent of

$1.51 U.S. dollars per hour (M. Sbai, personal communication, September 10, 2018; The

Economist, 2014). Recently the MAIR clinic has established a partnership with a social worker

to establish a sliding scale payment system for their clients (I. Bentahar, personal

communication, October 8, 2018). In the near future, Dr. Sbai intends to have all clients and their

families contribute some form of payment, as he has found that the families that are paying are

more involved in the therapy process (M. Sbai, personal communication, September 10, 2018).

Staff disciplines. Unfortunately, education within Morocco is limited. The therapists,

called “aspiring neuro-therapists”, have had three years of training following their public

education (Your Mark on the World Center, 2018). Although they identify themselves as

physical therapists, Dr. Sbai reports that in the U.S. their education would be considered a

physical therapy assistant training at best (M. Sbai, personal communication, September 10,

2018). In the past, the MAIR clinic has staffed up to nine therapists; however, due to long-term
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 6

contracts, only three therapists are currently employed at the clinic. In addition to the therapists,

there is one individual that runs the front desk, scheduling appointments and filing paperwork.

All employees at MAIR clinic speak both Arabic and English. Interactions with client and staff

are in Arabic, occasionally French. Documentation and interaction between therapists are

completed in English (M. Sbai, personal communication, September 10, 2018).

Factors that Influence Service Delivery

Economic. Morocco is a constitutional monarchy (Regional Health Systems Observatory

World Health Organization, 2006; Semlali, 2010). Key sectors of Morocco’s economy include

“agriculture, tourism, aerospace, automotive, phosphates, textiles, and apparel” (CIA, 2018).

Although these key sectors have assisted in Morocco’s economic progress, many economic

barriers remain. Morocco continues to experience high levels of poverty, unemployment and

illiteracy, especially within rural areas (Arieff, 2013; CIA, 2018). With poverty, unemployment

and illiteracy, people are often limited in their ability to access healthcare, either through the lack

of funds or lack of knowledge of the available services provided in Morocco. If an individual is

able to receive services, illiteracy may lead to a misunderstanding of the reasons for therapy and

a lack of participation in home programs.

A large disparity exists between the rich and poor within Morocco. According to the

World Bank, one in four Moroccans live in poverty (Arieff, 2013; Semlali, 2010). In 2017,

Morocco had an unemployment rate of 10%, with a high percentage of these individuals being

women with diplomas (Arieff, 2013; CIA, 2018; Semlali, 2010). Unemployment is also a

common factor among young people, as the job market has not grown in relation to the growing

population (Arieff, 2013). In addition, illiteracy is another economic barrier. Although primary

education for children up to the age of 15 years old is required and free, illiteracy is still
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 7

common. Illiteracy is most common in women because they typically stop attending school to

contribute to family roles (Regional Health Systems Observatory World Health Organization,

2006). According to the Central Intelligence Agency (CIA) in 2015, it was reported that only

68.5% of the total population over the age of 15 could read and write (CIA, 2018).

To put things in perspective, in 2014, an individual typically brought home 2,333 dirhams

or $288 per month in U.S. currency (The Economist, 2014). Health insurance in Morocco is

mandatory, as will be discussed in the following section; however, insurance typically covers

only 50-80% of the healthcare costs, leaving the client to pay the difference (Export, 2017). A

typical cost to see a specialist is 150 dirhams (US $28), two days worth of Moroccan individual’s

pay (Ruger & Kress, 2007). Overall, low socioeconomic status and unemployment can impact

access to healthcare.

Professional. To become a physical therapist in Morocco, one attends private school for

three years following their high school diploma. Each month the student pays $300 U.S. dollars

to attend the program (C. Elghazi, personal communication, October 5, 2018). During the three

years of training, the students receive approximately three hours of neuro-rehabilitation training

(M. Sbai, personal communication, October 8, 2018). Even though all therapists at the MAIR

clinic have a physical therapy license, their neuro-rehabilitation training is limited. The main

purpose of the MAIR clinic is to provide neuro-rehabilitation therapy; therefore, most therapist

training is completed on the job through collaboration with other therapists and Dr. Sbai.

Another important factor is the limited number of health personnel within Morocco.

Morocco is one of the leading emigration countries in the world (de Haas, 2014). Not only does

the limited healthcare personnel affect the economic system of Morocco, but it also limits the

availability of healthcare for those that continue to reside in the country. At this time, the MAIR
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 8

clinic has three full-time aspiring neuro-therapists. These therapists have signed a 10-year

commitment to the clinic. This commitment is a unique contract to the MAIR clinic, established

by Dr. Sbai in order to prevent individuals from working a short time at the clinic and then

seeking work elsewhere. The therapists are paid $800 U.S. dollars per month, well above the

average income within Morocco. In an attempt to recruit more therapists, the MAIR clinic has

put out hiring ads. When recruiting therapists, Dr. Sbai looks at the therapist’s credentials, the

ability to speak English, a value of honesty, and the drive for long-term commitment to the

MAIR clinic (M. Sbai, personal communication, October 3, 2018).

In January 2018, Rabat, the capital of Morocco, opened the first occupational therapy

program in the country. This program is a six-semester program focusing on anatomy,

psychology, neurology, as well as the foundations and models of occupational therapy. Eight

internship opportunities are provided throughout the program in order to help establish clinical

reasoning around evaluation and intervention (Ispits, 2017). Dr. Sbai reports that this program is

based on the French model, a model that is focused on an individual’s disability. This model

establishes the idea that nothing can be done to improve the individual’s skills and independence

level; therefore, a maintenance program is put into effect to assist the caregiver. As a result, Dr.

Sbai is unsure of how this program will impact rehabilitation services in Morocco. Dr. Sbai

believes that a U.S. medical perspective should be taken into effect in Morocco, a model that

promotes client skills and improves independence; a model that closely aligns with the mission

statement of the MAIR clinic (M. Sbai, personal communication, October 5, 2018).

Policy. The Moroccan healthcare system is divided into two sectors, the public sector and

the private sector. When a client receives services, they pay directly out-of-pocket. After services

have been provided, the client then files a claim through their insurance to obtain reimbursement.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 9

With a basic, private health insurance plan, a client may be reimbursed up to 50 percent. With a

higher-level insurance plan, within the private sector, the client may be reimbursed up to 80

percent (I. Bentahar, personal communication, October 8, 2018). Covering the remaining 20-

50% of the medical costs can be a difficult task for clients and their families.

When billing insurance there are no therapy codes defining the type of therapy services

provided; therefore, insurance either accepts the therapy services as a whole, regardless of

intervention, or therapy services are declined (M. Sbai, personal communication, October 8,

2018). Without billing codes, the type of therapy intervention is not typically established,

decreasing the ability to justify the cost of services. Imane Bentahar reports, “Sometimes a client

would be reimbursed for services one week and not the other” (I. Bentahar, personal

communication, October 8, 2018). Therefore, the reliability on insurance paying for a portion of

the services is nonexistent, causing more individuals to rely on free services.

In terms of the MAIR clinic, Dr. Sbai is attempting to develop an official agreement that

clients and their families will sign at the time of evaluation, ensuring their participation in

therapy. Dr. Sbai is developing this agreement from an example piloted from Intermountain

Healthcare. Since the agreement is not yet in place, the clinic is struggling for clients to arrive on

time or arrive at all to sessions, participate in home programs, and being honest about their

ability to pay for services (M. Sbai, personal communication, October 8, 2018).

Political. In an attempt to improve healthcare within Morocco, the government

implemented two reforms in 2005. The first reform is payroll-based health insurance that is

mandatory for public and private-sector employees. With the second reform, it creates a fund

paid by the government to cover services for the poor (Ruger & Kress, 2007). Although these

reforms have been made, among others, a large percentage of the population still does not have
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 10

healthcare insurance, limiting accessibility. Healthcare financing is typically in favor of

wealthier individuals within the population as compared to those of a lower socioeconomic status

(Arieff, 2013). The 2011 Constitution and the World Health Organization continue to strive for

equality of access to healthcare (Semlali, 2010; Zemouri, 2018). The Minister of Health, Anas

Doukkali, proposes to implement a health insurance system that will cover 90% of the Moroccan

population by 2021 (Koundouno, 2018).

Morocco continues to strive to provide individuals with disabilities equal access to

education and employment. Although policies have been established to improve the rights for

individuals with disabilities, the policies continue to be criticized by society and are not being

carried out sufficiently by the government. Therefore, children with disabilities continue to be

excluded from education with their peers and adults with disabilities continue to be unemployed

(United Nations Human Rights Office of the High Commissioner, 2017). Access to the

community through public transportation and access to public buildings presents as another

barrier (Country Reports, n.d.a). Depending on an individual's location, rural versus urban, and

their mode of transportation, access to healthcare may be limited. Legislative laws need further

development within Morocco in order to improve access for individuals with disability.

Geographic. Morocco spans 172,413 square miles, with the capital city, Rabat, located

northwest of the country. To the north is Tangier. In the center of Morocco lies the business

capital, Marrakech (Nations Encyclopedia, n.d.; Semlali, 2010). Morocco is in the process of

moving towards urbanization (Regional Health Systems Observatory World Health

Organization, 2006). In 2016, it was reported that 39.92% of the total population resided in rural

areas (Trading Economics, n.d.). Although the number is small in retrospect, the individuals

residing within this rural population are limited to healthcare access; with 59% of the rural
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 11

population living between 5 to 10 km (3.1-6.2 miles) from healthcare facilities. However, within

the urban areas, individuals have access to healthcare facilities less than 5 km (3.1 miles) away

(Arieff, 2013; Regional Health Systems Observatory World Health Organization, 2006).

Therefore, geographical location can play a key role in accessing healthcare.

Another important geographic factor that may limit access to healthcare is road

conditions and driving within Morocco. Within urban areas of Morocco streets are paved and

consist primarily of highways; however, it is common for traffic lights to not function or they are

difficult to view. In rural areas of Morocco, the streets are often narrow, unpaved and could be

windy or steep. Driving at night is strongly suggested to be avoided due to poor lighting. While

there are public transportation options, such as taxis and buses, the operators often demonstrate

poor driving habits. Buses are also typically overcrowded (Country Reports, n.d.b). Therefore,

getting around Morocco can be a chore based on geographic location and transportation means.

Demographic. Within Morocco, 99.1% of the population is composed of Arab and

Berber ethnic groups (CIA, 2018; Semlali, 2010; World Population Review, 2018). The

remaining percentage of the Moroccan population is composed of Jews, Europeans, Haratin, and

Africans (Countries and their Cultures, n.d.; World Population Review, 2018). Of this

population, between 42-45% are under the age of 24 years old, whereas 42% of the population is

between the ages of 25 and 54. Only 7% of the population is between the ages of 55 and 64, and

just 6% is 65 years and older. Thus, the median age of an individual in Morocco is 27 years old

(CIA, 2018; World Population Review, 2018). These statics support the MAIR clinic’s focus on

the pediatric population.

Social. Due to the majority of the population being composed of Arabs and Berbers, the

official language of Morocco is Arabic (Semlali, 2010). Within the rural areas of Morocco, the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 12

common dialect is Berber, as the rural areas such as the mountains are where the Berbers

continue to reside. Two unofficial languages also exist across Morocco; French is spoken when

discussing government related topics and Spanish is common across the northern coastline of

Morocco (Regional Health Systems Observatory World Health Organization, 2006). The people

of Morocco are known to be warm, welcoming and hospitable; however, their views of disability

are quite different from those in the United States (Olivier, 2017). When a child with a disability

is born, it is common for the family to view the disability as a curse due to cultural influences.

Due to the negative stigma associated with disability, these children are typically not allowed in

schools; therefore, limiting their education and success within the Moroccan society (M. Sbai,

personal communication, September 21, 2018).

Today, Marrakech is reported as one of the most liberal cities within Morocco; however,

many social aspects may still be considered conservative (The Telegraph, 2018). The Moroccan

society is patriarchal by nature. Men work outside the home; whereas, women stay within the

home to care for the family. Women rely on their husbands for financial support, while the

husband relies on the wife to take care of the children and provide adequate meals. Within their

society, men are considered socially and economically valuable; therefore, their needs come first.

Women often eat last, eating less protein and less nutritious meals (Batnitzky, 2008). Girls are

often taken out of school to take part in family responsibilities so that boys are able to gain the

education they need to become employed (Olivier, 2017). Due to cultural influences, the mother

is the key role taker in caring for children with disabilities, in addition to other daily roles. The

mothers often experience burnout as a result.

Future Plans for Program Development


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 13

The future plan for the MAIR clinic is to grow into an excellent neuro-rehab facility, one

that provides services based off of medical models and standards of care that are similar to those

in the United States. He hopes that one day, the MAIR clinic will be recognized as the best

neuro-rehabilitation clinic in Morocco, as well as all of Africa. (M. Sbai, personal

communication, September 10, 2018). In order to meet these goals, Dr. Sbai realizes that first,

the therapy staff needs to improve their education regarding patient care and current evidence-

based practice. The clinic then needs to transition from a not-for-profit organization to a for-

profit organization, by demonstrating positive outcomes through quantitative data and achieving

goals (M. Sbai, personal communication, September 10, 2018).

Dr. Sbai plans on purchasing an abundance of land in order to develop a 10,000 square

foot clinic and a university to educate current and future therapists. A guest house will also be

built for those clients that live in remote areas and are unable to pay for a hotel, as well as, for

health professions from the U.S. to stay while visiting and contributing to the needs of the MAIR

clinic. He intends to have 15-20 therapists staffed at the new clinic, allowing the clinic to serve

125 patients per day (Your Mark on the World Center, 2018).

Data Collection Regarding Current Programming Strengths and Areas for Growth

In order to gain a greater understanding of the MAIR clinic in terms of strengths and

weaknesses, a variety of interviews were completed with key stakeholders, clinical staff, mothers

of the clients, and clients themselves. In addition, over the course of the two weeks at the MAIR

clinic, thorough observations were completed by the graduate student.

Stakeholders. A one-on-one semi-structured interview was conducted with the founder

of the MAIR clinic. Dr. Sbai reported that the greatest strength of the clinic is the skills of the

staff as compared to other medical workers in the country of Morocco. As a result of the staff
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 14

skills, success stories and positive results for multiple patients have occurred. In addition, the

reputation of the MAIR clinic is growing within the local community, even the medical setting is

beginning to recognize and refer patients to the clinic (M. Sbai, personal communication,

September 10, 2018). In terms of weaknesses, Dr. Sbai mentioned that admission is a nonexistent

process within the clinic. He acknowledges the need to establish a comprehensive process for

client evaluation, financial assessment, client scheduling, establishing goals and therapy

guidelines, documentation, and discharge (M. Sbai, personal communication, September 10,

2018).

Clinical staff. Group interviews and one-on-one semi-structured interviews were

conducted with the three aspiring neuro-therapists working at the MAIR clinic. One of the

greatest strengths reported by the staff is their ability to know all clients. Each therapist carries

their own caseload; however, they know all of the clients and client goals in order to meet their

needs if a therapist is sick or a change in schedule occurs (S. Berrada, personal communication,

October 5, 2018). Another strength is the therapists’ ability to push and engage the mother of the

client to participate in all aspects of therapy. The therapists train the mothers to perform

stretching and range of motion. The mothers also learn how to assist in positioning the child into

the stander and the locomotor training unit (C. Elghazi, personal communication, October 5,

2018). Overall, the clinical staff expresses strengths in providing therapy related to standing and

walking (I. Bentahar, personal communication, September 17, 2018).

In terms of weaknesses, the therapists report that they are limited in their ability to work

on communication with their clients. They also report that they would like to incorporate more

occupational therapy type exercises into their therapy sessions. Cognition is the largest area that

the therapists would like to improve upon, particularly attention and focus (S. Berrada & C.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 15

Elghazi, personal communication, October 5, 2018). In terms of general diagnoses, the therapists

feel that they would benefit from further education related to stroke, cerebral palsy, and autism

(I. Bentahar, personal communication, September 17, 2018).

Clientele and families. Semi-structured interviews were completed with the mothers of

the children engaging in therapy at the MAIR clinic, with an aspiring neuro-therapist acting as

the interpreter. Through these interviews it was discovered that the most common goals that

parents wanted to address during therapy were as follows: (1) sitting, (2) standing, (3) walking,

(4) balance, (5) talking, (6) hand grasp, (7) dressing, (8) using the bathroom, (9) eating, and (10)

going to school (Parent 1, Parent 2, Parent 3, Parent 4, Parent 5, Parent 6, personal

communication, October 8-10, 2018; Support Group, personal communication, October 12,

2018). Although majority of the clients were children and were nonverbal, three adult clients

were able to participate in the interview process. In terms of adult clients, most common goals

were (1) going back to work, (2) being able to pray, (3) to use the bathroom, (4) to be able to use

their affected hand for functional tasks, and (5) to garden (Client 1, Client 2, Client 3, personal

communication, October 4-8, 2018).

Extensive research regarding formal assessments was completed in an attempt to find an

assessment that was relevant to the clients in order to gather further data. After a few semi-

structured interviews, it was apparent that no formal assessment would be completed for this

needs analysis due to a variety of factors. For one, the aspiring neuro-therapists were very busy

and did not have the time to sit down with the student therapist and the client and/or client’s

mother to fill out a formal assessment. Secondly, when translation occurred, the meaning of the

question was often changed to better meet the understanding of the individuals; therefore, even

semi-structured questions were often misunderstood or misinterpreted. Lastly, formal


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 16

occupational therapy assessments in relation to the pediatric population often asked what

occupations the child was able to complete independently and which ones they needed assistance

with. Due to the severity of the client’s conditions, more than half of the clients were dependent

on all activities of daily living (ADLs). Due to the client’s low level of function, participation in

ADLs were not yet a priority for goals, as noted by the top three goals reported above.

Typical interests for pediatric clients included television and music. A few non-dominant

interests included playing with phone cables, make-up, and cooking (Parent 1, Parent 2, Parent 3,

Parent 4, Parent 5, Parent 6, personal communication, October 8-10, 2018; Support Group,

personal communication, October 12, 2018). Interests for adults, included praying, shopping,

housework, and gardening (Client 1, Client 2, Client 3, personal communication, October 4-8,

2018). Strengths of the clinic that were reported by mothers and adult clients, include proactive

therapists, the opportunity for mothers/clients to collaborate with therapists, the equipment

available at the clinic, the home exercises that are recommended, and punctuality of services

(Support Group, personal communication, October 12, 2018).

Parents reported that the biggest weakness of the clinic was their inability to address

speech and communication. Limited access to other therapy services and equipment, such as a

TheraSuit® and hydrotherapy, was also reported. A TheraSuit® is a dynamic orthosis consisting

of multiple attachments connected through elastic bands that are applied to the head, chest,

knees, and shoes. The TheraSuit® is used in combination with an intensive exercise program in

order to accelerate a client’s progress in therapy; particularly clients with cerebral palsy

(Therasuit LLC, n.d.). Multiple parents reported that when asked about weaknesses of the clinic

it was impossible for them to answer as they were unaware of services that were available

outside of MAIR clinic (Parent 1, Parent 2, Parent 3, Parent 4, Parent 5, Parent 6, personal
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 17

communication, October 8-10, 2018; Support Group, personal communication, October 12,

2018).

Graduate student perspective. Through a variety of interviews, open communication,

and continuous observation, I was able to gain an understanding of the MAIR clinic.

Observations of evaluations, various treatment interventions, and home evaluations were

completed. Present strengths of the clinic and the staff include their relationships with the clients

and their mothers. It is apparent that the therapists take the time to get to know the client and

their family situation. Each therapist is knowledgeable of their own caseload as well as the other

therapist’s caseloads. Every morning the therapists set aside a half an hour to talk with one

another, going over their client’s goals, barriers, successes, and discussing their daily caseload.

In terms of therapy services, the aspiring neuro-therapists are effective in providing

therapy services related to trunk control, head control, stretching and range of motion, walking

with the use of the locomotor training unit, and mirror therapy for upper extremities. In addition,

the therapists spend a tremendous amount of time educating the mothers on stretching exercises

that they can perform at home. The therapists strive to have each client perform their home

program on a daily basis, as well as educating the client and mother on the importance of follow

through. Lastly, the therapists are able to provide therapy services to the same client multiple

times per week; a factor that may influence the time frame of rehabilitation and outcomes.

Due to the fact that the MAIR clinic is only three years old, continuous work is being

done to improve the establishment of the clinic; as a result, multiple areas of growth are possible.

Based upon an observation of an initial assessment, information and data collected during this

time is limited. During the initial evaluation the client’s personal information and data history is
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 18

gathered (Sbia, 2018). No physical assessment or engagement in an occupation is completed at

this time. Dr. Sbai reports that assessments are conducted; however, this was not observed.

Documentation is another area of weakness. The therapists typically spend five minutes

on one note. Notes often report what the client did during the therapy session, for example:

“AROM, walking on LT for 15 min, stretching the UP and LE, push communication, balance

exercises” (Sbia, 2018). A child’s progress is often documented through videos that parents take;

however, therapists do not transform the video files into a format that can be included in the

client’s file. Due to their form of documentation, progress towards goals and outcomes measures

are currently nonexistent. This also develops a conflict in determining when a client should be

discharged from services. The clinic has only discharged a handful of clients since its opening in

2015. The lack of discharge planning is causing the clinic to see clients that may no longer

benefit from services. In turn, this is causing future paying clients to remain on the waiting list.

Due to the severity of the conditions, clients often do not participate in occupations. The

demand of the therapist during a therapy session is too high to engage the client in an occupation.

When providing services to the children, the therapist’s hands are full, while attempting to

support the child’s head, trunk, and promoting proper positioning of the lower extremities.

However, occupations are being addressed with adult clients through prayer and cooking.

Continuous improvement can be made to help develop occupation-based therapy interventions

for the pediatric population, and to enhance the adult occupation-based interventions.

Other weaknesses include overscheduling clients and time management, limiting the

ability for the therapists to work one-on-one with their clients. Home evaluations and

modifications are not common practices carried out by the MAIR clinic. Lack of sustainable

resources is also a barrier in supporting the clinic as a not-for-profit organization.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 19

Summary of Needs Analysis

Data collected from key stakeholders, clinical staff, clientele and their families, as well as

observations completed by the graduate student revealed a wide variety of needs and areas for

potential growth for the MAIR clinic. With a very limited number of discharges performed since

2015, the MAIR clinic continues to provide services to clients that have been receiving services

for three years and who are no longer demonstrating a significant change in function that needs

to be addressed in the clinic. The lack of discharge planning prevents new clients with more

critical needs from being admitted. The difficulty of determining the appropriate time of

discharge appears to be due to the current form of documentation within the MAIR clinic. Initial

evaluation, progress towards goals, and measurable outcome data is significantly limited. The

therapists believe that many of the current clients need to continue therapy services, as they are

still progressing. This statement is true, but the approach to reaching the client’s maximal

recovery can be addressed through a different means.

Although the clients and their families currently participate in home exercise programs

(HEPs), the HEP is limited to joint range of motion. HEPs targeting ADLs and enhancing client

participation within the home environment is essential to promote client progress towards desired

outcomes. Development of client-centered occupational therapy HEPs, especially for the cerebral

palsy population, will promote positive outcomes within a shorter time frame and enhance the

time the client spends in therapy. By encompassing HEPs into treatment, the clinical staff will

improve outcomes and promote timely discharge, with a program in place to maintain client

performance after discharge. In addition, HEPs can be provided to clients on the wait list as they

wait for hands-on therapy services to become available at the MAIR clinic. HEPs will assist the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 20

MAIR clinic in obtaining outcomes, establishing an appropriate discharge plan, improving the

number of clients served, and assist in the transition to a for-profit organization.

Literature Review

In order to gain a comprehensive understanding of the occupational needs of the MAIR

clinic and its clientele, a literature review was conducted. PubMed, American Journal of

Occupational Therapy (AJOT), Google Scholar, CINAHL, and University of Utah (U of U)

Library were databases used to compile the ensuing literature review. The following terms were

used in various combinations in order to gather relevant articles: occupational therapy, rural

setting, underserved population, third world countries, Africa, outpatient therapy, pediatric

setting, outpatient setting, neurorehabiliation, rehabilitation, home exercise programs, task-

specific training, task-oriented training, occupation-based, activities of daily living,

compensation, remediation, rehabilitation, cerebral palsy, and factors influencing care. The

majority of the articles were found through Google Scholar searches; however, to access the full

article, the U of U Library and the student’s login were used. Originally, articles were only

included in the review if they were published within the last five years in order to ensure the

most current elements of best practice. However, due to limited research in respects to home

exercise programs as well as research regarding the country of Morocco, the time frame was

expanded to include articles that were published within the last 15 years. The decision to keep or

discard an article was based on its relevance to the program proposal and the comprehensive

information provided within. Eighteen articles were used to compose the following literature

review.

Prevalence of Disability in Morocco


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 21

It is estimated that one billion people residing on Earth are living with a disability, with

80% of these individuals living in developing countries (Hajjioui, Fourtassi, & Nejjari, 2015;

Khan, Amatya, Mannan, & Rathore, 2015). In order to gain a better understanding of the number

of individuals experiencing a disability within Morocco compared to the rest of the world,

literature was obtained. According to Boutayeb (2006), Morocco’s population was composed of

30 million individuals in 2006 (p. 1). In 2004, a National Disability Survey was conducted in

Morocco revealing that 1.5 million individuals live with a disability, or 5% of the Moroccan

population (as cited in Hajjioui et al., 2015). When the Moroccan Ministry of Health conducted a

similar survey a few years later, data showed that 18.2% of the individuals in Morocco were

experiencing at least one chronic disease (as cited in Hajjioui et al., 2015).

Rehabilitation Services for an Underserved Population in a Rural Setting

Although the MAIR clinic is located in Marrakech, a major city of Morocco, the clinic

provides a large amount of resources to families that are underserved and commuting from rural

areas outside of Marrakech. According to Dr. Sbai, clients are commuting to the MAIR clinic

from approximately 75 km away (M. Sbai, personal communication, October 3, 2018). As

previously mentioned, 39.92% of Morocco’s population continues to live within rural areas

(Trading Economics, n.d.). Therefore, due to the makeup of the clinic’s clientele, literature

regarding underserved populations and therapy services in a rural setting was collected.

Due to illiteracy, unemployment, geographic locations, slow economic growth, the cost

of healthcare and a ratio of one doctor for every 2,100 individuals, access to healthcare is

significantly limited in Morocco (Boutayeb, 2006; Hajjioui et al., 2015; Khan et al., 2015). In

addition to limited access to healthcare, access to rehabilitation services is even more scarce.

Although a large number of those residing in Morocco live with a disability, physical and
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 22

rehabilitative medicine is limited. In 2011, only five hospital beds within Morocco were devoted

to physical and rehabilitative medicine (Hajjioui et al., 2015). Even with five hospital beds

available, an individual’s greatest limitation to services is access. In developing countries, it is

common for healthcare to focus on prevention and curative aspects of disease; therefore,

rehabilitation is less of a priority. Additionally, a developing country’s statistics on its population

is often an approximation. Consequently, the data does not provide adequate information to

determine the type, setting, and intensity of rehabilitation services needed (Khan et al., 2015).

Both occupational therapists (OTs) and physical therapists (PTs) that work within the

rural setting have been found to have a high level of autonomy due to limited resources, poor

access to recent medical developments, and the remoteness from other disciplines or members

within their own discipline. Due to the limited number of therapists within the rural setting, high

caseloads containing a variety of diagnoses are common. OTs and PTs are often considered

generalists within the rural setting. Therefore, rural OTs and PTs are found to have a higher level

of problem-solving, communication, networking, understanding their scope of practice, as well

as the ability to improvise (Roots, Brown, & Banbridge, 2014).

In order to gain a better understanding of the roles that PT and OT play within the rural

setting, Roots et al. (2014) conducted a qualitative study to gather therapist perspectives. The

therapists were found to be generalists, stretching their role as therapists within their scope of

practice in order to meet the needs of their clientele. Due to a variety of factors, the definition of

health that they learned in practice was often modified to encompass the larger definition of

health (Roots et al., 2014). A similar principle has taken place in Morocco, as the definition of

rehabilitation is different from that in the United States. Khan et al. (2015) reports that the term
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 23

‘rehabilitation’ to the individuals residing in Africa often contains misleading connotations and

implies patient dependency.

Occupational therapy in Africa. At this time, it is uncommon for an OT to practice in

Morocco (Béguin, 2013). However, as mentioned in the needs analysis of this paper, Rabat, the

capital of Morocco, established an occupational therapy program in January of 2018. Slowly, the

practice of OT is gaining attention in Northern Africa (Nafai, 2015). In Algeria, a large country

east of Morocco, only 26 OTs are licensed and actively practicing. In West Africa, psychiatric

rehabilitation is the most common setting for OT practice. An occupational therapy school,

educating students on a bachelor’s degree level, is located in East Africa. Here, OTs commonly

work in nursing homes, psychiatry, prisons, military hospitals, and within the community. In

South Africa, it is common for OTs to work in clinics for HIV/AIDS to assist with management

of the disease. The model of human occupation, biomechanical, neurodevelopmental,

psychosocial, behavioral, and rehabilitative approaches are the most common treatment

frameworks used by OTs within Africa (Béguin, 2013; Kielhofner, 2009).

Neurorehabilitation. The MAIR clinic strives to provide valuable neurorehabilitation

services; therefore, relevant literature was obtained in order to understand the components of this

focus and the role of OT within this setting. Neurorehabilitation is a process that enhances

clients’ independence and participation within society. The belief is that neurorehabilitation can

leave lasting effects to all patients by providing services that are focused on the individual and

their goals for social participation and well-being within their environment (Donaghy, 2011;

Khan et al., 2015). Neurological conditions are those that affect the nervous system within one’s

body. Common examples include: spinal cord injury, traumatic brain injury, multiple sclerosis,

Parkinson’s disease, and cerebral palsy. Typical treatments in neurorehabilitation include: motor
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 24

control, mobility training, task-specific training, visual feedback, cognitive rehabilitation,

constraint-induced movement therapy (CIMT), and use of technology such as neuromuscular

electrical stimulation and virtual reality (Doucet, 2012; Gillen, 2010).

Within America, OT has recognized its role in neurorehabilitation; however, limitations

within practice exist. There is a lack of high-level research in OT practice in relation to

neurorehabilitation treatments. In addition, the literature that is available for OT practitioners

provides shortfalls in the link between neurorehabilitation treatment and its effect on enhancing

occupational performance (Gillen, 2010). Therefore, in order to justify the need for OTs within

neurorehabilitation, education, collaboration, and choosing outcomes that measure occupational

performance are imperative to remain in the practice of neurorehabilitation (Doucet, 2012;

Gillen, 2010).

Although the MAIR clinic provides services to a wide range of neurological conditions,

for the purpose of this paper, the focus is placed on children with cerebral palsy (CP). The

diagnosis of CP was chosen due to the prevalence within Morocco. Sixty-five percent of the

MAIR clinic’s population is children, a majority of which have a diagnosis of CP (M. Sbai,

personal communication, May 24, 2018).

Cerebral palsy. According to Morgan et al. (2016), the prevalence of CP worldwide is

2.1 per 1,000 live births, a number that has remained fairly stable since 2009 (Novak, Cusick, &

Lannin, 2009). In the United States in 2009, it was estimated that 550,000-764,000 individuals

were living with CP, with a prevalence of 3.6 per 1,000 live births (Novak et al., 2009; Salem &

Godwin, 2009). The term CP defines a group of neurodevelopmental disorders that result in

motor impairments which therefore limit participation in daily activities (Salem, & Godwin,

2009; Schnackers et al., 2018). On the other side of the world in Morocco, it is estimated that
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 25

25,000 new cases of CP occur each year. The cause of this widespread problem within Morocco

is unknown but hypothesized to be a result of a lack of access to healthcare, lack of resources

within healthcare, lack of financial resources, and geographical location (Hajjioui et al., 2015;

Nafai et al., 2017).

Neurorehabilitation has been found to be the most common approach to improving

mobility function and to manage the presentation of CP (Salem & Godwin, 2009). In a

systematic review conducted by Morgan et al. (2016), it was found that children with CP by the

age of five years old, have reached 90% of their gross motor development. The first two years of

life are the most pertinent for children with CP, as the most gains and potential for improvement

exist within this time frame (Morgan et al., 2016).

Home Exercise Programs for Cerebral Palsy

To supplement neurorehabilitation services provided in a clinic, a therapist could

establish a home exercise program (HEP). HEPs are used around the world to provide clients

opportunities for repeated practice of a task, to improve functional performance and to promote

participation within the home environment (Milton & Roe, 2017; Novak & Cusick, 2006;

Novack, Cusick & Lannin, 2009). HEPs can include task-specific training as well as many other

treatments that are incorporated within neurorehabilitation. Therefore, HEPs can transition the

valuable neurorehabilitation services provided within the MAIR clinic into the home

environment.

Even though OT may have limitations in providing neurorehabilitation services at this

time in America, OT provides a valuable contribution when implementing HEPs. OT provides a

holistic approach when providing services to a client. As an OT, one looks at the environment,

the person, the occupation, as well as any other factors that may contribute to occupational
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 26

performance. A major focus of OT is to improve client performance and satisfaction related to

their daily occupations. Occupations are everyday life activities that the client engages in

(American Occupational Therapy Association [AOTA], 2014). Additional information regarding

OT and HEPs will be presented, supporting the link between providing therapy services within

the home environment in addition to services provided at the MAIR clinic.

Home exercise programs. HEPs involve therapeutic activities that are carried out within

the home environment, with the parent acting as the faciliatory of the program (Novak, Cusick,

& Lowe, 2007). Therapeutic activities defer from exercise, as therapeutic activities are often

components of an occupation. Therapeutic activities hold meaning and relevance to the client as

they relate back to an occupation; whereas, exercise may not hold an inherent purpose and

cannot be considered a stand-alone entity (AOTA, 2014). From an OT perspective, home

programs are individualized to the client in order to target a specific body structure, a specific

activity, or to increase participation as identified by the caregiver and therapist (Milton & Roe,

2017; Novak et al., 2009).

In order to establish an individualized HEP, Novak and Cusick (2006) conducted a

literature review and through use of clinical-reasoning and experience, they developed what they

believed to be one of the first formal processes for HEP development with relation to CP. Little

research was available to assist an OT in the evaluation, development, and implementation of a

HEP for children with CP, but Novak and Cusick believed that enough information was provided

to assist in the development of an effective HEP protocol. To begin, an OT must establish a

service approach and a model to work from. In terms of HEPs, a family-centered approach is

considered the ‘gold-standard’ (Novak & Cusick, 2006; Schnackers et al., 2018). Common OT

frame of references and theories used to support this approach include the person-environment-
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 27

occupation (PEO) model, the motor control/motor learning, and neurodevelopment treatment

(NDT) (Law et al., 1996; Morgan et al., 2016; Novak & Cusick, 2006).

After appropriate models are established, Novak and Cusick (2006) suggest the following

five phases of action: “(i) establishing a collaborative relationship with the child’s

parent/caregiver; (ii) collaborative goal setting; (iii) constructing the home programme; (iv)

supporting the programme implementation; and (v) evaluating the outcomes” (p. 260). The

research conducted by Novak and Cusick was the first reference related to incorporating and

establishing HEPs for children with CP. More recently, Schnackers et al. (2018) presented

another method for establishing HEPs based on implicit and explicit learning. In summary,

Schnackers et al. (2018), proposes two phases for developing a HEP. The first phase includes

preparation, a needs assessment, goal setting, introductory meetings with involved professionals,

designing an individualized program, educating the parents on the HEP, and conducting a home

visit. The second phase implements the home-based training, including: caregiver training, video

recordings to document the HEP, daily logs, as well as coaching through telehealth and home

visits. When focusing on an explicit motor learning process, conscious aspects of the motor

process are targeted. On the other hand, when implementing an implicit motor learning HEP,

focus is on the non-conscious components of motor learning (Schnackers et al., 2018).

Based on current literature, the time spent on a HEP in order to reach targeted outcomes

varies from different researchers. In a double-blind, randomized, controlled trial conducted by

Novak et al. (2009), it was found that a HEP should be implemented for an average of 16.5

minutes per session for 17.5 times per month in order to achieve parent satisfaction and change

in function for children with CP. Conversely, literature obtained by Schnackers et al. (2018),

supports implementation of a HEP for 3.5 hours per week for a total of 12 weeks. In a pilot study
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 28

determining the impact on HEP for 20 children with CP, the typical time spent per day was 14.22

minutes, completing the HEP for an average of 27 days each month (Novak et al., 2007).

A variety of intervention methods for CP are supported within the HEP literature.

Modified CIMT and bimanual therapy were found effective intervention approaches for

improving upper limb function during HEPs for children with CP (Novak et al., 2009). In Novak

et al. (2009), 36 children were randomly assigned to an OT HEP for four or eight weeks or

received no home program. All children who participated in a HEP improved in upper limb

function, regardless of the intervention approach used. Although upper limb function improved,

Novak et al. (2009) found that the HEP had no impact on daily participation. Interventions

included handwriting task training, behavior support, recreation therapy, adaptive equipment,

play therapy, and CIMT. Morgan et al. (2018), also discovered that child-initiated movement and

environmental modification were effective means in improving motor function in children with

cerebral palsy as a result of their systematic review.

Salem and Godwin (2009) conducted a randomized controlled trial on the effects of task-

oriented training on mobility for children with CP. The children within the experimental group

completed task-oriented training as opposed to the control group who received typical PT

intervention. Task-oriented training included activities that were similar to mobility tasks that

were completed during everyday activities, such as completing sit-to-stands, walking, and

climbing stairs. After five weeks, it was found that the children who completed task-oriented

training improved in functional outcomes to a greater extent that individuals in the control group

(Salem & Godwin, 2009). Task-specific intervention was also supported as an appropriate

intervention in a systematic review conducted by Morgan et al. (2009), and when establishing

both an implicit and explicit model of learning for HEPs (Schnackers et al., 2018). Therefore,
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 29

task-specific/task-oriented training has proven to be an effective intervention approach for motor

learning during HEPs over time.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 30

Summary of Needs Analysis and Literature Review

The mission of the MAIR clinic is “To trigger a neuroplastic change in the foundation of

our therapy, to accomplish maximal recovery is our most important goal” (MAIR, n.d.). By

implementing this mission statement into daily treatment, the MAIR clinic is fighting to

eradicate the negative connotation that the term ‘rehabilitation’ has in Africa. They hope to

reestablish the greater meaning of ‘rehabilitation’, one that promotes independence and positive

change (M. Sbai, personal communication, October 5, 2018). Cerebral palsy is a physical

disorder which limits physical movement and posture; therefore, limiting participation in

activities of daily living (Milton & Roe, 2017). The MAIR clinic strives to redefine rehabilitation

in relation to children with CP by providing training to the clients’ mother and

neurorehabilitation services to the children. The MAIR clinic engages children with CP in

locomotor training, joint range of motion, and trunk control activities during therapy sessions

within the clinic. The clinic also promotes mothers’ engagement in daily range of motion in both

upper and lower extremity joints. However, there are no resources in place to establish HEPs that

target task-specific training and participation in daily occupations.

In order to promote outcomes within a shorter time frame, enhance the time the child

engages in therapy, and to even provide therapy services when hands-on therapy is not available,

the MAIR clinic would benefit from a program focusing on establishing OT HEPs (Novak et al.,

2009). Based on semi-structured interviews completed with key stakeholders, clinical staff, and

mothers of the clients, a variety of goals exist. Goals established by mothers with children with

CP include: (1) sitting, (2) standing, (3) walking, (4) balance, (5) talking, (6) hand grasp, (7)

dressing, (8) using the bathroom, (9) eating, and (10) going to school (Parent 1, Parent 2, Parent

3, Parent 4, Parent 5, Parent 6, personal communication, October 8-10, 2018; Support Group,
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 31

personal communication, October 12, 2018). Individualized HEPs encompassing occupation-

based and task-specific training, in addition to the already established joint range of motion,

could assist in achieving these goals to enhance occupational performance and participation in

activities of daily living. The goal of HEPs are to meet desired goals within a shorter time frame

and to increase the number of clients discharged from one-on-one therapy services. In addition,

HEPs could be established for those clients that are currently on the waiting list. This would

allow these clients to participate in meaningful activities at home as they wait for their one-on-

one treatment sessions to become available.

As a result of the needs assessment and the literature review, a strong argument has been

established regarding the need for a program targeting development and implementation of HEPs

for children with CP. This program will fill a need established by all those involved as well as

graduate student observation, allowing integration of therapy services and goals into the home

environment, while simultaneously supporting the mission of the MAIR clinic.

Program Proposal

Program Overview

As a result of the gaps discovered during the needs analysis, a program that focuses on

the development of a comprehensive and individualized HEP for each child with CP is proposed.

There are three physical therapists employed at the MAIR clinic. Every day the therapists strive

to trigger a neuroplastic change and to accomplish maximal recovery in their clients (MAIR,

n.d.). By understanding movement problems as a result of a disease or injury, the physical

therapists work to improve or restore mobility in order to allow their clients to improve their

overall quality of life. As the therapists strive to increase mobility through stretching and

walking inside the clinic, a need exists to engage clients in task-specific and occupation-based
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 32

activities within the home environment. This program will provide supplementary services to

children with CP to reach desired outcomes in a shorter time frame, to increase the number of

clients discharged from one-on-one therapy services, and to provide an intervention for the

children that continue to reside on the wait list. A focus on task-specific and occupation-based

activities will ensure that the HEPs are meaningful to the child and their families, allowing

occupational engagement within the home environment and within their daily routine.

This proposed program places on emphasis on the home environment, meaningful

activities, and the caregiver as the provider of services. Currently, parents are being provided the

education required to complete daily range of motion mobility stretches in upper and lower

extremity joints, but the current HEP established for these children lacks functionality and

meaning to the children. The development of client-centered OT HEPs for children with CP will

merge the MAIR clinic practices into the home environment.

Development of the client-centered occupation-based HEPs will occur in the five phases

of action established by Novak and Cusick (2006). Desired outcomes will be identified through

collaboration between the therapist and the caregiver with relation to the information obtained

from completed assessments. A home evaluation will be conducted to gain an understanding of

the influence that the home environment will provide on the HEP. Education and training will be

provided to the parent in order to assist in carry-over from the clinical setting to the home

environment. Follow-up visits through telehealth conferencing or home visits will occur to

ensure that the needs of the client are being met and the HEPs are being adjusted as the skills of

the client improve. Assessments will be conducted to monitor progress and improvement in the

client’s performance skills and client factors over time.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 33

In an ideal situation, an occupational therapist would complete home evaluations, as well

as the development and implementation of client-centered HEPs. However, due to a variety of

factors affecting the MAIR clinic, hiring a full-time occupational therapist is not feasible at this

time. Therefore, an OT will be hired for consultative and indirect services to educate and train

the aspiring neuro-therapists to implement this program. Initially, the OT will play a strong role,

as the OT will model elements of the home evaluation, goal development and HEP development.

As time goes on, the OT will transition to consultative services, allowing the aspiring neuro-

therapist to play a key role in evaluation and development of HEPs, reaching out to the OT when

needed.

Population. Sixty-five percent of clients served by the MAIR clinic are children. A

majority of the children served have a diagnosis of CP. With 25,000 new cases of CP in Morocco

each year, CP is an important diagnostic focus within the MAIR clinic (Nafai et al., 2017). Due

to the abundance of CP diagnoses present within the MAIR clinic, the development of client-

centered OT HEPs will focus on children with a CP diagnosis. The HEPs will be developed for

children with CP currently receiving hands-on therapy services at the MAIR clinic, as well as

those on the MAIR clinic’s wait list. In the beginning, HEPs will be established for all children

with CP, regardless of age. As time progresses, the goal is to develop HEPs for children prior to

the age of five, as most gross motor development occurs between birth and five years of age

(Morgan et al., 2016).

Program value. This program aims to merge the practices that are carried out in the

clinical setting to those carried out within the home environment. By providing HEPs, caregivers

will learn the knowledge and skills necessary to competently implement a home program for

their child over a period of time. The program will assist the caregivers in understanding the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 34

importance of participation in occupations and meaningful activities. In addition, the program

will allow children with CP to maintain certain performance skills and allow other skills to grow

and develop. Over time, it is anticipated that the HEP will take over one-on-one therapy services

as outcomes are reached and discharge planning is performed.

The development of client-centered OT HEPs will allow children with CP additional

therapy services outside of the clinic or provide some form of therapy while waiting for hands-on

therapy while on the clinic’s wait list. A goal of the HEPs is to improve clients’ performance

skills and client factors in order to enhance occupational performance throughout daily activities.

Depending on when the HEP is established, the program may focus on improvement of desired

skills or maintenance of current skills. The mission of the MAIR clinic is “To trigger a

neuroplastic change is the foundation of our therapy, to accomplish maximal recovery is our

most important goal” (MAIR, n.d.). The development of client-centered OT HEPs aligns with

the MAIR clinics mission as it will implement treatment that supplements neurorehabilitation

and strives to reach maximal recovery within each child that the HEPs will serve. HEPs will not

only complement the MAIR clinic’s mission, HEPs will also address occupational injustice.

Occupational justice. Individuals have unique occupational needs, routines, and

capacities. Each individual has the right to exercise their occupational capacities in order to

maintain and improve their overall wellness and quality of life (Durocher, Gibson, & Rappolt,

2014). This program addresses occupational injustice by allowing clients the opportunity to have

their occupational needs met through participation and engagement. Through development of

client-centered OT HEPs, a number of occupational injustices are prevented. Specifically, this

program addresses occupational deprivation and occupational alienation.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 35

Occupational deprivation is the state of inability to complete daily occupations due to

factors outside of a client’s control (Durocher et al., 2014). Through the development of HEPs,

the aspiring neuro-therapists will be trained to adapt the environment and task to meet the

demands of the client. HEPs will be established within the home environment, regardless of

geographical location. The client’s needs and goals established to create the HEP will focus on

allowing clients the opportunity to participate in occupations that are meaningful or necessary,

regardless of external factors. Due to cultural influences, the mother spends a tremendous

amount of time performing daily occupations for children with CP rather than encouraging client

participation. By implementing client-centered OT HEPs, the focus will be on maximal

participation from the client and less demand on the caregiver. Not only will this program

increase client skills, but it will also improve independence in ADLs.

Another form of occupational injustice is occupational alienation. Occupational

alienation is a prolonged absence of personal belonging. When an individual is unable to

participate in occupations, the individual experiences isolation, lack of self-identity,

disconnectedness from society, or may even experience no meaning in life (Durocher et al.,

2014). Due to the severity of the CP diagnoses within Morocco, a large degree of occupational

deprivation occurs. As a result of not being able to participate in meaningful occupations as a

result of external factors, occupational alienation occurs. From the graduate student’s

perspective, children were found sitting in the living room while the mothers were working in the

kitchen and children were out playing in the neighborhood. The child was left in the corner

without toys or any form of engagement. With little or no interaction with family, the

community, or siblings, the child does not gain a sense of belonging. This program strives to

enhance occupational engagement and awareness for children with CP. HEPs will be developed
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 36

to engage the child in occupations, activities, or tasks that provide a sense of participation within

their family environment to improve their occupational engagement and sense of belonging.

Influence of the population’s health. By addressing occupational injustices described

above, a variety of outcomes will follow. Client occupational performance and participation will

improve. Their health and wellness, well-being, and quality of life will improve as they will be

involved in more activities than ever before. The clients will begin to develop an understanding

of their role in performing an occupation as opposed to the caregivers. Children with CP for

which HEPs will be provided, will improve their mental and physical health as they establish an

identity, discovering meaning and purpose to daily activities within the home environment.

Level of prevention. As this program focuses on maximal recovery, improving

independence level of participation in occupations, and maintenance, a focus is placed on tertiary

prevention. The children that the HEPs will be established for already have a diagnosis of CP,

regardless of whether the diagnosis is recent or one that they have had for many years. The

attempt of implementing a HEP that can be incorporated into the family’s daily routine through

participation in occupations and task-specific training, is to maximize function for these children.

Although some of these children will never be independent with all ADLs, this program strives

to reach the highest level of participation possible to increase independence and decrease

caregiver burden. The program works to increase quality of life by reducing the symptoms

associated with CP. In addition, by participating in HEPs, the children will remain active and

healthy, avoiding secondary health conditions or complications.

Preventing secondary conditions. Through participation in HEPs, a number of health

risks or secondary conditions will be prevented. Health risks or secondary conditions include, but

are not limited to: feeding and swallowing, poor nutrition, respiratory issues, and contractures.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 37

Due to CP, children may experience oral motor control deficits, making it difficult to manipulate

food once in the mouth and to swallow effectively. By addressing feeding to those children who

need it within their HEP, feeding and swallowing complications will be prevented. For example,

the therapist could provide oral motor exercises in addition to carrying out the actual task of

feeding. Poor nutrition can occur on both ends, rather it be obesity or emaciation. Obesity could

occur due to a sedentary state, as a result of a lack of engagement in daily activities. Emaciation

could occur as a result of an inappropriate diet or oral motor control deficits. Through a client-

centered OT HEP, poor nutrition can be prevented on a case-by-case basis through a variety of

interventions. Respiratory issues result from aspiration or positioning. Through physical therapy

and OT collaboration, positioning can be a factor addressed during daily occupations to prevent

these respiratory issues. Lastly, due to the current lack of engagement for children with CP in

Morocco, contractures of the fingers, wrist and hand are occurring. By enhancing client

participation, contractures will be prevented when a HEP is established early on. Overall,

through the development of client-centered OT HEPs, a number of secondary conditions will be

prevented. The health risks will be identified and addressed on a case-by-case basis, ensuring

that each child’s needs are met.

How Factors Influenced Service Delivery

Based on the geographical location of the MAIR clinic, the clinic serves individuals that

are underserved as well as those living in a rural area. Due to the MAIR clinic being in

Marrakech, Morocco, it is considered that the clinic is in a developing country. As Morocco is a

developing country, and a large disparity exists between the rich and the poor, this program will

be implemented through grants (Arieff, 2013). At this time, a large number of clients receiving
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 38

services at the MAIR clinic are not paying; therefore, it is unrealistic for this program to expect

an income based on clients and their families that are paying out-of-pocket or using insurance.

The number of OTs within Morocco is limited, as well as all other healthcare personnel.

As of January 2018, the first OT program was established in Rabat; however, it will be some

time before these students graduate, allowing them to practice in a number of areas throughout

Morocco. Even with an OT program within Morocco, the stakes of these students leaving to

practice outside of Morocco are high, as Morocco continues to be one of the leading emigration

countries in the world (de Haas, 2014). Based on geographical and professional domains, the

implementation of this program is more feasible if applied by those already on staff, the aspiring

neuro-therapists. The aspiring neuro-therapists are trained to be physical therapists; therefore, the

lens in which they practice is different from that of an OT. To ensure that all essential pieces of

the program are applied to the best of the therapists’ abilities, training will be provided by the OT

to shed light on their unique role and perspective within neurorehabilitation. The following

section supports the need for an OT to effectively establish and implement this proposed

program.

Rationale for an Occupational Therapy Role

An OT would be best suited to implement a program related to HEP development

through a holistic approach. An OT is sufficiently trained to assess individuals as a holistic

entity, including the environment, the occupation, and the individual’s functional abilities.

Within OT, it is important to consider the individual’s routine, home environment, and skills in

order to identify appropriate strengths and barriers related to occupational engagement. A

holistic approach will also assist in development of client-centered goals that target occupational

performance and participation in ADLs within the clients’ physical and social environments
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 39

(Milton & Roe, 2017; Novak & Cusick, 2006; Novak et al., 2009). This program would assist

clients in meeting desired goals by targeting specific body structures and participation problems

identified by parents through engagement in meaningful activities (Milton & Roe, 2017). By

reaching goals, the clients will have greater gains towards occupational success, leading to

discharge from outpatient therapy services.

As previously mentioned, it would be ideal for an OT to complete home evaluations and

develop all HEPs; however due to the factors discussed above, an alternative means will be used.

Within this program, an OT will provide consultative and indirect services for the MAIR clinic’s

staff, including education on the importance of developing a HEP, how to conduct a home

evaluation, as well as the development process for goal writing. Additionally, they will be taught

how to create activities that align with the client’s abilities. The OT will be a strong presence as

the HEPs begin to develop for the MAIR clinic’s clientele. As the skills of the aspiring neuro-

therapists improve, the OT will transition to more of a consultation-based practice model,

allowing the therapists to reach out when in need.

To ensure that the HEPs are occupation-based, an OT will play a key role in

development. Occupations, or everyday life activities, are the primary lens that OTs evaluate and

provide therapy through (AOTA, 2014). As a part of neurorehabilitation, task-specific training is

common. Task-specific training focuses on activities or components that make up daily activities

(Salem & Godwin, 2009). Occupations and task-specific training will be the primary focus for

development of all client-centered OT HEPs. An OT is essential to carry out the training of this

program as an OT will provide a holistic approach by incorporating the following models and

frame of references.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 40

Theoretical foundation. Within the occupational therapy discipline, models and frame

of references are used for development and implementation of therapy services. The theoretical

foundation helps an OT support and guide services based off of theoretical assumptions,

postulates of change, and associated outcomes. The theories and foundations influence the

assessments chosen for evaluation and the means an OT uses to develop appropriate

interventions. At least one occupation-centered model is needed to ensure the primary focus of

this discipline. It is then common to use complementary models to assist with assessment and

evaluation. This section discusses the occupation-centered model, as well as the complementary

model and the family-centered practice approach chosen for the development of individualized

HEPs.

To provide occupation-based services, an occupation-centered model is essential. The

person-environment-occupation (PEO) model provides this occupation-centered focus. The PEO

model focuses on establishing a congruent relationship between the person, the occupation, and

the environment. Based on this model, the person, the occupation, and the environment are

factors that influence one another, impacting occupational performance. As this program

establishes HEPs for children with CP, the key environment is within the home. The PEO model

will allow the OT and aspiring neuro-therapists to evaluate the home environment to understand

how the environment influences the child’s behavior, as well as how the environment can be

used as a modality within the HEPs (Law et al., 1996).

The PEO model allows individuals to be seen holistically through assessment and

intervention. Due to the cultural differences between the U.S. and Morocco, it is critical that each

person’s life experiences, spiritual qualities, and cultural background are carefully taken into

account so that assumptions are not made. The PEO model also allows therapists to consider the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 41

unique skills and factors that come with each individual (Law et al., 1996). To gather this

information, the Canadian Occupational Performance Measure (COPM) will be used. The

COPM will serve as a qualitative and quantitative means, gathering data related to client

performance and satisfaction with performance in areas of daily living. Areas discussed within

the COPM include: self-care, productivity and leisure. The COPM then identifies the top five

clients’ occupational performance problems. Performance and satisfaction are obtained based off

a 10-point Likert scale (1 = not able to do it/not satisfied at all to 10 = able to do it extremely

well/extremely satisfied). Due to the vast use of the COPM worldwide, the COPM can be

purchased in Arabic, allowing it to be used easily between therapists, clients and caregivers. To

view an English version of the COPM, see Appendix D (Law et al., 2014).

Within the PEO model, the activity, task or occupation are considered through task

analysis. Task analysis is the ability to break down the demands of the task into a set of steps or

skills that the client requires in order to carry out the desired scenario. By assessing the activity,

task, or occupation, the therapist is able to get a thorough understanding on how each step

influences occupational performance among clients (Law et al., 1996).

The PEO model perceives the environment and the person to be dynamic entities. Key

aspects from the person, the environment, and/or the occupation can influence performance. The

person, environment, and occupation transact continuously over time and space; therefore, it is

essential to optimize congruence to assist in optimal occupational performance. Within the PEO

model, barriers are perceived to be created by social attitudes, the medical model, laws, policies,

and the built environment. Optimal congruence is created by removing these barriers and

establishing changes within the person, the environment, or the occupation as needed (Law et al.,

1996).
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 42

To supplement the PEO model, the motor skill acquisition model will be used. The motor

skill acquisition model focuses on clients with central nervous system deficits which contribute

to difficulty in executing voluntary motor movements. This model is used as a complementary

model to PEO because it also strives to maximize personal and environmental factors in order to

enhance performance. When using the motor skill acquisition model, the therapist works to grow

the problem-solving skills the of the clients. This will assist the client in finding solutions to

challenges presented outside of the treatment setting. Overall, the motor skill acquisition model

strives to enhance purposeful movements, increase client problem-solving abilities, which in

turn, allows the client to complete a task in the most efficient way possible (Kaplan, 2010).

Lastly, the family centered practice (FCP) was a topic that was brought up time and time

again in the literature that was found when addressing children with CP and establishing a HEP.

Based on this approach, it is best to address the client’s needs within their family. Services

should be focused on engagement, involvement, and support within families. Due to the culture

in Morocco, the FCP is an essential element to the HEPs. The mothers play a key role in therapy

and meeting the needs of their children. The FCP will assist the therapist in engaging the mothers

and other family members in therapy by developing an understanding of their child’s needs. The

family will play a central role in the determining the needs and goals of the client, as well as

what activities should be addressed during the HEP (The University of Iowa, n.d.).

Goals and Objectives

The primary goals and objectives of this program are related to training the aspiring

neuro-therapists into skilled professionals that can effectively and efficiently carry out a home

evaluation and HEP development based on client needs. The following are goals and objectives

to support the program.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 43

Goal 1: To improve therapists’ knowledge regarding the benefits and outcomes of implementing

a home exercise program that correlates with desired patient outcomes.

Objective 1: Within six months, 2/3 aspiring neuro-therapists will independently provide

an informal education session to at least five clients and their caregivers supporting the need for

these clients to participate in an individualized home exercise program to improve client

occupational performance in daily life activities.

Objective 2: Within one year, 2/3 aspiring neuro-therapists will independently identify at

least two performance skills that the child has improved upon as a result of their home exercise

program, in at least 75% of the clients.

Goal 2: To enhance the therapists’ abilities to modify the task or environment within home

exercise programs to meet the functional abilities of all clients.

Objective 1: Within two months, 2/3 aspiring neuro-therapists will use principles of task

analysis to modify at least one step within an occupation to improve a client’s performance

during their home exercise program with no more than five direct verbal cues.

Objective 2: Within eight months, 2/3 aspiring neuro-therapists will modify at least one

environmental factor in at least 10 client homes to improve client performance in their home

exercise program with less than three indirect verbal cues.

Once the training is complete and the aspiring neuro-therapists are able to implement this

program, a number of goals and objectives can be created in order to allow program evaluation

to occur and to ensure program outcomes are met. The following are an example of goals and

outcomes that can be established by the aspiring neuro-therapists in relation to this program.

Goal 1: To increase client participation in task-specific and occupation-based home exercise

programs in order to improve client’s independence in activities of daily living.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 44

Objective 1: Within four months, 85% of clients will participate in at least one step of a

daily occupation during their individualized home exercise program with Min A.

Objective 2: Within one year, 80% of clients and their mothers will independently

participate in an individualized home exercise programs at least four times a week for an

average of 10 minutes per session.

Goal 2: To improve caregiver’s knowledge and commitment in carrying out individualized home

exercise programs for their child with cerebral palsy.

Objective 1. In six months, 8/10 mothers will demonstrate the individualized home

exercise program within the home environment will less than five verbal cues.

Objective 2. In ten months, 70% of mothers in the support group will independently

identify at least one benefit of participating in an individualized home exercise program

with their child.

Client-Centered Home Exercise Programs for Children with Cerebral Palsy

The development of client-centered OT HEPs for children with CP is a program that will

complement the MAIR clinic’s mission in multiple formats. For one, the program will provide

further education related to clinical reasoning, intervention development, as well as an exposure

to the principles of occupation-based treatment, implementing programs within the home

environment and principles of task analysis. The main goal of the MAIR clinic is to reach

maximal recovery of each and every individual through neurorehabilitation. Additional time

participating in a variety of activities, including but not limited to occupations, exercise, and

task-specific training within the home environment will enhance client potential to reach this

goal. This program will also expose the aspiring neuro-therapists to the importance and place for

adaptation to occur within the neurorehabilitation process.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 45

Based on the formality of the situation, an OT will train all aspiring neuro-therapists

within the MAIR clinic. Once training is completed, HEP development will be performed by all

aspiring neuro-therapists, proving HEPs to all children with CP. The purpose of this program is

to serve all children with CP that have contact with the MAIR clinic, this includes: children

actively receiving services, those preparing for discharge, and those on the wait list. HEPs will

be completed between aspiring neuro-therapist, caregiver, and the client, with 24 hours of

consultation services being provided by the OT each month. The program timeline section will

break down the components of the process and how it will unfold over time.

Program timeline. For the purposes of this program, a two-week training will be

provided to all aspiring neuro-therapists employed at the MAIR clinic. The training will cover

two-weeks as it will be providing education over time, allowing the aspiring neuro-therapists to

process and reflect on material provided. The development of client-centered OT HEPs program

will highlight the following topics when educating the aspiring neuro-therapists.

The program will begin with the OT discussing the importance of HEPs. The therapist

will iterate the importance of going beyond joint range of motion by increasing client physical

engagement within home activities to promote desired outcomes. The presentation will go on to

discuss what interventions can be included within a HEP. The next presentation will provide the

aspiring neuro-therapists education related to home evaluations. The OT will discuss why a

home evaluation is performed and what is typically looked for in a home evaluation.

Once all of the background information is provided by the previous two presentations

discussed, the OT will begin educating the aspiring neuro-therapists on determining components

of a HEP. During this presentation, the OT will define the difference between an occupation, an

exercise, an activity, and a task. The OT will then discuss principles of task analysis in order for
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 46

the aspiring neuro-therapists to have a basic understanding of how to adapt an activity to the

client’s abilities. Lastly, the presentation will discuss how to determine an appropriate

occupation, an exercise, an activity, or a task based on the client’s abilities, age, and

development. The OT will use the five phases of program development established by Novak

and Cusick (2006), to educate the aspiring neuro-therapists on program development. All phases

will be discussed in depth during implementation of the program. According to Novak and

Cusick (2006), the five phases are: “(i) establishing a collaborative relationship with the child’s

parent/caregiver; (ii) collaborative goal setting; (iii) constructing the home programme; (iv)

supporting the programme implementation; and (v) evaluating the outcomes” (p. 260).

The fourth and final educational presentation will discuss methods of data collection. The

OT will educate the aspiring neuro-therapists on the Canadian Occupational Performance

Measure (COPM), with practice opportunities to perform the COPM. The aspiring neuro-

therapists will then be educated on the home evaluation and HEP development form that the OT

has developed for their clinic (see appendix E). Goal writing will also be included within this

presentation, providing the therapists with information on how to develop measurable goals that

will identify outcomes. This will not be a large focus of this program, as goal writing could be a

program in its own. Discussing goal writing as a part of this program only provides exposure to

detailed goal writing, allowing them an opportunity to view a different means to goal writing. All

of the educational PowerPoints will be provided during the first week of the training.

Week one will conclude by beginning the final phase of the program, putting the skills to

practice. The aspiring neuro-therapists will have the opportunity to observe the OT perform a

home evaluation and development of a HEP based on one client receiving services at the MAIR

clinic. The entire process will occur within the client’s home, reiterating the importance of the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 47

home environment. Once the observation of the OT is complete, the OT will provide each

aspiring neuro-therapist with a case study to work on independently over the weekend. To begin

the second week, the OT and aspiring neuro-therapists will sit down and go through the case

study, discussing the difficulties of establishing a HEP, comparing HEPs between therapists, as

well as a variety of other factors. After the case studies are complete, each aspiring neuro-

therapist will have the opportunity to perform a home visit and develop a HEP on their own. The

OT will join the aspiring neuro-therapist on the home visit in order to observe and provide

immediate feedback on performance. Once all three home visits are completed and the HEPs are

developed, the two-week training will end by gathering as a group, allowing the aspiring neuro-

therapists to present their HEPs, discussing personal challenges and providing an environment

for final questions for the OT, as well as for group collaboration and problem-solving to occur. A

visual overview of the program is presented in Appendix B.

Time requirements. Due to the composition of the program, a two-week training will be

provided to all aspiring neuro-therapists. A total of 44 hours will be required for completion of

the training (15 hours of preparation + 1-hour presentation + 2-hour presentation + 5-hour

presentation + 3-hour presentation + 18 hours of application = 44 hours). The OT will complete

all preparation for the two-week program prior to arriving at MAIR clinic. A total of 11 hours

will be presentations conducted by the OT during the first week of training. The first week will

end with the OT conducting a home evaluation and HEP development, allowing the therapists to

observe the entire process. Including the observation and case study, 18 hours will be dedicated

to the second week of training for application of learned skills. To view the time requirements in

relation to the training, view Appendix B.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 48

The following is a proposal of the time required to implement HEPs for all children with

CP by the aspiring neuro-therapists. The MAIR clinic is open Monday-Friday from 9 am-12 pm

and 1-5 pm, as well as on Saturdays from 9 am-12 pm. For the purposes of the HEPs, services

will be provided Monday-Friday following the times mentioned above. Home visits will be

performed Monday-Friday, with Saturday providing the therapist time to catch up on

documentation and development of HEPs as well as to complete any additional collaboration

with the OT. It is estimated that two hours will be required to complete a comprehensive initial

evaluation. An initial evaluation will include a home evaluation, completion of the COPM, as

well as evaluation and observation of the client.

For each home visit, 60 minutes of transportation is allotted roundtrip. Approximately 2-3

hours is required for consultation and development of client-centered OT HEPs. A handout with

pictures and essential descriptions is included within this time frame. The therapist will then

complete an additional 90-minute home visit to provide caregiver education and training related

to the client’s HEP. Every six months thereafter, a 45-minute home visit or telehealth conference

will be completed to conduct a follow-up, complementing the COPM again and changing the

HEP as needed.

The MAIR clinic is currently providing services to 60 clients, 65% of which are children.

Therefore, 39 are children, a majority of which have a diagnosis of CP. For the purpose of this

paper, 60% of the children will have a diagnosis of CP, or 23 children. The MAIR clinic’s wait

list is composed over 100 individuals, 30-40 of which have a diagnosis of CP. For this paper, 35

individuals will be considered on the wait list with a diagnosis of CP. Numbers are based on an

approximation gathered by Dr. Sbai, as there are no current statistics regarding the exact number

of children with CP being served and those on the wait list (M. Sbai, personal communication,
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 49

November 15, 2018). Overall, there are currently 58 children receiving services from the MAIR

clinic or waiting to receive hands-on therapy services.

For initial evaluation and development of a HEP, it is anticipated that it will require an

average of five and a half hours per client (120 minutes for initial evaluation + average of 60

minutes for commute + average of 150 minutes for consultation and development of the HEP =

330 minutes). To complete all 58 HEPs, 319 hours is required (5.5 hours per client x 58 clients =

319 hours). To teach the HEP, two and a half hours are required per client/caregiver (60 minutes

for commute + 90 minutes for home visit = 150 minutes). Therefore, a total of 145 hours is

required to complete all educational home visits (2.5 hours per client x 58 clients = 145 hours).

After the clients’ HEPs have been implemented for six months, 45-minute follow-up visits will

occur (45-minute follow-up visit + 60 minutes for commute = 105 minutes). This will require

one hour and 45 minutes per client or 101.5 hours overall for follow-up visits (1.75 hours per

client x 58 clients = 101.5 hours). To save time for the aspiring neuro-therapists, six-month

follow-up visits can be completed through teleconferencing.

Overall, to serve all children with CP receiving services from the MAIR clinic or those

on the wait list, 464 hours is required for initial evaluation as well as development and

implementation of the HEP (319 hours for initial evaluation and HEP development + 145 hours

for educational home visit = 464 hours). Every six months, 101.5 hours will be required to

complete follow-up visits and provide changes to HEPs on a case-by-case basis. Again, the time

required for follow-up visits may vary, depending on the number of visits conducted through

teleconferencing versus those completed during a physical home visit.

Program criteria. The development of client-centered OT HEPs will specifically target

children with CP who are currently receiving services or are on the wait list for services at the
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 50

MAIR clinic. To ensure that the HEP is developed holistically, considering the person, the

environment, and the occupation, the home environment is an essential component to the

program. Therefore, the program will be provided to all children with CP, regardless of

geographic location, as many of the clients and their caregivers are commuting from rural areas

outside of Marrakech.

Due to the abundance of CP being addressed within the MAIR clinic, HEP development

will focus on this diagnosis. Therefore, all other diagnoses will be excluded from this program. It

is anticipated that the program will expand to include individuals with varying diagnoses. This

expansion will be reliant on program outcomes and capabilities of the MAIR clinic and its staff.

How the program addresses factors relevant to the setting. A large percentage of the

population served within the MAIR clinic is children with CP; this factor influences the focus of

the development of HEPs to those with a diagnosis of CP. The development of client-centered

OT HEPs will provide clients additional potential to reach maximal recovery, allowing them to

participate in desired ADLs. By reaching maximal recovery through neurorehabilitation

approaches, such as task-specific training, this program supplements the MAIR clinic’s mission

statement.

Staff involvement. Based on the situation of the MAIR clinic, a full-time OT is not

feasible at this time. As a result, an OT will be hired for consultative and indirect services. The

OT will be used to prepare and implement the two-week training for this program. The two-week

training will be completed on-site, using both the MAIR clinic as well as clients’ homes. After

training is complete, the OT can then be reached through teleconferencing for 24 hours of

consultation each month. The OT will provide the aspiring neuro-therapists the skills they need

to sufficiently complete a home evaluation and HEP development by emerging occupational


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 51

therapy practices into that of physical therapy. The OT will play a supportive role initially, as the

program is being established. Over time, it is anticipated the OT role will diminish as the

aspiring neuro-therapists take on a larger role within the program.

Community resources. As the focus of this program is HEP development, the entirety of

the program will be completed within the community, specifically within the clients’ homes. The

home environment is the focus of this program; therefore, no community resources outside of the

clients’ homes will be recommended.

Space requirements. Due to the composition of this program, space requirements will

vary. The space that will be allotted for the HEP is composed of the home environment;

therefore, space will vary from family to family and house to house. Equipment within the space

will also vary depending on the activities, tasks, or occupations incorporated into the HEP. For

example, if a child is working on oral hygiene, the location of the activity will be performed near

a sink, either in the bathroom or the kitchen. The child may be able to stand independently next

to the sink or will require supported seating based on trunk control. Through home evaluation

and implementation of the person-environment-occupation model and the motor skill acquisition

model, space requirements will be established according to client needs and skills. The

evaluation and intervention will both be completed within the home environment. The COPM

will most likely be completed between therapist, caregiver, and client seated in the living room.

The home evaluation form will be completed as the therapists assesses the home environment.

Within the MAIR clinic, a storage space of 15 square feet will be allocated for ADL kits for the

HEPs. A number of ADL kits will be stored in the therapists’ vehicle at all times, being

restocked by the kits within storage as needed. The therapist may use a small office space within

the MAIR clinic, the client’s home, or the car in order to complete documentation.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 52

Budget. In addition to the other requirements discussed previously, a budget is needed to

propose yearly cost and income. To see the proposed budget in its entirety, see Appendix C. This

section will discuss the need for the items proposed in the budget.

An OT will be hired to develop the training and curriculum prior to arriving in

Marrakech, Morocco. Cost of the travel, including airfare and hotel stay, are included for the OT

within the budget. The OT will then be paid for the hours spent providing training during the

two-week training to educate the aspiring neuro-therapists on HEP development. Lastly, the

budget also includes the cost for OT consultation services, allowing consultation to be provided

up to 24 hours per month. At this time, the MAIR clinic has three aspiring neuro-therapists. As

Dr. Sbai wishes, all therapists are trained to implement this program; therefore, three therapists’

yearly wages were also included within the budget. Benefits of all aspiring neuro-therapists were

also taken into account.

Each HEP will require various supplies based on the targeted performance skills and

desired client outcomes established by the therapists and the caregiver. Examples of supplies

included in an established HEP include: handouts with written and pictorial information

regarding the HEP, ADL kits (such as a bathing kit or oral hygiene kit), as well as client and

family toys and furniture. Client and family toys and furniture were not considered in the budget,

as the therapists will incorporate items already present within the home environment. ADL kits

will be distributed on a case-by-case basis, depending on the occupations assigned within a

client’s HEP.

Initial start-up cost will include a transportation vehicle. A car is needed for the aspiring

neuro-therapists to travel to the clients’ homes. A mobile printer will be installed within the

vehicle and a laptop with Microsoft Office will be purchased to support development and
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 53

printing of home evaluations and HEPs on the go. Direct costs to support HEP development

includes office supplies, including ink and paper for the printer, as well as pens. Assessments for

this program include the Canadian Occupational Performance Measure (COPM) in the Arabic

language as well as a free home evaluation and HEP development document created by the

graduate student. Both assessments tools will assist the aspiring neuro-therapists in the

development of HEPs through interview, observation and assessment of the client, and the home

environment. Mileage reimbursement is an additional direct cost included within the budget.

Costs that indirectly affect the program include car maintenance, storage of ADL kits, and

internet.

A few of the items included within the budget are considered in-kind due to the MAIR

clinic already owning or paying for these materials. These items include: the yearly wage of

three aspiring neuro-therapists, storage within the MAIR clinic, and internet. Due to the MAIR

clinic being a not-for-profit organization at this time, as well as the limited number of clients that

self-pay or pay through insurance, an estimate was made on the income for the purpose of this

budget.

Marketing. No formal marketing needs to occur for this program, as marketing of this

program will be completed in-house. The development of HEPs for children with CP will be a

supplemental program provided to all children with CP receiving services at the MAIR clinic,

children preparing for discharge, and those on the MAIR clinic’s wait list. Therefore,

communication between aspiring neuro-therapists, caregivers, and clients will occur during one-

on-one therapy sessions or through a phone call for those on the wait list. Word of mouth has

continued to be one of the leading ways for the MAIR clinic to receive clients and is effective for

marketing this program. A personal selling relationship will occur between the aspiring neuro-
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 54

therapist and the caregivers of children with CP. The therapists at the MAIR clinic will be the

ones educating the family about a home visit and recommending that a HEP be established for

their child. This selling relationship will be effective for this program, as the therapists on site

already have strong relationship with all caregivers. Future effort will be taken to properly

document the number of children with CP receiving services as well as those on the wait list. By

gathering this data, appropriate effort can be made to ensure that all children with CP are being

provided the opportunity to participate in the program.

Program Funding

Audit trail. To support implementation of this program, a number of funding sources

were reviewed to discover realistic funding services. To obtain funding options, a number of

resources were used. Through the U of U Eccles library, research databases were accessed, and

the following search engines were used: foundation directory online and funding institutional.

The following key terms were used in various combinations in order to search the funding sites:

health (subject area), Morocco (geographic focus), Africa (region), cerebral palsy,

rehabilitation, and program and projects (funding type).

Funding options. The Bill & Melinda Gates foundation was the first funding source

found that would be realistic in terms of funding this program. This foundation focuses on

providing equality across all individuals, allowing them to live healthy lives. Within developing

countries, the Bill & Melinda Gates Foundation seeks to improve health and living for all

individuals. Within the U.S., this foundation strives to provide access to opportunities individuals

need to succeed in life, especially those with few resources (Foundation Directory Online,

2018a). Overall, the missions of the Bill & Melinda Gates Foundation are to (1) ensure that

people survive and thrive, (2) empower the poorest, (3) combat infectious diseases, and (4)
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 55

inspire others to take action (Bill & Melinda Gates Foundation, n.d.). Funding interests for the

Bills & Melinda Gates foundation include: community and economic development, program

development, children and youth, and individuals of a low socioeconomic status. A large amount

of the Bills & Melinda Gates foundation currently serves Africa. In 2016, a total of

$4,280,463,865 was distributed for grants from this foundation. Grants from this foundation

currently range from $5,000 to over $1 million. Funding provided by this foundation tends to be

on the higher end, providing funds from $500,000 to $1,000,000 but it is not to say that the

source would not be willing to fund this program (Bill & Melinda Gates Foundation, n.d.;

Foundation Directory Online, 2018a).

The MAIR clinic is a not-for-profit organization. At this time, the MAIR clinic is

primarily receiving grants from the different branches of Rotary International, such as the Salt

Lake Rotary Club. The mission of the Rotary International is to “provide service to others,

promote integrity, and advance world understanding, goodwill, and peach through our fellowship

of business, professional, and community leaders” (Rotary International, n.d.). Although Rotary

International was not found during the grant search, the MAIR clinic is currently receiving

funding from this source, making it a realistic funding opportunity for this program. In terms of

the MAIR clinic, Rotary International focuses on providing education to the aspiring neuro-

therapists. At this time, Rotary International provides $70 million dollars in grants each year;

however, an application for a specific grant from this foundation was not found to determine how

much this organization could fund the program (Rotary International, n.d.).

In the past, the MAIR clinic has also received grants from the Sorenson Legacy

Foundation. The Sorenson Legacy Foundation was established by James LeVoy and Beverley

Sorenson to provide education and community development from a scientific domain all the way
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 56

to an art domain. The foundation is based in Salt Lake City, Utah, but provides services across

the world. Funding interests include: diseases and conditions, family services, continuing

support, and program development with a population focus on children and youth, economically

disadvantaged people, as well as those with a low socioeconomic status. In 2016, $35,167,550

was given in grants from the Sorenson Legacy Foundation, varying the number of funds

distributed per organization based on the number of dollars needed. Most of the funding

provided by the Sorenson Legacy Foundation tends to range between $10,000 to $25,000 with a

number of other donations ranging between $25,000 to $500,000. Based on the typical funding

distributed, the Sorenson Legacy Foundation may be a more appropriate option for this program

as compared to the Bill & Melinda Gates Foundation (Foundation Directory Online, 2018;

Sorenson Legacy Foundation, n.d.).

Program Evaluation

To ensure funding and growth of the program, program evaluation and outcomes are

expected. The following section will discuss the expected outcomes of the OT providing the

aspiring the neuro-therapists training, as well as the outcomes expected as a result of

implementation of this program. This section will continue by discussing how these outcomes

can be evaluated.

Expected outcomes. As a result of this program, all aspiring neuro-therapists at the

MAIR clinic will have the training they need in order to conduct a home evaluation and develop

a client-centered, occupation-based HEP. In addition, the therapists will gain a knowledge

related to the importance of HEPs that go beyond stretching, allowing desired client outcomes to

be met in a shorter time frame. This program also provides the therapists with an education

regarding the COPM, a different assessment from those already in place at the MAIR clinic.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 57

Also, the program introduces the therapists to a more comprehensive form of goal writing and

documentation in order to monitor and identify patient outcomes as a result of HEPs. Another

essential outcome of this program is providing the education needed to use compensation as just

as an effective means as that of rehabilitation. Compensation has its time and place, just as

rehabilitation does, allowing the therapists to gain the knowledge and reasoning behind

compensation will allow the method to be applied appropriate and effectively across clients and

settings.

From the client perspective, this program will provide additional time for the clients to

engage in services that will assist in the development, as well as maintenance, of client factors

and performance skills. This program serves as the beginning step in obtaining maximal recovery

and serves as a program that can be implemented after discharge to ensure maintenance of client

skills. Through education provided by the aspiring neuro-therapists, the caregivers of the clients

will learn the importance of a HEP and how to be the facilitator of an effective HEP. In turn, this

program will eliminate occupational alienation and deprivation, allowing the clients the right to

participate in their desired ADLs.

Evaluation. Both quantitative and qualitative data will be gathered to determine the

effectiveness of the program and ensuring that the expected outcomes are obtained. After the

two-week training course is complete, a case study will be presented to all aspiring neuro-

therapists. The case study will serve as both a qualitative and quantitative means, as there will be

right and wrong answers, as well an opportunity for some of the answers to vary across

therapists. The case study will ensure that the aspiring neuro-therapists obtained the necessary

information during the training provided by the OT to effectively complete a home evaluation

and HEP development.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 58

Another means that could be used to ensure the aspiring neuro-therapists learned the

essential information for home evaluation and HEP development would be to create a test. The

test would consist of a variety of multiple-choice questions, providing a small case and allowing

the therapists to choose the best possible answer. This test would serve as quantitative data, as

there is a correct and incorrect answer for each question. In terms of quantitative data over time,

the follow questions can be used to gather data related to program outcomes:

1. How many home evaluations were completed? How many home evaluations were

performed through teleconferencing or a narrative format within the MAIR clinic?

2. How many home exercise programs were developed?

3. How many specific exercises did the aspiring neuro-therapists implement in the

HEPs?

4. What was the most common occupation used for the home exercise programs?

Options are: bathing, feeding, eating, toileting, dressing, functional mobility, personal

hygiene.

5. Were there any instrumental activities of daily living implemented into the home

exercise program? Yes/No What was the most common? Options are: care of pets,

religious and spiritual activities, and meal preparation and clean-up.

In terms of qualitative data, the following questions can be asked to gather program

outcomes related to the training provided by the OT:

1. What was the most beneficial piece of information you learned during the two-week

training provided by the OT?

2. As the therapist, what did you find the most challenging about establishing a HEP for

your clients?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 59

3. What information do you wish the OT would have provided during the two-week

training that was not discussed in relation to the home environment and HEP

development?

4. What additional training would help you implement a comprehensive HEP for your

clients?

5. How do you plan to take the information you have learned from this two-week

training and implement a program focusing on client-centered HEP development

within the home environment?

6. From your own perspective, how is an occupational therapist’s role different from

that of a physical therapist’s role?

For the aspiring neuro-therapists, once they have completed the OT training and

implementation of the program has occurred, the following quantitative and qualitative data can

be used to gather information relevant to the program’s outcomes. The COPM will be used as a

quantitative measure to identify outcomes, as it will provide numerical data as to how the

caregiver’s/client’s satisfaction and performance numbers have improved over time through use

of the HEP. The scoring section of the COPM is based on a 10-point Likert scale, ranging from 1

(not able to do it/not satisfied at all) to 10 (able to do it extremely well/extremely satisfied) (Law

et al., 2014). For qualitative data, various forms of the following questions can be asked to the

parents by the therapists:

1. What benefits has the HEP provided for you and your child?

2. What do you find most challenging about a HEP?

3. What was something that the therapist educated you on that you found helpful for the

HEP?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 60

4. How has the HEP helped your child in becoming more independent?

5. What other focus areas, activities, or interventions do you wish were included in the

HEP for your child?

Summary

Overall, the needs analysis conducted at the MAIR clinic led to the development of a

comprehensive HEP for clients to engage in. This HEP targets occupations and task-specific

training to improve client performance, participation, and satisfaction across a variety of areas. A

literature review was conducted to gather literature about HEPs related to the MAIR clinic’s

most prevalent diagnosis, CP. Through evidence-based literature and clinical reasoning, the

graduate student created a program proposal to develop client-centered OT HEPs for clients

receiving services at the MAIR clinic as well as those on the wait list. This program proposal

provides an in-depth guideline to the development and implementation of such a program for the

MAIR clinic. This project has been a delight to work on over the course of the semester, as the

staff at the MAIR clinic are delightful individuals to work with. Dr. Sbai and the aspiring neuro-

therapists work hard to provide what is best for the clients that they serve at the MAIR clinic. It

is my pleasure to present them with this program proposal in hopes to increase the number of

clients served through an alternative means.


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 61

References

American Occupational Therapy Association [AOTA] (2014). Occupational therapy practice

framework: Domain & process (3rd Ed). American Journal of Occupational Therapy, 68,

s1-s51.

Arieff, A. (2013, October 18). Morocco: Current issues. Retrieved from

https://fas.org/sgp/crs/row/RS21579.pdf

Batnitzky, A. (2008). Obesity and household roles: Gender and social class in Morocco.

Sociology of Health & Illness, 30(2), 445-462. doi:10.1111/j.1467-9566.2007.01067.x

Béguin, R. B. (2013). An overview of occupational therapy in Africa. World Federation of

Occupational Therapists Bulletin, 68, 51-58. https://doi.org/10.1179/otb.2013.68.1.013

Bill & Melinda Gates Foundation (n.d.). Our missions to achieve our vision. Retrieved from

https://www.gatesfoundation.org

Boutayeb, A. (2006). Social inequalities and health inequity in Morocco. International Journal

for Equity in Health, 5(1). doi:10.1186/1475-9276-5-1

Central Intelligence Agency [CIA] (2018, September 26). The world factbook: Africa, Morocco.

Retrieved from https://www.cia.gov/library/publications/the-world-

factbook/geos/mo.html

Countries and their Cultures (n.d.). The United Kingdom of Morocco. Retrieved from

https://www.everyculture.com/Ma-Ni/The-United-Kingdom-of-Morocco.html

Country Reports (n.d.a). Disability access in Morocco. Retrieved

https://www.countryreports.org/travel/Morocco/accessibility.htm

Country Reports (n.d.b). Traffic and road conditions in Morocco. Retrieved from

https://www.countryreports.org/travel/Morocco/traffic.htm
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 62

de Haas, H. (2014). Morocco: Setting the stage for becoming a migration transition country?

Retrieved from

https://www.migrationpolicy.org/article/morocco-setting-stage-becoming-migration-trans

ition-country

Donaghy, M. (2011). Principles of neurological rehabilitation. In M. Donaghy (Eds.), Brian’s

Diseases of the Nervous System (Chapter 6). Retrieved from

http://oxfordmedicine.com/view/10.1093/med/9780198569381.001.0001/med-

9780198569381-chapter-006

Doucet, B. M. (2012). Neurorehabilitation: Are we doing all that we can? American Journal of

Occupational Therapy, 66(4), 488-491. https://dx.doi.org/10.5014/ajot.2012.0027

Durocher, E., Gibson, Barbara E., & Rappolt, S. (2014). Occupational justice: A conceptual

review. Journal of Occupational Science, 21(4), 418-430.

doi:10.1080/14427591.2013.775692

Export (2017, October 25). Morocco: Healthcare. Retrieved from

https://www.export.gov/article?id=Morocco-Healthcare

Foundation Directory Online (2018, October 18). Bill & Melinda Gates Foundation. Retrieved

from https://fconline.foundationcenter.org/fdo-grantmaker-

profile/?collection=grantmakers&activity=result&_new_search=1&quicksearch=United

%20Cerebral%20Palsy&subject_match=match_any&subject_area=SE&geographic_focu

s=10000631&population_served=&organization_name=&organization_location=&staff=

&government_grantmaker=1&support_strategy=&transaction_type=&organization_type

=&amount_min=&amount_max=&year_min=2003&year_max=2018&keywords=&ein=
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 63

&key=GATE023&from_search=1#main-content

Foundation Directory Online (2018, November 6). Sorenson Legacy Foundation. Retrieved from

https://fconline.foundationcenter.org/fdo-grantmaker-

profile/?collection=grantmakers&activity=result&quicksearch=Morocco&subject_match

=match_any&subject_area=SE&geographic_focus=2542007&population_served=&orga

nization_name=&organization_location=&staff=&government_grantmaker=1&support_s

trategy=&transaction_type=&organization_type=&amount_min=$0&amount_max=$10,

000,000,000&year_min=2003&year_max=2018&keywords=&ein=&page=2&key=JLSL

002&from_search=1

Gillen, G. (2010). Rehabilitation research focused on neurorehabilitation. American Journal of

Occupational Therapy, 64(2), 341-356.

Hajjioui, A., Fourtassi, M., & Nejjari, C. (2015). Prevalence of disability and rehabilitation needs

amongst adult hospitalized patients in a Moroccan university hospital. Journal of

Rehabilitation Medicine, 47, 593-598. doi:10.2340/16501977-1979

Ispits (2017, September 6). Filiere reeducation: Rehabilitation. Retrieved from

http://ispits.sante.gov.ma/Pages/DetailActualites.aspx?IDActu=35

Journey Beyond Travel (n.d.). Morocco map: A map of the country of Morocco. Retrieved from

https://www.journeybeyondtravel.com/morocco/map

Kaplan, M. (2010). A frame of reference for motor skill acquisition. In P. Kramer & J. Hinojosa

(Eds.), Frames of reference for pediatric occupational therapy (390-424). Philadelphia,

PA: Lippincott Williams & Wilkins

Khan, F., Amatya, B., Mannan, H., & Rathore, F. A. (2015). Neurorehabilitation in developing
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 64

countries: Challenges and the way forward. Physical Medicine and Rehabilitation

International 2(9).

Kielhofner, G. (2009). Conceptual Foundations of Occupational Therapy Practice (4th Ed., pp.

147-174). Philadelphia: F.A. Davis Company

Koundouno, T. F. (2018, April 10). Morocco to extend health coverage to 90% of Moroccans by

2021. Retrieved from

https://www.moroccoworldnews.com/2018/04/244204/morocco-extend-health-coverage-

90-moroccans-2021/

Law, M., Baptiste, S., Carswell, A., McColl, M., Polatajko, H. J., & Pollock, N. (2014). The

Canadian Occupational Performance Measure (5th ed.). Ottawa: CAOT Publications

Law, M., Cooper, B., Strong, S., Stewart, D., Rigby, P., & Letts, L. (1996). The Person-

Environment-Occupation Model: A transactive approach to occupational performance.

Canadian Journal of Occupational Therapy, 63(1), 9-23.

MAIR (n.d.). The Moulay Ali Institute for Rehabilitation (MAIR). Retrieved from http://mair-

rehab.com

Marokko Info (n.d.). Marrakech. Retrieved from

https://www.marokko-info.nl/marrakech-city-morocco/

Milton, Y., & Roe, S. (2017). Occupational therapy home programmes for children with

unilateral cerebral palsy using bimanual and modified constraint induced movement

therapies: A critical review. British Journal of Occupational Therapy, 80(6), 337-349.

doi:10.1177/0308022616664738

Morgan, C., Darrah, J., Gordon, A. M., Harbourne, R., Spittle, A., Johnson, R., & Fetters, L.
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 65

(2016). Effectiveness of motor interventions in infants with cerebral palsy: A systematic

review. Developmental Medicine & Child Neurology, 58, 900-909.

doi:10.1111/dmcn.13105

Nafai, S. (2015). Proposed curriculum for the first bachelor of science in occupational therapy

program in Morocco (Doctoral dissertation, Boston University, Boston, Massachusetts).

Retrieved from

https://open.bu.edu/bitstream/handle/2144/13999/Nafai_bu_0017E_11649.pdf?sequence

=1

Nafai, S., Barlow, K., & Stevens-Nafai, E. (2017). OT in Morocco: Sustaining service learning

trips through telehealth. OT Practice, 22(2), 20-22.

Nations Encyclopedia (n.d.). Morocco. Retrieved from

http://www.nationsencyclopedia.com/economics/Africa/Morocoo.html

Novak, I., & Cusick, A. (2006). Home programmes in paediatric occupational therapy for

children with cerebral palsy: Where to start? Australian Occupational Therapy Journal,

53, 251-264. doi:10.1111/j.1440-1630.2006.00577.x

Novak, I., Cusick, A., & Lannin, N. (2009). Occupational therapy home programs for cerebral

palsy: Double-blind, randomized, controlled trial. Pediatrics, 124(4), e606-e614.

doi:10.1542/peds.2009-0288

Novak, I., Cusick, A., & Lowe, K. (2007). A pilot study on the impact of occupational therapy

home programming for young children with cerebral palsy. American Journal of

Occupational Therapy, 61(4), 463-468.

Olivier (2017, June 26). Morocco: Children deprived of an education. Retrieved from
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 66

https://www.humanium.org/en/morocco-children-deprived-education/

Regional Health Systems Observatory World Health Organization (2006). Health system profile:

Morocco. Retrieved from

http://apps.who.int/medicinedocs/documents/s17303e/s17303e.pdf

Roots, R. K., Brown, H., & Bainbridge, L. (2014). Rural rehabilitation practice: Perspectives of

occupational therapists and physical therapists in British Columbia, Canada. Rural and

Remote Health, 14.

Rotary International (n.d.). Who we are. Retrieved from https://www.rotary.org/en/about-rotary

Ruger, J. P., & Kress, D. (2007). Health financing and insurance reform in Morocco: Legislation

to expand health insurance coverage offers hope for reducing health financing gaps in

Morocco. Health Aff (Millwood) Journal 26(4), 1009-1016.

doi:10.1377/hlthaff.26.4.1009

Salem, Y., & Godwin, E. (2009). Effects of task-oriented training on mobility function in

children with cerebral palsy. NeuroRehabilitation, 24, 307-313. doi:10.3233/NRE-2009-

0483

Schnackers, M., Beckers, L., Janssen-Potten, Y., Aarts, P., Rameckers, E., van der Burg, J., . . .

Steenbergen, B. (2018). Home-based bimanual training based on motor learning

principles in children with unilateral cerebral palsy and their parents (the COAD-study):

rationale and protocols. BMC Pediatrics, 18(139). https://doi.org/10.1186/s12887-018-

1110-2

Semlali, H. (2010). Morocco case study: Health care environments in Morocco. Retrieved from

https://drive.google.com/drive/folders/1-P1XBg3e2IRoIEu_G-CngakCEEpYAMt2
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 67

Sorenson Legacy Foundation (n.d.). About the foundation. Retrieved from

https://www.sorensonlegacyfoundation.org

The Economist (2014, May 8). The minimum wage is increased. Retrieved from

http://country.eiu.com/article.aspx?articleid=1101794494&Country=Morocco&topic=Ec

onomy&subtopic=Forecast&trackid=43&alert=f35f93c5-7816-4575-a277-3805c76da296

The Moulay Ali Institute for Rehabilitation [MAIR] (n.d.). The Moulay Ali Institute for

Rehabilitation (MAIR). Retrieved from http://mair-rehab.com

The Telegraph (2018, January 29). Marrakech, Morocco. Retrieved from

https://www.telegraph.co.uk/travel/destinations/africa/morocco/marrakech/

The University of Iowa (n.d.). What is family centered practice? Retrieved from

https://clas.uiowa.edu/nrcfcp/what-family-centered-practice

Therasuit LLC (n.d.). Overview of the therasuitô and the therasuit methodô: Intensive pediatric

exercise program for cerebral palsy and neuro-motor disorders. Retrieved from

http://www.suittherapy.com/overview_english.htm

Trading Economics (n.d.). Morocco: Rural population. Retrieved from

https://tradingeconomics.com/morocco/rural-population-percent-of-total-population-wb-d

ata.html

United Nations Human Rights Office of the High Commissioner (2017, August 17). Committee

on the rights of persons with disabilities considers initial report of Morocco. Retrieved

from

https://www.ohchr.org/en/NewsEvents/Pages/DisplayNews.aspx?NewsID=21979&LangI

D=E
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 68

World Population Review (2018, August 8). Morocco population 2018. Retrieved from

worldpopulationreview.com/countries/morocco-population/

Your Mark on the World Center (2016, June 29). Neuro-rehabilitation center in Morocco is

changing lives. Retrieved from

https://yourmarkontheworld.com/neuro-rehabilitation-center-morocco-changing-lives/

Your Mark on the World Center (2018, July 31). The MAIR clinic: With help from rotary, this

clinic offers leading neurorehabilitation in Africa. Retrieved from

https://yourmarkontheworld.com/tag/the-mair-clinic/

Zemouri, C. (2018, March 6). Examples of Morocco’s continually failing health care system.

Retrieved from

https://www.moroccoworldnews.com/2018/03/241860/morocco-continually-failing-healt

h-care-system/
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 69

Appendix A: Interview Questions

Questions related to Occupational Therapy


• What does a typical day at the clinic look like?
• What diagnoses are included in your caseload?
• What is the most common diagnosis?
• Are there any diagnoses that you do not work with in the clinic?
• What ages are included in your caseload?
• What is the most common age range receiving services at the clinic?
• What is the caseload for a therapist at the clinic each day?
• What is the frequency of services?
• What other health professionals do you work with outside of the clinic?
• Do you understand the role of occupational therapy?
• What occupations do you address the most during therapy sessions?
• What programs would you like to implement into the clinic?
• What is the involvement of the parents like?
• What do the parents most commonly ask about during therapy sessions?
• What are the primary goals of the parents?
• What does the discharge process look like?

Questions for Dr. Sbai


• What qualifies a patient for services?
• How do patients find out about the MAIR clinic? Is a physician referral required for
treatment?
• What is the scheduling process at the clinic?
• What is the evaluation process?
• What is the goal writing process?
• What is the documentation process?
• How do you fund the services that the clinic provides?
• What barriers limit the services that are provided at the clinic?
• How does the Salt Lake Rotary Club contribute to MAIR clinic?
• What is the Zahra Charity?
• How many therapists are on staff?
• What is the education background of the therapists?
• What other members are on staff?
• How do you prioritize and organize the waiting list?
• What is the distance that patients are traveling to receive services at the clinic?
• How many patients are paying for services? How are they paying?
• How do you envision this occupational therapy team contributing to your clinic?
• What are your plans for the future?
• What is the plan for making the clinic sustainable?
• What is working well for the clinic at this time? What aspects need improvement?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 70

Questions for Staff


• What programs do you currently implement at the clinic?
• What programs would you like to implement at the clinic?
• What are current strengths of the services provided?
• What are the weaknesses of the services provided?
• What are your current strengths as a clinician?
• What are your current weaknesses as a clinician?
• What are current limitations that are impacting the services provided at the clinic?
• What does your current documentation process look like?
• How long do you typically spend on documentation?
• If you had unlimited funds for the clinic, what would you want to buy or implement?
• How do you establish goals for your patients?
• What are you doing in terms of Telehealth?

Questions for Patients and their Families


• What are your goals for yourself or your child?
• How did you learn about the MAIR clinic?
• What do you enjoy the most about the clinic?
• Are there any services that you wish the clinic would provide?
• What do you wish that you or your child could do independently at home that they are
currently not independent in?
• What are your or your child’s interests?
• What would you like for your child in the future?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 71

Appendix B: Outline of Two-Week Training Course

• The importance of HEPs (1 hour)

o Why is joint range of motion not enough in a home exercise program?

• Home evaluation (2 hours)

o What to look for in a home evaluation

o Why a home visit may have better outcomes than a caregiver narrative

• Determining the components of a HEP (5 hours)

o Occupation vs exercise vs activity vs task

o Determining whether the activity is age appropriate

o Principles of task analysis

• Gathering data (3 hours)

o Canadian Occupational Performance Measure (COPM) (Appendix D)

o Home evaluate and HEP development (Appendix E)

• Putting these skills to practice (18 hours)

o Observation of OT home evaluation and HEP development (4 hours)

o Case study (3+ hours on the aspiring neuro-therapists own time)

o Individual home evaluations and HEP development (9 hours)

o Reflecting on personal experiences (2 hours)


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 72

Week One:
Monday Tuesday Wednesday Thursday Friday Saturday
Presentation Presentation Presentation Finish Observation Time allotted
One: The Two: Home Three: Presentation of OT to therapists
Importance Evaluation Determining Three: completing a working on
of HEPs the Determining home case study
Components the evaluation
of a HEP Components and HEP
of a HEP development
Presentation
Four:
Gathering
Data

Week Two:
Monday Tuesday Wednesday Thursday Friday Saturday
Finish and Group
review case reflection on
study in home
Time allotted to therapists to complete individual home
group evaluation
evaluation and HEP development
and HEP
development
experience
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 73

Appendix C: Proposed Budget

Source of Specific costs or sources of income Cost


Start-up
Costs
Transportation Vehicle x 1 $13,500
• Small SUV
• Used, 2008
• Diesel
(Qri3a.ma)
Laptop w/Microsoft Office x 1 $598
$499.00
(Walmart)
Microsoft Office 365 for Business x 1
$8.25/month x 12 months = $99/year
(Microsoft)
Mobile Print x 1 $129.99
$129.99
(Best Buy)
Total= $14,227.99
Direct Costs
One Occupational Therapist $13,420
Training therapists
• Preparation for Training Session
$35/hour x 15 hours = $525
• Travel
$1,000 for plane ticket + $800 for hotel = $1,800
(KLM – Royal Dutch Airlines)
(Le Printemps by Blue Sea Hotel)
• 2-week Training Course
(1-hour presentation + 2-hour presentation + 5-hour
presentation + 3-hour presentation + 18 hours of
application = 29 hours)
$35/hour x 29 hours = $1,015

One occupational therapist will be paid for indirect and


consultation services after training is complete.
$35/hour x 24 hours per month x 12 months = $10,080
In-kind Aspiring Neuro-Therapist x 3 $48,000
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 74

Mo reports that he pays the therapists $800 per month


(M. Sbai, personal communication, October 13, 2018).
This includes insurance and a gym membership.
Although this may not seem like a lot of money in the
US, in Morocco, this would convert to approximately
160,000 dirhams, which is well above average for
yearly income.
$800/month x 12 months x 3 aspiring neuro-therapists

Office Supplies $102.94


Ink: Canon 35 Black Ink Cartridge $14.99 x 2
Canon 36 Multicolor Ink Cartridge $18.99 x 2
($14.99 x 2) + ($18.99 x 2) = $67.96
(Best Buy)
1 Package of Paper: 500 Sheets $28.99
1 Package of Pens: 60 Pens $5.99
(Office Depot)
ADL Kits $618.61
• Oral Care
o Toothpaste, toothbrush, floss
o $0.50 per toothbrush when purchased in
bulk x 72 kits = $36
o Crest Toothpaste .85 oz (quantity 72) =
$24.99
o $3 per floss when purchased in bulk x
72 kits = $216
• Bathing
o Soap, shampoo, deodorant, hair brush
o $1.03 per bar of soap when purchased in
bulk x 72 = $74.42
o $0.99 per 3 fl oz of shampoo x 72 =
$71.28
o $1.47 per 0.5 oz deodorant stick x 72 =
$105.84
o $2.53 per brush set (comes with one
brush and one comb – brushes will be
given to girls and combs will be given
to boys) x 36 = $91.08
(Smile Makers, Walmart)
Assessments $82.21
• Canadian Occupational Performance Measure
o $15 translation fee into Arabic
o $18.38 for 1 pack of 100 forms
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 75

o $48.83 for manual, 5th edition


 $82.21
(thecopm.ca)
• Home Evaluation and HEP Development
o Free, see Appendix E
Mileage Reimbursement $551.20
Average: 20 miles per day (32.19 km)
Rate of reimbursement: $0.53 per mile
($0.53 x 20 miles x 52 week)
(IRS Standard Mileage Rate)
Total= $62,774.96
Indirect
Costs
Car Maintenance $1,681.50
Maintenance was based on an average cost found on
the following website.
(moneyundeer30.com)

In-kind Storage $195


A six-foot-wide closet with a depth of 30 inches would
be ideal. This closet space would be used to store ADL
kits for the HEPs.
Square Footage = Length (ft) x Width (ft)
6 ft x 2.5 ft = 15 square feet
$13.00/square foot x 15 square feet
In-kind Internet $489
$35/month for 70 GBs
Initial startup cost for equipment is $69
$69 initial cost + ($35/month x 12 months)
(Maroc Telecom)
Total = $2,365.50
Income Grant(s) $0
Insurance/Self-pay clients $150
In-kind In-kind $48,684
Total= $48,834
Budget Summary
Total costs $79,368.45
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 76

Total income $48,834


or in-kind
contributions
Net cost of $30,534.45
program

Appendix D: Canadian Occupational Performance Measure


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 77
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 78
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 79
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 80

Appendix E: Morocco Home Evaluation

Home Evaluation and HEP Development


Background Information
Name of Client:

Address

Date of Evaluation

Type of Evaluation  Initial Home Evaluation  Follow-up

Client Information

Client Presentation
-Type of CP, Tone (if present), etc.

Range of Motion Upper Extremity:


Right:

Left:

Lower Extremity:
Right:

Left:

Hand Dominance  Right


 Left
 Ambidextrous
Sitting Tolerance
-Does the client require supported seating?
-How long can the client sit unsupported?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 81

Standing Tolerance
-Can the client stand independently?
-Can the client ambulate? With or without
assistance?
-Note balance here

Endurance
-How long can the client participate in a
task before demonstrating fatigue?
Is the client participating in any activities
outside of the home?
(Example: Attending school, school sports)
Is the client able to communicate?  Yes
 No
Psychosocial Diagnosis  Yes
 No
Description:

Household Members
Provides
Number of client
Relationship to the Hours Spent assistance?
Name Age Client Job at Home (Yes/No)

Primary Caregiver
Who provides care/assistance most frequently for the client?

What activities are the caregivers assisting the client with?


HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 82

How much assistance is the caregiver providing?

Details of the Home Environment


*Note: Under description of each room, include: general layout, furniture present, type of
flooring and any other information pertinent to establishing home exercise program, such as
caregiver comments.
Description of the Home
-type of home (apartment, 2-story)
-floor plan (ex. bedrooms upstairs, living
room downstairs, kitchen on terrace)
Description of Client’s Bedroom

Description of Parent’s Bedroom


-Where is it located in relation to client’s
bedroom?

Description of Living Room

Description of Kitchen

Description of Bathroom

Description of Outdoor Area (if present)

Where does the client spend most of


their time?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 83

Have there been any adaptations made


to the home to assist the client? If so,
what?
-Example: Ramp, grab bar

Materials within the Home


What toys exist within the home?
-What is the client’s favorite toy/object?

What cooking equipment is in the


home?

What other material is in the home that


can be incorporated into the client’s
HEP?

What items are in the house that can be


used for multiple purposes?
-Personal observation

Does the client have any activity of


daily living equipment?
-Bathing items
-Oral hygiene materials
What furniture is available in the
home?

Is there any furniture/equipment in the


home that is specific for the client?
-Example: Wheelchair, stander, etc.

Client
What are the client’s interests?
What does enjoy doing?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 84

What is the daily/weekly


routine of the client?

Other Notes:
Goals/Outcomes
What are the caregiver’s
goals?

What are the client’s goals?


(If they can contribute)
What are the therapist goals?

Client Factor Addressed


 Mental Functions  Sensory Functions  Joint Range of Motion  Strength
 Endurance  Control of Voluntary Movement
Performance Skills Addressed
 Positions  Reaches  Bends  Grips  Manipulates  Moves  Lifts 
Walks  Endures  Paces  Coordinates  Uses  Initiates
 Continues  Terminates  Sequences
Performance Skills – Social Interaction:
 Starts  Disengages  Speaks Fluently  Turns Toward  Looks  Replies
 Discloses  Expresses Emotion  Takes Turn

Top Five Areas of Growth


*Note: Can be obtained from the Canadian Occupational Performance Measure

Occupational
Performance
Problems Performance Satisfaction Notes

Adaptations
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 85

How can the environment be changed to


enhance client performance?

How can the person be changed to enhance


client performance?

How can the occupation be changed to


enhance client performance?
Goals
*Note: Goal Outline – “By [Date], client will demonstrate improved/increased [performance
skill or client factor] in order to [do what occupation] with [assistant level and/or specific
condition]” (Woolley, 2017).

Example Long-Term Goal: “Within 6 months, Jeremy will independently finger feed himself and
drink finishing 80% of meal in a 20-minute session on 4/5 trials when seated in a high chair and
given 2-handled cup with a lid” (Woolley, 2017).

Example Short-Term Goal: “Within 3 months, Jeremy will use a pincher grasp to independently
feed himself finger foods 8/10 tries within 10 minutes on 4/5 consecutive days, when seated in a
high chair during snack” (Woolley, 2017).

Long-Term Goal:

Short-Term Goal 1:

Short-Term Goal 2:

Long-Term Goal:

Short-Term Goal 1:

Short-Term Goal 2:
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 86

Long-Term Goal:

Short-Term Goal 1:

Short-Term Goal 2:

Home Program Outline

What should be included in this client’s HEP?

Activities of Daily Living (ADLs)


 
 Bathing  Toileting  Dressing  Feeding  Eating Functional Personal
Mobility Hygiene

Instrumental Activities of Daily Living (IADLs)


 Meal Preparation and Cleanup  Religious and Spiritual Activities  Care of Pets

 Education
Description (example: colors, shapes)

 Play
 Play Exploration – “Identifying appropriate play activities, including exploration play,
practice play, pretend play, games with rules, constructive play, and symbolic play” (American
Occupational Therapy Association [AOTA], 2014).
 Play Participation – “Participating in play; maintaining a balance of play with other
occupations; and obtaining, using, and maintaining toys, equipment, and supplies
appropriately” (AOTA, 2014).

*Note: Remember to consider the following:


• What key parts of the task will the client be participating in?
• How will the caregiver assist during the activity?
• Repetitions/Sets – How many times per day? How many times while engaging in
activity?
• Are you going to focus an entire occupation or a specific part of the occupation?
HOME EXERCISE PROGRAM FOR CHILDREN WITH CP 87

• Task-specific training focuses on activities or components that make up daily activities.


o For example: standing up from a chair (sit-to-stands) (Salem & Godwin, 2009).
o
Other Notes:

*Adapted from Australian Government Comcare (2018, August 8). Home assessment
(occupational therapy) report template.
References for the Morocco Home Evaluation Form

American Occupational Therapy Association [AOTA] (2014). Occupational therapy practice

framework: Domain & process (3rd Ed). American Journal of Occupational Therapy, 68,

s1-s51.

Australian Government Comcare (2018, August 8). Home assessment (occupational therapy)

report template. Retrieved from

https://www.comcare.gov.au/Forms_and_Publications/forms2/claims_forms2/claims_f

orms/home_assessment_occupational_therapy_report_template

Salem, Y., & Godwin, E. M. (2009). Effects of task-oriented training on mobility function in

children with cerebral palsy. NeuroRehabilitation, 24, 307-313. doi:10.3233/NRE-2009-

0483

Woolley, H. (2017). Intervention process: Goals, GAS in EI setting [PowerPoint slides].

You might also like