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Department of Occupational Therapy Faculty
Department of Occupational Therapy
Papers

3-2007

Goal attainment scaling as a measure of meaningful


outcomes for children with sensory integration
disorders.
Zoe Mailloux
Pediatric Therapy Network

Teresa A. May-Benson
Occupational Therapy Associates

Clare A. Summers
The Children’s Hospital

Lucy Jane Miller


University of Colorado at Denver and Health Sciences Center

Barbara Brett-Green
University of Colorado at Denver and Health Sciences Center

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Recommended Citation
Mailloux, Zoe; May-Benson, Teresa A.; Summers, Clare A.; Miller, Lucy Jane; Brett-Green, Barbara;
Burke, Janice P.; Cohn, Ellen S.; Koomar, Jane A.; Parham, L Diane; Roley, Susanne Smith; Schaaf,
Roseann C.; and Schoen, Sarah A., "Goal attainment scaling as a measure of meaningful outcomes
for children with sensory integration disorders." (2007). Department of Occupational Therapy Faculty
Papers. Paper 46.
http://jdc.jefferson.edu/otfp/46

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Authors
Zoe Mailloux, Teresa A. May-Benson, Clare A. Summers, Lucy Jane Miller, Barbara Brett-Green, Janice P.
Burke, Ellen S. Cohn, Jane A. Koomar, L Diane Parham, Susanne Smith Roley, Roseann C. Schaaf, and Sarah
A. Schoen

This article is available at Jefferson Digital Commons: http://jdc.jefferson.edu/otfp/46


THE ISSUE IS
Goal Attainment Scaling as a Measure of Meaningful
Outcomes for Children With Sensory Integration Disorders
Zoe Mailloux, Teresa A. May-Benson, Clare A. Summers,
Lucy Jane Miller, Barbara Brett-Green, Janice P. Burke,
Ellen S. Cohn, Jane A. Koomar, L. Diane Parham,
Susanne Smith Roley, Roseann C. Schaaf, Sarah A. Schoen

KEY WORDS Goal attainment scaling (GAS) is a methodology that shows promise for application to intervention effective-
• goal attainment scaling (GAS) ness research and program evaluation in occupational therapy (Dreiling & Bundy, 2003; King et al., 1999;
• pediatric Lannin, 2003; Mitchell & Cusick, 1998). This article identifies the recent and current applications of GAS to
occupational therapy for children with sensory integration dysfunction, as well as the process, usefulness, and
• sensory integration
problems of application of the GAS methodology to this population. The advantages and disadvantages of
• sensory processing using GAS in single-site and multisite research with this population is explored, as well as the potential solu-
tions and future programs that will strengthen the use of GAS as a measure of treatment effectiveness, both
in current clinical practice and in much-needed larger, multisite research studies.
Zoe Mailloux, MA, OTR/L, FAOTA, is Director of
Administration, Pediatric Therapy Network, 1815 West 213th
Street, Suite 100, Torrance, CA 90501; zoem@PTNmail.org. Mailloux, Z., May-Benson, T. A., Summers, C. A., Miller, L. J., Brett-Green, B., Burke, J. P., et al. (2007). The Issue Is—
Teresa A. May-Benson, ScD, OTR/L, is Research Goal attainment scaling as a measure of meaningful outcomes for children with sensory integration disorders. Amer-
Director, The SPIRAL Foundation; and Clinical Specialty ican Journal of Occupational Therapy, 61, 254–259.
Director, Occupational Therapy Associates, Watertown, MA.
Clare A. Summers, MA, OTR, is Occupational Thera-
pist, The Children’s Hospital, Denver, CO.
Lucy Jane Miller, PhD, OTR, FAOTA, is Associate
Clinical Professor, Departments of Rehabilitation Medicine
and Pediatrics, University of Colorado at Denver and Health
Sciences Center; Director, Sensory Therapies and Research
(STAR) Center; and Director, KID Foundation, Greenwood
W ith the ultimate aim of enhancing par-
ticipation and engagement in mean-
ingful life activities, occupational therapists
measures (Miller, 2003a; Miller & Kin-
neally, 1993). Identifying standardized
means to capture the diversity of meaning-
Village, CO.
Barbara Brett-Green, PhD, is Assistant Professor, establish goals with individual people and ful, functional outcomes that are noted by
University of Colorado at Denver and Health Sciences their families that are infinitely unique and therapists, families, and individuals who
Center; Senior Researcher, KID Foundation, Greenwood
Village, CO.
diverse (Crepeau, Cohn, & Schell, 2003). participate in occupational therapy apply-
Janice P. Burke, PhD, OTR/L, FAOTA, is Professor and The array of potential outcomes after inter- ing a sensory integration approach (OT-SI)
Chair, Department of Occupational Therapy; and Dean, vention creates rich clinical practice but presents a special challenge to conducting
wJefferson School of Health Professions, Thomas Jefferson
University, Philadelphia.
makes implementing effectiveness research reliable and relevant effectiveness research.
Ellen S. Cohn, ScD, OTR/L, FAOTA, is Clinical Associ- complex. For more than 40 years (Ayres, The purpose of this article is to describe the
ate Professor, Boston University–Sargent College of Health 1965, 1966; Parham & Mailloux, 2004), efforts of a collaborative team of occupa-
and Rehabilitation Sciences, Boston.
occupational therapists have identified tional therapists to explore the potential of
Jane A. Koomar, PhD, OTR/L, FAOTA, is Owner and
Executive Director, Occupational Therapy Associates, PC, signs of poor or inefficient sensory process- goal attainment scaling (GAS) as a mea-
and The SPIRAL Foundation, Watertown, MA. ing and motor planning or coordination surement methodology that would cap-
L. Diane Parham, PhD, OTR/L, FAOTA, is Associate functions—collectively known as sensory ture, in a reliable and valid manner, the
Professor, Division of Occupational Science and Occupational
Therapy, University of Southern California, Los Angeles. integration disorders—among various clin- diverse gains noted after use of the OT-SI
Susanne Smith Roley, MS, OTR/L, FAOTA, is Project ical populations. Research studies examin- approach.
Director, USC/WPC Comprehensive Program in Sensory ing the effectiveness of occupational ther-
Integration, University of Southern California, Los
Angeles; and Coordinator of Education and Research, apy intervention with clients who have
Pediatric Therapy Network, Torrance, CA. sensory integration problems have shown
Goal Attainment Scaling
Roseann C. Schaaf, PhD, OTR/L, FAOTA, is Associate mixed results, as demonstrated by more GAS is a method originally developed for
Professor, Vice Chair, and Director of Graduate Studies,
Department of Occupational Therapy, Thomas Jefferson than 75 original studies, 2 meta-analyses, adults in the mental health arena as a pro-
University, Philadelphia. and 4 review papers (Parham et al., 2007). gram evaluation tool that facilitates patient
Sarah A. Schoen, PhD, OTR, is Clinical Instructor, Uni- These studies clearly point out the chal- participation in the goal-setting process
versity of Colorado at Denver and Health Sciences Center;
Director of Occupational Therapy, STAR Center; and Senior lenge of defining intervention in a standard (Kiresuk, Smith, & Cardillo, 1994). The
Researcher, KID Foundation, Greenwood Village, CO. way and identifying appropriate outcome GAS methodology is congruent with the

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client-centered occupational therapy phi- therapist’s experience and knowledge of the GAS application in OT-SI (Miller et al.,
losophy because GAS provides a means to client and his or her condition. When 2007). See Table 3 for a sample GAS goal.
identify intervention outcomes that are applied appropriately, the distance between
specifically relevant to individuals and their the levels of the scale is equal and equally
families. Through the use of interview dur- distributed around the predicted level of
GAS Application
ing goal-setting and posttreatment sessions, performance. In this model, the emphasis is GAS has been successfully applied in previ-
the GAS process captures functional and on conceptualizing goal attainment around ous occupational therapy effectiveness
meaningful aspects of a person’s progress the projected outcome level of perfor- research in various pediatric settings,
that are challenging to assess using available mance, rather than conceptualizing progress including rehabilitation (Lannin, 2003;
standardized measures. Recent studies have as a linear progression from a baseline or Mitchell & Cusick, 1998) and school sys-
found that, although parents value observ- current level of functioning. This concept tem (Dreiling & Bundy, 2003; King et al.,
able sensory and motor changes tradition- of GAS as reflecting the probability of 1999). However, previous use of the GAS
ally reflected in standardized tests, they occurrence of an outcome is key to allowing process was highly individualized to meet
place greater value on those aspects of func- one person’s goal outcomes to be compared the needs of the specific program, resulting
tioning that are not readily measured by tra- to another person’s goal outcomes. There- in a wide variety of GAS methodologies,
ditional outcome measures (Cohn, 2001; fore, in writing the goals, the occupational some of which had little consistency to the
Cohn, Miller, & Tickle-Degnen, 2000). therapist must attempt to (a) accurately pre- original GAS process (Kiresuk et al., 1994).
Because GAS captures individualized dict the level of performance the child is
progress that is meaningful to the family, expected to achieve after a specified period GAS Application in Sensory
GAS is an appealing methodology for mea- of time and (b) identify equal increments Integration Research
suring change during and after OT-SI, both above and below the expected level of Single-site research application of GAS.
in clinical and research applications. performance. The first known application of GAS in a
In general, a 5-point scale (–2 to +2) is research protocol for children with sensory
Goal-Writing and Scaling used for scaling goals. Kiresuk et al. (1994) integration dysfunction occurred in two
When Kiresuk and Sherman (1968) origi- specified that 0 (zero) be used as the pre- pilot studies conducted between 1997 and
nally developed GAS methodology, they dicted expected level of performance, with 2005. The studies examined the effective-
devised a very precise scaling method for –1 indicating somewhat less than expected ness of OT-SI for children from ages 4 to 12
writing outcome goals that was based on performance (see Table 1). Various other years who were identified as having atypical
the probability that a particular outcome researchers have suggested different desig- responsiveness to sensation (Miller et al.,
would occur. This method, which involved nations for the levels within this rating 2007). In these pilot studies, the children
assigning specific numeric values to levels of scale. Table 2 summarizes scaling systems participated in OT-SI for 20 sessions over a
performance expected to be achieved by the suggested in the literature for GAS, as well 10-week period. Effectiveness of the inter-
client after intervention, was based on the as the scaling system used in pilot studies of vention was measured by examining pretest

Table 1. Scaled Levels of Goal Attainment Scaling


Rating Level Description
–2 Much Less Than Expected Outcome—This level reflects performance that is likely to occur approximately 7% of the time, ranging from
regression to no or minor changes.
–1 Somewhat Less Than Expected Outcome—This level reflects performance that is likely to occur approximately 21% of the time and is
somewhat less than expected for the intervention period.
0 Projected Performance Expected by the End of the Measurement Period—This level of performance indicates performance to the extent
anticipated at the initiation of treatment for the given measurement period and is expected to occur approximately 43% of the time.
+1 Somewhat More Than Expected Outcome—This level of performance reflects performance that is likely to occur approximately 21% of the
time and indicates somewhat more progress than expected during the intervention period.
+2 Much More Than Expected Outcome—This level reflects performance that is likely to occur approximately 7% of the time and is unusual
because significantly more progress than expected occurred during the measurement period.

Table 2. Comparison of Goal Scaling Methods Used by Various Researchers


Scaling Method
Level Ottenbacher & Cusick (1990) King et al. (1999) Miller et al. (2007) Kiresuk, Smith, & Cardillo (1994)
–2 Most unfavorable outcome likely Baseline Regression from current level Much less than expected outcome
–1 Less than expected outcome Less than expected outcome Current level of performance Somewhat less than expected outcome
0 Expected level Expected level Expected level Projected level of performance
+1 Greater than expected outcome Greater than expected outcome Greater than expected outcome Somewhat more than expected outcome
+2 Most favorable outcome likely Much greater than expected outcome Much greater than expected outcome Much more than expected outcome

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Table 3. Sample Goal Attainment Scaling Goals for Children With Sensory Integration Dysfunction

CONCERN: Inability to participate in a family dinner due to oversensitivities to textures, tastes, smells, and sound.
GOAL: To be able to participate in a family meal at home, at friends’ and relatives’ homes, and at a restaurant, by decreasing oversensitivities to textures, smells,
taste, and noise.
INTERVENTION PERIOD: 20 sessions

–2 –1 0 +1 +2
Much Less Than Expected Level Less Than Expected Level Expected Level of Performance Better Than Expected Level Much Better Than Expected Level

Tolerates the family eating Tolerates 2 new foods on table Tolerates 2 new foods placed Takes 1 bite of 2 new foods Eats multiple bites of 2 new
area during mealtime without or other family members’ on own plate without signs of during a meal without signs of foods without signs of dis-
signs of discomfort or dis- plates without signs of dis- discomfort or distress (e.g., discomfort or distress (e.g., comfort or distress (e.g.,
tress (e.g., crying, gagging, comfort or distress (e.g., crying, gagging, whining, or crying, gagging, whining, or crying, gagging, whining, or
whining, or leaving the table crying, gagging, whining, or leaving the table or room), leaving the table or room), leaving the table or room),
or room), 4 of 5 opportunities. leaving the table or room), 4 of 5 opportunities. 4 of 5 opportunities. 4 of 5 opportunities.
4 of 5 opportunities.

and posttest changes in behavioral Multisite clinical application of GAS. In the three clinical sites examined the use of
responses using traditional standardized 2001, a federal multisite R21 planning GAS to measure change in clinical practice
assessments, including the Child Behavior grant from the National Center for Medi- on a trial basis as a part of their facilities’
Checklist (Achenbach, 1991), the Short cal Rehabilitation Research (NCMRR) ongoing program evaluation. All of the
Sensory Profile (McIntosh, Miller, Shyu, & (National Institutes of Health/National clinical sites routinely developed therapeu-
Dunn, 1999), and the Leiter International Institute of Child Health and Human tic goals for every child receiving services at
Performance Scale–Parent Rating (Roid & Development/NCMRR) supported collab- their facility as part of their regular inter-
Miller, 1997), as well as physiological mea- oration among four university-based vention programs, so GAS was easily incor-
sures such as electrodermal responses and research programs paired with three well- porated into this process.
heart period variability. Additionally, par- established clinical intervention sites. The To implement the GAS process in the
ents were interviewed at the initiation of teams included the University of Colorado clinical settings, primary GAS goal writers
the study to establish objectives written Health Sciences Center and The Children’s were identified and trained. The occupa-
according to the GAS process. Objectives Hospital, Denver; the University of South- tional therapists practiced writing several
were developed to reflect potential inter- ern California and Pediatric Therapy Net- goals and received feedback from members
vention outcomes that were meaningful to work, Torrance; Boston University and of the collaborative team. A general proce-
the parents and family and that were not Occupational Therapy Associates–Water- dure for goal writing and scaling was devel-
typically reflected in the standardized and town; and Thomas Jefferson University, oped and agreed on by all therapists to
physiological measures. Exit interviews Philadelphia. The goal of this grant was to ensure similar increments for scaling. Next,
with parents were conducted to evaluate the form a multisite team of clinicians and each site used the GAS procedure with sev-
functional gains made by children. researchers to plan for collaborative effec- eral children in their facility. All therapists
Results of this study showed some tiveness studies of OT-SI. The collabora- met with parents in an initial goal-setting
changes on various behavioral and physio- tive team identified three primary issues meeting and wrote 3–5 scaled goals per par-
logical measures. However, GAS measures that had to be addressed before the initia- ticipating child. All children received
reflected the most significant gains with a tion of multisite intervention projects: (a) 20–30 sessions of OT-SI, usually provided
pretreatment and posttreatment difference identify comprehensive physiological and for 1 hr, twice per week. After all sessions
score (M = 25.31, SD = 11.71, p < .0001) behavioral evaluation measures for children were completed, a follow-up meeting was
and a large effect size of 2.16. In contrast, thought to have sensory integration dis- conducted with the parents to rate the chil-
the average effect size of the other outcome orders, (b) identify the primary characteris- dren’s progress on the goals. Three months
measures was .50. Thus, scaling goals using tics of OT-SI so intervention would be reli- after implementing the GAS process in the
GAS appeared to be the most sensitive able across sites and develop a means of clinical setting, participants from the three
means to reflect change in individual chil- assuring fidelity to this intervention, and clinical sites compared the application of
dren after their participation in occupa- (c) identify measurement methodologies GAS in their individual programs, identi-
tional therapy. Further, this study demon- that would reflect the functional and fied strengths and weaknesses of GAS, and
strated that GAS could capture individual meaningful gains made after OT-SI made recommendations for application to
changes in daily life occupations that are (Miller, 2003b). multisite research.
functional, meaningful alterations in occu- The collaborative team identified GAS The team concluded that
pational performance over a short inter- as a potential outcome measure methodol- • GAS was a sensitive measure of clin-
vention period in a small sample (Miller et ogy that could capture and quantify indi- ical change over a short period of interven-
al., 2007). vidual functional changes. The therapists at tion because all children across the sites

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demonstrated the expected level of change comes that were meaningful to the parents areas valued by the child and family. Meth-
or better at follow-up. and family. However, although GAS appli- ods of gathering information from parents
• Each site noted that the parents cation was consistent within single sites, to develop goals have varied from asking
involved in the GAS process greatly valued increased uniformity of the GAS process direct questions about difficulties to using
the individualized goals and appreciated across multiple sites was needed before ini- open-ended interview methods allowing
that functional and meaningful aspects of tiation of a collaborative multisite project. parents to generate areas of need with min-
outcomes were addressed. imal guidance or bias from the therapist
• The GAS goal-writing therapists (Miller & Summers, 2001).
from the clinical sites differed in their inter- Reliability of GAS Application When developing a GAS process for
pretation of the meaning of some GAS con- Reliable writing of goals was identified as a use with children who have sensory integra-
cepts reported in the literature (such as primary need for replicable effectiveness tion dysfunction, the collaborative team
“expected level of performance”) and in studies with children who have sensory recommended the following steps:
their use of the scaling system. The multiple integration disorders. The collaborative • The occupational therapist trained
therapists involved in the multisite clinical team noted that reliability needed to be to write the GAS goals should review the
project and the geographic distances established across and within sites for each child’s records, including evaluation and
between them resulted in less consistency in of the following steps: sensory history, before conducting the par-
goal wording and relative distance between • Identifying the individual goals that ent meeting. To increase objectivity in
ratings (e.g., 0 to 1; 1 to 2), or scaling, when are expected to change as a result of the reviewing progress, the GAS goal-writing
writing GAS objectives, than that previously intervention therapist and the therapist providing the
achieved in a single site. Thus, the informal, • Scaling the goals into the levels of intervention should not be the same per-
peer-training model that had been success- expected outcomes son. This distinction would be important in
ful in the single-site pilot research study was • Determining which level best re- an efficacy study in which control groups of
not as effective for long-distance multisite flects the person’s change during interven- children who did and did not receive OT-SI
training. Consistency between sites was tion and rating the scaled goals were included.
viewed as crucial for future implementation • The parent goal-setting meeting
of multisite research. should take place using a semistructured
• Each site concurred that the GAS
Goal Setting and Goal Follow-Up interview with consistent structure across
process held potential application to both
Processes sites. See Figure 1 for examples of guiding
clinical practice as well as research; however, In most clinical settings where OT-SI is questions.
the time demands of the interview and provided, the child’s occupational therapist • The GAS goal-writing therapist
follow-up process that was inherent in the usually initiates writing goals that will be should write five scaled goals according to
application of GAS made routine clinical used to evaluate progress. Best practice in the criteria described below and in accor-
use challenging. occupational therapy includes the parents dance with the GAS training program.
In conclusion, consistent with the ini- in the goal-setting process and, ideally, the • The GAS goal-writing therapist
tial pilot study, the collaborative team found child. Intervention goals should be func- should review the scaled goals with the
that GAS was effective in identifying out- tional and reflect occupational performance parents to validate the expected level of

a. Tell me about your child. What are his/her strengths, his/her weaknesses?
b. What has led you to seek services for your child?
c. What concerns you most about your child? Tell me more specifically about. . . .
d. What is a typical (day, week) like for him/her?
e. Tell me about your family’s life. What kinds of things do you like to do? What is easy or hard for your family or its members?
f. Tell me about what you or other family members need to do to have things go smoothly for your child.
g. (Review the child’s evaluation and ask questions regarding functional areas of difficulty.) For example: I notice that __________________________
(e.g., mealtime) seems to be hard for him/her. Can you tell me more about that?
h. (After functional areas are covered): Tell me more specifically about ____________________ (each specific sensory area identified as problematic
from the evaluation).
i. (Ask if appropriate): Our evaluations showed some difficulties/delays with ____________________. Is this something that has been of concern to you?
j. What are some goals you have for your child in the next 3 months or so? (Time frame may be variable.)
k. Looking ahead, what are some of the things you are hoping for your child?
l. Imagine we are sitting here talking 3 months [variable] from now. What changes would you like to see by that time?

Figure 1. Guiding questions for parents during goal-setting interview.

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performance. (The full scaled objectives are interrater reliability among occupational children with sensory integration disorders
not shared at this time to minimize therapists both within and across sites. In in which outcomes of intervention are typ-
response shift bias, e.g., tendency to over- addition to the reliability concerns, collabo- ically diverse and highly individualized,
rate progress.) The parents rank-order the ration and discussion of the challenges of GAS offers therapists a unique method of
goals based on importance to them, with a applying GAS in a multisite setting resulted capturing outcomes that are truly meaning-
score of 1 being the most important and 5 in the development of a revised standard ful to children and their families. ▲
being the least. GAS goal-setting procedure as well as a
• For each child, goals should address GAS administration and scoring manual
specific need areas that reflect the Interna- for use across the clinical settings. The col- References
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