Inclusion North Bulletin

Issue Number 148

21st August 2017
In this bulletin you will hear about some of
the work Inclusion North is doing and
information about what is happening across
the country.
Inclusion North New Co Chair Dave Barras

Inclusion North has a new Co Chair Dave Barras.

Interviews took place in July and the panel selected

Dave.

Dave has been a Director at Inclusion North for 8

years and knows Inclusion North very well.

Dave is Chief Executive of a Social Enterprise in

Teeside called Positive Support for You CIC.

It provides person centred support to adults with a

Learning Disability.

Before this Dave spent 21 years leading services

and managing change in local authorities and the
NHS. He originally qualified as a Learning Disability
Nurse.

Ruth Hicks has decided to stay on the board as a

Director but has now retired as Co Chair of Inclusion
North.
 North East Family Carer Network

This event is for anyone who is a family carer of an

adult with a learning disability, autism or both.

The aims are

to develop a stronger regional voice for family
carers and establish better connections with,
and between carers
to share best practice, knowledge and
current issues
sharing the learning from this with the
influential structures within the North East.

Monday 11th September 2017

From 2pm until 4pm

At FACT (Fighting All Cancers Together)

Denise Robertson House

Clasper Way, Swalwell
Newcastle Upon Tyne
NE16 3BE

This meeting follows the Regional Parent Carer

Forum meeting which is taking place
from 10.30 until 2.00pm

To book your place, please click on the link

http://bit.ly/NEFCSept17

Or contact samta@inclusionnorth.org
Telephone 0113 2444 792
 Inclusion International Be Part Of The
World Congress 2018

The 2018 World Congress will bring together people

with a learning disability, families, professionals and
partners from all regions of the world.

To come together to learn, inspire, and lead the way

as a global movement for inclusion.

The World Congress will be held on

30th May 1st June 2018

In Birmingham

In partnership with Inclusion Europe and sponsored

by Mencap.

They are now looking for expressions of interest

from potential speakers to lead or be part of
sessions for the Congress.

If you have an idea or think you would like to be part

of a session, they would like to hear from you.

You can find out more information here with the

session guidance.

http://bit.ly/2upz5pB

The deadline for submissions is 31st October 2017.

 NHS England Learning Disability
Programme

NHS England Learning Disability Programme team

share their updates by email.

The updates are about improving care for people

with a Learning Disability, Autism or both.

The latest update included

Update on NHS England Care and Treatment

Review Policy

Latest progress on Annual Health Checks

Care transformed update

What matters to people with a Learning

Disability, Autism or both

Co Production

NHS England Learning Disability and Autism

Advisory Group update

If you would like to join the mailing list

Contact Miranda Askew

Email : Miranda.Askew@nhs.net

Telephone: 0113 8251325

 Update from The Learning Disability
Mortality Review Programme (LeDer)

Why are some people with a learning disability

dying before they should?
People with a learning disability tend to have poorer
health and die younger than the rest of the
population.
This is often due to the ways their healthcare and
support are given, rather than because of any
underlying condition to do with their learning
disability.
How can we change this situation?
One way of doing this is to review the death of
everyone with a learning disability and see if
anything helpful can be learnt about what worked
well and what did not, in the social support and
healthcare they received.
In this way we will be able to identify what needs to
be changed to improve peoples health.

From December, throughout England, every death

of someone (child or adult) with a learning
disability will be reviewed.

The National Learning Disability Mortality Review

programme (known as LeDeR) is being led and
supported by the University of Bristol, but each
region of NHS England is responsible for rolling out
the system of reviewing deaths in their area of the
country.
It will work like this:
When someone with a learning disability dies
anyone can call 0300 777 4774 or give information
online at
http://www.bristol.ac.uk/sps/leder/notify-a-death/

A trained reviewer will be asked to find out about the

individual by contacting people who knew them well
and reading some case notes held on them. Family
members, close friends and any day to day staff will
usually be invited to talk about the person and
answer questions.

Although this happens at a very difficult, sad time

many relatives have said they find it comforting to
talk about their family member who they were,
what they enjoyed, how things happened to and for
them with someone who is genuinely interested in
their lives and the care and support they received.
Family members usually know their relative with a
learning disability better than anyone; they have the
whole picture of the person rather than a limited
view and can give details that are not always written
down.
They can also say whether they, as family carers,
were listened to and treated well as partners in the
care and support of their relative.
If families are able to help with the review we really
appreciate their contributions, but if not, they
understand.

By talking to everyone concerned the reviewer will

write an Action Plan take account of the learning.
The plan (which will not name the person who has
died) will be given to the local area steering group,
who will see that actions arising from the learning do
happen and monitor if recommended changes lead
to improvements. The team in Bristol will also read
all action plans so they can look out for patterns and
ideas that the whole country needs to learn from.

They have early examples of changes that have

begun to reduce the difference in well-being and life
expectancy of people with a learning disability.

Continuing to review every death means they can

carry on learning and improving care and support.

Regional Co-ordinators for the LeDeR programme

are:

London Emily Handley

emily.handley1@nhs.net

Midlands and East Louisa Whait

louisa.whait@nhs.net

North - Maria Foster

maria.foster2@nhs.net

South of England Robert Tunmore

r.tunmore@nhs.net

You can find out more at

www.bristol.ac.uk/sps/leder/about/
 Choice Support Safe Touch Guidelines

Choice Support and Goldsmiths University

Research have been doing some research.

The research was about using touch safely and

creatively with people with a learning disability and
people with profound and multiple needs.

They have made a booklet with some guidelines

about Safe Touch.

These guidelines were created to explore new ways

of using touch to help with communication, support
care and develop strong relationships and to
increase awareness of the benefits of touch.

The guidelines include

Why is touch important

What does touch do

What are the types of touch

What happens if we dont touch

Is it safe to touch

Using touch safely

Download the booklet here

http://bit.ly/2ic6D4z

Or contact Thomas

thomas.doukas@choicesupport.org.uk
 NHS England Information On End Of Life
Care For People With A Learning Disability

NHS England and The Palliative Care for People

with a Learning Disability (PCPLD) Network have
published a booklet

The booklet is called Delivering high quality end of

life care for people who have a learning disability.

It has information and tips for Commissioners,

Service Providers and Health and Social Care
Teams.

It includes the following ambitions with tips,

guidelines and case studies

Each Person is an individual

Each person gets fair access to care

Maximising comfort and wellbeing

Care is coordinated

All staff are prepared to care

Download the booklet here

http://bit.ly/2w7Twao
 Yorkshire and Humber
Beautiful Octopus Night Club Event

A group of up to 40 adults with a learning disability

work on the event, taking part in creative workshops
and learning DJ skills, all DJs on the night are
adults with a learning disability.

The night is supported by staff from West Yorkshire

Playhouse and Leeds University Union

The next club night is called Its a Beautiful

Revolution

On
Thursday 7th September
From
7pm to 11pm
At
Leeds University Union
Lifton Place
Leeds
LS2 9JZ

There will be

Party atmosphere
A licensed bar with picture menu for easy ordering
Free face painting
Hot food to buy like hot dogs, burgers and chips,
(vegetarian option also available)
Cloakroom facility
Two bars
Pop up shop selling party items
For more information and to book tickets contact

Email:maria.thelwell@wyp.org.uk
Telephone: 0113 213 7236
National Development Team For Inclusion
Better Health For Better Lives Workshop

This workshop is about supporting primary health

care to improve outcomes for people with learning
disabilities.
They will be sharing and discussing recent guidance
and tools developed to improve access to primary
care for people with a learning disability.
The workshop will include guidance on increasing
the uptake and improving the quality of Annual
Health Checks and the use of Summary Care
Records with additional information.
Speakers will include representatives from:
The Public Health England Learning Disabilities
Observatory (PHELDO)
NHS Digital and NHS England
The Mencap Dont Miss Out project
Adam Butcher- Self-Advocate
Dimensions
As well as local examples of good practice
This workshop is for GP learning disability leads,
health facilitators/primary care liaison nurses,
practice managers and nurses, social care
providers, Clinical Commissioning Group and GP
learning disability leads, Clinical Reviewers, family
carers and self-advocates
In Leeds On the 21st September
The workshop will start at 10am (registration from
9.30am) and finish at 4pm.
Here is the link to book a place
http://bit.ly/2vFqwXp
 North East
North East And Cumbria Learning
Disability Network Survey For
Organisations

Does your organisation support expectant mothers

with a learning disability?

The Learning Disability Network is looking at the

inequalities people expecting babies with a learning
disability experience.

They have 5 questions they would like organisations

to answer

How do expectant mothers with learning

disabilities hear about your organisation?
Does your organisation support expectant
mothers and or fathers who have learning
disabilities?
If yes, what does your organisation do to
support expectant mothers and or fathers with
learning disabilities?
If no, do you know if expectant mothers and or
fathers with learning disabilities receive support
elsewhere?
Do you have any ideas that could improve
engaging expectant mothers and or fathers
with learning disabilities?

If you can send your answers via email to

Kirsty.bell2@nhs.net

By the

31st August 2017

 Geordie Mums Autumn Fair

Geordie Mums are having an Autumn Fair

On

Wednesday 4th October 2017

From

11.30am until 2pm

At

Skills for People

Key House, Tankerville Place, Jesmond, NE2 3AT

You can meet the mums and find out more about
the group.

There will be

a tombola
a raffle
cake sale
table top sale
the Mums have been making crafts to sell

For more information contact Joanne or Donna

Telephone 0191 281 8737

 What is coming up next

4th September North East Talking Travel

11th September North East Family Carer
12th September Transforming Care Masterclass
26th September Tomorrows Leaders Graduation

If you would like to know more about any of these

events contact Sam on 0113 244 4792
samta@inclusionnorth.org
If you would like any information on any of our
meetings, training or projects you can contact
the office on:

Tel: 0113 244 4792

E-mail: info@inclusionnorth.org

Or you can write to us at:

Inclusion North CIC
Woodhouse Community Centre
197 Woodhouse Street
Leeds, LS6 2NY

You can visit our website at:

www.inclusionnorth.org

Or you can contact any member of the Inclusion

North team:

Karen Parry
Chief Executive Officer
Tel: 07375 034291
Email: karen@inclusionnorth.org
Kellie Woodley
Tel: 07876 145 390
Email: Kellie@inclusionnorth.org

Lucy Virgo
Tel: 07944 185771
Email: Lucyvirgo@inclusionnorth.org

Angela Ellis
Tel: 07487 729237
Email: Angela@inclusionnorth.org

Kirsty Morgan
Tel: 07539 063467
Email: kirsty@inclusionnorth.org

Rebecca Stanley
Tel: 07496 229661
Email: rebecca@inclusionnorth.org

Melissa Peacock
Tel: 0113 2444792
Email: melissa@inclusionnorth.org

Sam Dhruv
Tel: 0113 2444792
Email: samta@inclusionnorth.org

Linda Dickinson
Tel: 0113 2444792
Email : linda@inclusionnorth.org
Shain Wells
Tel: 0113 2444792
Email: shain@inclusionnorth.org

Inclusion North Member Areas 2017-18

If you live in one of these areas you can come
to our member events.

Yorkshire and the Humber

Barnsley
Bradford
Calderdale
Doncaster
Hull
Leeds
North Lincolnshire
North Yorkshire
Sheffield
Wakefield

North East
Darlington
Durham
Gateshead
Hartlepool
Middlesbrough
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland