This document provides a list of links to various ethics guidelines and frameworks related to data collection and use from different domains and organizations. It includes guidelines around higher education research, data privacy, data rights, humanitarian response, mobile connectivity, fair information practices, free speech, health information, journalism, and data de-identification. The resources cover a range of topics from specific domains to help inform ethical decision making and practices related to data.
This document provides a list of links to various ethics guidelines and frameworks related to data collection and use from different domains and organizations. It includes guidelines around higher education research, data privacy, data rights, humanitarian response, mobile connectivity, fair information practices, free speech, health information, journalism, and data de-identification. The resources cover a range of topics from specific domains to help inform ethical decision making and practices related to data.
This document provides a list of links to various ethics guidelines and frameworks related to data collection and use from different domains and organizations. It includes guidelines around higher education research, data privacy, data rights, humanitarian response, mobile connectivity, fair information practices, free speech, health information, journalism, and data de-identification. The resources cover a range of topics from specific domains to help inform ethical decision making and practices related to data.
Doma|n-spec|f|c d|g|ta| eth|cs, pract|ces, and convent|ons
Lxamples complled for Lhe Lth|cs of Data Conference, Stanford Un|vers|ty, September 1S-16, 2014
As||omar Convent|on: Lth|ca| dec|s|on mak|ng |n h|gher educat|on research hLLp://asllomar-hlghered.lnfo/
A man|festo for the future of the 'r|ght to be forgotten' debate hLLp://www.Lheguardlan.com/Lechnology/2014/[ul/22/a-manlfesLo-for-Lhe-fuLure-of-Lhe-rlghL- Lo-be-forgoLLen-debaLe
8e||ag|o Iramework for Lth|ca| kes|||ence hLLp://popLech.org/sysLem/uploaded_flles/66/orlglnal/8ellaglolramework.pdf
1he Consumer r|vacy 8||| of k|ghts (USA) hLLp://www.whlLehouse.gov/slLes/defaulL/flles/prlvacy-flnal.pdf
Compend|um of Lth|cs and Standards for Nonprof|ts hLLp://www.lndependenLsecLor.org/compendlum_of_sLandards?s=eLhlcs
1he Data 8||| of k|ghts hLLp://baLLellemedla.com/archlves/2007/04/Lhe_daLa_blll_of_rlghLs.php
Data Co||ect|on |n numan|tar|an kesponse: A Gu|de Ior Incorporat|ng rotect|on pqdl.care.org/racLlce/uaLa CollecLlon ln PumanlLarlan 8esponse, A Culde for lncorporaLlng roLecLlon.pdf
Lth|ca| r|vacy Gu|de||nes for Mob||e Connect|v|ty hLLp://blogs.oll.ox.ac.uk/pollcy/eLhlcal-prlvacy-guldellnes-for-moblle-connecLlvlLy- measuremenLs/
Independent Sector Code of Lth|cs hLLp://www.lndependenLsecLor.org/code_of_eLhlcs?s=Code20of20LLhlcs&s=eLhlcs
# Internat|ona| Med|ca| Informat|cs Assoc|at|on (2013) Code of Lth|cs for nea|th Informat|on rofess|ona|s hLLp://www.lmla-medlnfo.org/new2/pubdocs/LLhlcs_Lng.pdf
Nat|ona| Counc|| of Nonprof|ts Code of Lth|cs hLLp://www.councllofnonproflLs.org/resources/resources-Loplc/eLhlcs-accounLablllLy
Nat|ona| Sc|ence Ioundat|on Counc|| for 8|g Data Lth|cs hLLp://www.daLasocleLy.neL/lnlLlaLlves/councll-for-blg-daLa-eLhlcs-and-socleLy/
CLCD Gu|de||nes on the rotect|on of r|vacy and 1ransborder I|ows of ersona| Data hLLp://www.oecd.org/lnLerneL/leconomy/oecdguldellnesonLheproLecLlonofprlvacyandLransbor derflowsofpersonaldaLa.hLm LLhlcs code examples (conLlnued)
Soc|ety of rofess|ona| Iourna||sts code (|n draft form, for ed|t|ng) hLLp://sp[.org/pdf/eLhlcs-code-mark-Lhrough-drafL-3.pdf and blog on nonproflL verslon hLLp://www.pbs.org/medlashlfL/2010/01/how-Lo-avold-eLhlcal-snags-ln-non-proflL- [ournallsm004/
Lducause: Gu|de||nes for Data De-Ident|f|cat|on hLLps://wlkl.lnLerneL2.edu/confluence/dlsplay/lLsg2/Culdellnes+for+uaLa+ue- ldenLlflcaLlon+or+AnonymlzaLlon
(IFIP Advances in Information and Communication Technology 425) Yves Rybarczyk, Tiago Cardoso, João Rosas, Luis M. Camarinha-Matos (eds.) - Innovative and Creative Developments in Multimodal Interacti.pdf
Software Engineering Education: Proceedings of the IFIP WG3.4/SEARCC (SRIG on Education and Training) Working Conference, Hong Kong, 28 September - 2 October, 1993