Order Form/List of Literature and Information

Available from The Neurofibromatosis Association

All information is provided free of charge. A small donation towards postage and packaging would be
appreciated.

Please return the order form to: The Neurofibromatosis Association

Quayside House
38 High Street
Kingston on Thames
Surrey KT1 1HL

Tel: 020 8439 1234 Fax: 020 8439 1200 E-mail: info@nfauk.org

Name: _______________________________________ Profession: _________________________

Address: _________________________________________________________________________

________________________________________________________________________________

Post Code: __________________ Telephone No: ________________________________________

Neurofibromatosis Type 1 Neurofibromatosis Type 2

Clinical guidelines for the management of individuals with Neurofibromatosis Type 2
Neurofibromatosis 1 (for professionals only) Information for patients and professionals (booklet)
Neurofibromatosis Type 1 (Nf1) – A guide for families Neurofibromatosis Type 2
who have a diagnosis of Nf1 (new) Information for patients (booklet)
The newly diagnosed child with Neurofibromatosis Communication and Nf2
Type 1 (Nf1) – a guide for parents (new)
The child with Neurofibromatosis – a guide for health Coping with fatigue in Nf2
care professionals
Talking to children about Neurofibromatosis Help with speech difficulties in Nf2
Nf1 – Information for teachers Stereotactic radiosurgery and radiotherapy for Nf2
vestibular Schwannomas
‘Achieving in spite of …’ The auditory brainstem implant (ABI)
(a booklet on specific learning difficulties)
Examples of the problems experienced by some Information on the LINK Centre for deafened people
children with Nf1 and learning difficulties
Challenging behaviour The hearing therapist
Developmental co-ordination disorder Tinnitus
Disorders of bonegrowth and soft tissue Understanding balance in Nf2
changes
Congenital pseudarthrosis
Nf1 and scoliosis Factsheets covering both Nf1 and Nf2
‘Polly’s best friend’ by Gina Malyon Membership information
(for girls under 10)
‘The winning goal’ by Gina Malyon The role of the Nf Specialist Advisor
(for boys under 10)
How to get the best out of your health professional
Pain management
Newsletters The CT scan
Winter 05 - 06 The MRI scan
Spring 06 The PET scan
Summer 06

Annual Report

Please write number of copies required in the box next to the title.