Professional Documents
Culture Documents
GROWING UP I consider myself to have been fortunate in some ways because I grew up with Dads MS from a young age. As I became older, it was just part of life. Caring still has its challenges though, one of which is trying to find a balance from each day to the next. An important thing that I have learned is that with MS it is hard to make and keep plans that have been pre-arranged. FINDING BALANCE Sometimes life can seem like a roller coaster, with things going well one day and everything (social life, college and home) being balanced. Then suddenly Dad becomes unwell, reality hits and he needs help and support. Sometimes it can be hard to remain optimistic, however, it is key to acknowledge that to remain both true to yourself and be a carer is to recognise that they are one and the same. HAPPY MEDIUM Life is, and will probably carry on being, a challenge. Curve balls can be thrown your way, however, in my experience how a carer approaches each challenge or task is fundamental to finding a happy medium in your life
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Caring can be a tough job, however, there is a wealth of support available, from home help to respite breaks to financial aid. The MS Societys website has a whole section dedicated to caring, including a section for young carers (those who are under 18 years old). For more information, the following websites are useful: http://www.mssociety.org.uk/mssupport/for-carers http://www.nhs.uk/carersdirect/Pag es/CarersDirectHome.aspx http://www.carersuk.org/help-andadvice You can also call the MS Societys helpline, if you need to chat with someone: 0808 800 8000. Theres an update on the success of Carers Week on p.13 FUNDRAISING FOR ASIAN MS If you are interested in fundraising for Asian MS, please contact our fundraising officer, Mukesh Jethwa on asianms@mssociety.org.uk We rely on donations to keep going so if you know of someone wanting to raise money for charity, why not suggest that they fundraise for Asian MS? There are further details in this newsletter about how to make a donation and what the money is needed for.
Page 2
Were now on Scribd! Asian MS is currently in the process of uploading all past editions of the newsletter to the document-sharing website Scribd. You can share the public links for each of the newsletters so that your friends and family are able to read them too. You can view the newsletters via the following link: http://www.scribd.com/AsianMS_Suppor tGroup
Deadline for the next edition of the newsletter is 1st December 2013. Please send your stories, links, photos and news to asianms@mssociety.org.uk
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
CONTENTS
-Finding Balance A Carers Perspective.p.12 -A message from the Editor.p.3 -Meet the Asian MS Finalists of the MS Society Awards 2013.p.4-6 - Members News.p.7 -An MSer moving abroad..p.8-10 -Holidaying with MS.p.10-12 -News and Happenings..p.13-16
Page 3
-Dates for your diary.p.17 -Get involved in projects and research. p.18-21 -Spotlight on Research and Researchers.p.22 -Recipe from Lubna.p.23 -General Information.p.24 -Latest Research & MS in the News.p.25 -Fundraising for Asian MS..p.26 -General Information..p.27
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Raising Awareness among Asians and the Young Trishna aims to give power through knowledge
~By Manisha Chandarana and Anisha Gangotra
Asian MS member and Newsletter Editor, loss of strength in her hands, numbness in Trishna, has her limbs, the MS Hug and pins and been shortlisted as a finalist in the After her diagnosis, she set about doing something that she is well-versed in from needles.
the Year
information gathering. A strong believer that knowledge is power, she wanted to find out as much as possible about MS. This led her into contact with various voluntary, charitable and other organisations, of which she has become an active part. These include the MS Society (via her local branch and Asian MS), Shift.MS, and the Barts & The London neurology team (aka Team G). She realised that she could also help others by disseminating general information, as well as sharing her own experiences, to encourage a better understanding of the illness.
category for the MS Society Awards 2013. As her sisters, we were extremely proud when we heard the news and couldnt think of anyone more deserving, given the amount of time and effort she has spent in raising awareness about MS within the Asian community and among young people.
She was diagnosed with Relapsing Remitting MS in 2008, at the age of 28, after experiencing a number of symptoms for around 4-5 years, which included a
Page 4
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
She focused on young people and the Asian community, two sections of the population where there was a gap in terms of providing easy-to-understand information about MS. As well as becoming the editor of the Asian MS quarterly newsletter (which she has developed after it was started by Mukesh Jethwa,
Trishna speaking at a training event for pharmaceutical firm Genzyme in Oxford
Our sister is never one to actively seek the limelight, so were so pleased that shes had this opportunity to be recognised for the effort she puts in to her work with MS. We wish her all the luck in the world in the Awards Ceremony on 17th October!
Officer), she has written online articles, spoken at national and local information events, and regularly talks at preceptorships, which are educational workshops for pharmaceutical company employees to help them understand more about MS.
Her hard work was recognised by people from Asian MS, healthcare professionals, community organisations, friends and
family, and as a result she was nominated in film making. and endorsed for an MS Society Award. His father, Himanshu Raja, told me that Priyal has overcome many disabling symptoms and remained
Page 5
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
focused on the task in hand. As a child he would always work hard at school despite missing many days because of ill health. He completed GCSEs and A-Levels through sheer determination and hard work. His Headmaster at Trinity School in Belvedere , Kent, described him as hugely popular and one of the best head boys the school had ever had! Priyal has helped many fellow pupils also affected by chronic illnesses to always look on the bright side of life! It is a message he continuously promotes. After school, he was offered a job by Kismet Radio, who invited him to be a Bollywood correspondent, with a regular slot on Saturdays. Now he could combine his love of communicating as a journalist with another great interest - Bollywood! In September 2011 Priyal commenced his University degree in Film Production. At the same time he wrote for an online Asian
Priyal interviewing the iconic Amitabh Bhachchan
Eager to make his own mark, Priyal contacted the MS Society and Asian MS, as he was keen to make a documentary about life with MS. The project was completed earlier this year and is entitled Coping with MS. It stars Sanjay Chadha and Shiv Sharma of Asian MS fame. You can watch it here: http://www.youtube.com/watch?v=f6zV8uzbH70. It has already received some 6,000 hits and is certainly a very moving and sensitive piece. This positive approach to life and MS is inspiring in one so young and his father commented that "If we are having a bad day, it is Priyal we all turn to. He makes us feel better." He is able to lift the spirits of family and friends of all age groups. Priyal has helped to spread the word about MS in his local community in Kent, nationally via his links to Asian MS, and on an
On the set of Satyagraha with actor Arjun Rampal
His can do attitude and natural charisma makes him a great role model for youngsters and adults alike. He encourages us all to follow our dreams no matter what obstacles come our way.
Priyal has been shortlisted for the MS Society Young Person of the Year Award 2013
Blitz. He was frequently out and about at red carpet events, rubbing shoulders with A-list Bollywood actors. He eventually met Prakash Jha and joined the production team of Satyagraha for three months in India. Priyal had to keep pinching himself.
Page 6
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
MEMBERS NEWS
Congratulations Ram and Deepthi!
Asian MS would like to offer big and
Amas Bansal, a member of Asian MS since 2012, was shortlisted for the final judging round of The heartfelt congratulations to long-standing National Open Art Competition, a UK-wide Asian MS member competition that is open to all disciplines of art. Amas is a part-time graphite pencil artist and Sreeram was short-listed with his drawing Girl on a Ramagopalan (Dr. Motorcycle, which references a still of actress Ram) who got married Marianne Faithfull, as seen in the film of the same this summer. His name. It was his most ambitious piece of work to date and it was a great honour to have been wedding, which was shortlisted. Asian MS would like to say well done for attended by some getting to that stage of the competition! Amas members of Asian MS, became a member of Asian MS after attending the Annual Meeting in Maidenhead in 2012, which he was a spectacular was invited to by a friend who is a member. If you event in Madurai in would like to see more of Amas work or youre southern India Ram interested in commissioning a piece you can find him on Facebook: even arrived on an elephant! Asian MS would like to wish him and his new wife Deepthi all the best as they embark on their new life together and we look forward to welcoming Deepthi into our fold soon! https://www.facebook.com/AmasBansalArtist?fr ef=ts
Page 7
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
So, after It put our minds at rest having spent and after considering a several host of other factors, we weeks finally decided to move! working out that my healthcare costs weren't going to send us broke, we then set about researching doctors and medical facilities. We were lucky enough to be put in touch with a consultant who came through So, when deciding whether to move to contacts from Team G at Bart's & The Switzerland, researching the healthcare London. He willingly agreed to meet us system was an important task. The first informally when we were visiting what big difference is that the system is fully could be our future home in a fact-finding funded by health insurance. Everyone trip and he spent half an hour showing us has to buy a basic insurance policy which the facilities and talking us through the covers most conditions and standard level of care we should expect. medication. You can then increase your level of cover to semi-private or fully private (which in general terms covers some non-standard medication and the type of ward you are in during in-patient hospital stays). MS and standard medication is part of the basic cover, for example, but Vitamin D on prescription is part of the upgrade which has an added cost structure.
Page 8
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
My first real experience of the healthcare system was the week I arrived. I had brought some medication with me, but after taking out three different injections and all of them not 'looking quite right', I came to the conclusion that they hadn't travelled well from the UK. So I emailed the neurologist I'd met on the previous occasion, in the hope he still remembered me, as a number of months had already passed. He did, and after listening to my predicament, he booked an appointment to see him 2 days later. That's when I really came to see just how efficient the Swiss medical system is. I was given a very thorough neurological exam and then after looking at my medical files, which I'd brought over with me, they sorted out getting a new batch of medication to me straight away. The medication ordering line would have usually shut by the time I had my appointment, but the MS nurse at the hospital had called them and asked if they could They spoke perfect stay late in English and everything order to talk ran like clockwork me through the ordering process. My medication arrived the next morning and since then, I've never had a problem ordering more. I call them up a few days in advance, and they'll send out new medication, plasters, alcohol wipes and sharps bins (the latter three being complimentary) to arrive within the allotted time they have given me (they have never yet been late - must be a Swiss thing!).
Page 9
So after settling into our new home, time flew by and I was already ready to have my annual check-up and MRI. MRIs here are done yearly unless you opt out. Yes, seriously. My scans were done over a period of two days - one day I had with/without contrast for my spine and the next day I had with/without contrast for my brain. My appointment with the neurologist was a week later - which was a nice surprise as I did not have to wait for weeks or months to get my results.
The whole consultation took an hour. I spent 30 minutes with the registrar, going through my full medical history, my current state of health (all of which was being plotted on a computer graph to track my progress) and a comprehensive and thorough neurological exam. I then had 30 minutes with a senior consultant, who discussed my health with the registrar and answered all my questions. A copy of my MRI scan on disk was promised to me (which arrived the very next day in the post) as was a copy of all my blood test results and a write-up of the appointment (a full three page report plus test results arrived in the post a few weeks later - albeit in German. Google Translate anyone?!).
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
A follow-up appointment was booked for me for six months time, repeat prescriptions were written for Vitamin D and paracetamol, and I was sent on my way feeling cared for and looked after! So in summary, my experience so far has been excellent. Don't get me wrong, the insurance is expensive (as is everything in Switzerland!) but as a result, doctors have an incentive to make sure their patients are well cared for, otherwise it's easy for a patient to just find another doctor. I have found the system efficient and well-organised, and my lack of German has not been a problem at all with most people speaking a very good level of English. There is much more of a 'take control of your own health' approach here, which I think stems from the fact the payment of healthcare is very visible. People are encouraged to seek help I hope that I continue to when have such a positive needed, but not to experience in the future! abuse the system as this will obviously cost the patient money. Have the Swiss got it right? Well from what I've seen in the short time I've been here, it seems to work well for them.
Page 10
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
We chose the Rhodes Island Ixia resort and stayed at the Sheraton on a half board basis, which included a buffet dinner every evening. Given it is a very large international hotel with up to 2,000 guests and at least 800 staff, it was very quiet and the excellent service was unobtrusive. The hotel was perfect for my needs as, having to use a walking stick often and being very easily fatigued, it was useful that the hotel had wide corridors and lift service to all floors. The hotel had good swimming pools, balconies with excellent views if you wished to just sit and read during the day, or in the evening you could sit in the Lounge Bar on the 6th floor to watch a spectacular sunset whilst having a coffee after dinner - we could even see towards Marmaris in Turkey which was just across the coast from the terrace!
As I didnt wish to join organised tours, the hotel/travel agent representative was able to organise taxi tours to suit our timings. We visited many places of interest including one If you are thinking about going on holiday but have of the Worlds Seven Ancient Wonders; the accessibility needs, there is a wealth of information and support available online to help you plan your Colossus of Rhodes on the outskirts of Rhodes trip. A good source of information is: Town. The town is divided into two sections: the Old Town being the medieval part with many http://www.disabledholidayinfo.org.uk/index.htm museums and cafes; the New Town being the Even if you dont have accessibility needs, travelling modern side, which was great for gift shopping when you have MS does often need some extra and had good cafes and restaurants too. planning. If you are flying with medications, make We had a marvelous holiday in Rhodes and would certainly recommend it to our friends and family, whether you have someone with MS in your party or not!
Page 11
sure you inform the airline beforehand and carry a letter from your neurologist/MS nurse. A bit of forward planning will help to make your holiday hassle-free!
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Financial support for short breaks The MS Societys Short Breaks and Activities Fund can provide grants towards the costs associated with short breaks and holidays with care. To find out more and to apply, please contact the Grants Team on 020 8438 0700 or grants@mssociety.org.uk
Page 12
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
The code has to be clearly written on the over 10,000 local events took place across the UK catalogue order form, entered at the online check-out via the MS millions of people were reached through Facebook Society website, or quoted and Twitter over the telephone, and it media coverage included newspaper, magazine, must be used at the time of radio and television features in all four nations placing the order. The code is already live some of which carried MS case studies and is valid until 31 January 2014.
MS carers challenged the Minister for Care and Support, Norman Lamb MP, at a speed networking event in Westminster
If you are a member of the MS Society, you will receive a catalogue in the post. Otherwise, you can access it online via http://www.mssocietyshop.co.uk There is a range of gifts available, from cards to wrapping paper to jewellery. So please help us to continue raising funds and supporting MS causes when youre thinking about your purchases for the festive season!
A number of MS Society branches also got involved in Carers Week by running social meet-ups for carers, information stands and collection days, and joining up with local carers services at exhibitions and other local events.
Page 13
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
There was also an MS Spa, the Wheel & Walk fundraising event (in which Asian MS supporters participated) and live cookery demonstrations. If you are able to help out on the Asian MS stand at all, then please contact Vinnie Kochhar on asianms@mssociety.org.uk You dont need to be a committee member to help out last year we were lucky to have Asian MS supporters from all over helping us and in 2014 we will need just as much help!
departments, hear updates on their areas of work research looks at cognitive change measurement,
To find out more and see a full list of the new projects, with further details, visit: http://www.mssociety.org.uk/msnews/2013/09/ms-society-announces%C2%A321-million-new-research
Page 16
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
MS Life 2014
MS Life 2014 will take place at the Manchester Central Convention Complex from 10am on 26th April 2014 until 5pm on 27th April. Booking for MS Life 2014 will open in October 2013. For more information, suggestions or to be kept up to date with MS Life developments please email mslife@mssociety.org.uk Please also see p.14 for more details.
Please keep your eyes peeled for information about an upcoming social that we will be planning in London. Many of you have been asking when our next event will be and wed like to reassure you that it is being planned imminently!
Page 17
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
A CHANCE TO GET INVOLVED HELP THE MS SOCIETY TO WIN POTENTIAL FUNDING OF 50k!
The Vote that Counts is a free campaign that is being run in partnership with The Daily Mirror, Peoples Postcode Trust, and Peoples Postcode Lottery. There is a funding pot of 100,000 available and nine charities are competing to win a share. The top
There are also a small number of pilot sites that are prize is 50,000, while four runners-up will each collecting clinical information: Royal Victoria receive 10,000. In addition, once you have voted, Hospital, Belfast; Western General Hospital, Edinburgh; St. Marys Hospital, London; Queens you can nominate a local charity to potentially win Medical Centre, Nottingham; and Morriston 10,000. Its very simple the charity with the Hospital, Swansea. most votes at the end of the campaign wins. http://www.ukmsregister.org st Voting closes at 5pm on 21 October 2013 and it wont cost you a penny. Voting takes place online at: www.votethatcounts.org This is such a quick, simple and easy way of helping the MS Society to potentially receive a substantial amount of funding. So please visit the site, tell your friends, advertise on your social networking sites and help the MS Society to get one step closer to winning that top prize!
KEEP YOUR EYE OUT! The MS Society maintains a list of research studies and clinical trials that are currently recruiting participants. If you are interested please go to: http://www.mssociety.org.u k/ms-research/get-involvedin-research
Page 18
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
PSSST... HEARD ONLINE... Topics being discussed on the Asian MS Facebook Group include: How to deal with naughty legs, The implications of fasting when you have MS (in connection with Ramadan), The InspirAbility project, Stigma of MS in the UAE, How to cope in the heat and Going on holiday with MS. You can join the discussion at:
https://www.facebook.com/groups/24164 02103/
Page 19
For more information visit: http://www.mssociety.org.uk/mssupport/for-professionals/courses-andlearning-events/elearning-module or contact the MS Societys education department for a flyer.
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
This study, being conducted by the University of Manchester, looks into This study, being run by the University of possible hearing Oxford, aims to discover whether or not deficits in people with carers of people with MS consider information MS. A comparison will websites to be of use and how to best supply be made between the relevant information on the internet. Of results from people with MS and people with communication disorders, to particular interest is whether carers can feel determine whether communication disorders are more supported through online information linked to demyelination in the brains auditory being available. (hearing) system.
Participants will need to complete various online questionnaires, taking around 10 minutes, and then look at a website that will be available for 2 weeks. Another set of questionnaires will then need to be filled out and then participants will be asked to attend an interview with a researcher. To be eligible, you must be over 18 years old, live in England, have access to the internet and an email address, and provide care for someone who has been diagnosed with MS. The study runs between June 2013 and May 2014. To find out more information, please contact Ally Naughten (EXPERT Trial Manager) at expert@phc.ox.ac.uk
Participants will undergo four short hearing assessments to determine whether their hearing is normal. Then, four electrodes will be fitted one at the nape of the neck, one behind the ear and two on the forehead. It is painless and harmless. Participants will then have to lie still (or sleep) for 90 minutes whilst listening to some sounds in their right ear. Only one visit is required, which will last for up to 2.5 hours. To participate, you must be diagnosed with MS, be over 18 years old, have no other neurological problems and have normal hearing. The study is particularly looking to recruit people who have symptoms that include tremors/shaking, a lack of coordination, slurred speech, blurred vision and/or dizziness. The study runs from July 2013 until July 2014 and travel expenses can be reimbursed. To find out more, please contact Anna Terry at anna.terry@postgrad.manchester.ac.uk or on 0161-2753507.
Page 20
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
A CHANCE TO GET INVOLVED Understanding more about interactions and identity in MS This study, being run by the University of Exeter, aims to discover how people with MS express and view their identity when communicating with people from different backgrounds. The study researchers want to see how people with MS view other people with disabilities, as well as themselves. The study will also look at peoples general health and wellbeing, and also their ability and willingness to access support. Participants will have to complete an online survey. It should take around 15 minutes to complete and involves rating various statements about interacting with different people, views about identity, general health and help-seeking behaviour. Anyone with MS who personally believes that they have a physical disability can participate, as long as they are also over 16 years old. The study runs from August 2013 until December 2013. To find out more information please contact Stuart Read at sar212@exeter.ac.uk
MS and Motherhood This study is being conducted by the University of Hull and looks to improve the understanding of women with MS and their decision-making process when deciding whether or not to have a child. Participants will be interviewed, which will be audio recorded. It should last for around one hour. It will include questions about the decision-making process linked to having children or not, after being diagnosed with MS. Participants must be female, over 18 years old, have a diagnosis of MS, have made a decision to have/not have children postdiagnosis, and must be able to speak English. The study runs from June 2013 until October 2013 and is being undertaken in the Derbyshire, Lincolnshire, Doncaster, York and Hull regions. It can take place at a venue that the participant chooses i.e. their home or at the University of Hull. To find out more, please contact Hannah Marklew at h.marklew@2008.hull.ac.uk or on 07847078508.
Page 21
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Shift.ms is a social network run by its users where young MSers meet, share experiences, and support each other
Page 22
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Would you be interested in becoming a regional contact for Asian MS? Wed love to hear from you as we want to build a network of support for Asian MSers around the country. Please contact us at asianms@mssociety.org.uk for further information.
Page 23
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
General Information
Financial assistance Grants fund name change From September 2013, the National Grants Fund (in England, Northern Ireland and Wales) will be called the Individual Support Grants Fund. The key elements of the fund remain the same. Applications should, in PUBLICATIONS For a list of all the MS Societys key publications showing the latest editions and revisions visit the website: www.mssociety.org.uk/msresources/key-publications or call 0300 1000 801.
the first instance, be sent to an applicants local branch To contact the MS Society Information Team: Email infoteam@mssociety.org.uk for consideration. If the branch is or call 020 8438 0799 (weekdays 9amunable to fund the request in full, the application can 4pm) be sent to either the grants team at MS National Centre for applicants living in England, Northern Ireland and Wales; or the Grants Officer in Edinburgh for applicants living in Scotland. The funding criteria and upper limits remain the same. Updated application forms To incorporate the many changes to the benefits system across the UK, the Individual Support Grants fund and the Short Breaks & Activities Fund application forms have been updated Find out more from the Grants Team on 020 8438 0700 or grants@mssociety.org.uk or visit the grants pages on the website. If you live in Scotland, please call 0131 335 4050 or email grantsscotland@mssociety.org.uk Emotional support The MS Helpline is available to give free and confidential advice and support to anyone affected by MS from 9am-9pm, Monday-Friday. The helpline number is freephone 0808 800 8000. Please specify if you would like to speak with someone from Asian MS and you will be directed to one of our support officers. *********************************** If you would like a copy of the MS Societys latest MS booklet, which has been translated into 12 languages including Bengali, Farsi, Gujarati, Hindi, Punjabi & Urdu, please contact Saher Usmani on 0208 438 0856 or susmani@mssociety.org.uk
They are also available on USB stick for a small fee.
***********************************
Page 24
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Filmmaker documents his journey http://www.theguardian.com/lifeandstyle/2013/sep/16/exerc with MS ise-fitness-disability-multiple-sclerosis http://www.vancourier.com/filmmake Stigma of multiple sclerosis is endangering lives in the r-documents-his-journey-with-msUAE 1.636642 www.thenational.ae/news/uae-news/health/stigma-ofPrevalence of MS in UK multiple-sclerosis-is-endangering-lives-in-the-uae http://multiple-sclerosisFirstWord Lists: Leading MS products in 2012 and 2018 research.blogspot.co.uk/2013/09/pre is Biogen Idec building an unassailable dominance? valence-of-ms-in-uk.html http://www.firstwordpharma.com/print/1135574?tsid=17 Fatigue and exercise First Direct Measurement of Spinal Cord Myelin in Multiple http://multiple-sclerosisSclerosis research.blogspot.co.uk/2013/09/fati http://www.sciencedaily.com/releases/2013/09/1309231238 gue-and25.htm?utm_source=feedburner&utm_medium=feed&utm_ exercise.html?utm_source=feedburn campaign=Feed%3A+sciencedaily%2Fhealth_medicine%2 er&utm_medium=email&utm_campa Fmedical_devices+%28ScienceDaily%3A+Medical+Device ign=Feed:+blogspot/WvYVL+%28Mu ltiple+Sclerosis+Research%29 s+News%29 Serious delays in diagnosis of Alzheimers, Parkinsons and MS http://mtbeurope.info/news/2013/1309023.htm MS care changes reduce missed appointments http://www.bbc.co.uk/news/ukengland-devon-23846548
Page 25
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070
Asian MS are proud to announce that they now have the facilities to allow people to make donations in an easier and quicker way.
You can also raise funds every time you shop through EasyFundraising:
http://www.easyfundraising.org.uk/causes/asianms
Useful Information
General and Membership Enquiries: asianms@mssociety.org.uk Website: http://www.mssociety.org.uk/ms-support/support-groups/asian-ms Facebook: http://www.facebook.com/AsiansWithMS Twitter: http://twitter.com/AsianswithMS Saher Usmani, MS Society Support Groups Officer (please contact for hard copies of this newsletter and MS information booklets in different languages): 0208 438 0856 or susmani@mssociety.org.uk
Asian MS is a national support group for Asians with MS, their carers, friends and family. We seek to increase awareness and dispel ignorance of MS in the Asian community, as well as put fun and dignity into the lives of Asians with MS and their carers. We also raise money for people affected by MS within the Asian community. We produce online and printed information in various languages and offer an interpreting service. Vinnie Kochhar Chair Shiv - Treasurer Trishna Newsletter Editor Mukesh - Fundraising Officer Rani - Publicity Officer/Support Officer
MS Society Website: http://www.mssociety.org.uk MS Society Helpline: 0808 800 8000 Asian MS JustGiving: www.justgiving.com/AsianMS MS Register: www.ukmsregister.org MS Trust (charity that provides information about MS): http://www.mstrust.org.uk/ MS Therapy Centres: http://www.msntc.org.uk/ Shift.ms (an online community for younger MSers): http://www.shift.ms/index.php MS Research Blog (run by Barts & The London Neuroimmunology Group): http://multiple-sclerosis-research.blogspot.com
Page 27
Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales (07451571) TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070