Professional Documents
Culture Documents
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Quality of Iife Care
PALLIATIVE CARE : WHO DEFINITION
• To maintain quality of life of
patients with progressive, WHO Defines palliative care as an approach that improves the
incurable, malignancies and quality of life of patients and their families facing the problem
non malignant diseases like
AIDS, muscular dystrophy,
associated with life- threatening illness, through the prevention
dementias, elderly with multi- and relief of suffering by means of early identification and
organ failures etc. impeccable assessment of pain and other problems, physical,
• By impeccable assessment psychosocial and spiritual. Palliative Care :
and management of
correctable symptoms. • Provides relief from pain and other distressing symptoms;
• By providing good nursing care as well as empowering the
family to give good nursing care to the patient at home. • Affirms life & regards dying as normal process;
• Counseling services to deal with emotional problems of the
patient and family. • Intends neither to hasten or postpone death;
• Social support to the patient and family through a network of
trained volunteers. • Integrates the psychological and spiritual aspects of patient
• Liaising with charity minded individuals, organizations and care;
institutions to provide financial support and rehabilitation of
those in need. • Offers a support system to help patients live as actively as
possible until death;
Long Term Care
• For patients with non-progressive or slow progressing, incur- • Offers a support system to help the family cope during the
able conditions, which limits the quality of life e.g. Paraple- patient’s illness and in their own bereavement;
gics, quadriplegics or bed bound hemiplegics etc.
• The other aspects of care being similar to ‘Quality of Life • Uses a team approach to address the needs of patients and
Care’.
their families, including bereavement counselling, if indicated;
End of Life Care
• For patients in the terminal phases of their illnesses, irrespective • Will enhance quality of life and may also positively influence
of their diagnosis [in liaison with the treating physician]. the course of illness;
• Impeccable assessment and management of symptoms usually
confronted during the terminal phase of illnesses e.g. severe • Is applicable early in the course of illness, in conjunction
pain, breathlessness, delirium etc. with other therapies that are intended to prolong life, such
• Terminal sedation [in the presence of refractory symptoms as chemotherapy or radiation therapy, and includes those
only]. investigations needed to better understand and manage
• Counseling the family about futility of life prolonging distressing clinical complications.
interventions e.g. ventilator support.
• Bereavement support to the family.
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Total Care
• The objective of Palliative Care is to provide good quality life • Designated Community Volunteers visit the family and spend
to the patient and the family. good-quality time with patient and relatives. The volunteers
find out the problems and try to find solutions by discussing
• Palliative Care is much more than taking care of the medical the matters with other volunteers and social workers of the
aspects of the patient. It deals with mental, social, physical area. They take steps to empower the family by providing
and even financial problems of the patient and the family. While support. To find out the problems faced by patient and fami-
the specially trained Doctors and Nurses provide medical lies and solve those problems is what Palliative Care is all
support, trained community volunteers deal with other aspects. about.
• Take for example the case of a patient suffering from
Carcinoma in the cheek is a major subject to the patient. But Home Care
the Doctors and Nurses are giving medical treatment to deal
with the pain and associated illness. What about her other • For patients requiring or currently undergoing therapeutic or
problems? Fear of Cancer, concern about future of the palliative Oncological [Surgical, Radiation or Medical]
family, fear about a painful death, guilty consciousness about interventions.
becoming a burden to the family, problems in social relations,
• Counseling to remove misconceptions and motivating patients
sexual dilemmas, financial problems, spiritual issues, why me
and their families to undergo Oncological interventions [in
god?
consultation with the treating Oncologists].
Community Participation • By impeccable assessment and management of symptoms
[pain, nausea & vomiting, breathlessness, odynophagia,
• Any society taking good care hiccups, constipation etc.],
of those suffering could be before, during and after
termed as CIVILIZED. If we Oncological interventions.
are a good society we must
take good care of those • By motivating the local
suffering from life limiting community to provide
diseases, such as HIV, AIDS emotional and social
and Cancer patients. While it support to the patient
is the right of the patient to and family [through a
receive support, it is the duty network of trained
of the society to provide it. volunteers].
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