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    Activities for the Family Caregiver ��� Parkinson's Disease: How to Engage / How to Live
    Activities for the Family Caregiver ��� Parkinson's Disease: How to Engage / How to Live
    Activities for the Family Caregiver ��� Parkinson's Disease: How to Engage / How to Live
    Ebook87 pages53 minutes

    Activities for the Family Caregiver ��� Parkinson's Disease: How to Engage / How to Live

    By Scott Silknitter, Dawn Worsley and Robert D. Brennan

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    About this ebook

    A follow up to “Activities 101 for the Family Caregiver – Parkinson’s Disease,” our latest book for caregivers of those with Parkinson’s disease is a unique, one-of-a-kind book that blends information on leisure and daily living activities. “Activities for the Family Caregiver – Parkinson's Disease: How to Engage / How to Live” offers information and insight to enhance quality of life through improved social interactions as well as activities of daily living, safety and general caregiver information. Learn new communication and activity strategies to improve time spent with your loved one. Gain new insight as you learn the “how to’s,” “why’s,” and techniques of activities – daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy.

    Written by nationally recognized leaders in activities for those with cognitive disabilities, “Activities for the Family Caregiver – Parkinson's Disease: How to Engage / How to Live” provides much-needed information to address the unique social needs of those with Parkinson's disease and those who care for them.

    “Activities for the Family Caregiver – Parkinson's Disease: How to Engage / How to Live” is just one book in a series of books from R.O.S. Therapy Systems. Whether it is Alzheimer’s, Parkinson’s, stroke, traumatic brain injury or some other issue, R.O.S. is here to help improve quality of life for not only the patient but also the caregiver. The Activities for the Family Caregiver book series embodies the mission of R.O.S. Therapy Systems: To improve quality of life for seniors and their caregivers through activities and education. Each book in the series was written by industry experts related to the specific topic covered and is filled with valuable information and common sense tips to help families and caregivers engage their loved one in meaningful activities.

    R.O.S. Therapy Systems was founded by inventor, author and speaker Scott Silknitter of Greensboro, NC, in 2010 as a project to help his mother and father in a 25-year battle with Parkinson’s disease and dementia. For more information about Scott or the R.O.S. family of companies, please visit www.ROSTherapySystems.com or contact us at 888-352-9788.
    LanguageEnglish
    PublishereBookPartnership
    Release dateJun 1, 2015
    ISBN9781943285051
    Activities for the Family Caregiver ��� Parkinson's Disease: How to Engage / How to Live

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      Book preview

      Activities for the Family Caregiver ��� Parkinson's Disease - Scott Silknitter

      Authors

      Chapter 1

      Parkinson’s Disease Overview

      Parkinson’s disease affects the way you move. It happens when there is a problem with certain nerve cells in the brain.

      Normally, these nerve cells make a chemical called dopamine that sends signals to the part of your brain that controls movement. Dopamine lets your muscles move smoothly and do what you want them to do. When you have Parkinson’s, these nerve cells break down, your body’s dopamine production slows, and you have trouble moving the way you want to move.

      Parkinson’s is progressive, meaning it gets worse over time, and it affects every individual differently. The progression can happen slowly over many years or faster in a shorter period of time. Initially there will be small changes in your loved one, but they will be able to function fairly independently. As the disease progresses, they will need more and more assistance. As a caregiver, you will see firsthand what is happening, how it affects your loved one, and what needs to be done. You must help your loved one adjust accordingly.

      Below is an adaptation from the Family Caregiver Alliance® of the Hoehn and Yahr scale which gives a good overview of the stages of Parkinson’s that caregivers must be aware of in order to adjust the assistance to be given and activities to be planned for their loved one.

      Family Caregiver Alliance® Adaptation of Hoehn and Yahr Scale

      Symptoms Prior to Diagnosis

      Symptoms include depression, anxiety, fatigue, disturbance of color vision, constipation, loss of smell acuity, problems with sleep, and slowed thinking.

      Stage 1

      Motor symptoms develop on one side of the body.

      Stage 2

      Symptoms spread to both sides of the body.

      Stage 3

      Balance starts to become impaired.

      Stage 4

      More difficulty develops with gait, freezing or small, fast steps.

      More problems that affect the center or midline of the body develop, e.g., difficulty with swallowing and balance, and increased nonmotor problems.

      Stage 5

      Inability to locomote independently results in dependency on a wheelchair or other mobility device.

      Patience is a virtue. As the primary caregiver, your patience will be tested, especially if you are tired or are in a stressful situation. With the progression of the disease, your loved one may need more time to accomplish tasks. Be patient and give your loved one the opportunity to be successful no matter the task. Make sure that all caregivers for your loved one understand that as well. There will be a point when caregivers have to step in and assist in almost every task, but until that happens, give your loved one a chance to be successful and maintain self-confidence.

      As the primary family caregiver – husband, wife, son or daughter – your relationship and role with your loved one will change along with the progression of the disease. You will become the cheerleader, motivator, protector, activity director, social coordinator, nurse, and maybe even parent to your loved one. You must prepare yourself for this role as much as possible.

      With activities based on personal preference and ability, people with Parkinson’s can still live a full life. One of the keys to living a full life is to engage in active activities such as walking, dancing, gardening, tai chi, yoga, or even folding laundry to keep the body active. It is also important to engage in mindful, creative and social activities, such as playing cards, working crossword puzzles, playing checkers, talking with friends, painting, listening to music, or playing trivia games, to keep the mind and parts of the body active. Use it or lose it, as the saying goes.

      There are four main symptoms of Parkinson’s. You and your loved one may initially notice just one. The symptoms are:

      Tremor, which means shaking or trembling. Tremor may affect your hands, arms or legs.

      Stiff muscles

      Slow movement

      Problems with balance or walking.

      Again, Parkinson’s disease affects each individual differently. For example, many people experience a tremor, while others might not have tremors, but might have problems with balance.

      In time, Parkinson’s will affect muscles throughout your loved one’s body. As this happens, you will need to adjust the time necessary or the tools used to allow your loved one to participate in an activity.

      As the primary family caregiver, you need to know and understand the various symptoms of Parkinson’s so that you can adjust schedules, levels of participation, and the time it takes to participate accordingly. You will also need to educate family, friends and other caregivers about what your

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