USPKenya Written Submission to the International Development Committee on Disability and Development on DFID Programs
http://data.parliament.uk/writtenevidence/committeeevidence.svc/evidencedocument/international-development-committee/disability-and-development/written/5716.html
USPKenya Written Submission to the International Development Committee on Disability and Development on DFID Programs
http://data.parliament.uk/writtenevidence/committeeevidence.svc/evidencedocument/international-development-committee/disability-and-development/written/5716.html
USPKenya Written Submission to the International Development Committee on Disability and Development on DFID Programs
http://data.parliament.uk/writtenevidence/committeeevidence.svc/evidencedocument/international-development-committee/disability-and-development/written/5716.html
P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
27 TH JANUARY 2014 Page 1 of 6
MEMORANDUM SUBMISSION ON DISABILITY AND DEVELOPMENT FOR THE COMMONS SELECT COMMITTEE (CSC) REGARDING THE UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
1. Users and Survivors of Psychiatry in Kenya (USP-K) is a Non-Governmental Organization (NGO) that was duly registered under the laws of Kenya on the 6 th December 2007. It is informally known as USPKenya
2. USPKenya is the only user/survivor organization in Kenya that is peer-led and peer-run by persons affected by mental health conditions (also identified as persons with psychosocial disability) and their families (Carers). USPKenya has three strategic areas of focus: a. Advocacy / Public Education and Awareness Creation through self-advocacy b. Participation in Legislation and policy issues that affect the marginalized and vulnerable group of persons with psychosocial disability guided by the general principles of the Convention on Rights for Persons with Disability (CRPD) c. Peer Support Group Initiative (Experts-by-Experience) that currently runs in 4 of the 47 counties in Kenya
3. USPKenya is aware of DFID presence and operation in Kenya of which health is one of the core areas of focus. We have not engaged DFID in any way either for funding or technical support because we have not found any points of synergy between the work we do in Mental Health and the focus of DFID Programs or Initiatives in Kenya as described in point (4) below.
4. To the best of our knowledge and recent enquiries, the key areas of focus by DFID in Kenya are as follows: a. improving maternal and reproductive health b. accelerating the fight against malaria c. increasing school access and the quality of education d. reducing vulnerability and malnutrition among Kenyas most disadvantaged e. supporting refugees, improving governance and accountability f. catalysing private sector growth to create more jobs for young people g. helping Kenya to develop green energy and adapt to a changing climate
Kangemi P.C.E.A Church compound (Off Waiyaki Way) P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
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5. Further to point (4) above, the DFID Kenya Operational Plan 2011-2015 last updated June 2013, there is no mention of Mental Health and/or Disability issues as areas that DFID would like to partner with the Civil Society on to achieve specific or general objectives and milestones.
6. It is worth noting that to the best of our knowledge with reference to the online Development Tracker tool, there is a project on mental health that was conducted in Kenya between 29 th August 2008 and 31 st March 2011, titled Respecting the Rights & Needs of Mentally Ill People CSCF450 [GB-1-114054] with an approved budget and obligation to fund GBP 275,034. project was funded centrally from London.
7. As per point (4) and (5) above with the exception of point (6) DFID programs are inaccessible to persons with mental health conditions or psychosocial disabilities in Kenya.
8. To the best of our knowledge, we are not aware of any programs from World Bank and , USAID that cater for persons with mental health conditions or psychosocial disability. AUSAID has a global focus on health and disability. It is important to note that the disability section of programs has not been extended to Kenya. Mental Health is not an area of focus on their health agenda. There was an EU project titled Strengthening the Capacity of People with Mental Disorders to hold Government to account for Mental Health and Development in Kenya. The project period, ran from 01 st February 2009 to 31 st January 2012.
9. USPKenya has received support from: a. The Wellcome Trust through Prof. Vikram Patel who was the Project Lead for EMPOWER (Empowering people with Mental Disorders to PrOmote Wider Engagement with Research) Project. The objective of the EMPOWER project was to strengthen the capacity of user organizations in sub-Saharan Africa and South Asia to utilise research findings to develop a plan for engagement with the communities they work with to improve the understanding of the nature and treatment of mental disorders and reduce the stigma associated with them. b. The Open Society Foundation(George Soros Foundation) under the Disability Rights Initiative (DRI) has supported a 1 year grant that ended last year and an on-going project for another 1.5 years on Enhancing the Rights of Persons with Psychosocial Disability Particularly. They have provided technical, capacity building, training and financial support to advance the work on the marginalized community of persons with psychosocial disability.
Kangemi P.C.E.A Church compound (Off Waiyaki Way) P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
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Recommendations 10. DFID could have a two-prong approach to the mental health and psychosocial disability (two sides of the same coin) a. Mental Health Approach i. Facilitate Access to Mental Health Services Support advocacy initiatives to lobby theKenya Government to increase funding/investment in mental health or supplement development funding to provide effective psychotropic medication in the Public Hospitals and into the clinics in the community Support the civil society with grassroot support to implement projects that increase access to mental health services Donation of basic but effective psychotropic medication especially for the poor communities through the hospitals and clinics Offer scholarships and incentives for students in universities who elect to study psychiatry i.e. doctors and nurses. This will help to increase the number of practitioners. We have an estimated 79 psychiatrists and 450 psychiatric nurses for a population of 41 million Kenyans Have a mental health awareness campaign that promotes health- seeking behavior and reduce stigma, discrimination and human rights violations ii. Facilitate reform in Mental Health Policy and Legislation Facilitate a process of negotiation G2G (Government-to- Government) of inclusion of psychotropic drugs to the National Essential Drug List Remove taxation (VAT, import, custom duty) on psychotropic/antidepressant medication There is no mental health Policy to-date. It is key to have mental health services decentralized, accessible and available to the communities both rural and urban Institute a policy change to collect statistics specific to suicide cases. Currently they are lumped together with homicides making it very difficult to establish the rate of the incidences and prevalence to provide corrective actions
Kangemi P.C.E.A Church compound (Off Waiyaki Way) P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
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Promote user representation in the mental health tribunals/boards to provide accountability and representativeness which will be part of reforming human rights abuses and objectivity of the mental health practitioners Integration of mental health into the primary health care system. Currently, mental health and physical health are managed separately Further refresher training sessions/workers for non-psychiatric doctors to manage the incidence of mental health issues that usually occur as physiological illness. It will increase better diagnostic capability of health officers and create an effective referral systems and decongest health centers. Engage with mental health professionals to distribute burden of care by task sharing and training the non-specialized medical aspects to non-medical staff. Promote task sharing whereby, the mental health professionals will supervise the training of the non-medical staff who can handle the simpler cases at point of contact and escalate the more serious issues. Examples of Non-Medical Staff are Peer workers (functional mental health users/survivors), Community Health Workers, Social Workers, Religious leaders, faith healers, traditional medicine men, village chiefs, police, prison warders etc. Prof. Vikram Mental Health Care Manual Publication Where there is No Psychiatrist. Can provide pointers on how to do this effectively
b. Psychosocial Disability Approach. Facilitate the comprehensive implementation of the the CRPD (Convention on Rights for Persons with Disability) an international human rights treaty that is ratified by UK and Kenya among other countries globally. The CRPD and other international treaties are part of Kenyas Laws as per the Constitution of Kenya 2010 (CoK2010) Article 2 (4) and (5) the (reception clauses) i. The CRPD paradigm shift should guide DFID to avoid creating specialized programs for persons with psychosocial disabilities and require that ALL development programs include various persons with psychosocial disabilities (including the other disabilities)
Kangemi P.C.E.A Church compound (Off Waiyaki Way) P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
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ii. Encourage and promote positive obligation by iii. the State of Kenya to include through the relevant DPOs (Disabled Persons Organizations) to consult and invite participation by inclusion on all other policy matters that will affect persons with disabilities (in our case psychosocial disability). This includes the national legal framework, developmental planning, budgeting and related policies
iv. DFID should also be guided by Article 32 of the CRPD on International Cooperation for development of its disability programs
v. As per point (iii) above DFID should also borrow from Article 31 of the CRPD on Statistics and Data collection to effectively promote the measurement/performance indicators for its programs which will mainstream disability in other areas of focusCapacity building, technical assistance and training of DPOs in Disability Rights to improve the overall well-being and inherent dignity of persons with psychosocial disabilities
vi. Embedding the essence of Article 12 of the CRPD in all the programs/projects by providing the relevant support and reasonable accommodation to ensure that all DFID programs are accessible to persons with psychosocial disability. Reasonable accommodation means necessary and appropriate modification and adjustment not imposing a disproportionate or undue burden where needed in a particular case, to ensure that persons with disabilities enjoy or exercise on an equal basis with others all human rights and fundamental freedoms, This coiuld be an adjustment made in a system to accommodate or make fair the same system for an individual based on established need..
vii. Facilitate the Kenya National Human Rights Commission (KNCHR) and other stakeholders in Civil Society and Government to institute a Legal Capacity Framework.
viii. Integrate the CRPD in all intersecting areas of operation of DFID for persons with psychosocial disabilities.
Kangemi P.C.E.A Church compound (Off Waiyaki Way) P.O. Box 10071 00100 Nairobi Kenya Tel. No.: +254 722 884565 Email: info@uspkenya.com Website: www.uspkenya.com Users and Survivors of Psychiatry in Kenya
CEOs Office Mobile: +254 723664177 Email: kanyi.gikonyo@uspkenya.com Website: www.uspkenya.com USPKENYA REGISTERED IN 2007 UNDER NGO COORDINATION BOARD REGISTRATION NUMBER OP. 218/051/2007/0456/4848
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ix. Those are some of the recommendations that USPKenya would like to put forward for now on Mental Health and Disability programs that DFID should consider in its future projects and operations in Kenya; which are applicable to most African countries but should be piloted. The UK has strong links to Kenya not just Politically but Economically as well. If DFID could use its influence as Government and to their Private Sector operating in Kenya. They could help advance some or most of the ideas that they consider critical to the development agenda for persons with mental health conditions and psychosocial disabilities.