Professional Documents
Culture Documents
Commissioning and
Planning Services for
SLCN
RCSLT 2009
RCSLT 2009
The broad context, which can be divided according to the following factors:
Political and Legislative factors
Economic factors
Social factors
Technological factors
2.
RCSLT 2009
trade and defence for the four countries of the UK. Government in Westminster is also
responsible for health, social care and education in England, but these areas are devolved
for Northern Ireland, Scotland and Wales.
As a result of devolution, each country of the UK may have different parties in power, with
the possibility of increasing powers in the future. The impact of this is the diversification of
policy and direction of travel.
Legislative drivers
The main areas of UK-wide legislation that are relevant include the following themes:
Human Rights
Disability Discrimination
Equality
Though there is different local interpretation, these far-reaching legal instruments define
the rights and responsibilities of people and those commissioning and providing services
for them.
Public protection has also been strengthened through the introduction of registration of
professionals, for example, through the Health Professions Council.
There is separate legislation relating to health, education and social services in each of the
devolved administrations in England, Northern Ireland, Scotland and Wales.
Economic
The current challenging economic backdrop will have a significant impact on the financing
of public services, with local planners and commissioners prioritising services which are
value for money, evidence based and releasing cash through innovation.
Social
In order to plan and deliver services, it is essential to identify the demographic factors
relevant to speech and language therapy (SLT) and the challenges that these bring.
RCSLT 2009
RCSLT 2009
RCSLT 2009
RCSLT 2009
Workforce
Careful planning of services, including joint commissioning, will help to shape the
workforce and inform the skill mix required to deliver high quality services, improve
outcomes and support value for money. Because the commissioning and planning of
services relies on the evidence base for a given type of SLCN or model of practice, it is
essential that clinical and managerial expertise from speech and language therapists is
available to support innovation and quality of service design.
Speech and Language Therapists, as part of the wider workforce, may be employed by a
range of organisations, including the third sector, social care and education or be working
as private practitioners.
Equal Access to services is of importance to local decision makers. Local demographic
profiling will inform workforce requirements. For example, bilingual staff and support
workers are required in most areas to meet the needs of diverse communities. The
appropriate skill mix should enable services to be family-centred and be culturally and
linguistically appropriate and responsive. It may be necessary to consider increasing home
delivered services or providing services in unusual locations.
The RCSLT also acknowledges the important role that Assistants and Support Workers
have in the delivery of effective speech and language therapy services. Assistants and
Support Workers are integral members of both speech and language therapy and multidisciplinary teams, engaged in a wide range of clinical settings with diverse client groups,
duties and responsibilities. http://www.rcslt.org/aboutslts/rcslt_statement_v3.pdf
RCSLT 2009
In order to support more effective use of skill mix, SLT services also need to provide
education and training of the wider workforce and not be focussed solely on direct patient /
client care. For all services, this is critical to secure the appropriate balance of costeffective universal, targeted and specialist services.
PRACTICAL CONSIDERATIONS
Many people involved in strategic planning, commissioning or reviewing services will not
be familiar with speech and language therapy, its objectives, the needs of clients requiring
speech and language therapy, the principles driving the profession, or the evidence base
and the following points may support people.
The RCSLTs Communicating Quality 3 (CQ3) provides clear guidance on care pathways,
clinical standards and issues related to quality assurance. This information should be used
in submissions to support commissioning quality services.
The following guiding principles have been adopted and apply to all client groups. Services
are to:
RCSLT 2009
10
Evidence of the impact of the service will be important to commissioners and providers.
Providers will need to demonstrate the impact of their service, particularly when services
are being reviewed. Determining the objectives of the service will support the process of
outcome measurement. SLT services will need to provide information on outcomes
achieved and levels of client satisfaction. Some of this information can be gathered
through use of the RCSLTs Q-SET tool, as detailed above.
Managers of speech and language therapy services will need to equip themselves to
engage effectively and positively with those who are commissioning or monitoring
services. They will need to:
identify who is commissioning or responsible for overseeing different services. For
example, health commissioners may be working with commissioners for
education/head teachers. It is important to identify who is taking the lead for each
aspect of the service delivery in the locality.
establish good working relationships and effective communication with those
commissioners and planners for their area of responsibility.
be aware of local priorities and commissioning plans and strategies.
have a good understanding of the commissioning/planning/monitoring framework for
the locality
be equipped with local data, knowledge and evidence to the tendering process
be clear of the unique contribution of the service to improving health, employment,
education and social outcomes
be able to clarify and demonstrate local working partnerships and collaborations
provide data describing the service provided, (numbers and types of patients, numbers
of attendances, health and social outcomes etc).
The RCSLT has developed a range of resources to support its members with Continuing
Professional Development. CPD is a regulatory requirement for all SLTs and this requires
all HPC Registrants to demonstrate how the CPD they have undertaken has sought to
enhance service delivery and to be of benefit to service users. The RCSLT has endorsed
this requirement through its own CPD standards. http://www.rcslt.org/cpd/resources
RCSLT 2009
11
The Contextual Synthesis. This includes definitions, information on the incidence and
prevalence of the disorder, key contribution of speech and language therapists,
consideration of the implications and broader consequences of the disorder.
The Synthesis of Key Literature. This summarises the evidence of the impact of
speech and language therapy.
Each section within these resources gives succinct information to inform the factual
content for any service planning activity. These include:
Key points
Topic What is [the condition]?
How many people have [the condition]?
RCSLT 2009
12
This information will need to be put into context, using local information.
Other guidance and resource materials
It is recognised that service managers may wish to amplify or clarify, an aspect of their
service by providing reference to other national or local research of relevance.
The RCSLT has a range of resources which can be used to further support and inform the
commissioning, planning and provision of services for people with speech, language,
communication and swallowing needs. These can be found on the RCSLT website:
www.rcslt.org
The RCSLT is grateful to the experts from within the SLT community who
contributed to the evidence published in this document.
RCSLT 2009
13
ASSIA
CINAHL
The Cochrane Library (which includes the Cochrane Database of Systematic Reviews,
Cochrane Central Register of Controlled trials, Database of Abstracts of Reviews of
Effects, Health Technology Assessment Database and NHS Economic Evaluations
Database).
Linguistics and Language Behaviour Abstracts
MEDLINE
PsycInfo
All references retrieved from the literature searches were entered onto a Reference
Manager Version 11 database using appropriate keywords.
RCSLT 2009
14
Following initial screening, the remaining articles were examined by two members of the
team; each having considerable speech and language therapy knowledge and experience.
Approximately, twenty articles were selected by the two reviewers with disagreements
being resolved by a third reviewer.
Assessing the quality of relevant articles
Formal quality assessment of the articles was not undertaken. Instead, quality assessment
involved using checklists as a guide to give an indication of the overall quality of studies
and highlight the main good and bad aspects of each study. For each interventional
synthesis, the included study designs are listed and the problems with each study design
noted. General observations on study quality are made and common errors within the
studies, where appropriate, are specifically noted. The checklists used are one for
quantitative and one for qualitative studies from the Alberta Heritage Foundation for
Medical Research.1 Additionally, when an identifiable study design was used, the
appropriate Critical Appraisal Skills Programme (CASP) checklist was selected.2
Syntheses of the twenty articles
Each article was read in turn by one of the Information Specialists/reviewers. The key
points were summarised including the objective of the study, the participants
characteristics, the methodology, the intervention, results and limitations. From this,
articles were grouped into themes according to the factor being investigated (for e.g.,
length of intervention, personnel carrying out intervention, family involvement in treatment,
nature of disorder). Results were summarised and drawn together within each particular
theme and a summary paragraph provided at the end.
These syntheses first went out for review by selected individuals, identified by the
research team, with particular expertise in the delivery or management of services to the
1
LM Kmet, RC Lee, LS Cook (2004) Standard Quality Assessment Criteria for Evaluating Primary Research
Papers from a Variety of Fields. Accessed at http://www.ihe.ca/documents/hta/HTA-FR13.pdf (Accessed on
th
25 September 2008, now no longer available)
2
Critical Appraisal Skills Programme (2007) Appraisal Tools. Accessed at
http://www.phru.nhs.uk/Pages/PHD/resources.htm on 9th January 2009.
RCSLT 2009
15
specific client group. Comments were included in the second draft, which was then
dispatched to those selected by the Royal College Speech and Language Therapists who
were invited to attend a focus group day. These therapists gave detailed consideration to
their specialist area and contributed to the more general discussion of one further area.
Issues to be captured in the key points were also identified within the focus groups. These
comments contributed to the third draft of the syntheses, which again went out to
reviewers. In some cases, further work was required in order to modify the wording and
reflect discussion.
RCSLT 2009
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
AugmentativeandAlternativeCommunication
1. KeyPoints
1. AACshouldbeconsideredasaviableoptionforimprovingthequalityoflifeofanyoneofany
agewithaseverecommunicationimpairmentresultingfromdevelopmental,acquired,
progressive,longtermoracuteconditions.
2. SpeechandLanguageTherapists(SLTs)arespecialistsincommunicationdifficultiesandassuch
areanintegralpartofmultidisciplinaryteamsthatsupportAACassessment,provision,use,
trainingandsupport.
3. SLTswhohavehadspecificbasictrainingonAACacquireabasiccompetenceinassessmentand
provisionofAACandrequireaccesstoandsupportfromspecialistservicesforthosepeople
needingmoreindepthassessmentandprovision.
4. TheprovisionofAACcanassistchildrenandyoungpeoplewithseverecommunication
problemstodevelopcognitive,receptiveandexpressivelanguage,andliteracyskills.
5. AACneedstobeintroducedattheappropriatetimeforallthosewhohaveacommunication
impairmentinordertoimprovequalityoflife,learningandcommunicationopportunities.
6. AACneedstobeintroducedattheappropriatetimeforpersonswithprogressiveneurological
diseaseaffectingtheirspeech.Accesstoregularreviewoftheseindividualsisrequiredto
ensurethatanysystemsareadaptedwiththeirchangingneedsandabilities.
7. AACcanreducefrustration,improveautonomyandreducestrainofthosewithasevere
communicationimpairmentandtheircarersandcommunicationpartners.
8. AAClowandhightechcommunicationaids/systemscanassistthosepatientsinintensivecare
unitsorhighdependencyunitstocommunicatewhilstotherchannelsareunavailabletothem.
9. AACusersthemselvesidentifiedtheneedforonetoonetherapytoimprovelinguisticand
functionalcompetenciesasapriority.
10. AllusersofAACshouldhaveaccesstoregularreviewsbyaspecialistteam,allowingupdatingof
theirsystems.
11. ServicesshouldallowforequipmenttobetriedbypotentialusersofAACpriortoprovisionor
purchase.
12. AppropriatetrainingandsupportonAACsystemsandstrategiesareneededforsuccessfuluse.
13. SpeechandlanguagetherapistsneedaccesstoregulartrainingonAACtokeeptheminformed
oftechnologicalchangesandnewmethodsofimplementation.
14. Maintenanceofequipmentshouldbeincorporatedinserviceprovision.
2. WhatisAugmentativeandAlternativeCommunication?
ThetermAugmentativeandAlternativeCommunication(AAC)hasbeendefinedbyInternationalSociety
forAugmentative&AlternativeCommunication(ISAAC)todescribeextrawaysofhelpingpeoplewhofind
ithardtocommunicatebyspeechorwriting.AAChelpsthemtocommunicatemoreeasily.'
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Therefore,AACisafunctionaldefinitionforsystemsthataimtohelppeoplewithcommunication
impairmentstocommunicatemoreeffectively(Lonckeetal.2006).Communicationdifficultiesmaystem
fromphysical,sensory,intellectual,learningorcognitivedisabilities.PeoplewhouseAAC(pwuAAC)have
uniqueneedsthatrequireAACtobecustomisedtomeettheirspecificcommunicationneeds,physicaland
cognitiveabilitieswithintheirpersonalcontext.CommunicationneedsusuallynecessitatethepwuAACto
employacombinationofseveraldifferentAACstrategies.Communicationincludesmorethanjustgiving
someoneamessage,butneedstoallowapersontoinitiateandendinteractions,maintaindifferenttopics
ofconversations,makerequests,relateinformationandallowahistoricalnarrativetobemaintained.
ThusAACstrategiescanhelpapersoncommunicatewants,needs,thoughts,andideaswhenthatpersonis
notabletousespeech.TheAACstrategiesusuallyincludebothunaidedandaidedmethodsof
communication.Fordescriptivepurposesaidedcommunicationsystemscanbedividedintotwosystems,
poweredandunpowered:
Communicationcharts,symbollevelsandbookswithnopowersystem.
Technologythatmakesuseofequipmentthathasapowersystem.Thedeviceusuallyallowsthe
individualtoaccessspeechoutputorwrittenoutput.Forexample,aVoiceOutputCommunication
Aid(VOCA)allowstheAACspeakertocommunicateusingspeechoutputwhichmaybedigitised
(recorded)speechorsynthesisedspeech(Schlosseretal2003,2007).Thereareawidevarietyof
VOCAsavailableofdifferingshapes,sizesandweightsandcanstoredifferentamountsof
informationindifferentorganisations.PwuAACwithphysicallimitationsmayneedtouse
alternativeaccesstooperateacommunicationdevice.Thismaybeaswitch,joystick,touchscreen
oreyegazeunit.VOCAsandcommunicationsoftwarecanutilisestaticdisplayswherethesymbols
arealwaysondisplayonthedeviceorhavedynamicdisplaysthatallowsthepersontonavigate
betweenmanysetsofsymbolsandacrosslevelsorpages(Beukelman&Mirenda2005).
Table1:ExamplesoftypesofAAC
Unaided
Aided
Nopower
Power
EyePointing
Symbol/Pictures/Charts/
Books
Dedicatedcomputersystems
Facialexpressions
Communicationpassport
Voicerecognitionsoftware
Pointing
Etranframe
Softwarefornondedicatedcomputersystems
Gesture
Pointer
VoiceOutputCommunicationAids
Signing
Paperandpencils
AssistiveTechnologySystemswithvoice
AACcanbeseenascomprisingof4strands:
Themannerofcommunication(e.g.mediumusedsuchasSpeechGeneration).
Themeansofaccesstothemedium(e.g.keyboard,touchscreen,switch).
Asystemofrepresentingmeanings(e.g.words,signsandsymbols).
Strategiesforinteraction(e.g.havingaconversationusingtheAAC)(CommunicatingQuality32006).
AACsystemsincludeunaidedandaidedmethodsofcommunication:
UnaidedCommunicationincludestechniquesthatdonotrequiretheuseofanexternalobject
(Glennan&Decoste1997)andincludesgestureandsigning,facialexpression,andpointing.
AidedCommunicationinvolvestheuseofphysicalobjects,typicallyreferredtoasaidsordevices
whichareusedtocommunicatemessages(Glennan&Decoste1997).Aidedcommunication
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
includescommunicationchartsandbooks,penandpaper,VoiceOutputCommunicationAids
(VOCAs).Symbolscanincludeobjects,photographs,linedrawings,detailedpictures,coloured
symbols,geometricshapes,gestures,manualsigns,letters,orwords.Symbolscanbeorganisedin
manydifferentways,butwillalwaysbeorganisedintoasystemthatsuitstheAACspeaker.
ThoseAACsystemsthataredescribedasunaidedincludetheuseofsigns,gestures,facialexpressionsand
eyepointing,noneofwhichrequiresequipmentortechnology.AACsystemsthataredescribedasaided
includeuseofadditionalequipmentsuchaspenandpaper,pictures/photos,communicationbooks,and
symbols.Symbolscanincludeobjects,photographs,linedrawings,detailedpictures,colouredsymbols,
geometricshapes,gestures,manualsigns,letters,orwordsandbeorganisedacrossaboardorintolayers.
Technicaldevicesusuallyallowtheindividualtoaccessvoice/speechoutputorwrittenoutput.VOCAscan
utilisestaticdisplayswherethesymbolsarealwaysondisplayonthedeviceorhavedynamicdisplaysthat
allowsthepersontonavigatebetweenmanysetsofsymbolsandacrosslevelsorpages(Beukelman&
Mirenda2005).Thephysicaldesignofthedevicescancomeindifferingshapes,sizesandweightsandcan
storedifferentamountsofinformation.Thosepeoplewithphysicallimitationsmayneedtousedifferent
accessmethodssuchasusingaswitchorswitchestooperateacommunicationVOCAdependingontheir
abilities.
AACstrategiescanpromotesocialinclusionandfacilitateparticipationsothatindividualscanmaintainor
developcommunicationindifferentsettings.AnunaidedAACsystemcanbeusedinanyenvironment.It
isspontaneousandfacilitatescommunicationbetweenthepwuAACandtheirregularcommunication
partner.However,itmustbenotedthat,anunaidedsystemrequiresacommunicationpartnerto
understandthepersonscommunicativemeaningandthecommunicationmaynotbeunderstoodbythose
peoplewhoarelessfamiliarwiththemethod.TheuseofaidedcommunicationintheformofVOCAscan
facilitatecommunicationtoawidergroupofpeopleandacrossmorecommunicationsettingswhichcan
increaseindependence,particularlyforthosewithseverephysicalandcommunicationdifficulties.For
example,anindividualcansustainconversations,usethetelephone,useelectroniccommunication
systems,sendemails,anduseTwitter,Facebook,Blogsandmessageboardsaswellasparticipatingin
educationandworksettings.
SpeechandLanguageTherapists(SLTs)arespecialistsincommunicationdifficultiesandassucharean
integralpartofmultidisciplinaryteamsthatsupportAACassessment,provision,useandsupport.
3. HowmanypeopleuseAugmentativeandAlternativeCommunication?
TheconditionsthatareassociatedwiththerequirementforAACusemaybedevelopmentaloracquired.
Thedevelopmentalconditionsinclude:cerebralpalsy;autism;learningdifficulties/disabilities;and
developmentalapraxiaofspeech.Acquiredconditionsinclude:headandneckcancer;acquired
neurologicalconditions,suchas,strokeorheadinjuryandprogressiveneurologicalconditions,suchas,
motorneuronedisease;multiplesclerosis;Parkinsonsdiseaseanddegenerativecognitiveconditionssuch
asdementia.AACisalsorelevantforpatientsinIntensiveCareUnits.
ItisdifficulttoobtainspecificfiguresofprevalenceofAACusebecauseofthediversityconditionsandthe
differentmanneroffundingofAAC.Prevalencevarieswiththeconditionreportedandtheunder
identificationofpotentialAACusers.Forexample,areportonAACuseinchildrenaged019yearsin
EnglandidentifiedanunderidentificationofchildrenwhocouldbenefitfromusingAAC(Gross2010).The
populationrequiringAACsystemsislikelytoincreasewiththeincreasedsurvivalrateofpeoplewith
complexdifficultiesandthedevelopmentofnewAACsystemsthatcanhelpawiderpopulation,suchasin
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
AutismandDementia.Forexample,astudybyParrottetal(2008)reportedthatthenumbersofyoung
peopleaged1519yearswhohadasevereorcomplexneedshadincreasedby70%intheperiod1998to
2008.Thefiguresintable2provideanindicationastotheprevalenceofuseofAACingeneralandin
somespecificpopulations.IncidenceislessrelevantwhentalkingaboutAACuse,asitisdifficultto
pinpointnewcases.
Table2:PrevalenceofAAC
Populationreferredto
Prevalence
Source
Childrenandyoungpeople
0.05%or6,200
Gross2010
needinghightechnologyAAC
inUK
Projectedadultprevalencein 19,710
Gross2010
UK
ProjectedneedforAACin
370,752
OfficeofNationalStatistics2010mid
England
usingScopefigure0.6%
2009figuresforUK&Scopeestimate
61,792,000inUKpopulation
2006
UKpopulationwhowould
0.41%
Scope2007
benefitfromAAC
0.6%mostquoted
PeopleinUKandUSAwho
0.31.4%
FromstudiesinUKandAmerica,
requireAACsystems
includingBeukelmanandAnsel1995,
citedinCommunicatingQuality3
2006RCSLT
SchoolpopulationinUK
0.20.6%
Blackstone1990,citedin
needingAACsystems
CommunicatingQuality32006RCSLT
ChildrenwithSpecial
18%
WrightJ,ClarkeM,etal.2004.
EducationalNeedsstatement
referredforAAC
Peoplewithcerebralpalsy
Male61%
MurphyJetal.1995.
usingAAC
Female39%
Lowtech50%
Onlyuseinformal
contexts22%
PeopleinUSAusingAAC
812per1000people
StudiesreportedinASHA2008
systems
edition.
Cerebralpalsyresultingina
31%to88%
Beukelman&Mirenda1998.
speechimpairmentneeding
AACsupport
4.
WhousesAugmentativeandAlternativeCommunication?
Individualswhoexperiencecommunicationproblemsasaresultoftheirspeech,languageand
communicationdifficultiesmaybenefitfromusingarangeofAACstrategies.Table3showsexamplesofa
rangeofdevelopmentalandacquiredconditionsassociatedwithcommunicationdifficultiesinadultsand
childrenbyagegroupswhomaybenefitfromAACtofacilitatecommunication.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Table3:ExamplesofaetiologicalconditionsofassociatedwithAACuseforbothadultsandchildren
ChildGroup
Acquiredneurologicale.g.:
Stroke
HeadInjury
Progressiveneuromusculare.g.:
FreidrichsAtaxia,ComplexSyndromes,
Musculardystrophy
Congenitalconditionse.g.:
CerebralPalsy
MultipleComplexDisabilities
ProfoundandMultipleLearningDifficulties(PMLD)
PhysicalDifficulties
Developmentaldisorderse.g.:
LearningDifficulties/Disabilities
AutisticSpectrum
Developmentaldelay
SpeechandLanguageImpairment
AdultGroup
Acquiredneurologicale.g.:
Stroke
Headinjury
Progressiveneuromusculare.g.:
ProgressiveNeurological:MultipleSclerosis,MotorNeuroneDisease,Parkinsonsdisease
MuscularDystrophy
Changestolaryngealandoralpathologye.g.:
Voice
HeadandNeckCancer
Congenitalconditionse.g.:
CerebralPalsy
CleftPalate&craniofacialmalformations
Syndromicconditions
ProfoundandMultipleLearningDifficulties(PMLD)
AdultswithPhysicalDisabilities
AdultswithLearningDisabilities
AdultswithAutism
DegenerativeNeurologicalconditionse.g.:
Dementia
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Individualswithaetiologiesthatgiverisetocomplexcommunicationdifficultiescanbenefitfromdifferent
AACsystemsstrategiesandequipmenttosupporttheircommunicationneeds.Communicationneedsvary
greatlyinrespecttothephysicalandcognitiveabilitiespresent.Forexample,apersonwithphysical
difficultieswhocannotpointwillneedalternativeaccess,suchas,usingeyegazetolookatphotos,
pictures,symbolsorwords.Apersonwhocannotuseakeyboardortouchscreenmayneedtouseoneor
moreswitches,useajoystickinsteadofamouseoreyegazetechnology.
TheremaybeaneedfortheuseofAACsystemsonashorttermbasis,whenthepersonhaslimited
communicationduetodelayeddevelopmentorsurgery.Personswithcognitivedifficultiesandlimitations
inspeechorlanguage,butwheretheabilitytounderstandandformulatelanguageisadequate,may
benefitfromanAACsystemwhichmakesuseofgraphicsymbolsandvoiceoutput.Individualswith
lifelongdevelopmentaldisabilitiesthataffectcommunicationmayuseAACstrategiestoaugmenttheir
speechorasanalternativemeansofcommunicate(Mirenda2003).Iflanguage,readingorwritingabilities
arenotpresent,ornotyetdeveloped,thenanAACsystemwillneedtobechosenthatusesthe
appropriatelevelofunderstandinganddevelopmentalleveloflanguage.
PersonswithcognitivedifficultiesmaybeabletoaccessAACsystems,strategiesandequipmentbutmay
needmoresupportwithlanguagestructureandorganisation.Forexample,thepersonmayusesigningor
needgraphicsymbolstorepresentwholeorpartiallycompleteutterances.Ifreadingorwritingabilities
arenotpresent,delayedorlost,thenagraphicsymbolsystemwillbeneededinacommunicationbookor
chartoronaVoiceOutputCommunicationAid(VOCA).InselectinganyAACsystem,strategyor
equipment,thecognitive,visual,andphysicalabilitiesoftheindividualsneedsmustbeconsidered.
5. HowdoesuseofanAugmentativeandAlternativeCommunicationsystemimpactonindividuals?
TheuseofanAACsystemstrategyorequipmentprovidesameansofcommunicationforpeoplewith
aseverecommunicationimpairment.TheimpactofusingAACsystems,strategiesorequipmentvaries
withtheindividualcircumstancesandneedsoftheperson,thelevelofspeechandlanguageimpairment,
communicativeabilityoftheindividualtofacilitatetheirparticipationinsociety.Havinganadequate
communicationsystemorequipmentaffectsapersonsabilitytomakechoicesandtheiroverallqualityof
life(Bush&Scott2009,Hamm&Miranda2006).
TheintroductionofanAACsystem,strategyorequipmentcanleadtothedevelopmentoflanguageand
cognitiveabilities,providedthemostappropriatetoolsareused(Millaretal.2006,Beukelman&Mirenda
1998).Thereisalsoastrongrelationshipbetweenspeechandliteracyskills.However,somehighlyskilful
AACspeakersareunabletoread.Thedevelopmentofliteracyskillsinapersonwillopenupawider
choiceofAACoptions(Beukelman&Mirenda1998,p356).Parentsoftenreportthatcommunication
systems,strategiesandequipmentplayanimportantdevelopmentalandeducationalrole.
Peoplewhohaveanacquiredspeechdifficultyareusuallyolderandofanagewhenspeechispartlyor
fullyfunctioningandusespeechastheirprimarymeansofcommunicationandwithalifestylethat
dependsonspokencommunication'.Whetherhavingsuddenlylostspeechduetoatrauma,orgradually
losingspeechduetoaprogressiveneurologicaldisorder,AACcanbeusedtoreplaceorsupportspeech
basedcommunication.AACsystems,strategiesandequipmentwillinevitablybemorerestrictedthan
beingabletospeak.Thelevelsoffrustrationatnotbeingabletoexpressthemselveseasilywillhavean
immenseimpactonsomeoneslifestyleandcommunicationpartners.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Hodge(2007)reportingonaprojectexploringtheexperiencesofpwuAAC,foundthatobtaininga
communicationaidcantransformsomeoneslife,increasingindependenceandaccesstoopportunities,
helpstheusertointeractwiththosearoundthem.Evenforuserswhodonotdescribetheirexperiencein
suchlifechangingterms,AACstrategiescanstillbeindispensableatspecifictimes,suchas,hospital
appointmentsorcommunicatingoverthetelephone.
IftheintroductionofappropriateAACsystems,strategiesandequipmentisdelayedtheremaybe
difficultiesin:
socialinteraction
controlofenvironment
developmentorrestorationoflanguageskills
initiatingcommunication
learning
developinglifeskills
participatingineducationandemployment
Thisinturnmayleadto:
lackoforlossofidentity
depression
passivity/learnedhelplessness
reducedlearningopportunities
isolation
challengingbehaviour
riskofharmorabuse
failuretoreachpotentialinlife(CommunicatingQuality3,2006).
6. Whataretheaims/objectivesofSpeechandLanguageTherapyinterventionsforAugmentative
andAlternativeCommunication?
SLTsarecommunicationspecialistswhocanprovideanassessmentofcommunicationneeds,
identifyareasforinterventionandrecommend/teachcommunicationstrategiestoenablepeople
withcommunicationdifficultiestomaximisetheirpotential.
SLTsprovidepersoncentredapproaches,aimingtoobservethecommunicationabilitiesand
restrictionsofthepersontheircommunicativeneedsandobservingwhenacommunicationis
successfulorwhereitbreaksdown.Theaimofinterventionistofindwaysofmakingthatpersona
moresuccessfulcommunicatorandwherepossibletobecommunicativelycompetent.
TheSLTwillaimtoincorporatedifferentcommunicationapproachesthatbestmeetthe
communicationneedsoftheperson.Thiswillusuallyincludeseveraldifferentmethodsof
communicationandincorporatebothunaidedandaidedmethods.
TheSLTinvolvedinprovidinganddevelopingcommunicationusingAACstrategiesshouldhave
experienceofworkingwithAACorbeworkingandconsultingwithaSLTwhoisaspecialistinAAC.
TheSLTinvolvedinprovidinganddevelopingcommunicationusingAACstrategiesmustknowwhen
toreferontoanappropriatelyskilledcolleagueand/oraregionalAACService.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
StandardsforAACServiceshavebeenwrittenbyCommunicationMattersandareavailableon
www.communciationmatters.org.uk
AllAACsystems,strategiesandequipmentneedtobecontinuouslyreviewedbythetreatingSLT
and/orlocalAACspecialistwhoareablemakeappropriaterevisions,ifnecessary,sothechanging
needsoftheclientaremet.ClientswhoarenolongeractivelyinvolvedwithAACorSLTservices
shouldhaveinformationonwhenandhowtoaccessanSLTreviewofAACneedsshouldthisbe
required.Forclientsunabletocontactservicesdirectly,areviewdateshouldbeset.
Themultidisciplinaryteamhasthespecialistexpertisetoassess,trialprovidesuitableAAC.
Furthermore,allAACsystemsneedstobecontinuouslyreviewedbytheteamandrevised,if
necessary,sothatitcancontinuetomeetthechangingneedsoftheclient.
TheSLTaimstoprovideaservicethatmeetstheneedsoftheindividualandtheirfamily.Aimsand
objectiveswillvaryaccordingly.TheaimsandobjectivesofusingAACwithapersonwilldependonthe
stageoflifethepersonisat:
Preschooltodevelopvocabulary,languageandinteractionwithfamilymembersandmain
communicationpartners,accesstheEarlyYearsCurriculumandfacilitatelanguagedevelopment.
Schoolagetodevelopvocabulary,languageandinteractionwithpeersaswellastoaccessthe
curriculum.
Throughoutlifedevelopingemotionalandsocialskills,independenceandachievingsocialand
vocationalgoals(Light1989).
Congenitalcommunicationimpairments/Developmentaldisorders
ChildrenwithcommunicationimpairmentsrequiringAACneedtohavesystems,strategiesandequipment
thattakeintoaccounttheneedtosupportthedevelopmentofunderstanding(input)aswellasoutput.
Thechildneedstoseeandhearpeopleintheenvironmentusinghiscommunicationsystem,strategiesand
equipment.Modellingiskeytothedevelopmentoffirstspokenwords,andthisisbuiltontheabilityto
understandwhatissaidandhowthemessageiscreated.Interventionwithchildrenwilldependonthe
relationshipbetweenunderstandingandspokenlanguage,symbolsandreferent(Smith2006).
Acquiredcommunicationimpairments
Bothchildrenandadultscanacquireaspeechorlanguageimpairmentassociatedwithdiseaseortrauma.
TheaimsandobjectivesofintroducingAACtoachildoranadultwithanacquiredcommunicationproblem
relatetomaximisingthecommunicativefunctioninthoseareasoflifethatareseenasaprioritybythe
personandtocontinuallyreviewthechangingneedsofthepersonastheirenvironmentandopportunities
alter.
Progressiveneurologicaldiseases
Peoplewithaprogressiveneurologicaldiseaseaffectingtheirspeechmaybenefitfromabroadrangeof
AACsystems.Thesemayrequireadaptingorchangingthroughoutthecourseofthedisease.Forexample,
anindividualmaybenefitfromavoiceamplifieratanearlierstageofthedisease,butatlaterstages,they
mayrequireasophisticatedswitchandsymbolsystem.CasestudiesindicatethatintroducingAACatan
earlystageisbeneficialandthatregularreviewsarerequiredalongwithtrainingofcommunication
partners.
AACassessment
TheaimofanAACassessmentistoidentifythemosteffectivemeansofcommunicationpossibleforthe
person.Thiswilloftennecessitateamultimodalapproachifthepersonistocommunicatefordifferent
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
10
purposesandinavarietyofcontextsandenvironments.AACassessmentshouldbecarriedoutwiththe
experiencedSLTaspartoftheteam.CommunicationMattershavecreatedtheAACServiceStandardsto
includeAssessment(seewww.communicationmatters.org.uk)
Itisnecessaryto:
identifyparticipationandcommunicationneeds
assesscapabilitiesinordertodetermineappropriateoptions
identifytheskills,abilitiesandneedsofthecommunicationpartners
assessexternalconstraints,physicalandsensorychallengesandabilities
findstrategiesforevaluatingthesuccessofinterventions.(Beukelman&Mirenda1998).
ThesefactorsarerelevantwhenchoosinganAACsystem,strategiesandequipmentandtoidentifythe
amountoftrainingrequiredtoimplementandsupportthechosenAACsystems,strategiesandequipment.
Itisessentialforpeopleandtheircommunicativepartnerstobeassessedtogethersoappropriateand
informedchoicescanbemade(AACRERCWhitePaper2011).
Table5showsasummaryofareastoassessthatusesthedimensionsintheWHOICF(2002).
Table5:WHOICFdimensionssummaryofareasassessedbySLTstobeincludedinanAACassessment
ICFdimension
AreasAssessed
Impairment
Physiologymotor(grossandfinemotorcontrol),sensory,auditory,and
gaze/visualfunctionandlimitations
Structuresstructuralintegrity
Cognitionlanguage,processing,memory,attention,concentration,perception,
moodfunctionandlimitations
Activity
Intelligibility
Useofvoiceindifferentsettings
Communicationabilities
Communicationbehaviours
Organisationofcommunication
Useofcommunication
Literacy
Factors/helpneededtofacilitateachievingsuccessfulcommunication
Abilitytocommunicateindifferentcontextsandlocations
Abilitytobeunderstoodbyfamiliarandunfamiliarcommunicationpartners
Abilitytocommunicate11oringroups
Motivation
Learningbehaviours
Useofgrossandfinemotorskills
Fatiguelevel
Technicalknowledge/useoftechnology/computeruse
Participation
Integration
Abilities,needsandpreferencesofcommunicationpartners
Socialparticipationparticipationindifferingcontextandsettings
Lifeareaseducation,work,economicselfsufficiency
Environment
RequirementforportabilityofAACdevice
Requirementfordurability
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
11
RequirementforcapabilityofdifferingAACsystems
Important/intimaterelationships
Environment
Assessmentofthepersonsowncommunicationenvironmenthelpstoidentifydifferentcommunication
environmentsandthecommunicationsystems,strategiesandequipmentusedineach.Understandingthe
communicationenvironmentshelpstooptimiseandmaximisecommunication.Environmentsmay
include:
closecommunicationpartnerssuchasfamilymembers/carersandclosefriends
peoplewhoknowtheAACspeaker,suchasclassmates,teachers
friendstheyseelessfrequently
acquaintances
workcolleagues,peopletheymeetineverydaylife,suchasshopassistants,taxidrivers,strangers
tothem.
TheSLTnoteshowcommunicationpartnerschoosetocommunicatewiththeAACspeakerindifferent
environments.ApersoncanonlyuseanAACsystem,strategyorequipmentwellifthosearoundthemare
preparedtoacceptthesemeansofcommunication.Thecommunicationpartnerwillhavedifferentlevels
ofunderstandinghowAACsystems,strategiesandequipmentcanbebestusedindifferentenvironments.
TheamountoftrainingrequiredtoimplementandsupporttheAACstrategyisoftendependantonthe
understandingofthecommunicationpartners.Thepersonalsoneedstohavetheopportunityto
communicateandtheopportunitytodeveloptheirskillsonAACanddevices.Theequipmentusedneeds
tosuittheenvironmentitisusedinandthepersonmayneedtosuitdifferingstrategiesaccordingtothe
environmentandcommunicativeneedstherein.
AACprovisionandsupport
TheprovisionofAACservicesvaryacrossthecountry.TheSLTaimstoprovideanAACsystemappropriate
totheneedsandtogivesupportthatenablesthepersontoaccesseffectiveandtimelycommunication
support.Followingassessment,theSLTwillbeinvolvedinfacilitatingcommunicationcompetencethrough
trainingandsupporttodevelopthepersonsuseofAAC.Thecommunicationneedsoftheindividualwill
changeovertime,requiringreassessmentand,insomecases,frequentadaptationstothesystem.Support
fortheeverchangingcommunicationneedsofthepersoncanmeanalifelonginputfromservices.
TheSLTmustbepartoftheteamwhoassessesandprescribesAACsystems,strategiesandequipment
appropriatetotheneedsoftheindividualwiththecommunicationimpairment.Theteam(andtherefore
SLT)shouldprovidesufficientsupporttoenabletheAACusertodevelopeffectiveandefficient
communication.
Referralforassessmenttoaregionalspecialistcentreisusuallysubjecttosetcriteriaforthatcentre.The
centrestaffwillliaisewiththelocalSLTandteamanddiscussanyaspectsofassessment,trainingand
supportasrequired.OtherindividualswouldneedtoaccessAACthroughalternativeservices.Asall
regionalspecialistAACserviceshavedifferentcriteria,itisimportanttoknowwheretoreferpeoplefor
themostappropriatesupport.FurtherinformationcanbeobtainedfromtheCommunicationMattersAAC
ServiceStandards.
AACToolsforCommunicationPartners
Themorefamiliarthecommunicationpartneriswiththepersonssystemofcommunicationthenthe
moresuccessfulcommunicationis.Lessfamiliarcommunicationpartnersareoftenuncertainabouthow
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
12
tocommunicatewithanAACspeaker.Differentapproachescanbeadoptedtohelpnovelcommunicative
partnersandlessfamiliarcommunicationpartnerssucceedincommunicating.Thesetaketimeonpartof
theSLTwhoendeavourstoensurethatcommunicationiseffectiveinabroadrangeofsettings.
Examplesoftoolsthatcanhelpcommunicationsucceedcanincludestrategiesthatareunpoweredand
poweredorcombinethetwo.Forexample:
Communicationpassport'(Millar&Aitken2003)isabookletcreatedbythoseworkingwiththe
individualincludingphotographsofthesetup,videofootageanddemonstratingAACequipmentin
useinarangeofsituations.Itcanalsodescribetheindividualintermsofprovidinginformation
abouttheirfamily,theirlikesanddislikes,physicalneeds,eatinganddrinkingneeds,their
understandingandlearningneedsaswellashowtheycommunicate.
CommunicationMatrixcanhelptodocumentthedifferentaspectsofAACusedbytheperson.It
canbeusedtomapdailyactivitiesandthenlistthedesiredactivity,alongwiththebest
communicationstrategyand/orcommunicationdevicesothatthoseworkingwiththepersonknow
howbesttocommunicatewiththepersonatthattime(Rowland&FriedOken2010).
Communicationpartnersneedtobeincludedwhenstrategiesforlearningcommunicationarebeing
introduced,forexampletheywillneedtolearnhowtopacetheircommunicationinteractionstoallowthe
persontimetounderstandandrespond.Thereisalearningcurvewhilelearninghowtousesystemsand
devicesandwhenadoptingnewsymbolsystemsandsets.Forexample,TalkingMats
(www.talkingmats.com)symbolsetscanbeusedtofacilitatecommunicationinpeoplewhohavecognitive
changessuchasdementiabutthemethodofusingthemsuccessfullyneedstobelearnedbytheuserand
carer.
7. WhatisthemanagementforpeopleusingAugmentativeandAlternativeCommunication?
Itistheroleofspeechandlanguagetherapiststocomplywithlegislation,policyandguidance(whichmay
begenericorconditionspecific)bypromotingcommunicationthroughtheuseanddevelopmentofAAC
skillsforpeoplewithseverecommunicationdifficulties(ScottishGovt.Report2011).
AACservicesvaryacrossthecountry(SCOPE2009).TheformatofanydeliveryofAACwillbecollaborative
andtheinvolvedprofessionalswillbethoseappropriatetotheneedsofthepersonandtheirfamily.
Currentthinkingisthatahubandspokemodelofprovisionisthemosteffective.Thehubisa
specialistfacilityofdifferentspecialists,includinganAACspecialistSLT(oraccesstoone).Theother
membersoftheteamshouldincludeaclinicalscientist,occupationaltherapist,psychologist,
physiotherapist,rehabilitationphysician,medicalphysicstechnicianandspecialistteacher(tobeinvolved
withchildrenandyoungpeople).TheSLTsinthespokeswouldhavesomeknowledgeandcompetencies
concerningAACsystems,strategiesandequipment.Theproposedworkingrelationshipbetweenthe
spokes(localSLTservices)andthehubs(specialistSLTsinateam)aimstoprovideaccesstothemost
appropriateAACsystems,strategiesandequipmenttomeettheirindividualcommunicationneedsand
provideongoingsupport.
Inpractice,theAACservicemodelsrelatetowhohascommissionedtheserviceandanagreedpurpose.
MostlocalcommunitySLTserviceshaveSLTswhohavesomeunderstandingofAACbutwhoarenot
specialistinAACSLTs.AccesstolocalspecialistSLTsisnecessarybeforereferraltoaregionalservice.The
RCSLTrecognisedifferinglevelsofcompetenciesforSLTsworkingwithAACandhavedevelopedasetof
competenciesforAACknowledgespecifically:learner,competentwithsupport,competentand
experienced,andthespecialistSLT(RCSLTCompetencesforAACaccessed2011).Thisworkisbeing
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
13
developedfurtherbyCommunicationMatterstocreateCompetenciesforallthoseworkingwithAAC
speakers.
AssessmentServices
Assessmentmaybeatalocal,specialistorregionallevel.Forexample,theassessmentteammaybeatthe
locallevelwiththelocalSLTworkinginassociationwiththefamily.ThelocalSLTmaybesupportedbyan
AACspecialistSLTorspecialistAACteam,accordingtotheneedsoftheperson,theAACneedsandthe
complexityofthesituationthatneedsattention.Thecompositionoftheteamsvariesaccordingto
locationandhowteamsevolvedhistorically.Differentteamsmayincludedifferentprofessionalsaccording
totheaimandpurposeoftheservice.Thestaffmaybeemployedbyhealth,education,socialcareor
voluntarysector/charityorganisations.TheAACspecialistSLTsshouldbeemployedaspartoftheAAC
teamorbroughtinfortheirexpertise(AACServiceStandardsforCommissionersCommunicationMatters
2011).Forexample,inacentrethatassesseschildren,theteammaycompriseofaSLT,Occupational
Therapist,PhysiotherapistandAssistiveTechnologistandotherrelevantprofessionalsmaybecooptedas
needed,suchas,teachersorspecialneedsteachersorPsychologist,whileinanadultteammightincludea
RehabilitationorNeurologicalconsultant.
DetailsofAssessmentServicesaresetoutinTheAACServiceStandards(CommunicationMatters
accessed2011)whichcitesdetailsofgoodpracticeforassessmentforAACsystems,strategiesand
equipment.
Table5showsanexampleofacarepathwayforaspecialistNHSAACservice.TheWestMidlandsAAC
Teamcarepathwayhasbeendescribedheretoillustratethetypeofpathwaythatmightbefollowedbya
persongoingthroughaspecialistAACCentre.
Table5:SummaryofanexampleAACcarepathway(WestMidlandsAACTeam)
StageofManagement Details
Referral
Dependantonlocalfactors
Assessment
Gatheringinformationfromthepatientincluding:
backgroundtothecommunicationdifficulty
currentmodesofcommunication
useandunderstandingoflanguage
equipmentandpositioning
communicativeenvironment.
Planning
Aplanwouldneedtobedevisedbyamultidisciplinaryteamorprofessionals
involvedinthepatientscare,includingshort,midandlongtermgoals.
Considerabletrainingandsupportisneededwithinschoolsforchildren,staff
andtheAACuserspeers.
Intervention
IntroducinganAACsysteminvolvesdecisionsmakingastowhichAAC
systemwillbeused,andifthisinvolvesadevice,howthiswillbepurchased,
instructiongiven,andthedevicemaintained.Thisprocessinvolvesinput
fromtheuser,familymembers,communicationandeducationprofessionals
andfundingagencies.
Supportingthepatientinlearningtousethesystemandapplyingitsusein
daytodaylivingmayinclude:
onetoonetherapy
groupwork
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
14
Regularreview
meetings
Onwardreferral
process
creatingopportunitiesforcommunicationwithinchilds
normalenvironment
introduceanddevelopcommunicationstrategies
trainingandsupportingcommunicationpartners
liaisewithrelevantprofessionals
Considerabletrainingandsupportisneededwithin
schoolsforchildren,staffandtheAACuserspeers4)
Safetycheckstomaintainthesystemandresolveany
problems.
Adviceandassistancewithcleanlinessofequipment.
Multidisciplinaryteaminvolvedinpatientscare.
WhilecompletedischargefromtheserviceinunusualforAACusers,there
shouldbeinplaceononwardreferralprocessformatterswhichbeyondthe
scopeoftheSpeechandLanguageTherapist.
Thepersonwithcommunicationneedsandtheirfamilywilloftenseektheirownsolutions.Thiscanbe
becausethestatutorybodiescannotbesupportiveduetofinancialconstraintsoralackofknowledgeand
skillsinthelocalteam.Atthispoint,theAACspeakerand/ortheirfamilyorothersmayaccessinformation
fromwebsites,specialistsupportorganisationssuchasCommunicationMatters,approachmanufacturers,
charities,supportgroups,localSLTservices,IndependentSLTservices,GPsandotherpeoplewhouseAAC.
Asaresult,theseAACspeakersmaynotbeknowntotheirlocalteams.
Localteamscanbeapproacheddirectlybypeopleseekinginformationandadvice.Manylocalteamshave
resourcesthatallowthemtomeetcertainAACneedsbutthisdependsonfundingandabilitytosupplyand
supportAACusethroughsupplyingtheappropriateAACstrategyorequipmentandongoingtraining.This
hasasignificanttimecommitment.ReferralstoaspecialistCommunicationAidsCentreisusuallyviathe
SLTand/orGPwhowillsupplyanassessmentofimpairment,abilities,participationandexpectationsofthe
personandtheirfamily.Themaintenanceoftheaidandrepairisalsoacostwhichwillneedtobemet
throughfundingstreamsorbytheindividualthemselvesifnofundsareavailable.
TheAACServiceStandards(CommunicationMatters2011)describethestandardsforanAACService.
ThesespecifywhatanAACspeakercanexpectofanAACService,theseincludetheteamhavingthe:
appropriateskills
knowledgeofthefullrangeofrelevantcurrentlyavailabletechniquesandtechnology
awarenesstoknowlimitstotheircompetence
abilitytobeobjectivewhenconsideringtheAACspeakersneeds
abilitytocarryoutapersoncentredassessment(considerthevenue,timingetc.)
skillstomakepersoncentredrecommendations
abilitytomeetwithindividualneedsandknowwhentoreferontoanothermoreappropriate
service
skillsandknowledgetosupporttheimplementationofthecommunicationsystems.
(TakenfromTheAACServiceStandards(CommunicationMatters2011)
ForAACinterventionstosucceedcertainmaximsneedtoberemembered:
AACsystems,strategiesandequipmentneedtobefocusedontheindividual
individualsvary
environmentsvary
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
15
communicationpartnersvary.
ThebenefitofAACisinmaintainingcommunication,reducingfrustration,facilitatingsocialinteractionand
participationinlife,hobbies,interests,facilitatinglearning,languagedevelopment,selfvalueandself
worth.Developingcommunicationskillshelpstoreducefeelingsofisolation,angerandchallenging
behaviourandbuildsselfesteemandfulfillingpotential.Achievingsuccessfuloutcomes,havingan
effectiveandefficientcommunicationsystemthroughtheuseofappropriateAACsystems,strategiesand
equipmentisdependentonthesepoints(ASHA2004).
8. WhatistheevidencefortheuseofAugmentedandAlternativeCommunication?
WhatistheevidenceforSLTinterventions?
EvidenceonSLTinterventionsusinghightechnologyAAC
Detailsofstudies
Twentytwopaperswereincludedinthissummarysynthesisofoutcomesfromhightechnologyalternative
and augmentative (AAC) interventions. Work in nonpeer reviewed publications was excluded, and also
studies published before 2000. Study designs eligible for inclusion were those having data collected at
morethanonetimepoint,andstudieshavingmorethantwoparticipants.Thesequalitycriteriaexcluded
thelargebodyofcasestudyandcrosssectionalworkinthearea.
Forthepurposeofthisworkhightechnologyintervention(hightech)wasdefinedbyexclusionasthose
AACmethodsordeviceswhichcannotbedescribedaslowtechnology.Researchonlowtechnologyaids
encompassed: signing; gesture; communication books; communication boards; alphabet boards; writing
anddrawing;picturesandsymbolsnotusedinassociationwithacomputer;andamplifierswherethese
are not for assistive purposes. Artificial larynx aids and aids used for dysphonia were also excluded,
togetherwiththeuseofaidsduringtemporarylossofcommunicationsuchasimmediatelypostsurgery.
Theuseofcomputersforatreatmenttool/therapyonly(ratherthanasanassistivedevice)wasoutsidethe
scope of the review. Technology which promotes access to computers/switches to overcome physical
disabilitieswasalsoexcluded.
The scope of the population under consideration was any person who has an impairment of
communication not resulting from a primary auditory impairment. All age groups were included. The
review also considered studies reporting data from relatives/significant others of these people with
communicationdifficulties,togetherwithstaffdeliveringAACservicestothispopulation.Studiescarried
out in noncommunication impaired populations were outside the remit of this review, although work
reportingfindingsfrommixedpopulationswasconsidered.
All studies were published in English and encompassed work from six different countries. The highest
proportion of papers originated from North America (12). Two papers were from Australia, two from
Germany,twofromSweden,andoneeachfromtheNetherlandsandFrance.Aswillbedetailedbelow,the
study participants included people with acquired nonprogressive neurological disorders, acquired
progressive neurological disorders, autism/autistic spectrum disorder, cerebral palsy and other
developmentaldisorders.Hightechsystemsdescribedintheincludedpapersencompassed:voiceoutput
communication aids (VOCAs) which are also termed speech generating devices (SGDs); software on
personalcomputersorlaptopsusedasacommunicationaidtoprovidevoice(recordedorsynthesised)or
written output; and technology providing access to personal computers or laptops enabling them to be
usedasacommunicationaid.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
16
Outcomesmeasured
WithinthepaperstherewasavastrangeofmeasuresusedtoevaluatetheeffectofAACintervention.This
mayreflectdebateinthefieldregardingwhatisconsideredagoodoutcomefromAACprovision.Many
authors used multiple measures within a single study. The outcomes included those that measured the
numberofrequestsorresponses,thefrequencyofsystemuse,accuracyofresponses,correctinformation
units,andstandardisedlanguagemeasures(oftenaspartofabatteryofoutcomes).
Effectivenessofinterventions
Acquirednonprogressiveneurologicaldisorders
Aphasia
SevenpapersreportedtheuseofhightechAACinpeoplewhohaveaphasiaresultingfromavarietyof
nonprogressivecauses.Thelargestgroupconcernedaphasiaresultingfromacerebrovascularaccident
(CVA).VandeSandtKoendermanetal.(2007)investigatedtheuseofTouchSpeakin30peoplewithsevere
aphasiaandminimalspokenoutputfollowingCVA.Theyfoundthatofthe26participants,whocompleted
thetraining,13hadnofunctionalusageofthedevice,fiveweredependentusers,fivewereindependent
usersandsevenwereextensiveusers.Nonuserstendedtoscoreloweronatestofvisualsemantic
association,andextensiveuserstendedtobeyounger.Theauthorssuggestedthattherewasaneedto
investigatevisualsemanticprocessingrequirementsforAACusage.Kouletal.(2005)exploredtheuseof
laptopcomputerswithtouchscreensandspeechsynthesizerswiththeGussoftwareprogram,amongst
ninepeoplewithBrocasorglobalaphasia.Eightoftheparticipantswereabletoproducesentencesusing
thetechnologyduringtraining(althoughreportedlywithvaryingsuccess),andfourparticipantswereable
toproducesentencesinthegeneralisationphase.Theauthorsofthisworkhighlightedthattherewasa
needforstudiesofAACuseinreallifecontexts.
Thedistinctionmadeinthisreviewbetweenuseoftechnologyfortherapy/treatmentratherthanasan
assistivedevicecouldbeconsideredtobeunclearinthefollowingstudies.Finketal.(2008)evaluatedthe
SentenceShaperprogramandfoundthatitincreasedinformativenessinfiveindividualswithmild
moderateaphasiaasratedbyexperiencedlisteners.Theauthorshighlightedhoweverthattherewas
virtuallynocarryoverfrompracticedstimulitoothertopics.Linebargeretal.(2008)alsoevaluatedthe
SentenceShapersoftwareprogramwithsixparticipantswhohadnonfluentaphasia.Thestudyfound
significantgainsinnarrativeproduction,althoughgainsinstructure,contentandratevariedbetween
individuals.Itwassuggestedthatpostarticulatorymonitoringmayplayacriticalroleintheeffectiveness
oftheprogram.
InanearlierpaperLinebargeretal.(2000)describedthebenefitsoftheCSpeakAphasiasoftwareprogram
forsixparticipantswithagrammaticaphasiaduetovariousaetiologies.Useofthesoftwareledtolonger
andmoregrammaticallystructuredutterancesforfiveparticipants.Gainswerereportedinparticularfor
meansentencelengthandpercentageofwordsinasentence,comparedtoclosedclassmeasures(suchas
morphologicalcomplexityandnumberofinflectableverbs).Inathirdpaperbytheseauthors(Linnebarger
etal.2005)alsoevaluatedCSpeakineightparticipantswithBrocasaphasia,oneanomia,andonewith
conductionaphasia.InterventionoutcomeswereassessedusingQuantitativeProductionAnalysis.Sixof
theparticipantswereclassifiedasgoodresponderswithsignificantgainsinexpressivetasks,andfour
werepoorresponderswhoseperformanceremainedthesameordecreased.Nicholasetal.(2005)also
describedvaryingsuccessinoutcomesfromtheCSpeakprogramamongstfiveindividualswithsevere
nonfluentaphasia.Oneparticipantwasdescribedasanexcellentrespondertotraining,twoimproved
onsometasks,andtwoachievedpoorimprovement.Itwasreportedthatperformancevariedbetween
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
17
individualsinparticularonfunctionalcommunicationtasks,andthatparticipantswithbetterpreserved
nonlinguisticcognitiveskills(executivefunctioning)respondedbettertotraining.
Lockedinsyndrome
Lancionietal.(2010)describedtheuseofhightechassistivetechnologyforpeoplewithlockedin
syndromepostcoma.Thethreeparticipantshadaetiologiesofbrainstem,cerebellar,andischaemic
stroke,intracranialaneurysm,andtraumaticbraininjury.Thestudyfoundthatfrequencyofresponsetoa
preferredstimuli,usingamicroswitchconnectedtoacomputersystemcouldbeincreased(froma
baselineofmean3,below3andbelow5topostinterventionof8,8and9)forthethreeparticipants.It
alsodescribedthatfrequencyofrespondinggenerallyincreasedfortwoindividuals.
Acquiredprogressiveneurologicaldisorders
Amyotrophiclateralsclerosis
Twopapersreportedstudiesusingcomplextechnologywithparticipantswhohaveamyotrophiclateral
sclerosis(ALS).Onepaper(Neumann&Birbaumer,2003)examinedpredictorsofbeingabletouseBrain
CommunicationInterface(BCI)technology(slowcorticalpotentialbasedBCI)toindicateadesired
response.Authorsofthisstudydescribedthattherewasasignificantrelationshipbetweeninitialandlater
performanceintermsofthepercentageofcorrectamplitudeshiftsforthefiveparticipantswithALS.
Anotherpaperincludingsomeauthorsfromthisfirststudy(Nijboeretal.2008)reportedgainsin
communicationpotentialforpatientswithALS.ThisworkusedtheP300basedmatrixspellerwith
Electroencephalogram(EEG)technologyandfoundthatparticipantscouldachieveameanitemselection
rateof1.2selectionsperminute,withaccuracyratesof79%.
Autism/autisticspectrumdisorder
EightpapersreportedhightechAACusewithpeoplewhohaveautismorautisticlikedisorders(Oliveetal.
2007;Schlosseretal.2007:Sigafoosetal.2004;Sigafoosetal.2003;Thunbergetal.2007;Thunbergetal.
2009;Trembathetal.2009;McMillan2008).
ThepaperbyOliveetal.(2007)evaluatedtheeffectofenhancemilieuteachingcombinedwithaVOCA.
Thethreechildrenwithautisminthisstudy(aged45,48and66months)allincreasedtheirinstancesof
useoftheAACdevice(fromzeroforallthreeto10.5,7.3and12.8).Itwasalsoreportedthatone
participantbeganvocalizingduringthestudy.Schlosseretal.(2007)studieduseofaSGDinfivechildren
withautismforrequestingfoodatsnacktimeorrequestingleisureobjects.Outcomeswerevariable
acrossparticipantswithtwoincreasingtheirpercentageofcorrectrequestingwhentheSGDwasswitched
onversusswitchedoff.However,oneincreasedpercentageofcorrectrequestingwhenitwasturnedoff.
Theperformanceoftheotherparticipantsseemedtohavenopattern.Itwasdescribedthatone
participantincreasedvocalisationduringthecourseofthestudy.
Sigafoosetal.(2003)exploredrequestingusinganIwantmorerecordedmessageonaBigMackswitch.
Thethreeparticipantsinthisstudyincludedtwowithautismandonewithcongenitalamaurosiswho
exhibitedautisticlikebehaviours.Thestudyfoundthattheparticipantslearnedtousethedevicerapidly
andthatrequestinglevelsweresimilarforallparticipants.Participantsvocalisationdidnotvaryaccording
towhetherthevocalisationonthedevicewasturnedonoroff.Inalaterpaper(Sigafoosetal.2004)three
participantslearnedtorequestthereturnofaTech/TalkVOCAwithIwantmorerecordedwhenitwas
outofreach.
PapersbyThunbergetal.(2007,2009)investigateduseofaportabletouchscreenPCwithClicker3
software,symbols,photos,andInfovoxspeechsynthesiseroutput.Onepaperreportedastudyoffour
participants,twowithautismandtwowithpervasivedevelopmentaldisorder,andtheotherpaper
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
18
presenteddatafromoneparticipantwithautismandtwowithpervasivedevelopmentaldisorder.Thelater
paperexamineduseofthedeviceinahomeenvironment.Outcomesconsideredwere:engagement;rate
ofcontributions;roleinturntaking;mode;andeffectiveness.Theauthorsreportedinthe2007paperthat
theSGDinterventionincreasedtherateofcommunicationeffectiveness(1119%increase)howeverother
measuresvariedbetweenparticipants.The2009paperoutlinedthatengagementratingswerehigherfor
allparticipantsinatleastoneactivitypostinterventioninahomeenvironment.Therateofresponses
reportedlyincreasedinfourofthesixactivitiesandeffectivenessincreasedforallparticipantsinall
activities.
OnepaperexploredthepotentialforindirectinterventionwithteacherstoenhanceAACoutcomes.
McMillanetal.(2008)investigatedtheimpactoftrainingteachersonstudentuseofaSGDsystemwith
symbols.Thestudyincludedfourteachersinvolvedwithfourchildrenwithautisticspectrumdisorders.
Thestudyfoundthatfollowingtheteachertraininginterventionallstudentsincreasedthemeanfrequency
fordeviceinitiationspersession(4.9to49,0.4to13.3,2.4to17and3.1to16).Fortwostudentsthe
teachersuseoftimedelayforinstructionseemedrelatedtoahigherfrequencyofinitiations.Theauthors
describedthattherewassomeevidenceofgeneralisationofthesepositiveoutcomestoothercontexts.
Otherdevelopmentaldisorders
Threepapersdescribedinterventionswithotherdevelopmentaldisorders.Bruno&Trembath(2006)
recruitedninechildrenusingAACaged4to14.Theyhadarangeofdiagnosesincludingapraxia,
schizencephaly,Downsyndrome,andcerebralpalsy(CP).Thestudyinvestigatedwhethertrainingcould
increasethesyntacticcomplexityofAACcommunications.ItfoundimprovementsusingaSGD(numberof
itemscorrectlypointedtoonrequest)forfiveoftheparticipantsforonetestitem,forthreeonanother
andforoneonthethirdtestitem.Itwasnotedthattwooftheparticipantswereatceilingatbaselinefor
twoofthetestitems.TheauthorshighlightedthatwhilethereweresomegainsfortheSGD,thesewere
poorerthanforalowtechaid(acommunicationboard).
Lancionietal.(2008)reporteddatafromthreeyoungpeopleaged10,11and15withseveretoprofound
intellectualdisability.TheworkevaluateduseofamicroswitchandVOCAtoaccessenvironmental
stimuli.ThestudyfoundasignificantincreaseinVOCAactivationresponsesfollowingtheintervention.
EvansCosbey&Johnston(2006)investigateduseofasingleswitchVOCAprogrammedwiththatlooksfun
canIplayinchildrenaged3,4and6withcerebralpalsy.Theyfoundthatallparticipantsincreasedtheir
unprompteduseoftheVOCAfrombaselinetointerventionandduringthegeneralisationphasetogain
accesstoatoyorsocialisationwithpeers.Theauthorscommentedhoweveronlimitedfunctionaluse.
Bocketal.(2005)comparedtheeffectivenessofPECS(PictureExchangeCommunicationSystem)versusa
VOCAforsixmalesagedfourwithdevelopmentaldelay.Allparticipantsincreasedthenumberof
spontaneousrequestsduringtheinterventionfromzeroatbaseline.HalfacquireduseofPECsearlierthan
aVOCA,whereasfortheotherhalftherewasnodifferencebetweenacquiringuseoftheVOCAversus
PECS.Itwasreportedthattwochildrenmetthecriteriatomovetophase3usingtheVOCAandone
achievedphase3usingtheVOCA(fewerthanusingPECS).
Participantswithseveredysarthria
Onepaperincludedaverydiverserangeofparticipantswithseveredysarthria.Laffontetal.(2007)
evaluateduseofaDialospeechsynthesiseramongst10individualswithseveredysarthriaaged966,who
allreportedlyhadgoodglobalcognition.Fiveindividualshadcerebralpalsy,threeALS,oneincomplete
lockedinsyndrome,andonecerebralanoxia.Thestudyevaluatedthedeviceintermsoflevelofuseovera
twomonthperiod.Thestudyfoundthatsixparticipantswereclassedashighlevelusers(morethan15,000
keystrokesover2months).Fourofthesehighlevelusersusedthewordpredictionfunctionmorethan300
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
19
timesinthatperiod.Overallsatisfactionwiththedevicewasdescribedasgood(mostweremoreorless
satisfied).Dictationtimeshowevervariedwidelyacrossparticipants,andoveralltherewasnostatistical
improvementbetweenbaselineandfollowingtheintervention.Itwasreportedthatfiveparticipants
continuedtousethesystemafterthestudycompleted,andeventuallypurchasedthedevice(onlythreeof
thesewerehighlevelusers).
Studyquality
Thissynthesisincludedonlypapersreportingbeforeandafter(longitudinal)data.Thesearchesfoundno
papersreportingstudieswithacontrolleddesign.Qualityissuesnotedamongstthesetinadditiontothe
lackofcontrolledstudieswereshortfollowupperiods,anduseofdescriptivedataratherthandetailedor
statisticalanalysis.Therewasconsiderableheterogeneityofparticipantsinsomestudies,withdiversityin
termsofage,diagnosis,orpatternofcommunicationdifficulties.Thismayhavelimitedthedemonstrated
impactofinterventions,andindeedsomeauthorshighlightedtheeffectofindividualpatternsof
communicationdifficultyandresponsetointervention.Thediversityalsoresultedinsomeparticipants
reachingceilingforoutcomespriortocompletionoftheinterventioninsomecases.
TherewasconsiderablevariationinthedegreetowhichauthorsdescribedtheAACsystems.Somestudies
containedseveralpagesofdetaileddescriptionofthetechnology,whileforothersonlyabroadlabelsuch
asVOCAoraSGDwasprovided.Manystudiesdescribedtheirlimitationsintermsofabeingundertakenin
ahighlycontrolledcontextwithlackofconsiderationoffunctionaluseandenvironmentalfactors.Some
authorsalsocommentedonissuesrelatingtofidelityoftheinterventionregime,particularlyinregardto
interventionscarriedoutinaneducationalcontextorwhereintensivetrainingwasrequired.
Conclusions
ThefindingssuggestthathightechAACmaybebeneficialacrossarangeofdiagnosesandageranges
includingacquiredprogressiveandnonprogressiveneurologicalconditions,autism,andother
developmentaldisorders.Theindividualvariationinoutcomereportedinmanystudies,howeverrequires
consideration.Differingresponsesdescribedintheresearchmaybelinkedtovaryingpatternsandlevelsof
communicationneedswithinanysinglediagnosticcategory.Thereisaneedforfuturestudiesto
endeavourtorecruitusingclosermatchingofindividualcommunicationlevelsratherthantheseeming
tendencytowardsconveniencesamplingwithinbroadcategories.Italsoseemsimportanttofurther
understandcharacteristicsofclientswhomayormaynotbenefitfromhightechAACtechnology.Some
paperssuggestedthataspectssuchasvisualsemanticprocessingorcognitivefunctioningmayimpacton
theresponsetointervention,andthatforsomeindividualslowtechinterventionsmaybemorebeneficial.
Thefieldisdominatedbystudieswithsmallsamples,manyofwhicharecasestudies.Thisreview
examinedonlyhigherqualityevidenceandfoundonly22papers,arelativelysmallnumber.Thereis
currentlyalackofworkusingcontrolleddesignswhichmustbeafuturepriority,ifpotentialsourcesofbias
ininterventionstudyoutcomesaretobeovercome.Therangeofoutcomemeasuresexaminedbythe
literaturealsorequiresfurtherconsiderationinregardtouseinstructuredsituationsversusfunctional
usage.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Study
Bocketal.2005
ResearchQuestion
HoweffectiveisPECS
versusaVOCAforpre
schoolchildrenwith
complexneeds?
Bruno&Trembath,2006 Cantrainingincrease
syntacticcomplexityof
AACcommunications?
EvansCosbey&
Johnston,2006
HoweffectiveisaVOCA
forchildrenwithsevere
disabilities?
Finketal.2008
DoesuseofSentence
Shaperhaveanimpact
onlevelsof
informativenessin
aphasicspeakers?
Canacomputerbased
AACsystembeused
successfullyby
individualswithaphasia?
Kouletal.2005
Laffontetal.2007
Howusefulisaspeech
synthesiserforpeople
withseveredysarthria?
Lancionietal.2010
Canpeoplepostcoma
makerequestsvia
assistivetechnology?
AAC
GoTalklightweight
digitiseddevicewith
BoardMakerproduced
pictures
Dynamicdisplaypage
setsusedwithspeech
generatingdevices
Dynamyte,Pathfinder,E
Talk&Dynavox
SingleswitchVOCA
programmedwith1
sentencethatlooksfun
canIplay
SentenceShaper
softwareprogram
Laptopcomputerswith
touchscreensand
speechsynthesisers+
Gussoftwareprogram
20
Subjects
6males(M)aged4with
developmentaldelay,
USA
9childrenusingAAC,
aged414,rangeof
diagnosesincludingCP,
apraxia,schizencephaly,
Downsyndrome,USA
3female(F)aged3,4&
6,allCP1alsoPierre
Robinsyndrome&
agenesisofthecorpus
callosum,USA
5individualswithmild
moderatenonfluent
aphasia3F2Maged32
62,USA
9peoplewithBrocasor
globalaphasiadueto
lefthemispheredamage,
+onenointelligible
expressivelanguage
followingbrainstem
stroke,aged3286
years,USA
Dialospeechsynthesiser 10individualswith
severedysarthriaaged
966,goodglobal
cognition.5CP,3ALS,
oneincompletelocked
insyndrome,one
cerebralanoxia.4had
previouslyusedaspeech
synthesiser,othersused
acommunicationboard,
France
Microswitch+computer 3participantspost
coma.Faged81
brainstem,cerebellar
andischemicstrokes3
monthspostonset,M
aged22TBI2yearspost
onset,Faged51
intracranialaneurysm4
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
Lancionietal.2008
Canpeoplewithmultiple Microswitch+VOCA
disabilitiesaccess
environmentalstimuli
viaamicroswitchand
VOCA
Linebargeretal.2008
Whatimprovementscan
useofSentenceShaper
maketoaphasic
speakers?
DoesusingtheCS
softwareimprove
grammaticalcomplexity
ofutterances?
Linebargeretal.2000
Linebargeretal.2005
McMillan,2008
Neumann&Birbaumer,
2003
Nicholasetal.2005
Nijboeretal.2008
Oliveetal.2007
Schlosseretal.2007
SentenceShaper
21
monthspostonset,Italy
3youngpeopleaged
10,11,15severeto
profoundintellectual
disabilitycongenital
encephalopathy,had
previouslybeeninvolved
inmicroswitch
programmes,Italy
6participantswithnon
fluentaphasia19years
postonsetaged3662,
USA
6participantswith
agrammaticaphasia,
variousaetiologies,
USA.
TheCSsoftware
utterancesarerecorded
andrepresentedasa
shapeonscreen,shapes
canbemovedaroundto
formlongerutterances
andnarratives.
Whatistheefficacyof
CSsoftware
10participants,8with
CSsoftware?
Brocasaphasia,1
anomia,1conduction
aphasia
Cantrainingteachers
SGDsystemwith
4Maged812,autistic
impactonstudentuseof symbols
spectrumdisorders.4F
SGDs
teachersinspecial
classroomsforstudents
withintellectual
disabilities,357years
teachingexperiencein
SEN,Australia
Doesinitialperformance Slowcorticalpotential
5participantswithALS,
withaBCIpredictlonger basedBCI
Germany
termoutcome?
CantheCSpeakAphasia CSpeakAphasia
3M&2FCVAsevere
computerprogramaid
nonfluentaphasiaat
communicativeability
leastoneyearpost
forpeoplewithaphasia?
onset,aged2767,USA
Whatistheefficacyofa P300basedmatrix
3M&3F,ALS,1bulbar,
BCIcommunication
spellerusingEEG
5spinal,aged3667,
device?
Germany
Whatisthe
VOCA
3Mautismaged45,48
effectivenessof
and66months,USA
enhancedmilieu
teachingcombinedwith
aVOCA?
Doesaspeech
VantageSGD(DECTalk
5childrenwithautism,
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
generatingdevice
increaserequestingfor
childrenwithautism?
Sigafoosetal.2004
Sigafoosetal.2003
Thunbergetal.2007
Thunbergetal.2009
VandeSandt
Koendermanetal,2007
syntheticspeechoutput
withdynamicdisplay
usingLexigramsgraphic
symbols)
Canstudentsbetaught Tech/TalkVOCA,only1
toinitiatefinding
panelfunctionalIwant
behaviourswhenanAAC more
deviceisnotpresent?
Dochildrencontinueto BigMackswitchwithI
useanAACdevicefor
wantmorerecorded
requestingwhenthe
speechfunctionis
turnedoff?
22
aged810,4M1F,non
usersofSGD,USA
3participants,autism,
nonverbal,aged12,16,
20,1F2M,USA
3participantsaged3,4
&13,developmental
disabilities.1Lebers
CongenitalAmaurosis
withautisticlike
behaviours,2autism,
Australia
WhatimpactdoesaSGD PortabletouchscreenPC 4Mparticipantsaged4
interventionhaveon
withClicker3software, 7.2autism,2PDD,
communicationcontexts PCSsymbols,Clicker
Sweden
inahomeenvironment? symbols,photos,Infovox
speechsynthesiser
output
WhatimpactdoesaSGD PortabletouchscreenPC 3Mparticipantsaged5
interventionhaveon
withClicker3software, 7,1autism,2PDD,
communicationina
PCSsymbols,Clicker
Sweden
homeenvironment?
symbols,photos,Infovox
speechsynthesiser
output
Whichcognitivefactors TouchSpeak
30peoplewithsevere
impactonsuccessfuluse
aphasiaandminimal
ofTouchSpeak?
spokenoutputfollowing
CVA.15M15F,aged33
82meanage61.762
monthspostonset.25
global,3Brocas,1
conduction,1not
classifiable,Netherlands
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
23
Includedpapers
1. Bock,S.,Stoner,J.,Beck,A.,Hanley,L.,Prochnow,J.(2005).Increasingfunctionalcommunicationin
nonspeaking preschool children: comparison of PECS and VOCA. Education and Training in
DevelopmentalDisabilities,40,3,264278.
2. Bruno,J.&Trembath,D.(2006).Useofaidedlanguagestimulationtoimprovesyntacticperformance
duringaweeklonginterventionprogram.Augmentative&AlternativeCommunication,22,4,300313.
3. Evans Cosbey, J. & Johnston, S. (2006). Using a SingleSwitch Voice Output Communication Aid to
IncreaseSocialAccessforChildrenwithSevereDisabilitiesinInclusiveClassrooms.Research&Practice
forPersonswithSevereDisabilities,31,2,144156.
4. Fink, R., Bartlett, M., Lowery, J., Linebarger, M. & Schwartz, M. (2008). Aphasic speech with and
withoutSentenceShaper:twomethodsforassessinginformativeness.Aphasiology,22,7,679690.
5. Koul, R., Corwin, M & Hayes, S. (2005). Production of graphic symbol sentences by individuals with
speech synthesizer in severe dysarthria: patterns of use, satisfaction, and utility of word prediction.
JournalofRehabilitationMedicine,39,399404.
7. Lancioni, G., OReilly, M., Singh, N., Sigafoos, J., Oliva, D. & Severini, L. (2008). Three persons with
multipledisabilitiesaccessingenvironmentalstimuliandaskingforsocialcontactthroughmicroswitch
andVOCAtechnology.JournalofIntellectualDisabilityResearch,52,4,327336.
8. Lancioni, G., Singh, N., OReilly, M., Sigafoos, J., Buonocunto, F., Sacco, V., Colonna, F., Navarro, J.,
Lanzilotti, C., Oliva, D & Megna, G. (2010). Postcoma persons with motor and
communication/consciousness impairments choose among environmental stimuli and request
stimulusrepetitionsviaassistivetechnology.ResearchinDevelopmentalDisabilities,31,777783.
9. Linebarger,M.,Romania,J.,Fink,R.,Bartlett,M.&Schwartz,M.(2008).Buildingonresidualspeech:A
portableprocessingprosthesisforaphasia.JournalofRehabilitationResearchandDevelopment,45,9,
14011414.
10. Linebarger, M., Schwartz, M., Romania, J., Kohn, S. & Stephens, D. (2000). Grammatical encoding in
aphasia:Evidencefroma'processingprosthesis'.BrainandLanguage,75,416427.
11. Linebarger,M.&Schwartz,M.(2005).AACforhypothesistestingandtreatmentofaphasiclanguage
production:Lessonsfroma"processingprosthesis".Aphasiology,10,930942.
12. McMillan, J. (2008). Teachers Make It Happen: From Professional Development to Integration of
AugmentativeandAlternativeCommunicationTechnologiesintheClassroom.AustralasianJournalof
SpecialEducation,32,2,199211.
13. Neumann, N. & Birbaumer, N. (2003). Predictors of successful self control during braincomputer
communication.JournalofNeurology,Neurosurgery&Psychiatry,74,11171121.
14. Nicholas,M.,Sinotte,M.,&HelmEstabrooks,N.(2005).Usingacomputertocommunicate:effectof
executivefunctionimpairmentsinpeoplewithsevereaphasia.Aphasiology,19,10/11,10521065.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
24
15. Nijboer,F.,Sellers,E.,Mellinger,J.,Jordan,M.,Matuz,T.,Furdea,A.,Halder,S.,Mochty,U.,Krusienski,
D.,Vaughan,T.,Wolpaw,J.,Birbaumer,N&Kubler,A.(2008).AP300basedbraincomputerinterface
forpeoplewithamyotrophiclateralsclerosis.ClinicalNeurophysiology,119,1091916.
16. Olive, M., de la Cruz, B., Davis, T., Chan, J., Lang, R., OReilly, M & Dickson, S. (2007). The effects of
enhancedmilieuteachingandavoiceoutputcommunicationaidontherequestingofthreechildren
withautism.JournalofAutismandDevelopmentalDisorders,37,15051513.
17. Schlosser, R., Sigafoos, J., Luisell, J., Angermeier, K., Harasymowzy, U., Schooley, K. & Belfiore, P.
(2007). Effects of synthetic speech output on requesting and natural speech production in children
withautism:Apreliminarystudy.ResearchinAutismSpectrumDisorders,1,139163.
18. Sigafoos, J., OReilly, M., SeelyYork, S & Edrisinha, C. (2004). Teachingstudents with developmental
disabilitiestolocatetheirAACdevice.ResearchinDevelopmentalDisabilities,25,371383.
19. Sigafoos,J.,Didden,R.,O'Reilly,M.(2003).Effectsofspeechoutputonmaintenanceofrequestingand
children with autism spectrum disorders: A preliminary assessment. Focus on Autism and Other
DevelopmentalDisabilities,24,109114.
22. Trembath,D.,Balandin,S.,Togher,L.,Stancliffe,R.(2009).Peermediatedteachingandaugmentative
and alternative communication for preschoolaged children with autism. Journal of Intellectual and
DevelopmentalDisability,34,2,173186.
23. VandeSandtKoenderman,W.,Wiegers,J.,Wielaert,S.,Duivenvoorden,H.&Ribbers,G.(2007).High
techAACandsevereaphasia:CandidacyforTouchSpeak(TS).Aphasiology,21,4,459474.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
25
9. ReferencesContext
1 AACRERCWhitePaper2011. MobileDevicesandCommunicationApps.www.aacrerc.com.
2 Alant,E,Bornman,J,Lloyd,LL.2006.IssuesinAACresearch:Howmuchdowereallyunderstand?
DisabilityandRehabilitation,3,143150.
3 Alant,E&Lloyd,LL.2006.Augmentativeandalternativecommunication:Exploringbasicissues.
DisabilityandRehabilitation,28,3,141.
4 AmericanSpeechandHearingAssociation2008.CommunicationFacts:SpecialPopulations:
AugmentativeandAlternativeCommunication2008Edition.Accessed04052011.
http://www.asha.org/research/reports/aac.htm
5 AmericanSpeechLanguageHearingAssociation.2004.RolesandResponsibilitiesofSpeech
LanguagePathologistsWithRespecttoAugmentativeandAlternativeCommunication:Technical
Report[TechnicalReport].Availablefromwww.asha.org/policy.Accessed20062011.
6 BirminghamChildren'sCommunitySpeechandLanguageTherapyDepartment.ClinicalGuidelines
onAugmentativeandAlternativeCommunication:Informationforotherprofessionals.
7 Beukelman,D.&Mirenda,P.2005.Augmentative&alternativecommunication:supporting
children&adultswithcomplexcommunicationneeds.Baltimore:PaulH.BrookesPublishing
Company.
8 Beukelman,D.&Mirenda,P.1998.AugmentativeandAlternativeCommunication:Managementof
severecommunicationdisordersinchildrenandadults(2ed.).Baltimore:PaulHBrookesPublishing
Co.pg.246249.
9 Bush,M.&Scott,R.2009.NoVoice,NoChoice.London:Scope.www.scope.org.uk
10 Clarke,M.,McConachie,H.,Price,K.,&Wood,P.2001.Viewsofyoungpeopleusingaugmentative
andalternativecommunicationsystems.InternationalJournalofLanguageandCommunication
Disorders,36,1,107115.
11 CommunicationMattersUKbranchofInternationalSocietyforAugmentativeandAlternative
Communication2011www.communicationmatters.org.uk
12 CommunicationMatters2011TheAACServiceStandards
www.communicationmatters.org.uk/page/resources/national-standards-aac-services
13 CommunicationMatters2011 AAC Services' Standards: Commissioners' Document
www.communicationmatters.org.uk
14 Deruyter,F.,McNaughton,D.,Caves,K.,NelsonBryen,D.,&Williams,M.2007.EnhancingAAC
connectionswiththeworld.AugmentativeandAlternativeCommunication,23,3,258270.2007.
15 FrenchayCommunicationAidsCentre2011.CommunicationAidJourneyMapFrenchayCAC.
16 Gross,J.2010.Augmentativeandalternativecommunication:areportonprovisionforchildrenand
youngpeopleinEngland,CommunicationChampionReportSeptember2010.
17 Glennen,S.1997.AugmentativeandAlternativeCommunicationAssessmentStrategies.In
Glennen,S.&Decoste,D.(Eds.),HandbookofAugmentativeandAlternativeCommunication(pp.
140192).SanDiego:SingularPublishingGroup.
18 Hamm,B.&Mirenda,P.2006.Postschoolqualityoflifeforindividualswithdevelopmental
disabilitieswhouseAAC.AugmentativeandAlternativeCommunication,22,2,134147.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
26
19 Higginbotham,D.,Shane,H.,Russell,S.,andCaves,K.2007.AccesstoAAC:Past,presentand
future.AugmentativeandAlternativeCommunication,23,3,243257.
20 Hodge,S.2007.Whyisthepotentialofaugmentativeandalternativecommunicationnotbeing
realised?Exploringtheexperiencesofpeoplewhousecommunicationaids.DisabilityandSociety,
22,5,457471.
21 Light,J.1989.Towardadefinitionofcommunicativecompetenceforindividualsusing
augmentativeandalternativecommunicationsystems.AugmentativeandAlternative
Communication,5,137144.1989.
22 Loncke,FT,CampbellJ,EnglandAM,andHaley,T.2006.Multimodality:AbasisforAugmentative
andAlternativeCommunicationpsycholinguistic,cognitive,andclinical/educationalaspects.
DisabilityandRehabilitation,28,3,169174.
23 Millar,D.,Light,J.&Schlosser,R.2006.Theimpactofaugmentativeandalternativecommunication
interventiononthespeechproductionofindividualswithdevelopmentaldisabilities:Aresearch
review.JournalofSpeech,Language,andHearingResearch,49,2,248264.
24 Millar,S.withAitken,S.2003.PersonalCommunicationPassport:GuidelinesforGoodPractice.
http://www.communicationpassports.org.uk/Home/
25 Mirenda,P.2003.TowardFunctionalAugmentativeandAlternativeCommunicationforStudents
WithAutism:ManualSigns,GraphicSymbols,andVoiceOutputCommunicationAids.Language,
Speech,&HearingServicesinSchools,34,3,203216.
26 Murphy,J.,Markova,I.,Moodie,E.,Scott,J.&Boa,S.1995.AACsystemsusedbypeoplewith
cerebralpalsyinScotland:DemographicSurvey.AugmentativeandAlternativeCommunication,11,
2636.
27 Murphy,J.,Gray,C.,&Cox,S.2007.Communicationanddementia.HowTalkingMatscanhelp
peoplewithdementiatoexpressthemselves.Pub:JosephRowntreeFoundation.
28 OfficeforNationalStatistics,2010.UKpopulationapproaches62millionMid2009Population
Estimates.OfficeforNationalStatistics,GovernmentBuildings,CardiffRoad,NewportNP108XG
www.ons.gov.uk
29 Parrott,R.,Wolstenhome,J.&Tilley,N.2008.Changesindemographyanddemandforservices
frompeoplewithcomplexneedsandprofoundmultiplelearningdisabilities.TizardLearning
DisabilityReview.13,3,2634.
30 Quist,R.,&Lloyd,L.1997.Principlesandusesoftechnology.InLloyd,L.,Fuller,D.,&Arvidson,H.
(Eds.),Augmentativeandalternativecommunication(pp.107126).Boston:Allyn&Bacon.
31 Schlosser,RalfW.,Blischak,DorothyM.,Koul,RajinderK.2003.RolesofSpeechOutputinAAC.In
RalfW.Schlosser,TheEfficacyofAugmentativeandAlternativeCommunication:TowardsEvidence
BasedPractice.SanDiego:Academic.
32 Schlosser,R.,Sigafoos,J.,Luisell,J.,Angermeier,K.,Harasymowzy,U.,Schooley,K.&Belfiore,P.
(2007).Effectsofsyntheticspeechoutputonrequestingandnaturalspeechproductioninchildren
withautism:Apreliminarystudy.ResearchinAutismSpectrumDisorders,1,139163.
33 Scope2007.CommunicationAidProvision:areviewoftheliterature.www.scope.org.uk
34 ScottishGovernmentReport2011.ARighttoSpeak:supportingindividualswhouseaugmentative
andalternativecommunication.PublishedOctober2011.AuthorAlisonGray.
RCSLT2011
RCSLT RESOURCE MANUAL FOR COMMISSIONING AND PLANNING SERVICES FOR SLCN
AAC
27
35 Sevcik,R.2006.Comprehension:Anoverlookedcomponentinaugmentedlanguagedevelopment.
DisabilityandRehabilitation,28,3,159167.
36 Smith,M.2006.Speech,languageandaidedcommunication:Connectionsandquestionsina
developmentalcontext.DisabilityandRehabilitation,28,3,151157.
37 Rowland,C.&FriedOken,M.2010.CommunicationMatrix:Aclinicalandresearchassessmenttool
targetingchildrenwithseverecommunicationdisorders.JournalofPediatricRehabilitation
Medicine:AnInterdisciplinaryApproach,3,319329.
38 UNConventionontheRightsofPersonswithDisabilities,2007:
www.un.org/disabilities/convention/conventionfull.shtml
39 WorldHealthOrganisation.2002.InternationalClassificationofFunctioning,DisabilityandHealth.
http://www.who.int/classifications/icf
40 WestMidlandsAACCarePathway.AccessedJune2011.
http://www.bhamcommunity.nhs.uk/aboutus/divisionsanddirectorates/specialist
services/rehabilitation/westmidlandsrehabilitationcentre/services/act/westmidsaaccare
pathway
RCSLT2011